Moving towards Integrated and Personalized Care in Parkinson’s Disease: A Framework Proposal for Training Parkinson Nurses

van Munster, Marlena; Stümpel, Johanne; Thieken, Franziska; Pedrosa, David J.; Antonini, Angelo; Côté, Diane; Fabbri, Margherita; Ferreira, Joaquim J.; Růžička, Evžen; Grimes, David; Mestre, Tiago A.

doi:10.3390/jpm11070623

Open AccessFeature PaperReview

Moving towards Integrated and Personalized Care in Parkinson’s Disease: A Framework Proposal for Training Parkinson Nurses

by

Marlena van Munster

^1,*

,

Johanne Stümpel

^2,3

,

Franziska Thieken

¹,

David J. Pedrosa

¹

,

Angelo Antonini

⁴,

Diane Côté

⁵

,

Margherita Fabbri

⁶,

Joaquim J. Ferreira

^7,8,9,

Evžen Růžička

¹⁰,

David Grimes

¹¹ and

Tiago A. Mestre

¹¹

¹

Department of Neurology, University Hospital Marburg, 35033 Marburg, Germany

²

Cologne Center for Ethics, Rights, Economics, and Social Sciences of Health (CERES), University of Cologne, 50931 Cologne, Germany

³

Research Unit Ethics, University Hospital Cologne, 50931 Cologne, Germany

⁴

Parkinson and Movement Disorders Unit, University of Padua, 35122 Padua, Italy

⁵

The Ottawa Hospital Research Institute, Ottawa, ON K1Y 4E9, Canada

⁶

Department of Neurosciences, Clinical Investigation Center CIC 1436, Parkinson Toulouse Expert Center, NS-Park/FCRIN Network and NeuroToul COEN Center, TOULOUSE University Hospital, INSERM, University of Toulouse 3, 31062 Toulouse, France

⁷

Laboratory of Clinical Pharmacology and Therapeutics, Faculdade de Medicina, Universidade de Lisboa, 1649-028 Lisboa, Portugal

⁸

Instituto de Medicina Molecular João Lobo Antunes, Faculdade de Medicina, Universidade de Lisboa, 1649-028 Lisboa, Portugal

⁹

CNS—Campus Neurológico Sénior Torres Vedras, 2560-280 Torres Vedras, Portugal

¹⁰

Department of Neurology and Center of Clinical Neuroscience, First Faculty of Medicine, Charles University, General University Hospital in Prague, CZ-121 08 Prague, Czech Republic

¹¹

Parkinson Disease and Movement Disorders Centre, Division of Neurology, Department of Medicine, The Ottawa Hospital Research Institute, University of Ottawa Brain and Mind Research Institute, Ottawa, ON K1Y 4E9, Canada

Show full affiliation list

Hide full affiliation list

^*

Author to whom correspondence should be addressed.

J. Pers. Med. 2021, 11(7), 623; https://doi.org/10.3390/jpm11070623

Submission received: 30 April 2021 / Revised: 17 June 2021 / Accepted: 25 June 2021 / Published: 30 June 2021

(This article belongs to the Special Issue Personalized Nursing and Health Care)

Download

Browse Figure

Review Reports Versions Notes

Abstract

Delivering healthcare to people living with Parkinson’s disease (PD) may be challenging in face of differentiated care needs during a PD journey and a growing complexity. In this regard, integrative care models may foster flexible solutions on patients’ care needs whereas Parkinson Nurses (PN) may be pivotal facilitators. However, at present hardly any training opportunities tailored to the care priorities of PD-patients are to be found for nurses. Following a conceptual approach, this article aims at setting a framework for training PN by reviewing existing literature on care priorities for PD. As a result, six prerequisites were formulated concerning a framework for training PN. The proposed training framework consist of three modules covering topics of PD: (i) comprehensive care, (ii) self-management support and (iii) health coaching. A fourth module on telemedicine may be added if applicable. The framework streamlines important theoretical concepts of professional PD management and may enable the development of novel, personalized care approaches.

Keywords: Parkinson’s disease; nursing training; integrated care; Parkinson nurse; personalized care; multidisciplinary care

Share and Cite

MDPI and ACS Style

van Munster, M.; Stümpel, J.; Thieken, F.; Pedrosa, D.J.; Antonini, A.; Côté, D.; Fabbri, M.; Ferreira, J.J.; Růžička, E.; Grimes, D.; et al. Moving towards Integrated and Personalized Care in Parkinson’s Disease: A Framework Proposal for Training Parkinson Nurses. J. Pers. Med. 2021, 11, 623. https://doi.org/10.3390/jpm11070623

AMA Style

van Munster M, Stümpel J, Thieken F, Pedrosa DJ, Antonini A, Côté D, Fabbri M, Ferreira JJ, Růžička E, Grimes D, et al. Moving towards Integrated and Personalized Care in Parkinson’s Disease: A Framework Proposal for Training Parkinson Nurses. Journal of Personalized Medicine. 2021; 11(7):623. https://doi.org/10.3390/jpm11070623

Chicago/Turabian Style

van Munster, Marlena, Johanne Stümpel, Franziska Thieken, David J. Pedrosa, Angelo Antonini, Diane Côté, Margherita Fabbri, Joaquim J. Ferreira, Evžen Růžička, David Grimes, and et al. 2021. "Moving towards Integrated and Personalized Care in Parkinson’s Disease: A Framework Proposal for Training Parkinson Nurses" Journal of Personalized Medicine 11, no. 7: 623. https://doi.org/10.3390/jpm11070623

APA Style

van Munster, M., Stümpel, J., Thieken, F., Pedrosa, D. J., Antonini, A., Côté, D., Fabbri, M., Ferreira, J. J., Růžička, E., Grimes, D., & Mestre, T. A. (2021). Moving towards Integrated and Personalized Care in Parkinson’s Disease: A Framework Proposal for Training Parkinson Nurses. Journal of Personalized Medicine, 11(7), 623. https://doi.org/10.3390/jpm11070623

Note that from the first issue of 2016, this journal uses article numbers instead of page numbers. See further details here.

Article Menu

Moving towards Integrated and Personalized Care in Parkinson’s Disease: A Framework Proposal for Training Parkinson Nurses

Abstract

Share and Cite

Article Metrics

Article Access Statistics

Further Information

Guidelines

MDPI Initiatives

Follow MDPI