Next Article in Journal
The Role of Family Physicians in a Pandemic: A Blueprint
Next Article in Special Issue
Severe ME in Children
Previous Article in Journal
G3DMS: Design and Implementation of a Data Management System for the Diagnosis of Genetic Disorders
Previous Article in Special Issue
Two-Day Cardiopulmonary Exercise Testing in Females with a Severe Grade of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Comparison with Patients with Mild and Moderate Disease
Open AccessPerspective

Health Care Responsibility and Compassion-Visiting the Housebound Patient Severely Affected by ME/CFS

Department of Clinical Research, London School of Hygiene & Tropical Medicine, Faculty of Infectious and Tropical Diseases, London WC1E 7HT, UK
*
Author to whom correspondence should be addressed.
Healthcare 2020, 8(3), 197; https://doi.org/10.3390/healthcare8030197
Received: 9 June 2020 / Revised: 1 July 2020 / Accepted: 2 July 2020 / Published: 4 July 2020
(This article belongs to the Special Issue ME/CFS – the Severely and Very Severely Affected)
Many people with severe Myalgic Encephalopathy/Chronic Fatigue Syndrome (ME/CFS) commonly receive no care from healthcare professionals, while some have become distanced from all statutory medical services. Paradoxically, it is often the most seriously ill and needy who are the most neglected by those responsible for their healthcare. Reasons for this include tensions around the complexity of making an accurate diagnosis in the absence of a biomarker, the bitter debate about the effectiveness of the few available treatments, and the very real stigma associated with the diagnosis. Illness severity often precludes attendance at healthcare facilities, and if an individual is well enough to be able to attend an appointment, the presentation will not be typical; by definition, patients who are severely affected are home-bound and often confined to bed. We argue that a holistic model, such as ‘‘Compassion in Practice’’, can help with planning appointments and caring for people severely affected by ME/CFS. We show how this can be used to frame meaningful interactions between the healthcare practitioners (HCPs) and the homebound patient. View Full-Text
Keywords: ME/CFS; severe ME/CFS; validation; engagement; health encounters; housebound; bedbound ME/CFS; severe ME/CFS; validation; engagement; health encounters; housebound; bedbound
MDPI and ACS Style

Kingdon, C.; Giotas, D.; Nacul, L.; Lacerda, E. Health Care Responsibility and Compassion-Visiting the Housebound Patient Severely Affected by ME/CFS. Healthcare 2020, 8, 197. https://doi.org/10.3390/healthcare8030197

AMA Style

Kingdon C, Giotas D, Nacul L, Lacerda E. Health Care Responsibility and Compassion-Visiting the Housebound Patient Severely Affected by ME/CFS. Healthcare. 2020; 8(3):197. https://doi.org/10.3390/healthcare8030197

Chicago/Turabian Style

Kingdon, Caroline; Giotas, Dionysius; Nacul, Luis; Lacerda, Eliana. 2020. "Health Care Responsibility and Compassion-Visiting the Housebound Patient Severely Affected by ME/CFS" Healthcare 8, no. 3: 197. https://doi.org/10.3390/healthcare8030197

Find Other Styles
Note that from the first issue of 2016, MDPI journals use article numbers instead of page numbers. See further details here.

Article Access Map by Country/Region

1
Search more from Scilit
 
Search
Back to TopTop