Development of National Newborn Screening Quality Indicators in the United States

Yusuf, Careema; Sontag, Marci K.; Miller, Joshua; Kellar-Guenther, Yvonne; McKasson, Sarah; Shone, Scott; Singh, Sikha; Ojodu, Jelili

doi:10.3390/ijns5030034

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Development of National Newborn Screening Quality Indicators in the United States

Careema Yusuf

^1,*

Marci K. Sontag

^2,3

Joshua Miller

²,

Yvonne Kellar-Guenther

^2,3

⁴

¹ and

Association of Public Health Laboratories, Silver Spring, MD 20910, USA

Center for Public Health Innovation at CI International, Littleton, CO 80120, USA

Colorado School of Public Health, University of Colorado, Anschutz Medical Campus. Aurora, CO 80045, USA

⁴

RTI International, Research Triangle Park, NC 27709, USA

Author to whom correspondence should be addressed.

Int. J. Neonatal Screen. 2019, 5(3), 34; https://doi.org/10.3390/ijns5030034

Received: 15 August 2019 / Revised: 4 September 2019 / Accepted: 7 September 2019 / Published: 12 September 2019

(This article belongs to the Special Issue Newborn Screening: Promoting Quality to Optimise Benefit and Reduce Harm)

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Abstract

Newborn screening is a public health program facilitated by state public health departments with the goal of improving the health of affected newborns throughout the country. Experts in the newborn screening community established a panel of eight quality indicators (QIs) to track quality practices within and across the United States newborn screening system. The indicators were developed following iterative refinement, consensus building, and evaluation. The Newborn Screening Technical assistance and Evaluation Program (NewSTEPs) implemented a national data repository in 2013 that captures the quality improvement metrics from each state. The QIs span the newborn screening process from collection of a dried blood spot through medical intervention for a screened condition. These data are collected and analyzed to support data-driven outcome assessments and tracking performance to improve the quality of the newborn screening system. View Full-Text

Keywords: newborn screening; consensus building; performance measures; quality improvement; quality indicators

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MDPI and ACS Style

Yusuf, C.; Sontag, M.K.; Miller, J.; Kellar-Guenther, Y.; McKasson, S.; Shone, S.; Singh, S.; Ojodu, J. Development of National Newborn Screening Quality Indicators in the United States. Int. J. Neonatal Screen. 2019, 5, 34. https://doi.org/10.3390/ijns5030034

AMA Style

Yusuf C, Sontag MK, Miller J, Kellar-Guenther Y, McKasson S, Shone S, Singh S, Ojodu J. Development of National Newborn Screening Quality Indicators in the United States. International Journal of Neonatal Screening. 2019; 5(3):34. https://doi.org/10.3390/ijns5030034

Chicago/Turabian Style

Yusuf, Careema, Marci K. Sontag, Joshua Miller, Yvonne Kellar-Guenther, Sarah McKasson, Scott Shone, Sikha Singh, and Jelili Ojodu. 2019. "Development of National Newborn Screening Quality Indicators in the United States" International Journal of Neonatal Screening 5, no. 3: 34. https://doi.org/10.3390/ijns5030034

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