Abstract
Background: Children with disabilities face an increased risk of neglect and maltreatment due to their dependence on caregivers, social isolation, and challenges in seeking help. While extensive research has examined child abuse, neglect remains an underexplored yet pervasive issue affecting this vulnerable population. Objective: This scoping review synthesizes literature from the past decade to assess the prevalence, characteristics, and risk factors of neglect among children with disabilities, aiming to identify gaps in research and inform policy and intervention efforts. Methods: Following the PRISMA-ScR guidelines, a systematic search was conducted across multiple electronic databases, including PsycNET, Social Services Abstracts, ERIC, PubMed, and EBSCO. Studies were included if they focused on neglect among children with disabilities and were published in English within the last ten years. Thematic analysis was employed to extract and categorize findings. Results: Sixteen studies met the inclusion criteria, revealing a significantly higher prevalence of neglect among children with disabilities compared to their typically developing peers. The type and severity of disability influenced the likelihood and nature of neglect, with children with intellectual disabilities (ID), autism spectrum disorder (ASD), and sensory impairments facing particularly high risks. Key risk factors included parental stress, economic hardship, limited access to resources, and systemic failures in early identification and intervention. Despite the severity of neglect, evidence-based preventive strategies remain scarce, and existing child protection frameworks often fail to account for the unique needs of children with disabilities. Conclusions: The findings underscore the urgent need for targeted interventions, specialized training for professionals, and policy reforms to address the neglect of children with disabilities. Future research should focus on developing and evaluating culturally sensitive and disability-specific support systems to mitigate the long-term consequences of neglect.
1. Introduction
Children with disabilities comprise a heterogeneous and vulnerable population, affected by a wide range of neurodevelopmental and physical conditions that can profoundly influence their daily functioning and quality of life. The World Health Organization’s International Classification of Functioning, Disability, and Health (ICF) offers a multidimensional framework for conceptualizing disability. This model moves beyond a purely medical perspective, emphasizing that disability arises from the complex interplay between an individual’s health status, bodily functions and structures, capacity for activities, and societal participation.
The ICF conceptualizes disability as a dynamic construct involving impairments in body functions or structures, limitations in activity performance, and restrictions in social participation. This comprehensive approach underscores the critical role of environmental factors and societal attitudes in shaping the disability experience []. Recent global estimates indicate that approximately 16% of the world’s population lives with a disability, with prevalence rates on an upward trajectory due to demographic shifts, enhanced diagnostic capabilities, and medical advancements []. The growing prevalence of disability, particularly among children, highlights the pressing need to address the multifaceted challenges faced by this vulnerable group.
Research indicates that children with disabilities are more likely to experience various forms of maltreatment compared to their peers without disabilities. Factors contributing to this heightened risk include their dependency on caregivers, social isolation, and challenges in expressing their needs or seeking help [,,]. Understanding the unique experiences of children with disabilities is crucial for developing effective interventions and support systems that ensure their protection, promote their rights, and foster an inclusive environment where they can thrive.
1.1. Child Neglect
Child neglect is the most frequently reported form of maltreatment reported to child protection authorities, and at the same time, it appears to be the least studied form of child maltreatment in the literature []. Child neglect is a critical aspect of child maltreatment, but a clear distinction must be drawn between abuse and neglect, as they represent different forms of maltreatment. Abuse involves deliberate acts of harm, such as physical, sexual, or emotional abuse. In contrast, neglect refers to the failure to meet a child’s basic needs, such as food, shelter, education, medical care, or emotional support [,]. While both forms of maltreatment are concerning, this review focuses exclusively on neglect as it pertains to children with disabilities. Research indicates that children with disabilities are at an elevated risk of neglect due to their dependence on caregivers, social isolation, and challenges in expressing their needs [,]. Research has shown that emotional abuse and neglect are often more prevalent among these populations than other forms of maltreatment []. However, findings regarding the prevalence of neglect among children with disabilities remain inconsistent. Some studies suggest that having a disability is a significant risk factor for neglect [], while others indicate that the relationship may be influenced by socioeconomic variables and the definitions of neglect utilized in research []. For instance, studies have found that younger children may experience higher rates of neglect than older children, suggesting that age may play a role in vulnerability [].
The neglect of children with disabilities is not just a public health concern; it is a fundamental human rights issue. The United Nations Convention on the Rights of Persons with Disabilities (CRPD) explicitly recognizes the rights of individuals with disabilities to live free from neglect, discrimination, and abuse. Article 7 of the CRPD emphasizes the need to protect children with disabilities and ensure their full development and participation in society. Countries that are signatories to the CRPD are obligated to implement measures that prevent neglect, support families, and promote inclusive systems that uphold the dignity and rights of children with disabilities (Committee on the Rights of Persons with Disabilities) [].
The consequences of child neglect are severe and long-lasting, affecting children’s physical and mental health, development, and overall well-being []. Moreover, neglect is not only a challenge for child protection systems but also a broader societal issue that requires urgent attention and intervention [].
The complexity of child neglect is further compounded by the lack of a universally accepted definition. The wide range of definitions in professional practice and academia impedes the precise measurement and identification of neglect [,]. Despite existing mandatory reporting laws, professionals often struggle to define and report cases of neglect, particularly emotional neglect, as it is less visible than physical neglect [,].
Neglect is also a dynamic and context-dependent phenomenon. Infants and young children, who are entirely dependent on caregivers, are particularly vulnerable to neglect, which can lead to developmental delays, health issues, and cognitive and emotional difficulties []. Adolescents, while more independent, may experience different forms of neglect, such as emotional distress, academic difficulties, exposure to domestic violence, and mental health struggles. Research highlights that neglect in adolescence is associated with delinquency, antisocial behavior, and increased risk-taking behaviors [].
Given the profound and long-term effects of neglect, there is an urgent need to enhance prevention, identification, and intervention strategies. Han et al. (2024) [] emphasize the importance of investing in the development of strategies for detection, measurement, prevention, and intervention. Community involvement and a child-centered approach to defining neglect can help address the issue more effectively []. Furthermore, understanding the perspectives of children and adolescents regarding neglect is essential for developing effective protective measures and support systems [].
1.2. Research Objective
In light of these complexities, the present study aims to conduct a scoping review of articles published in the last ten years that investigate the issue of neglect among children with disabilities. By synthesizing existing literature, this review seeks to clarify the prevalence, characteristics, and factors associated with neglect in this vulnerable population, thereby identifying gaps in the current understanding and highlighting the need for targeted interventions and policies.
2. Methods
2.1. Search Strategy
This systematic review was conducted following the guidelines of the PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews) checklist []. To identify articles examining the field of neglect among children with disabilities, we utilized four electronic databases: PsycNET, Social Services Abstracts, ERIC, PubMed, and EBSCO.
To ensure a comprehensive review, multiple search terms were used for each characteristic (disability, child, neglect), allowing us to capture a wide range of relevant articles. The selection of these search terms was informed by recommendations from previous systematic reviews in this field.
For disability, we used:
“disability” OR “disabilities” OR “special needs” OR “intellectual disability” OR “intellectual and developmental disability” OR “intellectually disabled” OR “cognitive disabilities” OR “autism” OR “ASD” OR “developmental disability” OR “developmental disorder” OR “ID” OR “IDD” OR “DD” OR “developmental delay” OR “learning disability” OR “attention deficit disorder” OR “attention deficit hyperactivity disorder” OR “ADHD” OR “learning disabilities” OR “mobile disability” OR “mobility disability” OR “visual disabilities” OR “visual impairments” OR “hearing disabilities” OR “hard of hearing” OR “deaf” OR “hearing impairment” OR “sensory disability” OR “mental disability” OR “mental disorder” OR “mental illness” OR “psychiatric” OR “cerebral palsy” OR “CP” OR “acquired brain injury”.
For neglect, we used:
“neglect” OR “maltreatment” OR “emotional neglect” OR “medical neglect” OR “physical neglect” OR “educational neglect” OR “social neglect” OR “lack of supervision or guidance neglect”.
For child, we used:
“child” OR “children” OR “adolescent” OR “teen” OR “youth” OR “young person” OR “young people”.
The combination of these terms and databases ensured the identification of a broad and diverse set of studies, enabling a thorough exploration of the prevalence, characteristics, and factors associated with neglect among children with disabilities.
2.2. Selection Criteria
2.2.1. Inclusion Criteria
Studies were included if they focused on neglect in children with disability. For example, the study by Wang et al. [] was included because it focused on childhood maltreatment, including neglect and the relationship between physical disability or long-term health problems and depression. There was a limit on the publication date, from the last 10 years. Both quantitative and qualitative studies were included in the review. Finally, only studies published in peer-reviewed scientific journals and written in English were considered.
2.2.2. Exclusion Criteria
Studies were excluded if they did not focus on neglect among children with disability and/or if they included children with ADHD and/or if they were not published in English and/or articles that produced a systematic review of literature and/or gray literature. For instance, a study by Samuel et al. [] was not included in the review because although it focused on the effects of childhood maltreatment, it included adolescents with ADHD. A study by Legano et al. (2021) [] was not included in the review because although it focused on the maltreatment of children with disabilities, it was a review of literature.
2.3. Selection of Studies
The database search yielded 854 articles, which was reduced to 717 after duplicates were removed as shown in Figure 1. The abstracts of the remaining articles were read by two authors who individually determined whether the articles met the criteria of inclusion. Differences in opinion were discussed, and consensus was reached. 27 articles met the inclusion criteria at this point. These articles were fully read by both authors individually, and 11 were excluded because they did not meet the criteria. In the end, 16 articles met the criteria and were included in the review.
Figure 1.
PRISMA flow chart. Review process of articles for inclusion in systematic review (PRISMA flowchart).
2.4. Data Coding
Articles were examined for content related to neglect in children with disabilities. To analyze the study results, we employed a thematic analysis approach, which involved a three-step procedure in accordance with Braun and Clarke’s [] methodology. To begin with, a meticulous line-by-line coding of the papers was conducted. In the subsequent phase, descriptive themes were generated, maintaining a strong alignment with the studies that were incorporated. The third stage involved the creation of overarching analytical themes, going beyond the confines of the study outcomes to establish innovative interpretations []. The researchers conducted separate data analysis procedures, during which they individually extracted data from the study results, organized the codes, and pinpointed potential themes. Following this, a collaborative review approach was utilized by the researchers to attain agreement on the identified themes, codes, and principal narratives evident within the data. Ultimately, the researchers classified the core themes to present the findings in a coherent and inclusive manner.
3. Results
3.1. Characteristics of Articles Included in the Review
Table 1 summarizes the main characteristics of the 16 reviewed articles, including child characteristics, disability, and study design. Studies’ sample sizes ranged from a small sample, such as [] or 106 participants [], to the largest sample size of 524,534 participants []. One study included only 4 years old children [], and one study included 180 parents []. One study included 106 fatalities [], and many included deferent disabilities [,,]. Some included children with autism [,,,,,], and two included children that were deaf or hard-of-hearing [,].
Table 1.
Characteristics of articles included in the review: child characteristics, disability, and study design.
The studies were conducted worldwide. Four studies were conducted in the United States [,,,]. Two studies were conducted in Canada [,], one in Brazil [], two in Australia [,], three in China [,,], One was conducted in Turkiye [], one in Japan [], one in Saudi Arabia [], and one in Israel []. The studies were conducted between 2015 and 2024; six studies were published later than 2020. The earliest included article was from 2015.
3.2. Increased Prevalence of Neglect and Abuse Among Children with Disabilities
Table 2 summarizes the main characteristics of the 16 reviewed articles including Aim of study, psychosocial Outcomes, Recommendations and conclusions. The reviewed studies reveal that children with disabilities are at a significantly higher risk of experiencing neglect and abuse compared to their typically developing peers. For example, Karni-Visel et al. (2020) [] found that the odds of being identified as a suspected victim of maltreatment were 6.2 times higher for children with disabilities than for those without disabilities. Similarly, Fisher et al. (2019) [] reported that 17.3% of children with ASD had referrals for maltreatment compared to 7.4% of control children, emphasizing the vulnerability of this population.
Table 2.
Characteristics of articles included in the review, aim of the study, psychosocial outcomes, recommendations, and conclusions.
The prevalence of neglect is particularly concerning. Maclean et al. (2017) [] demonstrated that children with intellectual disabilities (ID) had a significantly higher likelihood of neglect allegations compared to their peers. Furthermore, children with physical disabilities or long-term health conditions are frequently subjected to neglect and emotional maltreatment, which mediates the development of depression later in life.
3.3. Differences Among Disability Types
The type and severity of the disability influence both the likelihood and nature of maltreatment, although findings vary across studies. For example, children with mild or moderate ID are generally more likely to experience maltreatment compared to those with severe ID. However, some studies suggest that the protective factors associated with severe ID might not uniformly apply across different forms of abuse.
In contrast, children with autism spectrum disorder (ASD) alone appear particularly vulnerable to physical abuse, whereas those with comorbid ASD and ID face elevated risks of multiple forms of abuse, including emotional and sexual abuse. While this pattern is widely observed, some research highlights nuances, such as variability in the type of maltreatment based on environmental or familial factors.
Children with sensory impairments, such as those who are deaf or hard-of-hearing (DHH), also exhibit distinct vulnerabilities. Marques et al. (2022) [] reported that 94.3% of DHH children in their sample experienced both physical and psychological maltreatment, with over 50% enduring severe abuse. Similarly, Hammad et al. (2024) [] found that almost all DHH adolescents faced moderate to severe maltreatment, which correlated with heightened rates of depression and anxiety. However, other findings indicate differences in the prevalence or severity of maltreatment based on factors such as age, gender, or additional disabilities, suggesting a need for further exploration of this group’s experiences.
3.4. Characteristics of Neglect
Children with disabilities face significantly higher risks of neglect, with Karni-Visel et al. (2020) [] finding they are 6.2 times more likely to be identified as suspected victims of child maltreatment compared to non-disabled peers. The characteristics of neglect vary by disability type and severity; Maclean et al. (2017) [] reported that children with intellectual disabilities had a higher proportion of neglect allegations (33%), with those having less severe intellectual disabilities showing an almost threefold increased likelihood of maltreatment allegations. Family factors also play a crucial role, as Hammad et al. (2024) [] found that deaf and hard-of-hearing students from larger families (5+ children) and those with parents having lower education and income levels experienced higher rates of neglect. Samuel et al. (2023) [] identified that fatalities from neglect were most commonly associated with cerebral palsy, visual impairment, paralysis, and traumatic brain injury, with statistically significant relationships between neglect-caused fatalities and diagnoses of ADHD, ASD, cerebral palsy, and traumatic brain injury. The psychological impact is significant, with Wang et al. (2019) [] demonstrating that physical and emotional neglect mediated the association between childhood physical disability and depression. Despite these concerning patterns. Keeley et al. (2024) [] noted a troubling lack of media coverage on the neglect of people with intellectual disabilities, with only 27 articles published over a 5-year period in Australian news media, suggesting limited public awareness of this issue.
3.5. Risk Factors
Several factors increase the risk of maltreatment among children with disabilities: Child-related factors: Younger children and boys with disabilities are particularly vulnerable to abuse []. Additionally, children with more severe functional impairments or comorbidities face heightened risks []. Parental stress and mental health: Parenting stress, especially in the context of caregiving for a child with significant needs, is a well-documented risk factor. Chan and Lam (2016) [] demonstrated that parenting stress was directly linked to both psychological aggression and physical abuse. Socioeconomic pressures: Economic hardships and parental unemployment are associated with increased maltreatment risk. For example, Hammad et al. (2024) [] found that children from low-income families with lower parental education levels reported higher rates of maltreatment. Cultural and systemic inequities: In some communities, limited access to healthcare and social services exacerbates the vulnerability of children with disabilities. Karni-Visel et al. (2020) [] noted that children from minority groups, such as the Arab sector in Israel, were less likely to be identified as victims of abuse due to systemic underreporting.
3.6. Protective Factors
Despite the elevated risks, several protective factors mitigate the likelihood of maltreatment for children with disabilities: Parental education and support: Higher levels of parental education and access to resources reduce the incidence of maltreatment. For example, families with access to social support systems, such as healthcare providers and community services, reported fewer instances of neglect [,]. Cultural and familial resilience: In some cultures, strong family ties and community networks act as buffers against abuse and neglect. Wang et al. (2019) [] noted that culturally grounded support systems play a critical role in protecting children with physical disabilities from maltreatment. Formal intervention systems: The involvement of healthcare providers, educators, and child protection agencies in identifying and supporting at-risk families is crucial. Karni-Visel et al. (2020) [] found that nearly half of the maltreatment reports for children with disabilities were initiated by primary healthcare providers, highlighting the importance of professional vigilance.
4. Discussion
The findings of this scoping review highlights the unique vulnerabilities of children with disabilities to neglect and abuse, emphasizing both the complexity and severity of their experiences and the systemic gaps in addressing their needs.
Consistent with previous studies, the findings underscore the heightened risk of neglect among children with disabilities, with prevalence rates significantly exceeding those of their typically developing peers [,]. This increased vulnerability can be attributed to the additional caregiving demands posed by disabilities, the socioeconomic challenges faced by many families [,,], and systemic failures in identifying and addressing neglect [,].
Children with ASD, ID, and physical disabilities are particularly at risk, with studies reporting that children with ASD are over twice as likely to be referred to child protection services []. The findings reinforce the need for targeted interventions to address the specific needs of these subgroups. Moreover, the association between neglect and long-term developmental and psychological harm highlights the urgency of early detection and prevention efforts [,].
The review demonstrates that not all disabilities carry the same risk for neglect and maltreatment. For example, children with ID are more likely to experience neglect, while those with ASD often endure multiple forms of abuse, including physical, emotional, and sexual abuse []. Similarly, children with sensory impairments, such as those who are deaf or hard-of-hearing, face higher rates of emotional and physical neglect [].
These differences highlight the importance of tailoring interventions to the unique needs of different disability groups. Policies and services must account for the specific vulnerabilities and support requirements associated with each type of disability [,].
A particularly concerning finding is the prevalence of within-family maltreatment, with biological parents often identified as the primary perpetrators. This aligns with research indicating that parental stress, economic hardship, and inadequate support systems contribute to neglect within families [,]. The co-occurrence of multiple forms of maltreatment, such as neglect alongside physical or emotional abuse, further exacerbates the challenges faced by children with disabilities [].
The severity of neglect reported in the findings is particularly alarming, as it often leads to more significant developmental setbacks for children with disabilities. The dependency of these children on caregivers amplifies the impact of neglect, making early intervention critical to mitigating long-term harm [,].
The findings illustrate a clear interaction between risk and protective factors in shaping the neglect and maltreatment experiences of children with disabilities. On the one hand, factors such as caregiver stress, financial strain, and systemic failures significantly increase the risk of neglect. On the other hand, access to formal support systems, including respite care and specialized services, can mitigate these risks and improve outcomes for children and their families [].
The review also highlights the role of community and societal factors in shaping neglect risks. Stigma and discrimination against disabilities often discourage families from seeking help, while systemic inadequacies in child protection services result in underreporting and delayed interventions []. Addressing these structural barriers is essential to creating a more inclusive and supportive environment for children with disabilities.
Neglect constitutes a persistent and chronic issue that significantly impacts children’s well-being over time. Its insidious and often imperceptible nature renders it particularly challenging to identify and effectively address []. Despite the profound consequences of neglect and its heightened prevalence among children with disabilities, the present literature review found no evidence of targeted interventions designed to prevent or mitigate its effects within this population. Moreover, there is limited evidence on the efficacy of existing interventions, highlighting a critical gap in understanding what approaches are effective in addressing this pervasive issue.
Globally, responses to child neglect remain inconsistent and insufficiently researched. While some countries implement general child protection policies and measures, these frameworks frequently fail to account for the specific vulnerabilities of children with disabilities. Many existing models lack the necessary flexibility to adequately address the needs of neglected children with disabilities, particularly in contexts where chronic neglect has far-reaching and long-term consequences. Furthermore, comprehensive caregiver support systems and early identification mechanisms are scarce, leaving practitioners with limited tools for effective intervention. This absence of structured and evidence-based solutions perpetuates cycles of harm and underscores the urgent need for rigorous research and informed policy development in this domain.
4.1. Implications for Policy and Practice
The results of this scoping review have several potential implications for policy and practice: (1) Tailored Interventions: Policies must account for the diverse needs of children with different types of disabilities, ensuring that interventions are disability-specific and culturally sensitive; (2) Strengthening Support Systems: Expanding access to respite care, financial assistance, and community-based programs can reduce caregiver burden and improve child developmental outcomes; (3) Training for Professionals: Child protection workers, teachers, educators, and healthcare providers need specialized training to recognize and address neglect in children with disabilities. Teachers and educators in particular play an important role in recognizing and reporting potential cases of child abuse and maltreatment, as they are the extra-familial caregivers with whom children with disabilities spend the most time []. In many countries, professionals dealing with children are obliged to report cases of suspected abuse and maltreatment towards children. This could be done more easily if professionals know how to recognize situations of potential abuse, including neglect [] Public Awareness Campaigns: Efforts to combat stigma and promote the inclusion of children with disabilities can foster supportive communities and reduce neglect risks.
4.2. Research Gaps and Future Studies
While this review provides critical insights, significant gaps remain that warrant further investigation. A key foundational step in addressing these gaps is the establishment of a shared definition of neglect. Neglect can take many forms—physical, emotional, educational, and medical—each with unique characteristics that may be particularly difficult to detect in children with disabilities. Unlike more overt forms of abuse, neglect often presents subtly and insidiously, complicating the ability of professionals to identify and intervene effectively. Therefore, it is essential to explore these different forms of neglect more closely, ensuring a comprehensive understanding that informs both research and practice.
A notable void lies in the lack of evidence-based programs specifically designed to prevent neglect among children with disabilities. This phenomenon, unlike more overt forms of abuse, is often subtle and insidious, leaving professionals feeling powerless to identify and address it effectively. Additionally, most studies rely on cross-sectional designs and small samples, limiting the generalizability of findings. Future research should adopt longitudinal and intersectional approaches to explore the complex dynamics of neglect among children with disabilities. Investigating underrepresented populations, such as children with sensory impairments or rare disabilities, is also essential to ensure that all children receive equitable support.
5. Conclusions
Neglect among children with disabilities is a multifaceted issue requiring a multi-pronged approach. The findings of this review underscore the urgent need for targeted interventions, systemic reforms, and increased public awareness to address the unique vulnerabilities of this population. A dedicated effort is required to develop evidence-based programs, train professionals, and establish collaborative frameworks to address neglect effectively. Without these steps, children with disabilities will continue to face disproportionate risks, while professionals remain unequipped to provide meaningful support. By bridging research gaps and implementing inclusive policies, we can work toward ensuring that all children, regardless of ability, receive the care and support they deserve.
Funding
This research received no external funding.
Conflicts of Interest
The authors declare no conflict of interest.
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