Next Article in Journal
Extensive Distribution of the Lyme Disease Bacterium, Borrelia burgdorferi Sensu Lato, in Multiple Tick Species Parasitizing Avian and Mammalian Hosts across Canada
Next Article in Special Issue
Clinical Use of an Order Protocol for Distress in Pediatric Palliative Care
Previous Article in Journal
Precision Medicine: The Role of the MSIDS Model in Defining, Diagnosing, and Treating Chronic Lyme Disease/Post Treatment Lyme Disease Syndrome and Other Chronic Illness: Part 2
Previous Article in Special Issue
Academic Palliative Care Research in Portugal: Are We on the Right Track?
Article Menu
Issue 4 (December) cover image

Export Article

Open AccessArticle

Bereaved Family Members’ Satisfaction with Care during the Last Three Months of Life for People with Advanced Illness

Department of Health Care Sciences, Palliative Research Centre, Ersta Sköndal Bräcke University College, P.O. Box 11189, SE-100 61 Stockholm, Sweden
Capio Palliative Care Unit, Dalen Hospital, Åstorpsringen 6, Enskededalen, SE-121 87 Stockholm, Sweden
Institute of Health and Care Sciences, Sahlgrenska Academy at the University of Gothenburg, 41346 Gothenburg, Sweden
Centre for Person-Centered Care, Sahlgrenska Academy at the University of Gothenburg, 40530 Gothenburg, Sweden
The Palliative Centre, Sahlgrenska University Hospital, P.O. Box 457, SE-405 30 Gothenburg, Sweden
Department of Nursing Science, Sophiahemmet University, P.O. Box 5605, SE-114 86 Stockholm, Sweden
Authors to whom correspondence should be addressed.
Healthcare 2018, 6(4), 130;
Received: 12 October 2018 / Revised: 2 November 2018 / Accepted: 2 November 2018 / Published: 6 November 2018
(This article belongs to the Special Issue Recent Advances in Palliative Care)
PDF [555 KB, uploaded 6 November 2018]


Background: Studies evaluating the end-of-life care for longer periods of illness trajectories and in several care places are currently lacking. This study explored bereaved family members’ satisfaction with care during the last three months of life for people with advanced illness, and associations between satisfaction with care and characteristics of the deceased individuals and their family members. Methods: A cross-sectional survey design was used. The sample was 485 family members of individuals who died at four different hospitals in Sweden. Results: Of the participants, 78.7% rated the overall care as high. For hospice care, 87.1% reported being satisfied, 87% with the hospital care, 72.3% with district/county nurses, 65.4% with nursing homes, 62.1% with specialized home care, and 59.6% with general practitioners (GPs). Family members of deceased persons with cancer were more likely to have a higher satisfaction with the care. A lower satisfaction was more likely if the deceased person had a higher educational attainment and a length of illness before death of one year or longer. Conclusion: The type of care, diagnoses, length of illness, educational attainment, and the relationship between the deceased person and the family member influences the satisfaction with care. View Full-Text
Keywords: end-of-life care; palliative care; Sweden; quality of health care; proxy measurement end-of-life care; palliative care; Sweden; quality of health care; proxy measurement

Figure 1

This is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited (CC BY 4.0).

Share & Cite This Article

MDPI and ACS Style

O’Sullivan, A.; Alvariza, A.; Öhlen, J.; Håkanson, C. Bereaved Family Members’ Satisfaction with Care during the Last Three Months of Life for People with Advanced Illness. Healthcare 2018, 6, 130.

Show more citation formats Show less citations formats

Note that from the first issue of 2016, MDPI journals use article numbers instead of page numbers. See further details here.

Related Articles

Article Metrics

Article Access Statistics



[Return to top]
Healthcare EISSN 2227-9032 Published by MDPI AG, Basel, Switzerland RSS E-Mail Table of Contents Alert
Back to Top