A Life-Stage Comparative Study of the Psychosocial Care Burdens and Needs of Middle-Aged and Older Family Carers in Home Care
Abstract
1. Introduction
2. Materials and Methods
2.1. Study Design
2.2. Participants
2.3. Measurements
2.3.1. Demographic Characteristics of Family Carers
2.3.2. Demographic Characteristics of Care Recipients
2.3.3. Psychosocial Care Burdens of Family Carers
2.3.4. Needs of Family Carers
2.4. Ethical Considerations
2.5. Statistical Analysis
3. Results
3.1. Demographic Characteristics of Family Carers
3.2. Demographic Characteristics of Care Recipients
3.3. The Psychosocial Care Burdens of Family Carers
3.4. The Needs of Family Carers
4. Discussion
4.1. Novelty and Strength of This Exploratory Study
4.2. The Psychosocial Care Burdens of Family Carers
4.3. The Needs of Family Carers
4.4. Limitations
5. Conclusions
Supplementary Materials
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
Abbreviations
| MFCs | Middle-aged family carers |
| OFCs | Older family carers |
References
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| MFCs n = 90 | OFCs n = 63 | p | Effect Size | |||
|---|---|---|---|---|---|---|
| n | % | n | % | |||
| Sex | 0.922 | 0.008 | ||||
| Male | 15 | 16.7 | 11 | 17.5 | ||
| Female | 74 | 82.2 | 52 | 82.5 | ||
| Missing data | 1 | 1.1 | 0 | 0 | ||
| Living status | 0.035 * | 0.308 | ||||
| Living alone | 4 | 4.4 | 1 | 1.6 | ||
| Living with a spouse | 32 | 35.6 | 36 | 57.1 | ||
| Living with children | 15 | 16.7 | 8 | 12.7 | ||
| Living with grandchildren | 0 | 0 | 1 | 1.6 | ||
| Living with relatives | 2 | 2.2 | 0 | 0 | ||
| Living with parents’ household | 26 | 28.9 | 7 | 11.1 | ||
| Other | 6 | 6.7 | 5 | 7.9 | ||
| Missing data | 5 | 5.6 | 5 | 7.9 | ||
| Relationship to care recipient | <0.001 * | 0.712 | ||||
| Spouse | 2 | 2.2 | 38 | 60.3 | ||
| Child | 3 | 3.3 | 0 | 0 | ||
| Grandchild | 0 | 0 | 0 | 0 | ||
| Parent | 82 | 91.1 | 19 | 30.2 | ||
| Grandparent | 1 | 1.1 | 0 | 0 | ||
| Sibling | 0 | 0 | 2 | 3.2 | ||
| Relative | 0 | 0 | 1 | 1.6 | ||
| Other | 1 | 1.1 | 1 | 1.6 | ||
| Missing data | 1 | 1.1 | 2 | 3.2 | ||
| Duration of caregiving | 0.379 | 0.142 | ||||
| Less than 1 year | 10 | 11.1 | 7 | 11.1 | ||
| 1–4 years | 42 | 46.7 | 36 | 57.1 | ||
| 5–9 years | 21 | 23.3 | 13 | 20.6 | ||
| More than 10 years | 17 | 18.9 | 6 | 9.5 | ||
| Missing data | 0 | 0 | 1 | 1.6 | ||
| Frequency of caregiving | 0.047 * | 0.273 | ||||
| Daily | 46 | 51.1 | 45 | 71.4 | ||
| 4–6 days per week | 3 | 3.3 | 2 | 3.2 | ||
| 2–3 days per week | 20 | 22.2 | 6 | 9.5 | ||
| Once a week | 11 | 12.2 | 2 | 3.2 | ||
| 2–3 days per month | 5 | 5.6 | 4 | 6.3 | ||
| Other | 5 | 5.6 | 1 | 1.6 | ||
| Missing data | 0 | 0 | 3 | 4.8 | ||
| Caregiving collaborators (multiple responses) | ||||||
| Sibling | 35 | 38.9 | 8 | 12.7 | 0.001 * | 0.277 |
| Caregiving service provider | 27 | 30.0 | 15 | 23.8 | 0.504 | 0.055 |
| Spouse | 27 | 30.0 | 10 | 15.9 | 0.063 | 0.152 |
| No one | 13 | 14.4 | 18 | 28.6 | 0.021 * | 0.188 |
| Child | 11 | 12.2 | 17 | 27.0 | 0.013 * | 0.203 |
| Healthcare professional | 9 | 10.0 | 2 | 3.2 | 0.125 | 0.125 |
| Relative | 3 | 3.3 | 0 | 0 | 0.153 | 0.117 |
| Neighbor or acquaintance | 2 | 2.2 | 2 | 3.2 | 0.679 | 0.034 |
| Other | 2 | 2.2 | 2 | 3.2 | 0.679 | 0.034 |
| Parent | 2 | 2.2 | 0 | 0 | 0.245 | 0.095 |
| Grandchild | 0 | 0 | 0 | 0 | - | - |
| Grandparent | 0 | 0 | 0 | 0 | - | - |
| Missing data | 0 | 0 | 3 | 4.8 | ||
| MFCs n = 90 | OFCs n = 63 | p | Effect Size | |||
|---|---|---|---|---|---|---|
| n | % | n | % | |||
| Age | 0.008 * | 0.281 | ||||
| Under 40 | 3 | 3.3 | 0 | 0 | ||
| 40–64 | 0 | 0 | 0 | 0 | ||
| 65–74 | 5 | 5.6 | 8 | 12.7 | ||
| 75–84 | 16 | 17.8 | 22 | 34.9 | ||
| 85 and older | 65 | 72.2 | 31 | 49.2 | ||
| Missing data | 1 | 1.1 | 2 | 3.2 | ||
| Sex | <0.001 * | 0.293 | ||||
| Male | 21 | 23.3 | 32 | 50.8 | ||
| Female | 64 | 71.1 | 28 | 44.4 | ||
| Missing data | 5 | 5.6 | 3 | 4.8 | ||
| Reasons for needing care (multiple responses) | ||||||
| General frailty | 77 | 85.6 | 43 | 68.3 | 0.016 * | 0.195 |
| Dementia | 27 | 30.0 | 17 | 27.0 | 0.730 | 0.028 |
| Physical disability | 13 | 14.4 | 22 | 34.9 | 0.002 * | 0.246 |
| Intractable diseases | 5 | 5.6 | 3 | 4.8 | 0.846 | 0.016 |
| Other | 5 | 5.6 | 2 | 3.2 | 0.501 | 0.055 |
| Intellectual disability | 3 | 3.3 | 0 | 0 | 0.147 | 0.118 |
| Mental illness | 2 | 2.2 | 0 | 0 | 0.237 | 0.096 |
| Addiction | 1 | 1.1 | 4 | 6.3 | 0.070 | 0.147 |
| Social withdrawal | 1 | 1.1 | 2 | 3.2 | 0.357 | 0.075 |
| Medical care needs | 1 | 1.1 | 1 | 1.6 | 0.790 | 0.022 |
| Severe physical and intellectual disabilities | 0 | 0 | 1 | 1.6 | 0.227 | 0.098 |
| Missing data | 0 | 0 | 1 | 1.6 | ||
| Care level | 0.612 | 0.220 | ||||
| Support level 1 | 32 | 35.6 | 27 | 42.9 | ||
| Support level 2 | 30 | 33.3 | 19 | 30.2 | ||
| Care level 1 | 9 | 10.0 | 10 | 15.9 | ||
| Care level 2 | 5 | 5.6 | 2 | 3.2 | ||
| Care level 3 | 5 | 5.6 | 1 | 1.6 | ||
| Care level 4 | 2 | 2.2 | 0 | 0 | ||
| Care level 5 | 1 | 1.1 | 1 | 1.6 | ||
| Not applied | 2 | 2.2 | 0 | 0 | ||
| Application in process | 1 | 1.1 | 1 | 1.6 | ||
| Unknown | 1 | 1.1 | 0 | 0 | ||
| Missing data | 2 | 2.2 | 2 | 3.2 | ||
| MFCs n = 90 | OFCs n = 63 | p | Effect Size | |||
|---|---|---|---|---|---|---|
| n | % | n | % | |||
| Care burden a | 54 | 60.0 | 34 | 53.9 | - | |
| Extremely burdensome | 6 | 6.7 | 4 | 6.3 | 0.807 | 0.103 |
| Somewhat burdensome | 48 | 53.3 | 30 | 47.6 | ||
| Not very burdensome | 30 | 33.3 | 25 | 39.7 | ||
| Not burdensome at all currently | 4 | 4.4 | 4 | 6.3 | ||
| Other | 1 | 1.1 | 0 | 0 | ||
| Missing data | 1 | 1.1 | 0 | 0 | ||
| Causes of care burden (multiple responses) | ||||||
| Mental stress | 64 | 71.1 | 42 | 66.7 | 0.884 | 0.012 |
| Anxiety about the future | 27 | 30.0 | 17 | 27.0 | 0.826 | 0.018 |
| Physical strain | 23 | 25.6 | 19 | 30.2 | 0.414 | 0.067 |
| Financial burden | 16 | 17.8 | 9 | 14.3 | 0.655 | 0.037 |
| Do not feel burdened | 10 | 11.1 | 10 | 15.9 | 0.327 | 0.080 |
| Family relationships | 12 | 13.3 | 2 | 3.2 | 0.039 * | 0.168 |
| Other | 8 | 8.9 | 1 | 1.6 | 0.068 | 0.149 |
| Missing data | 0 | 0 | 3 | 4.8 | - | - |
| Life challenges and concerns (multiple responses) | ||||||
| Physical and mental health | 53 | 58.9 | 41 | 65.1 | 0.514 | 0.055 |
| Outlook for the future | 37 | 41.1 | 19 | 30.2 | 0.126 | 0.130 |
| Financial problems | 23 | 25.6 | 12 | 19.0 | 0.302 | 0.088 |
| Work-related issues | 18 | 20.0 | 3 | 4.8 | 0.006 * | 0.235 |
| Lack of personal free time | 16 | 17.8 | 16 | 25.4 | 0.279 | 0.092 |
| Relationship with the care recipient | 16 | 17.8 | 11 | 17.5 | 0.908 | 0.010 |
| Difficulty maintaining life balance | 10 | 11.1 | 9 | 14.3 | 0.591 | 0.046 |
| Insufficient quality or quantity of care services | 6 | 6.7 | 4 | 6.3 | 0.908 | 0.010 |
| Family relationships | 5 | 5.6 | 3 | 4.8 | 0.803 | 0.021 |
| Other | 3 | 3.3 | 3 | 4.8 | 0.674 | 0.036 |
| Workplace relationships | 3 | 3.3 | 0 | 0 | 0.138 | 0.126 |
| Relationships with neighbors | 1 | 1.1 | 0 | 0 | 0.396 | 0.072 |
| Missing data | 9 | 10.0 | 5 | 7.9 | - | - |
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Oe, N.; Iwata, Y.; Tanaka, Y.; Yokoyama, A.; Tadaka, E. A Life-Stage Comparative Study of the Psychosocial Care Burdens and Needs of Middle-Aged and Older Family Carers in Home Care. Soc. Sci. 2026, 15, 129. https://doi.org/10.3390/socsci15020129
Oe N, Iwata Y, Tanaka Y, Yokoyama A, Tadaka E. A Life-Stage Comparative Study of the Psychosocial Care Burdens and Needs of Middle-Aged and Older Family Carers in Home Care. Social Sciences. 2026; 15(2):129. https://doi.org/10.3390/socsci15020129
Chicago/Turabian StyleOe, Nanami, Yuka Iwata, Yuko Tanaka, Ayuka Yokoyama, and Etsuko Tadaka. 2026. "A Life-Stage Comparative Study of the Psychosocial Care Burdens and Needs of Middle-Aged and Older Family Carers in Home Care" Social Sciences 15, no. 2: 129. https://doi.org/10.3390/socsci15020129
APA StyleOe, N., Iwata, Y., Tanaka, Y., Yokoyama, A., & Tadaka, E. (2026). A Life-Stage Comparative Study of the Psychosocial Care Burdens and Needs of Middle-Aged and Older Family Carers in Home Care. Social Sciences, 15(2), 129. https://doi.org/10.3390/socsci15020129

