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Article

Development of the Dutch Structure for Integrated Children’s Palliative Care

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Dutch Knowledge Centre for Children’s Palliative Care, Mercatorlaan 1200, 3528 BL Utrecht, The Netherlands
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Princess Maxima Centre for Pediatric Oncology, Heidelberglaaan 25, 3584 CS Utrecht, The Netherlands
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Beatrix Children’s Hospital, University Hospital Groningen, Hanzeplein 1, 9713 GZ Groningen, The Netherlands
*
Author to whom correspondence should be addressed.
Academic Editor: Boris Zernikow
Children 2021, 8(9), 741; https://doi.org/10.3390/children8090741
Received: 26 June 2021 / Revised: 4 August 2021 / Accepted: 25 August 2021 / Published: 27 August 2021
(This article belongs to the Special Issue Palliative Care for Childhood Cancer)
Children’s palliative care (CPC) is gaining attention worldwide, facilitated by the exchange of knowledge during regular specialised congresses. This article describes the developments in the Netherlands over the past 15 years. The Foundation for Children’s Palliative Expertise (PAL) was established as a nationwide initiative committed to improving palliative care for children countrywide. This led to the development of the first hospital-based CPC team in 2012, which expanded to a total of seven teams adjacent to children’s university hospitals. Regional networks for CPC were developed in parallel to these teams from 2014 onwards. The networks are a collaboration of professionals from different disciplines and organisations, from hospital to homecare, and have covered the aspects of CPC nationally from 2019 onwards. They are connected through the Dutch Knowledge Centre for CPC. This centre was established in 2018 by the PAL Foundation in collaboration with the Dutch Association for Pediatrics. In 2013, the first evidence-based guideline, ‘palliative care for children’, provided access to knowledge for parents and healthcare providers, and in 2017, a format for an individual palliative care plan was established. Within the Knowledge Centre for CPC, a physician’s support centre for dilemma’s regarding the end of life of children was set up. The efforts to have children’s palliative care embedded in the regular Dutch health care insurance are ongoing. View Full-Text
Keywords: integrated care; children’s palliative care; paediatric palliative care team; homecare; family; care network; life-limiting; life-threatening integrated care; children’s palliative care; paediatric palliative care team; homecare; family; care network; life-limiting; life-threatening
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MDPI and ACS Style

Vallianatos, S.; Huizinga, C.S.M.; Schuiling-Otten, M.A.; Schouten-van Meeteren, A.Y.N.; Kremer, L.C.M.; Verhagen, A.A.E. Development of the Dutch Structure for Integrated Children’s Palliative Care. Children 2021, 8, 741. https://doi.org/10.3390/children8090741

AMA Style

Vallianatos S, Huizinga CSM, Schuiling-Otten MA, Schouten-van Meeteren AYN, Kremer LCM, Verhagen AAE. Development of the Dutch Structure for Integrated Children’s Palliative Care. Children. 2021; 8(9):741. https://doi.org/10.3390/children8090741

Chicago/Turabian Style

Vallianatos, Stephanie, Carolien S.M. Huizinga, Meggi A. Schuiling-Otten, Antoinette Y.N. Schouten-van Meeteren, Leontien C.M. Kremer, and A. A.E. Verhagen. 2021. "Development of the Dutch Structure for Integrated Children’s Palliative Care" Children 8, no. 9: 741. https://doi.org/10.3390/children8090741

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