Search Results (25)

This study predicts how sociodemographic trends—smaller family sizes, increased longevity, and marital patterns—could affect family care for people with dementia through 2060. By coupling dementia information from the Health and Retirement Study with a well-established kinship microsimulation model, we analyze the impact of demographic changes on the future care landscape, focusing on changes in race and gender differences in two key areas: (1) the availability of family caregivers for people with dementia, and (2) the likelihood of having a family member with dementia, among those without dementia. Our model projections suggest that future dementia cohorts will be more likely to have a living spouse than the current ones, with diminishing gender disparities due to increased male longevity. However, racial disparities will persist, particularly for Black women. The likelihood of older adults lacking spouses, children, and siblings will increase, but remain low. For potential caregivers, we predict an increased likelihood and longer duration of exposure to family members with dementia in future birth cohorts, particularly for Black individuals, potentially placing more people at risk of the adverse health and well-being outcomes associated with caregiving. Full article

During the COVID-19 pandemic, Alaska communities faced an extremely challenging situation given their socioeconomic, cultural, and demographic characteristics, as well as issues related to remoteness and colonial legacy. This paper seeks to advance the understanding of the gendered impacts and implications of crises like the COVID-19 pandemic on Indigenous women in Alaskan urban and rural communities through a resilience lens. The paper addresses two primary research questions: (1) What are the impacts of the COVID-19 pandemic on Indigenous women in urban and rural Alaska, and specifically what are the gendered implications in the personal, sociocultural, and economic domains? (2) What are the strengths associated with women’s responses to COVID-19 that contribute to individual and community resilience during crises such as the COVID-19 pandemic, and what are the constraints? This research is based on seventeen in-depth thematic interviews conducted in the city of Anchorage, the hub community of Nome, and its neighboring rural communities on the Seward Peninsula. Using the deficit-based approach combined with a strength-based perspective, this study provides a comprehensive examination of Indigenous women experiences during the pandemic across key domains of gendered impacts and responses, also providing a first-ever analysis of differences between rural and urban settings. The results revealed that despite significant challenges in personal, sociocultural, and economic domains, women demonstrated resilience and resourcefulness, while serving as caregivers at home and across their communities. The Indigenous holistic concepts of health and well-being, along with values of care, mutual support, and strong social and kinship ties, combined with traditional land- and water-based activities and cultural practices, play a crucial role in times of crisis, significantly contributing to building resilience and fostering empowerment at both the individual and community levels. Full article

Kinship caregivers (e.g., grandparents raising grandchildren) have been increasing over the last several decades. Approximately 3.5 million grandparents and other relatives are the primary caregivers for their related children, and African Americans are more likely to be kinship caregivers than persons from other groups. Kinship caregivers face unique challenges, such as parenting for uncertain periods of time and often with insufficient financial resources and support, placing them at significant risk of stress. Given the findings linking chronic stress to Alzheimer’s disease (AD), there is a need for research to identify possible stressors and mitigate risks for outcomes such as AD among kin caregivers. Additionally, research indicates that African Americans (AAs) experience unusually high levels of stress due to factors often associated with structural racism, and they are disproportionately affected by cardiovascular disease (CVD), which is often a consequence of stress and another risk factor for AD. Regrettably, AA kin caregivers often incur a host of negative stress-related outcomes, including poor physical and mental health. Thus, there is an urgent need for research to identify modifiable risk factors for both stress and CVD to potentially mitigate the onset of AD in this population. The purpose of this paper is to provide a conceptual framework to examine the links between African Americans who commit to the unselfish act of providing kinship caregiving and their susceptibility to AD. Future research should investigate modifiable mechanisms to reduce the risks of AD in African American caregivers. Full article

Background: Caring for dependent people is an intense task that leads family caregivers to suffer physical or mental pathologies. Resilience is a protective factor that makes an individual more resistant to adverse events. Some characteristics of the caregiver or the care provided predispose the caregiver to be less resilient. Knowing these characteristics will allow us to detect vulnerable caregivers. Aim: The aim of this study was to explore the factors associated with caregiver resilience and establish a predictive model, including the relationship between preparedness, burden, resilience, and anxiety. Materials and Methods: The study design was descriptive, observational, and cross-sectional, with purposive sampling. The sample included 172 family caregivers of care-dependent patients in Spain. Questionnaires were administered to assess caregiver resilience, anxiety, burden, and the preparedness of care-dependent patients. Correlation, univariate, and multiple linear regression analyses were performed to identify the factors associated with resilience. Results: We found that there is a correlation between resilience, preparation, and burden. Factors related to resilience include age, the caregiver’s health status, kinship, childcare, and state aid granted. Caregiver preparedness is the factor that most predicts caregiver resilience in our model. Caregivers with high levels of resilience also demonstrated high levels of preparedness and experienced less burden than those with low levels of resilience. Conclusions: These findings emphasize the relevance of improving the preparation of family caregivers to increase their resilience and, at the same time, the quality of care provided. Full article

This study reflects the evidence-building journey for the Colorado Kinnected kinship navigator program. Colorado Kinnected expands the scope of services, resources, and supports offered to kinship families through an innovative approach that enhances an earlier Kinship Supports Demonstration Project. The Colorado Kinnected target population includes kinship caregivers caring for children and youth of any age with an open child welfare case. The primary purpose of the program is to reduce child welfare involvement by limiting traditional foster care and congregate care use when out-of-home placements are required. A randomized controlled trial was conducted from June to November 2020 to examine the impact of the Colorado Kinnected kinship navigator program on the kinship placement outcomes of 402 children and youth with an open child welfare case in seven Colorado counties. The initial study found that children and youth placed with kinship caregivers who received Colorado Kinnected services were significantly more likely to reunify with their parents after their kinship placements ended than were children and youth who received kinship supports as usual. The sustained effects study featured additional analyses of traditional foster and congregate care entry rates within six months of kinship placement for the same sample of children and youth. Children and youth in the intervention group were significantly less likely than children and youth in the control group to enter foster care or congregate care within six months after the end of their kinship placements. Overall, both analyses indicate that the Colorado Kinnected program promotes sustained permanency among children and youth in formal kinship placements. Data equity analyses to explore the contextual sensitivity of the intervention are detailed, and implications for practice, policy, and research are discussed. Full article

While kinship care is prevalent and preferred over out-of-family care, there are relatively few measurement tools validated for use with this audience. The Title IV-E Clearinghouse, used to rate Families First Prevention Services such as Kinship Navigator Programs, requires valid tools. Such families face a myriad of needs in supporting children in their care. Previous research has established the significant challenges faced by rural families. Accurate assessment of these needs, particularly for rural families, is an essential component of kinship navigation services. In this study, we examined the face validity of the Family Needs Scale for use with kinship caregivers in rural programs. Methods: The evaluation teams with each respective kinship program conducted four virtual focus groups comprising kinship caregivers (n = 18) in three rural states. Participants were recruited from outside an ongoing Kinship Navigator Program Evaluation sample but had previously received program support as kinship caregivers. All states received IRB approval from their respective universities. Verbal consent was obtained at the time of the focus group. Focus groups lasted approximately 60–90 min and participants received a gift card incentive. Data were transcribed and qualitatively coded by question set and individual questions to identify phenomenological trends. Findings: Across four focus groups, we found four themes: (1) Broad agreement regarding the face validity of most assessment items; (2) Lack of clarity and shared understanding of several terms used within the tool, (3) Responses change with Ages and Stages of kinship family, and (4) Perspective considerations varying when completing the assessment. Discussion: Findings indicate that most assessment items had strong face validity, where there are a few opportunities to clarify key concepts relevant to rural kinship families and assess additional needs to understand the situational scope of the kinship experience. Overall, the needs assessment tool appears to have validity in assessing current kinship needs and outcomes within Kinship Navigator program evaluation. Full article

Kinship caregivers encounter complex issues when interfacing with the child welfare system. Most kinship care families are not connected to child welfare. The experiences and extent of child welfare connection among older grandparents raising adolescent grandchildren are understudied. This study describes in-depth reflections from older grandparents raising adolescent grandchildren about circumstances leading to kinship care and the extent of child welfare involvement. Nineteen older grandparents raising adolescent grandchildren participated in qualitative phenomenological interviews. Eligibility criteria included identifying as a primary caregiver aged 40 or older for a grandchild 12 years or older who lived with them at least three days during the week. Respondents were primarily married (58%), white/non-Hispanic (53%), and grandmothers (84%) and had some college education or were college graduates (79%). Older grandparent caregivers described three themes: the intensive child welfare path, the influence of indirect child welfare professionals, and guardians with influence. The onset of kinship care, with or without intensive child welfare involvement, stemmed primarily from child abuse and neglect linked primarily to adolescent pregnancies and parental substance use. Child welfare and other helping professionals must recognize and problem-solve with older grandparent caregivers to meet complex stage-of-life needs in and outside of traditional child welfare settings. Full article

Background and aims: Home parenteral nutrition (HPN) is a life-saving treatment for patients affected by chronic intestinal failure (CIF). Both this clinical condition and its therapy require radical lifestyle modifications, affecting life quality and psychological balance in patients as well as family members. Patient psychological burden has rarely been taken into consideration, not to mention that of caregivers. This study aims to evaluate the levels of anxiety in CIF patients on HPN, and their caregivers, consequently determining their impact on the psychological and physical aspects. Methods: After a brief introductory interview, adult patients on HPN for CIF and their caregivers were asked to fill in the HAMA-A questionnaire. Results: Fifty patients and their respective caregivers were enrolled. Mean HAMA-A scores were similar in patients and caregivers and testified the presence of a mild to severe impact of CIF and HPN in both groups, with a significantly higher impact on female patients and caregivers. After adjusting age, education level, duration of CIF and HPN dependence, and degree of kinship, no differences were revealed in the scores. Conclusions: The study confirms that CIF patients on HPN and their caregivers have a significant anxiety burden independently from the duration of the disease, therefore needing appropriate support. Full article

Family relationships are a distinctive feature of kinship-care placements, but very few studies have examined how the dynamics of these relationships affect the placement experience. This article does explore these dynamics and identifies some possible patterns, as experienced and reported by parents of children placed in kinship care. The findings presented here come from a qualitative study employing a life-story methodology, in which nine parents were interviewed on two occasions each. All of them had experienced the permanent placement of at least one of their children with a member of their extended family, under the direction of a government child-protection agency. Drawing from significant themes in parental narratives, particularly that of relationships, we analyzed and delineated three distinct profiles. In the first profile, a family solidarity was present between the parents and the kinship caregivers before the placement and was maintained during the placement. In the second, the parents struggled to keep their place in their children’s lives, thus experiencing conflicts both with the kinship caregivers and with the child-protection agency. In the third profile, the dynamics of the current relationship between both biological parents influenced the other family relationships of the parent who was interviewed. Full article

Children placed with kinship foster parents can experience less disruption and stronger family ties than children in non-kinship placements. However, financial hardship can restrict kinship caregivers from taking in relatives’ children. This study investigated (1) kinship caregivers’ financial standing compared to a national subsample of caregivers and (2) whether certain factors moderate the likelihood that a kinship caregiver will be able to provide care for additional non-relative children without additional financial assistance from the Department of Social Services (DSS). This study utilized primary data from 345 relatives across North Carolina and nationally representative secondary data on 6394 individuals’ financial circumstances. One-sample t-tests and chi-square goodness-of-fit tests revealed that caregivers who participated in our study generally fared better financially than caregivers at the national level. Model-based recursive partitioning results showed that if an additional child is placed in the home, the caregiver’s perceived capacity to provide care without extra DSS support decreased by approximately 19%, with a greater decrease (35%) among a subgroup of caregivers with low financial well-being status. The heterogeneity in caregivers’ experiences, capacities, and financial needs buttresses the need for nuanced interventions and programs targeting these caregivers, enabling them to provide more stable care for children placed in their homes. Full article

Informal kinship care, an arrangement that is made without the involvement of a child welfare agency or a court, makes up the majority of kinship arrangements in the United States. However, the current literature on informal kinship care is very limited. In response, this study explored informal kinship caregivers’ parenting experiences, comparing those of grandparents and other relatives. Anonymous survey responses from 146 informal kinship caregivers (114 grandparents and 32 other relatives) were analyzed. This study found similarities and differences between grandparents and other relatives. Compared to other relatives, grandparents were significantly older and less likely to be married. Over 60% of the caregivers, both grandparents and other relatives, had an annual household income of USD 50,000 or less but did not receive any governmental benefits. Furthermore, other relatives accessed and utilized community resources at significantly lower rates. This study observed significant challenges of informal kinship families, including financial difficulties and child mental health/behavioral issues. At the same time, it noted their strengths and resilience, with most participants reporting a positive perception of their caregiving experience. Programs and services for informal kinship families should reflect their unique experiences, building upon their strengths and resilience. Full article

This article focuses on understanding the role played by African spirituality in the provision of kinship care in the South African context. African traditional spirituality was found to be an important factor underpinning kinship care and its provision, especially in rural African communities. The study was conducted using a qualitative research methodology. Twenty-one (21) participants, who were kinship caregivers, were recruited using purposive non-probability sampling methods. The study found that African spirituality helped them to preserve both their cultural and personal identity. Furthermore, through African spirituality, children and youth in kinship care receive psychosocial support and experienced a positive upbringing through their kinship caregivers and tribal community. African kinship caregivers were found to offer kinship care as a spiritual duty to help children and youth who need care and protection in the absence of their birth parents. Full article

Kinship care is a preferred living arrangement for children when they have to separate from their birth parents due to various reasons. Although kinship care emphasized family and cultural value of connection, kinship families haven been considered as a vulnerable population since they often face myriad and longstanding challenges on both caregivers and child levels. Previous studies have described the challenges and needs that kinship families had, but there has been a continued call for shifting the paradigm from a problem-focused approach to a strengths-focused perspective. After searching in seven research databases, this scoping review identified 25 studies that examined resilience factors that were related to kinship caregivers raising their relative’s child/ren. Both qualitative and quantitative studies were included in this review. The findings showed that the resilience factors are involved with the following five aspects: caregiver characteristics, motivation, stress coping, caregiver’s family, and support. Through summarizing and discussing the resilience factors, this review calls for attention to be paid to the strengths of kinship families. This finding encourages future social work practitioners and researchers to build resilience in kinship families so that positive outcomes for kinship families can be promoted. Full article

Informal kinship care families in Australia are a large, hidden population. This article provides an overview of international research and policy developments regarding informal kinship care and considers their relevance to Australia. The benefit to children is identified along with the severe economic burden of care falling on caregiving families. Australian Federal and State policy settings are described in relation to the recognition and support of informal kinship care families, and an overwhelming need for better financial and social support is identified. Ways forward to improve the circumstances of these families are considered, together with areas for future research. Full article

For caregivers of school-age children, schooling at home was a significant stressor during the COVID-19 pandemic. Research demonstrates the emotional burden of taking on the role of teacher while trying to balance responsibilities related to work, household, and childcare. Yet little is known about the well-being of kinship caregivers during this time, although this population is at heightened risk for role stress and strain and emotional distress. This article shares the results of focus groups conducted as part of a larger qualitative study, the purpose of which was to understand the factors that influenced the well-being of kinship families during the pandemic, from the perspective of kinship caregivers and child welfare professionals. From these conversations, the challenges of remote learning emerged as a prominent theme, particularly for caregivers raising children with special healthcare needs, who comprised the majority of the sample. Given their pre-pandemic role stress and strain due to caregiving responsibilities, most caregivers struggled with managing their child’s learning, working from home, and caring for children with trauma histories, often with limited support and access to needed services. These findings suggest that this population needs support—potentially in the form of wrap-around services and/or social safety net provisions—to reduce their role stress and strain and improve well-being. Full article