The Impact of Music Therapists’ Perspectives on Quality of Life in Building Relationships with Older Adults with Chronic Illness
Abstract
:1. Introduction
Research Question
2. Methods
2.1. Design
2.2. Researcher’s Reflexivity
2.3. Ethical Consideration
2.4. Participants and Setting
2.5. Sampling Procedure and Data Collection
2.6. Data Analysis
2.7. Trustworthiness of the Study
3. Results
“We connect through music and the relationship is just deepened. And it’s very pure. We are able to talk through or connect through the music”.(PT6)
“We, as music therapists have a really cool gift to bring to people, because music is a way to connect with those folks and to connect socially, over ideas of, I can play a song and I can tell people based on what I know about their history”.(PT9)
“It’s food for my soul. It is the thing that keeps me balanced; it is the place where I go for refreshment and for energizing”.(PT7)
“Music’s always been a social thing for me. I would walk around the music building, talk to people. I liked learning guitar because I could play the guitar and sing and talk to people”.(PT2)
“I mean, a big part of it (the relationship building process) too, again, is the music; that instant, therapeutic relationship can be addressed through music”.(PT4)
“We each have our own music! And everybody’s music is different, but when we hear our music, it really rings TRUE, I think, somewhere within us”.(PT9)
3.1. Theme 1: Increased Awareness of Their Unconscious Biases
“…Even though I try to keep that personal stuff, it is what informs what’s going on”.(PT1)
“I’m constantly reminded that, my experience is just not always, it may shade the way I look at things”.(PT9)
“… My philosophy or my views on quality of life really informed the way I build relationships with people, so putting their interests or what they feel is important to them at the center of… how we’re building that relationship”.(PT9)
“When (I) try to support someone else’s quality of life, it is to make sure that I’m not approaching them just from my own understanding of what quality (of life) means to me”.(PT8)
“… Developing or identifying commonalities… through those, you can build a deeper bond”.(PT3)
3.2. Theme 2: Deepened Understanding of Older Adults’ QoL
“It’s about connecting and listening and understanding and understanding includes really those non-verbal things that are not spoken”.(PT7)
“…understanding that something that (you) might think as a QoL might not be exactly right for them”.(PT10)
“The biggest quality of life is loss of freedom and their autonomy for them”.(PT11)
“Their loss of independence is out of their control”.(PT4)
“Depression goes along with that (loss of sense of autonomy)”.(PT10)
“They are missing a lot and that might be triggering agitation”.(PT11)
“… (Feelings) that they have are ignored or invalidated”.(PT9)
“What is comfort for you (older adults)? Is it spiritual comfort? Do you have physical comfort? I think when someone’s comfortable, that addresses quality of life”.(PT4)
“They feel like their place in the world is validated…I’m (older adult) seen as a person, like I’m being recognized in my value, and my dignity is being recognized”.(PT9)
“Living a meaningful life, so have they accomplished things in their life, do they feel like they still have potential to live to their fullest to give back to others?”.(PT3)
“We’re human. So, we’re going to have that human-to-human connection… I think it’s also that trust… trust between your patients and the therapists. I think that is the healthy part of the therapeutic relationship”.(PT4)
“I want to maintain a stance of nonjudgment… (and) being open to whatever experience they are wanting to share”.(PT8)
“A healthy therapeutic relationship would be (having a) clear boundary… and at the same time, we need to be aware of our own feelings. You see, speaking of countertransference, transference, we DO have to be very, very aware (of) countertransference or transference. (They) are not bad if we manage (them) well… (and) make it therapeutic for the patients”.(PT6)
3.3. Theme 3: Purposeful Alignment with Older Adults’ QoL
“Being able to shift based on where this person is right now, but also… not carrying the same set of, okay, this is kind of what’s expected in this relationship”.(PT8)
“Building that therapeutic relationship, it’s how can I honor your authentic self… I think there’s this mutual understanding and respect and, of course, that’s going to look different for every person”.(PT9)
“A therapist is not a machine; we are human beings, and if I’m not vulnerable, how am I expecting my patients to be true and vulnerable? So, I also have to be that way, too”.(PT6)
“It’s that general sense of you don’t have to pretend to be a certain person to build a good therapeutic relationship with someone”.(PT9)
“(Self-reflection) helps me have a better understanding about myself and what quality of life means to me”.(PT9)
“Whenever I work with a patient, every session, I have to do a quick self-reflection… It is a quick everyday life to be aware of things that I say, patients’ feelings, my feelings, and how all these values and feelings function in my own system… And when I approach them (older adults) with an awareness, I will do a lot of self-evaluation: What is my approach, is it meeting my needs or patients’ needs?”.(PT6)
4. Discussion
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
References
- Population Reference Bureau. 2020 Population Data Sheet; Population Reference Bureau: Washington, DC, USA. Available online: https://interactives.prb.org/2020-wpds/ (accessed on 10 September 2020).
- The Population Division of the United Nation’s Department of Economic and Social Affairs. World Population Ageing 2020 Highlights; The Population Division of the United Nation’s Department of Economic and Social Affairs: New York, NY, USA. Available online: https://www.un.org/development/desa/pd/news/world-population-ageing-2020-highlights (accessed on 10 September 2020).
- Mitsi, A.; Kourakos, M.; Poulimenakou, G.; Latsou, D.; Sarris, M. Therapeutic relationship and quality of life in chronic diseases. Am. J. Nurs. Sci. 2018, 7, 103–108. [Google Scholar]
- Korkmaz Aslan, G.; Kulakçı AltıntaŞ, H.; Özen Çınar, İ.; Veren, F. Attitudes to ageing and their relationship with quality of life in older adults in Turkey. Psychogeriatrics 2019, 19, 157–164. [Google Scholar] [CrossRef] [PubMed]
- Solomons, N.; Kruger, H.S.; Puoane, T.R. Adherence challenges encountered in an intervention programme to combat chronic non-communicable diseases in an urban black community, Cape Town. Health SA Gesondheid 2017, 22, 70–78. [Google Scholar] [CrossRef] [Green Version]
- World Health Organization. Noncommunicable Diseases. 2022. Available online: https://www.who.int/news-room/fact-sheets/detail/noncommunicable-diseases (accessed on 16 September 2022).
- Palmadottir, G. Client-therapist relationships: Experiences of occupational therapy clients in rehabilitation. Br. J. Occup. Ther. 2006, 69, 394–401. [Google Scholar] [CrossRef]
- Kanervisto, M.; Saarelainen, S.; Vasankari, T.; Jousilahti, P.; Heistaro, S.; Heliövaara, M.; Luukkaala, T.; Paavilainen, E. COPD, chronic bronchitis and capacity for day-to-day activities: Negative impact of illness on the health-related quality of life. Chronic Respir. Dis. 2010, 7, 207–215. [Google Scholar] [CrossRef] [PubMed]
- Carreiro-Martins, P.; Gomes-Belo, J.; Papoila, A.L.; Caires, I.; Palmeiro, T.; Gaspar-Marques, J.; Leiria-Pinto, P.; Mendes, A.; Teixeira, J.P.; Botelho, M.A.; et al. Chronic respiratory diseases and quality of life in elderly nursing home residents. Chronic Respir. Dis. 2016, 13, 211–219. [Google Scholar] [CrossRef] [PubMed] [Green Version]
- Huang, H.-L.; Chang, M.Y.; Tang, J.S.-H.; Chiu, Y.-C.; Weng, L.-C. Determinants of the discrepancy in patient- and caregiver-rated quality of life for persons with dementia. J. Clin. Nurs. 2009, 18, 3107–3118. [Google Scholar] [CrossRef]
- Luna, E.; Ruiz, M.; Malyutina, S.; Titarenko, A.; Kozela, M.; Pająk, A.; Bobak, M. The prospective association between frequency of contact with friends and relatives and quality of life in older adults from Central and Eastern Europe. Soc. Psychiatry Psychiatr. Epidemiol. 2020, 55, 1001–1010. [Google Scholar] [CrossRef] [Green Version]
- O’Rourke, H.M.; Duggleby, W.; Fraser, K.D.; Jerke, L. Factors that affect quality of life from the perspective of people with dementia: A metasynthesis. J. Am. Geriatr. Soc. 2015, 63, 24–38. [Google Scholar] [CrossRef]
- Chen, H.-M.; Tu, Y.-H.; Chen, C.-M. Effect of Continuity of Care on Quality of Life in Older Adults with Chronic Diseases: A Meta-Analysis. Clin. Nurs. Res. 2017, 26, 266–284. [Google Scholar] [CrossRef]
- Raggi, A.; Corso, B.; Minicuci, N.; Quintas, R.; Sattin, D.; De Torres, L.; Leonardi, M. Determinants of quality of life in ageing populations: Results from a cross-sectional study in Finland, Poland and Spain. PLoS ONE 2016, 11, e0159293. [Google Scholar] [CrossRef] [PubMed]
- Van Leeuwen, K.M.; Van Loon, M.S.; Van Nes, F.A.; Bosmans, J.; De Vet, H.C.W.; Ket, J.C.; Widdershoven, G.A.M.; Ostelo, R. What does quality of life mean to older adults? A thematic synthesis. PLoS ONE 2019, 14, e0213263. [Google Scholar] [CrossRef] [PubMed] [Green Version]
- Schneible, B.K.; Gabriel, J.F.; Bradt, J. Reflections on music therapy with older adults from an ethnographic perspective. Qual. Ageing Older Adults 2021, 22, 26–39. [Google Scholar] [CrossRef]
- Alvi, S.; Zaidi, A.U. Invisible voices: An intersectional exploration of quality of life for elderly South Asian immigrant women in a Canadian sample. J. Cross-Cult. Gerontol. 2017, 32, 147–710. [Google Scholar] [CrossRef] [PubMed]
- Sutipan, P.; Intarakamhang, U.; Macaskill, A. The impact of positive psychological interventions on well-being in healthy elderly people. J. Happiness Stud. 2017, 18, 269–291. [Google Scholar] [CrossRef]
- Holopainen, A.; Siltanen, H.; Pohjanvuori, A.; Mäkisalo-Ropponen, M.; Okkonen, E. Factors Associated with the Quality of Life of People with Dementia and with Quality of Life-Improving Interventions: Scoping Review. Dementia 2019, 18, 1507–1537. [Google Scholar] [CrossRef]
- Dahlan, A.; Nicol, M.; Maciver, D. Elements of life satisfaction among elderly people living in institutions in Malaysia: A mixed methodology approach. Hong Kong J. Occup. Ther. 2010, 20, 71–79. [Google Scholar] [CrossRef]
- Cooper, C.; Mukadam, N.; Katona, C.; Lyketsos, C.G.; Ames, D.; Rabins, P.; Engedal, K.; Lima, C.D.M.; Blazer, D.; Teri, L.; et al. Systematic review of the effectiveness of non-pharmacological interventions to improve quality of life of people with dementia. Int. Psychogeriatr. 2012, 24, 856–870. [Google Scholar] [CrossRef]
- McNab, E. Music therapy in progressive neurological disease: A neuropalliative rehabilitation perspective. Aust. J. Music. Ther. 2010, 21, 59–76. [Google Scholar]
- Preissler, P.; Kordovan, S.; Ullrich, A.; Bokemeyer, C.; Oechsle, K. Favored subjects and psychosocial needs in music therapy in terminally ill cancer patients: A content analysis. BMC Palliat. Care 2016, 15, 48. [Google Scholar] [CrossRef] [Green Version]
- Dorji, N.; Dunne, M.P.; Seib, C.; Deb, S. Quality of life among senior citizens in Bhutan: Associations with adverse life experiences, chronic diseases, spirituality, and social connectedness. Asia Pac. J. Public Health 2017, 29, 35–46. [Google Scholar] [CrossRef] [PubMed]
- Bowling, A.; Gabriel, Z.; Dykes, J.; Dowding, L.M.; Evans, O.; Fleissig, A.; Banister, D.; Sutton, S. Let’s ask them: A national survey of definitions of quality of life and its enhancement among people aged 65 and over. Int. J. Aging Hum. Dev. 2003, 56, 269–306. [Google Scholar] [CrossRef] [PubMed]
- García, L.M.R.; Navarrro, J.M.R. The Impact of Quality of Life on the Health of Older People from a Multidimensional Perspective. J. Aging Res. 2018, 2018, 1–7. [Google Scholar] [CrossRef] [PubMed] [Green Version]
- Dinç, L.; Gastmans, C. Trust in nurse–patient relationships: A literature review. Nurs. Ethics 2013, 20, 501–516. [Google Scholar] [CrossRef]
- Letwin, L.; Silverman, M.J. No between-group difference but tendencies for patient support: A pilot study of a resilience-focused music therapy protocol for adults on a medical oncology/hematology unit. Arts Psychother. 2017, 55, 116–125. [Google Scholar] [CrossRef]
- Bruscia, K.E. Defining Music Therapy, 3rd ed.; Barcelona Publishers: Dallas, TX, USA, 2014. [Google Scholar]
- Darnley-Smith, R.; Patey, H.M. Music Therapy; Sage Publication: Thousand Oaks, CA, USA, 2003. [Google Scholar]
- Hays, T. Facilitating well-being through music for older people with special needs. Home Health Care Serv. Q. 2006, 25, 55–73. [Google Scholar] [CrossRef]
- Magill, L. The meaning of the music: The role of music in palliative care music therapy as perceived by bereaved caregivers of advanced cancer patients. Am. J. Hosp. Palliat. Med. 2009, 26, 33–39. [Google Scholar] [CrossRef]
- Hilliard, R.E. The effects of music therapy on the quality and length of life of people diagnosed with terminal cancer. J. Music. Ther. 2003, 40, 113–137. [Google Scholar] [CrossRef]
- Chu, H.; Yang, C.Y.; Lin, Y.; Ou, K.L.; Lee, T.Y.; O’Brien, A.P.; Chou, K.R. The impact of group music therapy on depression and cognition in elderly persons with dementia: A randomized controlled study. Biol. Res. Nurs. 2014, 16, 209–217. [Google Scholar] [CrossRef]
- Grau-Sánchez, J.; Foley, M.; Hlavová, R.; Muukkonen, I.; Ojinaga-Alfageme, O.; Radukic, A.; Spindler, M.; Hundevad, B. Exploring Musical Activities and Their Relationship to Emotional Well-Being in Elderly People across Europe: A Study Protocol. Front. Psychol. 2017, 8, 330. [Google Scholar] [CrossRef] [Green Version]
- McDermott, O.; Orrell, M.; Ridder, H.M.O. The importance of music for people with dementia: The perspectives of people with dementia, family carers, staff and music therapists. Aging Ment. Health 2014, 18, 706–716. [Google Scholar] [CrossRef] [PubMed]
- Knobloch-Fedders, L. The importance of the relationship with the therapist. Clin. Sci. Insights 2008, 1, 1–4. [Google Scholar]
- Elliott, M.; Gardner, P. The role of music in the lives of older adults with dementia ageing in place: A scoping review. Dementia 2018, 17, 199–213. [Google Scholar] [CrossRef] [PubMed]
- Warth, M.; Keßler, J.; Hillecke, T.K.; Bardenheuer, H.J. Music therapy in palliative care: A randomized controlled trial to evaluate effects on relaxation. Dtsch. Ärzteblatt Int. 2015, 112, 788–794. [Google Scholar]
- Sakamoto, M.; Ando, H.; Tsutou, A. Comparing the effects of different individualized music interventions for elderly individuals with severe dementia. Int. Psychogeriatr. 2013, 25, 775–784. [Google Scholar] [CrossRef]
- Bowling, A.; Rowe, G.; Adams, S.; Sands, P.; Samsi, K.; Crane, M.; Joly, L.; Manthorpe, J. Quality of life in dementia: A systematically conducted narrative review of dementia-specific measurement scales. Aging Ment. Health 2015, 19, 13–31. [Google Scholar] [CrossRef]
- Spector, A. Quality of Life in Dementia: A Comparison of the Perceptions of People with Dementia and Care Staff in Residential Homes; University of London, University College London: London, UK, 2004. [Google Scholar]
- Welch, M. Pivotal moments in the therapeutic relationship. Int. J. Ment. Health Nurs. 2005, 14, 161–165. [Google Scholar] [CrossRef]
- Laughton-Brown, H. Trust in the therapeutic relationship: Psychodynamic contributions to counselling psychology practice. Couns. Psychol. Rev. 2010, 25, 6–12. [Google Scholar]
- Browne, G.; Cashin, A.; Graham, I. The therapeutic relationship and Mental Health Nursing: It is time to articulate what we do! J. Psychiatr. Ment. Health Nurs. 2012, 19, 839–843. [Google Scholar] [CrossRef]
- Suddick, K.M.; Cross, V.; Vuoskoski, P.; Galvin, K.T.; Stew, G. The work of hermeneutic phenomenology. Int. J. Qual. Methods 2020, 19, 1609406920947600. [Google Scholar] [CrossRef]
- Guest, G.; Bunce, A.; Johnson, L. How many interviews are enough? An experiment with data saturation and variability. Field Methods 2006, 18, 59–82. [Google Scholar] [CrossRef]
- Braun, V.; Clarke, V. Using thematic analysis in psychology. Qual. Res. Psychol. 2006, 3, 77–101. [Google Scholar] [CrossRef] [Green Version]
- Hoskyns, S.; Wheeler, B.L.; Murphy, K. Thematic analysis. In Music Therapy Research; Barcelona Publishers: Dallas, TX, USA, 2016; pp. 563–569. [Google Scholar]
- Atlas.ti. ATLAS.ti Scientific Software Development. Available online: http://www.atlasti.com (accessed on 11 May 2019).
- Kinsella, E.A. Reflections on reflective practice. Can. J. Occup. Ther. 2001, 68, 195–198. [Google Scholar] [CrossRef] [PubMed]
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Kim, K.M. The Impact of Music Therapists’ Perspectives on Quality of Life in Building Relationships with Older Adults with Chronic Illness. Behav. Sci. 2022, 12, 439. https://doi.org/10.3390/bs12110439
Kim KM. The Impact of Music Therapists’ Perspectives on Quality of Life in Building Relationships with Older Adults with Chronic Illness. Behavioral Sciences. 2022; 12(11):439. https://doi.org/10.3390/bs12110439
Chicago/Turabian StyleKim, Kyung Min. 2022. "The Impact of Music Therapists’ Perspectives on Quality of Life in Building Relationships with Older Adults with Chronic Illness" Behavioral Sciences 12, no. 11: 439. https://doi.org/10.3390/bs12110439
APA StyleKim, K. M. (2022). The Impact of Music Therapists’ Perspectives on Quality of Life in Building Relationships with Older Adults with Chronic Illness. Behavioral Sciences, 12(11), 439. https://doi.org/10.3390/bs12110439