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Persons with Dementia Living at Home or in Nursing Homes in Nine Swedish Urban or Rural Municipalities

1
Department of Health Sciences, Faculty of Medicine, Lund University, 22100 Lund, Sweden
2
Department of Clinical Sciences, Clinical Memory Research Unit, Faculty of Medicine, Lund University, 21224 Malmö, Sweden
3
Department of Social Work, Faculty of Social Sciences, Linnaeus University, 35195 Växjö, Sweden
*
Author to whom correspondence should be addressed.
Healthcare 2019, 7(2), 80; https://doi.org/10.3390/healthcare7020080
Received: 2 April 2019 / Revised: 17 June 2019 / Accepted: 21 June 2019 / Published: 25 June 2019
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Abstract

The methodology from the “RightTimePlaceCare” study of dementia care was tested locally in terms of relevance, acceptability and attrition. Comparing persons with dementia (PwDs) receiving home care (HC) with PwDs living in nursing homes (NHs), in urban versus rural areas, regarding their health conditions and informal caregiver burden was also done. Standardized measurements regarding sociodemographic, and physical and mental health was used. Questions related to legal guardianship were added. Interviews were conducted with PwDs and their caregivers in HC (n = 88) and in NHs (n = 58). Bivariate and multivariate logistic regression analysis was used. The attrition rate was higher in HC. In the bivariate regression model, for HC and NH, living at home was significantly associated with more severe neuropsychiatric symptoms (p ≤ 0.001) and being cared by a spouse (p = 0.008). In NH, the informal caregivers were significantly younger (p = 0.003) and living in rural areas (p = 0.007) and more often in paid work (p ≤ 0.001). In the multivariate regression model, informal caregivers were significantly younger (p = 0.007) when caring for a PwD in an NH and caregiver burden was significantly higher in HC and in urban areas (p = 0.043). Legal guardianship was very low. Professionals should acknowledge that PwDs in HC have more behavioural problems and caregivers in urban areas report higher caregiver burden. View Full-Text
Keywords: dementia; dementia not otherwise specified; decision-making; healthcare; informal caregivers; informal caregiving; social services; quality of life dementia; dementia not otherwise specified; decision-making; healthcare; informal caregivers; informal caregiving; social services; quality of life
This is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited (CC BY 4.0).

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Lethin, C.; Rahm Hallberg, I.; Vingare, E.-L.; Giertz, L. Persons with Dementia Living at Home or in Nursing Homes in Nine Swedish Urban or Rural Municipalities. Healthcare 2019, 7, 80.

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