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Keywords = everyday family life

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19 pages, 305 KiB  
Article
Gender Inequalities and Precarious Work–Life Balance in Italian Academia: Emergency Remote Work and Organizational Change During the COVID-19 Lockdown
by Annalisa Dordoni
Soc. Sci. 2025, 14(8), 471; https://doi.org/10.3390/socsci14080471 - 29 Jul 2025
Viewed by 328
Abstract
The COVID-19 pandemic has exposed and intensified structural tensions surrounding work−life balance, precarity, and gender inequalities in academia. This paper examines the spatial, temporal, and emotional disruptions experienced by early-career and precarious researchers in Italy during the first national lockdown (March–April 2020) and [...] Read more.
The COVID-19 pandemic has exposed and intensified structural tensions surrounding work−life balance, precarity, and gender inequalities in academia. This paper examines the spatial, temporal, and emotional disruptions experienced by early-career and precarious researchers in Italy during the first national lockdown (March–April 2020) and their engagement in remote academic work. Adopting an exploratory and qualitative approach, the study draws on ten narrative video interviews and thirty participant-generated images to investigate how structural dimensions—such as gender, class, caregiving responsibilities, and the organizational culture of the neoliberal university—shaped these lived experiences. The findings highlight the implosion of boundaries between paid work, care, family life, and personal space and how this disarticulation exacerbated existing inequalities, particularly for women and caregivers. By interpreting both visual and narrative data through a sociological lens on gender, work, and organizations, the paper contributes to current debates on the transformation of academic labor and the reshaping of temporal work regimes through the everyday use of digital technologies in contemporary neoliberal capitalism. It challenges the individualization of discourses on productivity and flexibility and calls for gender-sensitive, structurally informed policies that support equitable and sustainable transitions in work and family life, in line with European policy frameworks. Full article
16 pages, 266 KiB  
Article
Stress and Burden Experienced by Parents of Children with Type 1 Diabetes—A Qualitative Content Analysis Interview Study
by Åsa Carlsund, Sara Olsson and Åsa Hörnsten
Children 2025, 12(8), 984; https://doi.org/10.3390/children12080984 - 26 Jul 2025
Viewed by 377
Abstract
Background: Parents of children with type 1 diabetes play a key role in managing their child’s self-management, which can be stressful and burdensome. High involvement can lead to reactions such as emotional, cognitive, and physical exhaustion in parents. Understanding parents’ psychosocial impact due [...] Read more.
Background: Parents of children with type 1 diabetes play a key role in managing their child’s self-management, which can be stressful and burdensome. High involvement can lead to reactions such as emotional, cognitive, and physical exhaustion in parents. Understanding parents’ psychosocial impact due to their child’s disease is crucial for the family’s overall well-being. The purpose of this study was to describe stress and burden experienced by parents in families with children living with type 1 diabetes. Methods: This study utilized a qualitative approach, analyzing interviews with 16 parents of children aged 10 to 17 years living with T1D through qualitative content analysis. The data collection occurred between January and February 2025. Results: Managing a child’s Type 1 diabetes can be tough on family relationships, affecting how partners interact, intimacy, and sibling relationships. The constant stress and worry might leave parents feeling exhausted, unable to sleep, and struggling to think clearly, on top of the pain of losing a normal everyday life. The delicate balance between allowing a child with type 1 diabetes to be independent and maintaining control over their self-management renders these challenges even more demanding for the parents. Conclusions: Parents’ experiences highlight the need for robust support systems, including dependable school environments, trustworthy technical devices, reliable family and friends, and accessible healthcare guidance. These elements are essential not only for the child’s health and well-being but also for alleviating the emotional and practical burdens parents face. Full article
13 pages, 583 KiB  
Review
Chronic Disease in Pediatric Population—A Narrative Review of Psychosocial Dimensions and Strategies for Management
by Francesca Mastorci, Maria Francesca Lodovica Lazzeri, Lamia Ait-Ali, Pierluigi Festa and Alessandro Pingitore
Children 2025, 12(8), 967; https://doi.org/10.3390/children12080967 - 23 Jul 2025
Viewed by 309
Abstract
Children living with chronic diseases represent a great challenge for the health care system, their families, and communities. These young patients face continuous medical needs that affect not only their health but also their daily routines, emotional well-being, and family dynamics. In response, [...] Read more.
Children living with chronic diseases represent a great challenge for the health care system, their families, and communities. These young patients face continuous medical needs that affect not only their health but also their daily routines, emotional well-being, and family dynamics. In response, clinical practice is increasingly integrating psychosocial indicators alongside traditional medical parameters. Consequently, there is a growing consensus that the evaluation of pediatric chronic diseases should address not only clinical dimensions but also the disease’s impact on socialization, emotional health, and daily functioning. This narrative review explores the role of psychosocial variables in the management of pediatric chronic illnesses, including the experiences of parents and siblings, with a focus on effective strategies to improve everyday life. The integration of quality of life and well-being within a multidimensional care model could be instrumental in both symptom management and psychosocial support. Recognizing that children with chronic conditions are at increased risk for long-term adverse outcomes, it is critical to develop interventions that go beyond clinical care, encompassing education, coping reinforcement, and family-centered approaches. Full article
(This article belongs to the Section Pediatric Mental Health)
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23 pages, 12935 KiB  
Article
Chinese Muslims and Religious Encounters in the “Chinatown” of Dakar, Senegal
by Zheyuan Deng
Religions 2025, 16(7), 875; https://doi.org/10.3390/rel16070875 - 6 Jul 2025
Viewed by 1288
Abstract
This paper investigates religious encounters between Chinese and Senegalese Muslims in the relatively new Chinatown of Dakar. Chinese Muslims from Kaifeng City, Henan Province first arrived in Senegal in the 1990s following the Henan provincial state-owned construction company. They started a wholesale business [...] Read more.
This paper investigates religious encounters between Chinese and Senegalese Muslims in the relatively new Chinatown of Dakar. Chinese Muslims from Kaifeng City, Henan Province first arrived in Senegal in the 1990s following the Henan provincial state-owned construction company. They started a wholesale business mainly of clothing and shoes and brought their relatives and family members to Dakar. However, scholars studying the Chinese community in Dakar have largely ignored their Muslim identity and its significance. Moving beyond the conventional focus on tensions between Muslim and Chinese identities in the study of overseas Chinese Muslims, this paper turns to religious encounters in everyday life. Based on field research and interviews both in Dakar and Henan, this paper argues that for these Chinese Muslim businesspersons in Dakar, Islam as a shared religious identity sometimes provides opportunities to connect with their fellow Muslims in a foreign country. However, differences in religious practices can also lead to misconceptions between them and other Senegalese Muslims. This paper thus contributes to Islamic studies and the study of global China, particularly in relation to overseas Chinese Muslims, China–Africa encounters, and global Chinatowns. Full article
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10 pages, 546 KiB  
Entry
The Social Aspect of Children and Adolescents with Chronic Respiratory Diseases
by Eleni A. Kortianou, Maria Isakoglou, Panagiotis Dalamarinis, Dimitrios Alevizos, Aspasia Mavronasou and Vaia Sapouna
Encyclopedia 2025, 5(3), 90; https://doi.org/10.3390/encyclopedia5030090 - 30 Jun 2025
Viewed by 1873
Definition
Chronic respiratory diseases (CRDs) are common among children and adolescents. Asthma and cystic fibrosis are two main conditions that affect this population. Young patients face physical limitations due to structural and functional abnormalities of the airways and other lung structures. Moreover, the route [...] Read more.
Chronic respiratory diseases (CRDs) are common among children and adolescents. Asthma and cystic fibrosis are two main conditions that affect this population. Young patients face physical limitations due to structural and functional abnormalities of the airways and other lung structures. Moreover, the route of everyday life is influenced by responsibilities derived from treatments, and exacerbations imposed by the disease impacting silently their social life. To date, discussions in the literature have mostly focused on the physical limitations that face children and adolescents. On the contrary, social aspects are less investigated, even their important role in rehabilitation patterns. On this basis, we provide an overview of the social determinants that affect children and adolescents with CRDs in different social environments, such as family and school; discuss coping strategies that can be developed to attenuate the impact of CRDs on youngsters’ lives; and present the role of healthcare professionals and digital technology in social support. Full article
(This article belongs to the Collection Encyclopedia of Social Sciences)
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50 pages, 2839 KiB  
Article
A Predictive Framework for Understanding Multidimensional Security Perceptions Among Students in Serbia: The Role of Institutional, Socio-Economic, and Demographic Determinants of Sustainability
by Vladimir M. Cvetković, Milan Lipovac, Renate Renner, Svetlana Stanarević and Zlatko Raonić
Sustainability 2025, 17(11), 5030; https://doi.org/10.3390/su17115030 - 30 May 2025
Viewed by 1118
Abstract
This study investigates and forecasts multidimensional security perceptions among Serbian university students, who are a particularly engaged and vulnerable demographic in transitional societies. It examines how demographic traits, socio-economic status, and levels of institutional trust and engagement shape students’ evaluations of security in [...] Read more.
This study investigates and forecasts multidimensional security perceptions among Serbian university students, who are a particularly engaged and vulnerable demographic in transitional societies. It examines how demographic traits, socio-economic status, and levels of institutional trust and engagement shape students’ evaluations of security in everyday life. The study examines six primary dimensions of security perception: personal safety, safety at public events and demonstrations, perceived national threats, digital security and privacy, perception of emergencies and crises, and trust in institutions and security policies. A structured online survey was administered to a sample of 406 university students selected through non-probability purposive sampling from major academic centres in Serbia, including Belgrade, Niš, Novi Sad, and Kragujevac. The questionnaire, based on a five-point Likert scale, was designed to measure levels of agreement across the six dimensions. Data were analysed using multiple regression, one-way ANOVA, Pearson’s correlation, and independent samples t-tests. All necessary statistical assumptions were met, ensuring the reliability and validity of the results. Descriptive statistics indicated moderate to moderately high overall perceived safety, with personal safety scoring the highest, followed by digital security and disaster preparedness. Lower scores were recorded for public event safety, perceived national threats, and, in particular, trust in institutional security policies. Regression analysis revealed that key predictors of perceived safety varied across dimensions: gender was a significant predictor of personal safety. At the same time, family financial status had a strong influence on perceptions of safety at public events. These findings offer valuable insights for designing targeted risk communication, inclusive policy initiatives, and institutional reforms that aim to enhance youth resilience, civic trust, and participatory security governance, ultimately contributing to long-term social sustainability. Full article
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39 pages, 554 KiB  
Review
Parental Perspectives on Environmental Factors Affecting Participation of Children with Disabilities: A Scoping Review to Inform Inclusive Healthcare and Support Services
by Zeynep Celik Turan, Aleyna Kayim, Anne-Mie Engelen, Kubra Sahadet Sezer, Carolyn Dunford and Esra Aki
Healthcare 2025, 13(11), 1282; https://doi.org/10.3390/healthcare13111282 - 28 May 2025
Viewed by 686
Abstract
Background/Objectives: Environmental factors influence the participation of children with disabilities in everyday life. Parents, as primary caregivers, provide insights into how these factors support or hinder participation in health-related, educational, personal and social activities. This scoping review aimed to systematically map the [...] Read more.
Background/Objectives: Environmental factors influence the participation of children with disabilities in everyday life. Parents, as primary caregivers, provide insights into how these factors support or hinder participation in health-related, educational, personal and social activities. This scoping review aimed to systematically map the literature on parental perceptions of environmental influences on the participation of their children with disabilities. Methods: The review followed the PRISMA-ScR guidelines and the five-stage framework by Arksey and O’Malley. Searches were conducted in five electronic databases: MEDLINE, CINAHL Plus, PsycINFO, PsycArticles, and OpenDissertations. Eligible studies were published in English, focused on children aged 0–18 with any type of disability, and reported on parental views of how environmental factors influence occupational participation. Data were charted and analyzed using narrative synthesis and vote-counting. Results: Thirty-four studies met the inclusion criteria. Frequently discussed environmental domains included physical, social, and institutional factors, while cultural and economic domains received less attention. Participation was commonly addressed in the contexts of play, education, and social engagement. Most studies used qualitative designs and were conducted in high- and middle-income countries. Standardized tools to assess environmental impacts were rarely employed. Conclusions: This review highlights the need for inclusive, family-centered health and social services that address the full range of environmental influences on participation. Future research and policy should prioritize culturally and economically diverse settings, integrate standardized assessment tools, and recognize parental perspectives as essential for designing equitable pediatric healthcare and rehabilitation services. Full article
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20 pages, 2168 KiB  
Article
Parental Attitude Toward the Engagement in Physical Activity of Their Children with Type 1 Diabetes Mellitus in Hungary
by Ildikó Balatoni
Children 2025, 12(5), 612; https://doi.org/10.3390/children12050612 - 7 May 2025
Viewed by 671
Abstract
Background/Objectives: Physical activity plays an essential role in a healthy lifestyle. For children, the development of an encouraging attitude toward exercise can define a positive life-long behaviour. Type 1 diabetes mellitus (T1DM) is a metabolic disorder that usually develops in early childhood and [...] Read more.
Background/Objectives: Physical activity plays an essential role in a healthy lifestyle. For children, the development of an encouraging attitude toward exercise can define a positive life-long behaviour. Type 1 diabetes mellitus (T1DM) is a metabolic disorder that usually develops in early childhood and severely affects glucose metabolism. Associated hypo- and hyperglycaemic conditions can dramatically interfere with the patient’s everyday life. Since exercise significantly alters the glucose consumption of the body, this might influence how T1DM patients view physical activity. As parental guidance is critical in their children’s behaviour, we investigate how parents of T1DM children relate to the engagement in physical activity of their children as compared to parents of healthy children. Methods: A self-reported survey was conducted among those parents whose T1DM children were cared for at the Paediatric Clinic of the University of Debrecen, Hungary. All together, 318 children, 140 with T1DM and 178 healthy peers, participated in the study. Results: We found no significant difference in the body mass index of healthy and T1DM children and, furthermore, no significant difference was observed in HbA1c levels in exercising and non-exercising T1DM children. Nevertheless, while 67.6% of the healthy children regularly engage in physical activity, only 57.5% of T1DM children do so (p = 0.044). Importantly, parents whose T1DM child exercised regularly believed that daily PhysEd classes improved their children’s health and had positive effects on their attitude toward exercise. In contrast, parents of children who did not regularly exercise were significantly less convinced. Conclusions: These findings highlight the importance of targeted educational efforts to foster positive attitudes toward physical activity among families with T1DM children and contribute valuable insights into how parental perceptions may influence children’s engagement in exercise. Full article
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14 pages, 546 KiB  
Communication
Quality-of-Life Assessment and Pharmacokinetic Study in Hemophilia A Patients Undergoing Prophylactic Treatment
by Nikolaos Kotsiou, Paschalis Evangelidis, Michail Bolios, Konstantinos Tragiannidis, Panagiotis Kalmoukos, Zacharo Ntova, Sofia Chissan, Sofia Vakalopoulou and Eleni Gavriilaki
Pharmacy 2025, 13(1), 16; https://doi.org/10.3390/pharmacy13010016 - 2 Feb 2025
Viewed by 1608
Abstract
This study evaluates the health-related quality of life (HRQoL) among patients with hemophilia A currently undergoing prophylactic treatment at the Hemophilia Center of Northern Greece. Using the Haem-A-QoL questionnaire, we assessed various HRQoL dimensions in a cohort of 29 adult male patients, analyzing [...] Read more.
This study evaluates the health-related quality of life (HRQoL) among patients with hemophilia A currently undergoing prophylactic treatment at the Hemophilia Center of Northern Greece. Using the Haem-A-QoL questionnaire, we assessed various HRQoL dimensions in a cohort of 29 adult male patients, analyzing the impact of age, disease severity, and treatment regimens. The results revealed that younger patients (18–30 years old) exhibited significantly better overall HRQoL scores (total score of 25.36) compared to older age groups (37.81 for the 31–45 group and 43.71 in the 45+ group), particularly in the physical health (29.16 vs. 48.43 vs. 58.57) and mental well-being domains (25 vs. 37.11 vs. 41.07). Interestingly, moderate hemophilia patients reported lower HRQoL (42.31) than those with severe form (34.85), suggesting unique challenges in managing their condition. The ’Sports/Free Time’ domain had the highest scores (65.81), indicating significant limitations in physical activities in the everyday lives of affected individuals. However, better outcomes were observed in the mental dimension (36.09), work/study (34.88), family planning (10.68), and relationships aspects (16.67), where our cohort reported very low scores compared to similar studies, indicating a significantly better quality of life in these domains. These findings highlight the importance of personalized psychosocial support and targeted interventions to address the specific needs of hemophilia patients, particularly in enhancing physical activity opportunities and managing the psychological burden of moderate hemophilia. The study contributes valuable insights into the HRQoL of hemophilia patients and underscores the necessity for tailored approaches to improve patient outcomes across all dimensions of life. Full article
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15 pages, 2022 KiB  
Article
Selective Auditory Attention Detection Using Combined Transformer and Convolutional Graph Neural Networks
by Masoud Geravanchizadeh, Amir Shaygan Asl and Sebelan Danishvar
Bioengineering 2024, 11(12), 1216; https://doi.org/10.3390/bioengineering11121216 - 30 Nov 2024
Cited by 1 | Viewed by 1478
Abstract
Attention is one of many human cognitive functions that are essential in everyday life. Given our limited processing capacity, attention helps us focus only on what matters. Focusing attention on one speaker in an environment with many speakers is a critical ability of [...] Read more.
Attention is one of many human cognitive functions that are essential in everyday life. Given our limited processing capacity, attention helps us focus only on what matters. Focusing attention on one speaker in an environment with many speakers is a critical ability of the human auditory system. This paper proposes a new end-to-end method based on the combined transformer and graph convolutional neural network (TraGCNN) that can effectively detect auditory attention from electroencephalograms (EEGs). This approach eliminates the need for manual feature extraction, which is often time-consuming and subjective. Here, the first EEG signals are converted to graphs. We then extract attention information from these graphs using spatial and temporal approaches. Finally, our models are trained with these data. Our model can detect auditory attention in both the spatial and temporal domains. Here, the EEG input is first processed by transformer layers to obtain a sequential representation of EEG based on attention onsets. Then, a family of graph convolutional layers is used to find the most active electrodes using the spatial position of electrodes. Finally, the corresponding EEG features of active electrodes are fed into the graph attention layers to detect auditory attention. The Fuglsang 2020 dataset is used in the experiments to train and test the proposed and baseline systems. The new TraGCNN approach, as compared with state-of-the-art attention classification methods from the literature, yields the highest performance in terms of accuracy (80.12%) as a classification metric. Additionally, the proposed model results in higher performance than our previously graph-based model for different lengths of EEG segments. The new TraGCNN approach is advantageous because attenuation detection is achieved from EEG signals of subjects without requiring speech stimuli, as is the case with conventional auditory attention detection methods. Furthermore, examining the proposed model for different lengths of EEG segments shows that the model is faster than our previous graph-based detection method in terms of computational complexity. The findings of this study have important implications for the understanding and assessment of auditory attention, which is crucial for many applications, such as brain–computer interface (BCI) systems, speech separation, and neuro-steered hearing aid development. Full article
(This article belongs to the Section Biosignal Processing)
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17 pages, 2093 KiB  
Article
Investigation of Data Augmentation Techniques in Environmental Sound Recognition
by Anastasios Loukas Sarris, Nikolaos Vryzas, Lazaros Vrysis and Charalampos Dimoulas
Electronics 2024, 13(23), 4719; https://doi.org/10.3390/electronics13234719 - 28 Nov 2024
Viewed by 1267
Abstract
The majority of sound events that occur in everyday life, like those caused by animals or household devices, can be included in the environmental sound family. This audio category has not been researched as much as music or speech recognition. One main bottleneck [...] Read more.
The majority of sound events that occur in everyday life, like those caused by animals or household devices, can be included in the environmental sound family. This audio category has not been researched as much as music or speech recognition. One main bottleneck in the design of environmental data-driven monitoring automation is the lack of sufficient data representing each of a wide range of categories. In the context of audio data, an important method to increase the available data is the process of the augmentation of existing datasets. In this study, some of the most widespread time domain data augmentation techniques are studied, along with their effects on the recognition of environmental sounds, through the UrbanSound8K dataset, which consists of ten classes. The confusion matrix and the metrics that can be calculated based on the matrix were used to examine the effect of the augmentation. Also, to address the difficulty that arises when large datasets are augmented, a web-based data augmentation application was created. To evaluate the performance of the data augmentation techniques, a convolutional neural network architecture trained on the original set was used. Moreover, four time domain augmentation techniques were used. Although the parameters of the techniques applied were chosen conservatively, they helped the model to better cluster the data, especially in the four classes in which confusion was high in the initial classification. Furthermore, a web application is presented in which the user can upload their own data and apply these data augmentation techniques to both the audio extract and its time frequency representation, the spectrogram. Full article
(This article belongs to the Special Issue Recent Advances in Audio, Speech and Music Processing and Analysis)
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17 pages, 1032 KiB  
Article
Mapping Australian Culture and Society in the Animated Series Bluey—The Use of Audiovisual Material in Early EFL Learning
by Amaya Arigita-García, Lidia Mañoso-Pacheco, José Luis Estrada-Chichón and Roberto Sánchez-Cabrero
Societies 2024, 14(12), 252; https://doi.org/10.3390/soc14120252 - 27 Nov 2024
Viewed by 2756
Abstract
Bluey stands as the current pinnacle in children’s television series, lauded and adorned with multiple accolades for its educational and social merits. It stands out for its portrayal of childhood social learning within familial settings, offering a realistic depiction of everyday challenges. In [...] Read more.
Bluey stands as the current pinnacle in children’s television series, lauded and adorned with multiple accolades for its educational and social merits. It stands out for its portrayal of childhood social learning within familial settings, offering a realistic depiction of everyday challenges. In addition, Bluey is based on the everyday life of Australian society, clearly reflecting the country’s customs, social values, and natural environments, making it an invaluable resource for enriching the cultural learning of the English language and culture from an Australian point of view, an issue that is rarely addressed in the specialist literature. Thus, this study seeks to identify the cultural and societal facets of Australia depicted in it, with the aim of assessing its pedagogical value in teaching English to non-native learners within the context of primary education. Thirty evaluators analyzed the 52 episodes of the first season of Bluey, endeavoring to identify elements across nine thematic areas. To mitigate variances among evaluators, elements were verified only if agreement was reached by at least three evaluators. In total, evaluators identified 3327 elements representing Australian culture, comprising these categories: (1) Childhood; (2) Devices; (3) Lifestyles; (4) Food; (5) Language; (6) Sports; (7) Animals; (8) Nature; and (9) Places. A total of 1223 elements received verification by the requisite number of evaluators. The resulting catalog of Australia-specific elements per episode serves as a valuable tool in selecting the most instructive episodes for English-language and Australian cultural education for non-natives. This compilation facilitates a nuanced approach to teaching English, rooted in the diverse and culturally rich Australian context, thus breaking away from strictly British and American cultural associations and embracing a broader linguistic and cultural landscape. Full article
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13 pages, 331 KiB  
Article
Stress and Self-Efficacy in Parents/Caregivers and Oral Health of Individuals with Down Syndrome During the COVID-19 Pandemic: A Cross-Sectional Study
by Julya Ribeiro Campos, Fernando Oliveira Costa, Ana Cristina Borges-Oliveira and Luís Otávio Miranda Cota
Int. J. Environ. Res. Public Health 2024, 21(11), 1497; https://doi.org/10.3390/ijerph21111497 - 11 Nov 2024
Viewed by 1450
Abstract
The family of individuals living with Down Syndrome (DS) often demonstrate high levels of stress associated with the demand for care and difficulties experienced in everyday life. The aim of this cross-sectional study was to assess perceived stress by parents/caregivers of individuals with [...] Read more.
The family of individuals living with Down Syndrome (DS) often demonstrate high levels of stress associated with the demand for care and difficulties experienced in everyday life. The aim of this cross-sectional study was to assess perceived stress by parents/caregivers of individuals with DS and its association with general perceived self-efficacy and dental outcomes, considering the COVID-19 pandemic’s impacts on family’s daily activities and finances. A sample of 257 parents/caregivers answered a questionnaire with socioeconomic, dental, and behavioral variables and the short version of the Perceived Stress Scale and the General Perceived Self-Efficacy Scale. The sample was divided into three groups based on perceived stress levels. Associated variables were evaluated using multinomial logistic regression (level of significance 5%), adjusting for socioeconomic factors. The mean perceived stress score was 17.84 ± 5.75 (0–39). Medium stress (second tertile) was associated with finger/nail biting in individuals with DS (OR = 2.05; 95%CI 1.04–4.03; p = 0.038), difficulty in performing oral hygiene (OR = 2.39; 95%CI 1.23–4.65; p = 0.011) and medium and high self-efficacy (OR = 0.12; 95%CI 0.05–0.31; p < 0.001 and OR = 0.38; 95%CI 0.15–0.98; p = 0.046, respectively); high stress (third tertile) was associated with medium and high self-efficacy (OR = 0.25; 95%CI 0.09–0.67; p = 0.006 and OR = 0.05; 95%CI 0.02–0.15; p < 0.001, respectively) and negative impact of COVID-19 in family finances (OR = 3.00; 95%CI 1.39–6.44; p = 0.005). It was concluded that parents/caregivers’ perceived stress was averaged and associated with self-efficacy, finger/nail biting, oral hygiene demands, and the financial impact of COVID-19. Full article
(This article belongs to the Special Issue Dental Treatment and Dental Health in Special Care Patients)
15 pages, 467 KiB  
Article
A Cross-Sectional Study of the Perception of Individualized Nursing Care Among Nurses in Acute Medical and Perioperative Settings
by Ana Ramos, Sara Pires, Eunice Sá, Idalina Gomes, Elisabete Alves, César Fonseca and Anabela Coelho
Nurs. Rep. 2024, 14(4), 3191-3205; https://doi.org/10.3390/nursrep14040232 - 25 Oct 2024
Cited by 1 | Viewed by 2182
Abstract
Background/Objectives: Individualized nursing care allows for systematic assessment and intervention; considers a patient’s preferences, values, and context; and contributes to a positive care trajectory. However, its operationalization has proven to be challenging. This research aimed to evaluate nurses’ perceptions of individualized care and [...] Read more.
Background/Objectives: Individualized nursing care allows for systematic assessment and intervention; considers a patient’s preferences, values, and context; and contributes to a positive care trajectory. However, its operationalization has proven to be challenging. This research aimed to evaluate nurses’ perceptions of individualized care and analyze their relationship with sociodemographic variables. Methods: A cross-sectional study was conducted on 122 eligible and registered nurses at a Hospital Center, in the Ophthalmology (operating room and inpatient ward) service, the Cardiology service, the Internal Medicine service, and the Medical Emergency Unit, for adults/older adults in Portugal. The nursing version of the Individualized Care Scale (ICS-Nurse) was used for the assessment, including three sub-dimensions: clinical situation, personal life situation, and decisional control over care-related decisions. Cronbach’s alpha and principal component analysis were used for the data analysis. The STROBE checklist was used to report this study. Results: No statistically significant differences were found based on the age, gender, level of education, or years of professional experience of the nurses within the sub-dimensions of individualization. The nurses overall had a good perception of the importance of individualized care (4.06 ± 0.46 ICS-A-NURSE) but faced difficulties in its implementation during the last shift they worked (3.97 ± 0.49 ICS-B-NURSE). Conclusions: The items considered to be of greatest importance were the response to the physical and emotional needs arising from illness and assistance in decision-making through educational instructions. Aspects related to the personal lives of patients, such as family inclusion in an individual’s care plan, everyday habits, and previous experiences of hospitalization, received the lowest scores. Recognizing priority areas for improvement in the individualization of nursing care can contribute to developing training programs and policies that promote a holistic approach. Future studies should consider patient outcomes related to their needs for individualization. Full article
(This article belongs to the Special Issue 2nd Edition of Evidence-Based Practice and Personalized Care)
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7 pages, 219 KiB  
Brief Report
Parents’ Perspectives of Children with PKU: Assessing Parental Stress and Psychological Adjustment
by Chiara Cazzorla, Daniela Di Riso, Giacomo Gaiga, Antonia De Cusatis, Silvia Spaggiari, Vincenza Gragnaniello, Christian Loro, Daniela Gueraldi, Rossana Schiavo, Alessandro P. Burlina and Alberto B. Burlina
Psychol. Int. 2024, 6(3), 779-785; https://doi.org/10.3390/psycholint6030049 - 16 Sep 2024
Cited by 1 | Viewed by 1413
Abstract
Phenylketonuria (PKU) is an inborn error of metabolism resulting from a deficiency of phenylalanine hydroxylase enzyme activity. Diagnosis in the first days of life allows early initiation of dietary therapy. The maintenance of this treatment raises demanding management issues in everyday life, often [...] Read more.
Phenylketonuria (PKU) is an inborn error of metabolism resulting from a deficiency of phenylalanine hydroxylase enzyme activity. Diagnosis in the first days of life allows early initiation of dietary therapy. The maintenance of this treatment raises demanding management issues in everyday life, often resulting in a psychological burden for patients and families. In this brief report, we aimed to investigate parenting stress and parents’ perceptions of their child’s adjustment, focusing on correlations between the perspectives of mothers and fathers. We conducted an observational study, enrolling parents of pediatric patients (aged 2–18) diagnosed with PKU and treated from birth. A total of 20 parenting couples of 20 PKU-affected children were included. The mean Phe level was 301.60 µmol/L (SD = 128.39). Most PSI-SF and SDQ-P scores were below the clinically relevant threshold. Significant correlations emerged between paternal parenting stress and the child’s Phe level and, additionally, between mothers’ and fathers’ scores. Parents of PKU-affected children reported acceptable levels of parenting stress and their children’s psychological adjustment. However, fathers perceived greater stress in maintaining adequate Phe levels for their children. Our results suggest a similar perspective of both parents in relation to their child’s psychological adjustment. Therefore, the psychological well-being of PKU patients and their parents must be monitored to provide family-centered care and psychological support in the process of accepting a rare disease. Full article
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