Engaging Communities and Empowering Research: Lessons from a Network of Community Engagement Cores
Abstract
1. Introduction
1.1. RCMI U54 Centers
- Enhance Institutional Research Capacity: Strengthen the infrastructure to conduct cutting-edge basic biomedical, behavioral, and clinical research.
- Increase Investigator Competitiveness: Support investigators at all levels to obtain competitive extramural funding, particularly for research on diseases and conditions disproportionately impacting minority and health disparity populations.
- Foster Career Development: Create environments conducive to the career advancement of postdoctoral fellows, junior faculty, and early-stage investigators.
- Advance Minority Health Research: Enhance tools, methodologies, and dissemination of research findings to improve minority health and reduce health inequities.
- Build Community Partnerships: Establish sustainable relationships with community-based organizations to address health-related concerns, promote research participation, and disseminate findings effectively.
- Support Biomedical Workforce: Train and mentor the next generation of researchers from all backgrounds to advance health equity.
- Promote Collaborative Research: Facilitate consortia and partnerships across institutions to drive innovation and impactful research in health disparities.
1.2. RCMI Community Engagement Cores Goals and Functions
- Establish and sustain long-term collaborations with community organizations and partners to address health disparities, promote research participation, and ensure community-driven input into health-related research (Community-Based Partnerships).
- Enhance the cultural competency of researchers and build community capacity in research through training, mentoring, and resource sharing to ensure effective community engagement in health disparities research and intervention development (Capacity Building & Training).
- Develop strategies to improve inclusivity in recruitment and retention in biomedical and health disparities research, ensuring sustained community participation (Recruitment and Retention).
- Translate research findings into actionable community-level practices and policies by disseminating results through accessible formats like health education materials, workshops, and community events (Research Translation & Dissemination).
- Implement ongoing evaluation of community engagement efforts, using surveys, interviews, and other methods to assess the impact of engagement strategies and ensure continuous improvement (Evaluation & Feedback).
- Foster trust-based relationships between academic researchers and communities, addressing past concerns about research and creating a foundation for sustained and productive partnerships (Building Trust & Reducing Distrust in Research).
- Leverage innovative and necessary data on social determinants of health (SDOH) and genomic indicators to create databases that enhance personalized, precision healthcare and improve treatment outcomes for minority populations (Data Integration & Precision Treatment).
1.3. Importance of Community Engagement in Research
1.4. The Unique Role of CECs in Addressing Health Disparities and Building Trust
1.5. Objectives
2. Materials and Methods
Data Sources
3. Analysis Approach
Data Analysis
4. Results
4.1. Geographic Distribution and Target Populations
- Ethnically diverse, less resourced minority communities in urban areas in places like the DC metropolitan area, East Baltimore, and the Greater Houston Community.
- Hispanic/Latinx and Caribbean communities of various heritages in South Florida, Southern and Western Puerto Rico, and El Paso, Texas.
- Low-resourced African Americans or those experiencing poor health in the Black Belt and rural areas of Alabama, Nashville, Tennessee, and Atlanta, Georgia.
- Native Hawaiian and other Pacific Islander (NHOPI) communities in Hawaii.
- Populations experiencing inadequate healthcare, such as persons of color, in parts of the country, such as Kent and Sussex counties in Delaware, and Central Mississippi.
4.2. Descriptors of Key Functions of the CECs Expressed as Keywords
4.3. Community Engagement Strategies
4.4. Dissemination Strategies
4.5. Lessons Learned from Community-Engaged Signature Programs
4.6. Preliminary Findings of Evaluation of Community Engagement Metrics
5. Discussion
5.1. Target Populations
5.2. Summary of the CEC Functions
5.3. Community Engagement Strategies
5.4. Dissemination Strategies
5.5. Lessons Learned from Community-Engaged Signature Programs
5.6. Strengths and Limitations
6. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
References
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| Level | Community Role |
|---|---|
| Outreach | Informed: One-way communication. Information is provided to the community. |
| Consultation | Asked: Two-way communication. Community feedback is requested and considered. |
| Involvement | Involved: Community participates in planning and implementation. Their input influences decisions. |
| Collaboration | Partnered: Shared decision-making. Community members and organizations are equal partners. |
| Shared Leadership | Shared Decision-Making: Joint leadership between the community and institutions. |
| Community Ownership | Leads and Owns Decisions: The Community leads the effort. Organizations support but do not direct. |
| Major Themes | Themes | Themes Operationalized as Activities |
| Access and Equity | Reducing Barriers to Clinical Research Participation: | Address trust issues and barriers to participation through education forums and transparent communication. |
| Promote participation in clinical trials and other research studies. | ||
| Example: The University of Texas at El Paso utilizes Community Health Workers to recruit participants for clinical research because the CHWs are trusted and speak to participants at a level they can understand. | ||
| Evaluation and Monitoring of Community Engagement Activities: | Develop logic models and evaluation tools to measure the success and impact of community engagement activities. | |
| Use formative and summative evaluations to guide improvements. | ||
| Example: Northern Arizona University’s evaluation of its Community-Campus Partnership Support demonstrated that 75% of funded teams agreed that their project helped build capacity to engage in health equity research together. | ||
| Capacity Building and Empowerment | Needs Assessments and Feedback Mechanisms: | Conduct community-level assessments to identify health needs, barriers, and resources. |
| Use surveys and feedback from community partners to shape health-related priorities. | ||
| Example: Texas Southern University uses surveys and community input to identify health-related concerns in the Greater Houston Community. | ||
| Developing Databases and Hubs for Community Resources: | Create centralized databases of community resources, services, and outreach activities. | |
| Develop information hubs to streamline access to community engagement efforts. | ||
| Example: The Rural Health Hub at North Carolina Central University fills a critical need for access to health information, nutritious food options, and other wellness services for people living in Halifax County. | ||
| Training and Capacity Building: | Provide training for researchers on community engagement and health equity. | |
| Build capacity among community members to participate in research. | ||
| Example: Through its Student Research Training Program, Morehouse School of Medicine paired its researchers with undergraduate students from four local institutions for up to two years. | ||
| Outreach and Communication | Health Education and Outreach Programs: | Offer culturally sensitive health education seminars and workshops based on identified community needs. |
| Develop programs to promote cancer screening, health literacy, and nutrition education. | ||
| Example: Xavier University of Louisiana developed culturally and linguistically tailored educational programs, such as the Cancer 101 Education Program and the RCMI Cancer Health Advisor Program, that empower community members through monthly training on cancer. | ||
| Community Forums and Events: | Host community forums, topical workshops, and town halls to address pressing health issues collaboratively. | |
| Facilitate “town and gown” events to bridge the gap between research and community stakeholders. | ||
| Example: At the height of COVID-19, Florida International University hosted 7 town halls to disseminate vaccine literacy materials to over 1800 people from more than 78 zip codes throughout South Florida. | ||
| Engagement Through Social and Mass Media | Utilize social media platforms and mass media outlets to raise awareness about research and community programs. | |
| Example: Healthy Disruptions, a podcast launched by the University of California, Riverside, highlights how community members and researchers are collaborating towards action-based solutions. | ||
| Partnerships and Collaboration | Developing Community Partnerships: | Establish partnerships with community-based organizations (CBOs), healthcare systems, Federally Qualified Health Centers (FQHCs), and other local agencies. |
| Leverage longstanding partnerships for outreach and engagement. | ||
| Example: Texas Southern University leverages established partnerships with over 18 Faith-Based Organizations (FBOs) and 24 Community-Based Organizations (CBOs) in health education, conference planning, and information sharing. | ||
| Establishing Community Advisory Committees: | Form community consultation councils or advisory boards to provide input and feedback. | |
| Create patient and family advisory committees (PFACs) to assist with project implementation. | ||
| Example: The relationships established through Florida International University’s CAB network provide insight into best practices for community engagement, and participant recruiting/retention, guide the dissemination of research results, and facilitate new joint community-academic grant submissions | ||
| Promotores de Salud/Community Health Worker (CHW) Models: | Engage CHWs to conduct grassroots outreach and connect with populations experiencing health disparities. | |
| Use CHWs to deliver health education and facilitate research participation. | ||
| Example: The community health workers at the University of Texas at El Paso’s Border Biomedical Research Center conducted outreach to 210,761 individuals who received COVID-19 information. | ||
| Binational and Bidirectional Partnerships: | Establish partnerships across borders to address shared health concerns, particularly in regions with high concentrations of immigrants. | |
| Example: University of Puerto Rico Medical Sciences Campus hosts seminars and workshops aimed at fostering dialogue and knowledge exchange in community-based participatory research, citizen science, and strategies for effectively communicating research results to broader audiences. | ||
| Research and Knowledge Sharing | Community-Based Participatory Research (CBPR) | Use CBPR methods to co-develop and conduct research with community partners. |
| Include community members in the research review process. | ||
| Example: The Morgan CARES award at Morgan State University is reviewed by a diverse steering committee that includes representatives from both community and academia. | ||
| Dissemination of Research Findings: | Disseminate research findings in culturally relevant and accessible formats, such as lay-language reports or multimedia. | |
| Partner with community stakeholders to develop effective dissemination strategies. | ||
| Example: The University of Hawaii at Manoa ensures that 100% of pilot applicants provided lay summaries along with their abstracts and full proposals, which facilitated review by the community. | ||
| Facilitating Researcher-Community Interactions: | Foster opportunities for researchers to engage with community members through workshops and collaborative activities. | |
| Example: Jackson State University leveraged organizations like the 100 Black Men of Jackson, Mississippi Community Health Workers, and the Mississippi State Department of Health to provide resources and access to priority populations. |
| Domains | Distinct Dissemination Strategies |
| Accessible and Community-Centered Communication | Community-Friendly Materials: CECs use accessible formats, such as social media, newsletters, health brochures, and videos, to disseminate research findings |
| Reports and Publications: Many CECs utilize reports, newsletters, and social media to disseminate their findings to both community and academic audiences. | |
| Direct Engagement and Dialogue | Town Hall Meetings/Community Forums: These platforms are used for open discussions and the dissemination of research findings, ensuring direct community engagement. |
| Multi-Media and Face-to-Face Contact: Some CECs, such as UTEP BBRC-HCHD, combine multimedia technology and in-person communication to reach underserved communities and foster trust. | |
| Leveraging Digital and Mass Media for Broader Outreach | Media and Technology: Digital platforms, including social media, webinars, and online forums, are utilized to reach a broader audience. |
| Social Media and Technology: Digital platforms are extensively used for spreading research findings and engaging wider audiences. | |
| Social and Mass Media: TSU utilizes social and mass media (e.g., newspapers, Radio, etc.) to spread awareness and organize events that bridge the gap between research findings and the community. | |
| Culturally Tailored Communication | Culturally Relevant Methods: FAMU employs culturally relevant methods, including community health worker models, educational materials, and direct communication, to ensure that research is accessible and tailored to local communities. |
| Mixed Media and Hybrid Approaches | Multi-Media and Face-to-Face Contact: Some CECs, such as UTEP BBRC-HCHD, combine multimedia technology and in-person communication to reach underserved communities and foster trust. |
| Incentivizing Dissemination Efforts | Dissemination Awards and Incentives: DSU incorporates programs, such as Dissemination Awards, to incentivize impactful communication and ensure that dissemination activities are contextually relevant. |
| Themes | Examples of Uniquely Cited Lessons Learned |
|---|---|
| Co-Participation | |
| Building and Sustaining Trust and Partnerships | Trust is foundational for effective community engagement and research partnerships. |
| Partnerships with trusted organizations, including faith-based groups and community leaders, increase engagement and credibility. | |
| Long-term, mutually beneficial relationships require consistent engagement, transparency, and recognition of community contributions. | |
| Capacity Building for Communities and Researchers | Training community-based organizations (CBOs) in research practices and strengthening their capacity fosters sustainable collaborations. |
| Workshops and mentorship programs help researchers and communities navigate challenges and align on research goals. | |
| Involving students and early-career researchers in community-engaged activities helps grow the next generation of community-focused professionals. | |
| Bidirectional and Equitable Engagement | Communities must be engaged as equal partners, with their expertise and contributions acknowledged and respected. |
| Bidirectional relationships enable researchers and communities to share knowledge and co-develop solutions. | |
| Allowing community leaders to guide discussions and priorities fosters more meaningful and impactful engagement. | |
| Prioritizing Community | |
| Tailoring Approaches to Cultural and Community Needs | Effective strategies must incorporate culturally and linguistically appropriate methods to address the unique needs of diverse populations. |
| Understanding and respecting cultural practices, values, and histories enhances trust and engagement. | |
| Leveraging Local Gatekeepers and Community Experts | Community health workers (CHWs), community coalitions, and advisory boards are essential for bridging gaps between researchers and underserved populations. |
| Involving community stakeholders early in the research process helps align objectives and improves recruitment. | |
| Empowering and Recognizing Community Contributions | Recognizing and celebrating community contributions, even in non-monetary ways, fosters goodwill and continued collaboration. |
| Creating community platforms to share priorities and experiences strengthens engagement and mutual understanding. | |
| Addressing Operational Infrastructure | |
| Importance of Strategic and Flexible Infrastructure | Dedicated infrastructure, including committees, guidelines, and trained personnel, is critical for supporting engagement efforts. |
| Flexibility and responsiveness to the community and researchers’ needs improve collaboration outcomes. | |
| Addressing Institutional and Bureaucratic Barriers | University bureaucratic processes often hinder timely community engagement and resource distribution, necessitating innovative solutions such as partnering with nonprofits to manage funds. |
| Streamlining administrative processes and providing extensive support for community engagement improve efficiency and responsiveness. | |
| Evaluation and Continuous Improvement | Integrated evaluation processes ensure that community engagement activities are effective and sustainable. |
| Feedback from community members and advisory boards drives improvements and fosters innovation in programs. | |
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Share and Cite
Sarpong, D.F.; Liu, C.Y.; Gordon, T.K.; Sy, A.; Mancera, B.; Alhassan, M.; for the RCMI Community Engagement Consortium. Engaging Communities and Empowering Research: Lessons from a Network of Community Engagement Cores. Int. J. Environ. Res. Public Health 2025, 22, 1661. https://doi.org/10.3390/ijerph22111661
Sarpong DF, Liu CY, Gordon TK, Sy A, Mancera B, Alhassan M, for the RCMI Community Engagement Consortium. Engaging Communities and Empowering Research: Lessons from a Network of Community Engagement Cores. International Journal of Environmental Research and Public Health. 2025; 22(11):1661. https://doi.org/10.3390/ijerph22111661
Chicago/Turabian StyleSarpong, Daniel F., Corrine Yibing Liu, Tandeca King Gordon, Angela Sy, Bibiana Mancera, Mustapha Alhassan, and for the RCMI Community Engagement Consortium. 2025. "Engaging Communities and Empowering Research: Lessons from a Network of Community Engagement Cores" International Journal of Environmental Research and Public Health 22, no. 11: 1661. https://doi.org/10.3390/ijerph22111661
APA StyleSarpong, D. F., Liu, C. Y., Gordon, T. K., Sy, A., Mancera, B., Alhassan, M., & for the RCMI Community Engagement Consortium. (2025). Engaging Communities and Empowering Research: Lessons from a Network of Community Engagement Cores. International Journal of Environmental Research and Public Health, 22(11), 1661. https://doi.org/10.3390/ijerph22111661

