Developing the Understanding Palliative Care Module: A Quality Improvement Initiative Incorporating Public, Patient, and Family Caregiver Perspectives
Abstract
:1. Introduction
2. Materials and Methods
2.1. Literature Review and Environmental Scan
2.2. Development of the Alberta Module
2.2.1. Process
2.2.2. Design
2.2.3. Video Content
2.3. Evaluation
3. Results
3.1. Working Group Feedback
3.1.1. Use Plain Language
3.1.2. Focus on Positive Key Messages
3.1.3. Feature Albertans with Lived Experience of Palliative Care
3.1.4. Use Friendly, Engaging Graphics and Navigation
3.2. The Understanding Palliative Care Module
3.3. Dissemination of the Module
3.4. Evaluation
4. Discussion
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
References
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Interview Guide |
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How has palliative care helped/benefitted you/those close to you? What physical symptoms were/are challenging for you/your family member, and how has palliative care helped address those symptoms? Are you able to share some of the emotions you have experienced during your illness/your family member’s illness? Did palliative care help you cope emotionally with your/your family member’s illness? If so, in what way? At the time of your/your family member’s diagnosis, or in the time that followed, did you/they have spiritual questions or concerns? If yes, have you/they received support to help you/them on your/their journey? Did palliative care play a role? How did your/your family member’s illness impact you socially? Has palliative care provided support in this area? Has palliative care provided support to your family or caregivers? How has it helped them? What is something you have learned about palliative care since you/your family member received it? What do you think everyone should know about palliative care? |
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Share and Cite
Biondo, P.; Shantz, M.-A.; Zheng, Y.; Manning, M.; Kashuba, L. Developing the Understanding Palliative Care Module: A Quality Improvement Initiative Incorporating Public, Patient, and Family Caregiver Perspectives. Curr. Oncol. 2025, 32, 221. https://doi.org/10.3390/curroncol32040221
Biondo P, Shantz M-A, Zheng Y, Manning M, Kashuba L. Developing the Understanding Palliative Care Module: A Quality Improvement Initiative Incorporating Public, Patient, and Family Caregiver Perspectives. Current Oncology. 2025; 32(4):221. https://doi.org/10.3390/curroncol32040221
Chicago/Turabian StyleBiondo, Patricia, Mary-Ann Shantz, Yuanjie (Bill) Zheng, Miranda Manning, and Louise Kashuba. 2025. "Developing the Understanding Palliative Care Module: A Quality Improvement Initiative Incorporating Public, Patient, and Family Caregiver Perspectives" Current Oncology 32, no. 4: 221. https://doi.org/10.3390/curroncol32040221
APA StyleBiondo, P., Shantz, M.-A., Zheng, Y., Manning, M., & Kashuba, L. (2025). Developing the Understanding Palliative Care Module: A Quality Improvement Initiative Incorporating Public, Patient, and Family Caregiver Perspectives. Current Oncology, 32(4), 221. https://doi.org/10.3390/curroncol32040221