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Communication

Using a Clinical Formulation to Understand Psychological Distress in People Affected by Huntington’s Disease: A Descriptive, Evidence-Based Model

1
Huntington’s Disease Service, Leicestershire Partnership NHS Trust, Mill Lodge, The Rise, Narborough, Leicester LE19 4SL, UK
2
Department of Neuroscience, Psychology and Behaviour, University of Leicester, University Road, Leicester LE1 7RH, UK
3
Division of Health Research, Faculty of Health and Medicine, Lancaster University, Lancaster LA1 4YG, UK
*
Author to whom correspondence should be addressed.
J. Pers. Med. 2022, 12(8), 1222; https://doi.org/10.3390/jpm12081222
Submission received: 20 June 2022 / Revised: 19 July 2022 / Accepted: 19 July 2022 / Published: 27 July 2022
(This article belongs to the Special Issue The Many Faces of Huntington Disease)

Abstract

Huntington’s disease (HD) is an inherited, life-limiting neurodegenerative condition. People with HD experience changes in cognitive, motor and emotional functioning, and can also, mainly at later stages, exhibit behaviours that professionals and carers might find distressing such as hitting others, throwing objects, swearing or making inappropriate comments. While clinical formulation (an individualised approach used by mental health professionals to describe an individual’s difficulties) is a helpful tool to conceptualise patients’ wellbeing, a specific formulation framework has not yet been developed for HD. However, evidence has shown that formulation can help guide clinical interventions and increase consistency of approach across multi-disciplinary teams, refine risk management, and improve staff or carers’ empathic skills and understanding of complex presentations. As a consequence, this paper proposes a new clinical formulation model for understanding distress among people with HD, based on a biopsychosocial framework. More specifically, this includes key elements centring on an individual’s past experience and personal narratives, as well as anticipatory cognitions and emotions about the future. In-depth discussions regarding the components of the model and their importance in HD formulations are included, and a fictional yet representative case example is presented to illustrate their application within the context of personalised care.
Keywords: Huntington’s disease; formulation; challenging behaviour; biopsychosocial; psychological distress Huntington’s disease; formulation; challenging behaviour; biopsychosocial; psychological distress

Share and Cite

MDPI and ACS Style

Dale, M.; Wood, A.; Zarotti, N.; Eccles, F.; Gunn, S.; Kiani, R.; Mobley, A.; Robertson, N.; Simpson, J. Using a Clinical Formulation to Understand Psychological Distress in People Affected by Huntington’s Disease: A Descriptive, Evidence-Based Model. J. Pers. Med. 2022, 12, 1222. https://doi.org/10.3390/jpm12081222

AMA Style

Dale M, Wood A, Zarotti N, Eccles F, Gunn S, Kiani R, Mobley A, Robertson N, Simpson J. Using a Clinical Formulation to Understand Psychological Distress in People Affected by Huntington’s Disease: A Descriptive, Evidence-Based Model. Journal of Personalized Medicine. 2022; 12(8):1222. https://doi.org/10.3390/jpm12081222

Chicago/Turabian Style

Dale, Maria, Ashleigh Wood, Nicolò Zarotti, Fiona Eccles, Sarah Gunn, Reza Kiani, Amanda Mobley, Noelle Robertson, and Jane Simpson. 2022. "Using a Clinical Formulation to Understand Psychological Distress in People Affected by Huntington’s Disease: A Descriptive, Evidence-Based Model" Journal of Personalized Medicine 12, no. 8: 1222. https://doi.org/10.3390/jpm12081222

APA Style

Dale, M., Wood, A., Zarotti, N., Eccles, F., Gunn, S., Kiani, R., Mobley, A., Robertson, N., & Simpson, J. (2022). Using a Clinical Formulation to Understand Psychological Distress in People Affected by Huntington’s Disease: A Descriptive, Evidence-Based Model. Journal of Personalized Medicine, 12(8), 1222. https://doi.org/10.3390/jpm12081222

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