Article Versions Notes

Ali SR, Bryce J, Tan LE, Hiort O, Pereira AM, van den Akker ELT, Appelman-Dijkstra NM, Bertherat J, Cools M, Dekkers OM, et al. The EuRRECa Project as a Model for Data Access and Governance Policies for Rare Disease Registries That Collect Clinical Outcomes. International Journal of Environmental Research and Public Health. 2020; 17(23):8743. https://doi.org/10.3390/ijerph17238743

Ali, Salma R., Jillian Bryce, Li En Tan, Olaf Hiort, Alberto M. Pereira, Erica L. T. van den Akker, Natasha M. Appelman-Dijkstra, Jerome Bertherat, Martine Cools, Olaf M. Dekkers, and et al. 2020. "The EuRRECa Project as a Model for Data Access and Governance Policies for Rare Disease Registries That Collect Clinical Outcomes" International Journal of Environmental Research and Public Health 17, no. 23: 8743. https://doi.org/10.3390/ijerph17238743

Ali, S. R., Bryce, J., Tan, L. E., Hiort, O., Pereira, A. M., van den Akker, E. L. T., Appelman-Dijkstra, N. M., Bertherat, J., Cools, M., Dekkers, O. M., Kodra, Y., Persani, L., Smyth, A., Smythe, C., Taruscio, D., & Ahmed, S. F. (2020). The EuRRECa Project as a Model for Data Access and Governance Policies for Rare Disease Registries That Collect Clinical Outcomes. International Journal of Environmental Research and Public Health, 17(23), 8743. https://doi.org/10.3390/ijerph17238743