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Building a Newborn Screening Information Management System from Theory to Practice

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Newborn Screening Ontario, Department of Pediatrics, Children’s Hospital of Eastern Ontario, Ottawa, ON K1H 8M8, Canada
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Department of Pediatrics, University of Ottawa, Ottawa, ON K1H 8L1, Canada
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Authors to whom correspondence should be addressed.
Int. J. Neonatal Screen. 2019, 5(1), 9; https://doi.org/10.3390/ijns5010009
Received: 6 December 2018 / Revised: 8 January 2019 / Accepted: 22 January 2019 / Published: 23 January 2019
Information Management Systems are the central process management and communication hub for many newborn screening programs. In late 2014, Newborn Screening Ontario (NSO) undertook an end to end assessment of its information management needs which resulted in a project to develop a flexible IS Information Systems (IS) ecosystem and related process changes. This enabled NSO to better manage its current and future work-flows and communication needs. An idealized vision of a Screening Information Management System (SIMS) was developed that was refined into enterprise and functional architectures. This was followed by the development of technical specifications, user requirements and procurement. In undertaking a holistic full product lifecycle redesign approach, a number of change management challenges were faced by NSO across the entire program. Strong leadership support and full program engagement are key for overall project success. It is anticipated that improvements in program flexibility and the ability to innovate will outweigh the efforts and costs. View Full-Text
Keywords: newborn screening; neonatal screening; laboratory information management system; laboratory information system; LIMS; LIS; screening information management newborn screening; neonatal screening; laboratory information management system; laboratory information system; LIMS; LIS; screening information management
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Pluscauskas, M.; Henderson, M.; Milburn, J.; Chakraborty, P. Building a Newborn Screening Information Management System from Theory to Practice. Int. J. Neonatal Screen. 2019, 5, 9.

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