Experiences Regarding Anonymising and Publishing Personal Data as Open Data in Germany: Results of an Online Survey
Abstract
1. Introduction
2. Methods
2.1. Research Questions and Objectives
- How are PD primarily collected and utilised within the respective domains?
- What institutional experience exists regarding the anonymisation of PD and their publication as OD?
- What barriers are encountered in everyday practice?
- What types of support services are considered most helpful in anonymising collected PD and publishing them as OD?
- What specific legal and ethical implications have been identified for the processes of anonymisation and publication, based on previous practical experience?
2.2. Research Design
2.3. Quantitative Method
2.4. Sample
2.5. Data Collection
2.6. Inclusion and Exclusion Criteria
2.7. Ethics & Data Protection
2.8. Data Analysis and Quality Criteria
3. Results
3.1. Sociodemographic Data
3.2. Categorical Evaluation
4. Summary
5. Discussion
5.1. Data Collection and Utilisation
5.2. Experience with Anonymisation and Publication
5.3. Barriers and Challenges
5.4. Support Services and Capacity Building
5.5. Legal and Ethical Considerations
6. Limitation
6.1. Methodological Implementation
6.2. Questionnaire Development
6.3. Sampling
6.4. Limitations in Data Analysis
Supplementary Materials
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
Abbreviations
| AI | Artificial Intelligence |
| CROSS | Checklist for Reporting of Survey Studies for Quantitative Methodology |
| DGA | Data Governance Act |
| EHDS | European Health Data Space |
| GDPR | General Data Protection Regulation |
| OD | Open Data |
| OHD | Open Health Data |
| OGD | Open Governance Data |
| PD | Personal Data |
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| Inclusion Criteria |
|---|
|
| Involved Party | Planning | Executing | Reviewing | Supporting | Only Informed | Not Involved | Not Existing |
|---|---|---|---|---|---|---|---|
| Data Collecting Department | 30.86% | 50.62% | 1.23% | 9.88% | 3.70% | 1.23% | 2.47% |
| IT Department | 7.41% | 38.27% | 1.23% | 23.46% | 4.94% | 16.05% | 8.64% |
| Data Protection Officer | 9.88% | 2.47% | 43.21% | 19.75% | 8.64% | 9.88% | 6.17% |
| Legal Department | 1.23% | 0.00% | 11.11% | 14.81% | 9.88% | 18.52% | 44.44% |
| Compliance | 3.70% | 1.23% | 6.17% | 4.94% | 7.41% | 12.35% | 64.20% |
| Marketing | 3.70% | 4.94% | 1.23% | 3.70% | 11.11% | 50.62% | 24.69% |
| Management | 18.52% | 2.47% | 16.05% | 8.64% | 30.86% | 19.75% | 3.70% |
| Quality Management | 2.47% | 3.70% | 8.64% | 7.41% | 11.11% | 12.35% | 54.32% |
| IT Security Officer | 11.11% | 3.70% | 23.46% | 11.11% | 13.58% | 14.81% | 22.22% |
| Involved Party | Planning | Executing | Reviewing | Supporting | Only Informed | Not Involved | Not Existing |
|---|---|---|---|---|---|---|---|
| Data Collecting Department | 25.00% | 54.55% | 2.27% | 11.36% | 2.27% | 0.00% | 4.55% |
| IT Department | 6.82% | 9.09% | 4.55% | 38.64% | 2.27% | 27.27% | 11.36% |
| Data Protection Officer | 6.82% | 0.00% | 34.09% | 20.45% | 18.18% | 18.18% | 2.27% |
| Legal Department | 6.82% | 0.00% | 20.45% | 4.55% | 9.09% | 25.00% | 34.09% |
| Compliance | 4.55% | 2.27% | 11.36% | 0.00% | 2.27% | 9.09% | 70.46% |
| Marketing | 4.55% | 18.18% | 2.27% | 9.09% | 13.64% | 31.82% | 20.45% |
| Management | 13.64% | 13.64% | 15.91% | 2.27% | 40.91% | 13.64% | 0.00% |
| Quality Management | 4.55% | 2.27% | 13.64% | 4.55% | 4.55% | 13.64% | 56.82% |
| IT Security Officer | 4.55% | 4.55% | 22.73% | 9.09% | 11.36% | 27.27% | 20.45% |
| Frequency | Valid Percent | |
|---|---|---|
| neutral | 30 | 54.54% |
| very positive | 8 | 14.54% |
| rather positive | 16 | 29.09% |
| rather negative | 1 | 1.82% |
| Total | 55 | 100.0% |
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Lichtenauer, N.; Schmidbauer, L.; Wahl, F.; Wilhelm, S. Experiences Regarding Anonymising and Publishing Personal Data as Open Data in Germany: Results of an Online Survey. Information 2025, 16, 1111. https://doi.org/10.3390/info16121111
Lichtenauer N, Schmidbauer L, Wahl F, Wilhelm S. Experiences Regarding Anonymising and Publishing Personal Data as Open Data in Germany: Results of an Online Survey. Information. 2025; 16(12):1111. https://doi.org/10.3390/info16121111
Chicago/Turabian StyleLichtenauer, Norbert, Lukas Schmidbauer, Florian Wahl, and Sebastian Wilhelm. 2025. "Experiences Regarding Anonymising and Publishing Personal Data as Open Data in Germany: Results of an Online Survey" Information 16, no. 12: 1111. https://doi.org/10.3390/info16121111
APA StyleLichtenauer, N., Schmidbauer, L., Wahl, F., & Wilhelm, S. (2025). Experiences Regarding Anonymising and Publishing Personal Data as Open Data in Germany: Results of an Online Survey. Information, 16(12), 1111. https://doi.org/10.3390/info16121111

