Next Article in Journal
Framing Concerns about Body Image during Pre- and Post-Surgical Consultations for Head and Neck Cancer: A Qualitative Study of Patient–Physician Interactions
Previous Article in Journal
Using a Weekly Patient-Reported Outcome Questionnaire to Track Acute Toxicity in Patients Undergoing Pelvic Radiotherapy for Gynecologic Cancers
Article

Understanding the Experience of Canadian Women Living with Ovarian Cancer through the Every Woman StudyTM

1
Ovarian Cancer Canada, 145 Front St E #205, Toronto, ON M5A 1E3, Canada
2
School of Continuing Studies, University of Toronto, 158 St. George St., Toronto, ON M5S 2V8, Canada
3
Department of Obstetrics, Gynecology & Reproductive Sciences, Rady Faculty of Medicine, University of Manitoba, WN5014—820 Sherbrooke St., Winnipeg, MB R3A 1R9, Canada
4
Department of Obstetrics and Gynecology, Faculty of Medicine, University of British Columbia, Vancouver, BC V6Z 2K8, Canada
5
World Ovarian Cancer Coalition, Toronto, ON M5A 1ES, Canada
*
Author to whom correspondence should be addressed.
Curr. Oncol. 2022, 29(5), 3318-3340; https://doi.org/10.3390/curroncol29050271
Received: 29 March 2022 / Revised: 30 April 2022 / Accepted: 3 May 2022 / Published: 5 May 2022
The Every Woman StudyTM: Canadian Edition is the most comprehensive study to date exploring patient-reported experiences of ovarian cancer (OC) on a national scale. An online survey conducted in Fall 2020 included individuals diagnosed with OC in Canada, reporting responses from 557 women from 11 Canadian provinces/territories. Median age at diagnosis was 54 (11–80), 61% were diagnosed between 2016–2020, 59% were stage III/IV and all subtypes of OC were represented. Overall, 23% had a family history of OC, 75% had genetic testing and 19% reported having a BRCA1/2 mutation. Most (87%) had symptoms prior to diagnosis. A timely diagnosis of OC (≤3 months from first presentation with symptoms) was predicted by age (>50) or abdominal pain/persistent bloating as the primary symptom. Predictors of an acute diagnosis (<1 month) included region, ER/urgent care doctor as first healthcare provider or stage III/IV disease. Regional differences in genetic testing, treatments and clinical trial participation were also noted. Respondents cited substantial physical, emotional, practical and financial impacts of an OC diagnosis. Our national survey has revealed differences in the pathway to diagnosis and post-diagnostic care among Canadian women with OC, with region, initial healthcare provider, specific symptoms and age playing key roles. We have identified many opportunities to improve both clinical and supportive care of OC patients across the country. View Full-Text
Keywords: ovarian cancer; regional variation; diagnosis; treatment; psychosocial impact; genetic testing; clinical trials ovarian cancer; regional variation; diagnosis; treatment; psychosocial impact; genetic testing; clinical trials
Show Figures

Figure 1

MDPI and ACS Style

Tone, A.; Boghosian, T.; Ross, A.; Baugh, E.; Altman, A.D.; Dawson, L.; Reid, F.; Crawford, C. Understanding the Experience of Canadian Women Living with Ovarian Cancer through the Every Woman StudyTM. Curr. Oncol. 2022, 29, 3318-3340. https://doi.org/10.3390/curroncol29050271

AMA Style

Tone A, Boghosian T, Ross A, Baugh E, Altman AD, Dawson L, Reid F, Crawford C. Understanding the Experience of Canadian Women Living with Ovarian Cancer through the Every Woman StudyTM. Current Oncology. 2022; 29(5):3318-3340. https://doi.org/10.3390/curroncol29050271

Chicago/Turabian Style

Tone, Alicia, Talin Boghosian, Alison Ross, Elisabeth Baugh, Alon D. Altman, Lesa Dawson, Frances Reid, and Cailey Crawford. 2022. "Understanding the Experience of Canadian Women Living with Ovarian Cancer through the Every Woman StudyTM" Current Oncology 29, no. 5: 3318-3340. https://doi.org/10.3390/curroncol29050271

Find Other Styles

Article Access Map by Country/Region

1
Back to TopTop