Fear, Isolation, and Invisibility during the COVID-19 Pandemic: A Qualitative Study of Adults with Physical Disabilities in Marginalized Communities in Southeastern Michigan in the United States
2. Design and Methods
2.1. Recruitment and Screening
2.2. Data Collection
2.3. Study Sample
3.1. Feelings and Emotional Reactions
3.1.1. Fear and Perceptions of Risk
They’re just saying, ‘I value what this person can give me, more than I value the consequences.’ [… and] ‘Hey, I’m aware that there’s lots of other ways the virus can get, you know, contracted, but I need this person to help me, you know, take a shower today. I need this person to go get my groceries.’
How they’re going to integrate people back into work, and so, my concern is would they make sure that all the infection rate is completely down? Because you got the president talking about he wants to reopen, like, yesterday, so that causes some anxiety, and especially in people like me that’s more at risk.
3.1.2. Sense of Isolation
3.1.3. Feeling Invisible
3.1.4. Experiencing Little Emotional Distress and Disruption to Life
3.2. Contexts Where Fear, Isolation, and Invisiblity Were Experienced
3.2.1. Health and Healthcare
3.2.2. Personal Homecare Assistance
3.2.3. Access to Resources
These places have been providing these services and known I have a disability all this time, and there’s been no planning for the people they’ve been serving all along to somehow say, okay, these are our customers that we’ve had, we have to prioritize them.
3.3. How Needs Were Accommodated
4.1. Healthcare Challenges
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
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|Carnise||SCI: Paraplegia||Black/African American||Male||30s|
|Meridian||Rheumatoid Arthritis||Black/African American||Female||40s|
|Michael||Spina Bifida||Black/African American||Male||70s|
|Ramon||Lower Limb Amputation (double)||Black/African American||Male||40s|
|Tavell||SCI: Paraplegia||Black/African American||Male||60s|
|Grady||Cerebral Palsy||Black/African American||Male||20s|
|Kaleem||Amputation of toes||Black/African American||Male||40s|
|Erica||SCI: Paraplegia||Black/African American||Female||60s|
|Aisha||Cerebral Palsy||Middle Eastern/White||Female||20s|
|Hakan||Spina Bifida||Native American/White||Male||40s|
|Sam||Lower Limb Amputation (single)||White||Male||60s|
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Reber, L.; Kreschmer, J.M.; DeShong, G.L.; Meade, M.A. Fear, Isolation, and Invisibility during the COVID-19 Pandemic: A Qualitative Study of Adults with Physical Disabilities in Marginalized Communities in Southeastern Michigan in the United States. Disabilities 2022, 2, 119-130. https://doi.org/10.3390/disabilities2010010
Reber L, Kreschmer JM, DeShong GL, Meade MA. Fear, Isolation, and Invisibility during the COVID-19 Pandemic: A Qualitative Study of Adults with Physical Disabilities in Marginalized Communities in Southeastern Michigan in the United States. Disabilities. 2022; 2(1):119-130. https://doi.org/10.3390/disabilities2010010Chicago/Turabian Style
Reber, Lisa, Jodi M. Kreschmer, Gina L. DeShong, and Michelle A. Meade. 2022. "Fear, Isolation, and Invisibility during the COVID-19 Pandemic: A Qualitative Study of Adults with Physical Disabilities in Marginalized Communities in Southeastern Michigan in the United States" Disabilities 2, no. 1: 119-130. https://doi.org/10.3390/disabilities2010010