Co-Creating a Digital Resource to Support Smartwatch Use in COPD Self-Management: An Inclusive and Pragmatic Participatory Approach
Highlights
- A co-created digital resource (website and video) was developed with people with COPD, carers, and healthcare practitioners to support smartwatch use for COPD self-management.
- Participants identified key needs, including understanding smartwatch features, interpreting health data, and accessing relatable, practical guidance.
- The resource offers tailored support for both patients and practitioners, with potential to enhance everyday use of wearable technologies in COPD care.
- The innovative, rigorous, and inclusive co-creation process ensured the resource was relevant, acceptable, and grounded in lived experience.
Abstract
1. Introduction
2. Materials and Methods
2.1. Study Design and Theoretical Framework
2.2. Recruitment and Participants
2.3. Co-Creation and Data Collection Phases
2.3.1. Phase 1: Co-Define
- Workshop 1 (06/2023) was conducted online using Zoom Whiteboard, allowing participants to express ideas visually and verbally (see Supplementary Materials S1).
- Workshop 2 (07/2023) was held face-to-face at a local pulmonary rehabilitation programme using paper-based tools (see Supplementary Materials S2).
2.3.2. Phase 2: Co-Design
- Workshop 3 (07/2023) was conducted online using Zoom Whiteboard to prioritise content and format (see Supplementary Materials S3).
- Workshop 4 (01/2024) was held face-to-face and focused on developing content specifically for healthcare practitioners. Participants reviewed a printed version of the draft website and provided feedback on what information would be most useful in clinical settings.
- Workshop 5 (04/2024) gathered feedback on a draft version of the video component.
2.3.3. Phase 3: Co-Refine
- Participants were given the option to either view a screen-shared version of the draft or edit a live Word document themselves. Three chose the screen-share option, which was used consistently thereafter. The researcher used tracked changes to make edits and document iterative updates ready for the next participant. A table of changes was maintained to ensure transparency.
- During interviews, participants navigated the website prototype, developed (by LW) using WordPress (Automattic Inc., San Francisco, CA, USA), while sharing their screen. This allowed the researcher to observe user journeys and gather feedback on layout, language, and usability.
- In some cases, the researcher made live edits in WordPress to demonstrate changes and gather immediate reactions.
- Participants were also offered the option to test the website independently and provide feedback via email.
2.4. Data Analysis
2.5. Reflexivity
2.6. Ethical Approval and Considerations
3. Results
3.1. Participants
3.2. Development Phases and Analysis
3.2.1. Phase 1: Co-Define—Identifying Needs and Priorities
We need to be informed on what these devices can actually do so that we can appropriately advise.(P1, Workshop 1)
I think you need to do something that would be creating some education materials for healthcare professionals, so that they can become aware of what wearables can do and how they might help.(P5, Workshop 1)
So, I suppose it’s giving them the knowledge isn’t it… Then you don’t want them to worry if [oxygen saturation] is just from your finger, some of them all look at their watch and they’ll panic like “Oh my God, it’s below 90. Ohh I’m not OK” and like instantly panic. And actually with their condition it’s not uncommon that it’s below.(P14, Workshop 2)
When you’ve got people’s experiences, it makes you feel a little bit more comfortable that you’re not out there on your own.(P9, Workshop 3)
It’s just a bit more time, isn’t it? Because you would spend more time with people going through it really…(P15, Workshop 2)
I think conversation is the most important thing, isn’t it?(P14, Workshop 2)
3.2.2. Phase 2: Co-Design—Shaping the Format and Content
I think the leaflet is probably … the last thing you need.(P14, Workshop 2)
I feel like this type of information could still be on the Asthma and Lung UK website … then it’s in that category of general information for everyone.(P3, Workshop 3)
Video’s the way forward with this…(P4, Workshop 3)
I would prefer an app … it’s more accessible if it’s on my phone… If I needed to know how to use something to do with my wearable and I’m out, then it’s much more accessible.(P5, Workshop 3)
Start with the patient side … then build the practitioner bit around it.(P14, Workshop 3)
3.2.3. Phase 3: Co-Refine—Iterative Testing and Feedback
Maybe even having bold on the specific sentence within the paragraph that is the actual point.(P3)
I wonder if we could change the photo here for an inhaler…(P33)
That’s [navigation] really easy. Even just like the drop-down boxes, they come down so easy and so quick … Everything so well laid out and so easy.(P18)
Yeah, but then I suppose at the same time, you could also link them that to that, that page, the patient page.(P14)
I think it’s worth adding as well their heart rate … Well, it’s just heart rate monitoring.(P2)
Yeah, yeah. Knowledge that you may plateau at the same level so, you know, sometimes maintaining is a win. Yeah, that’s probably what I would put there …(P20)
It’s useful to put it in there. Maybe if you can’t handle your step goal in one go to do two sessions, one in the morning and one in the evening, or break it down into bite sized chunks.(P4)
How? What can smartwatches do to help with COPD management? I wonder whether about using the word ‘you’ in there. Actually, ‘how’ can smartwatches help ‘you’ manage your COPD, so it becomes a bit more direct?(P20)
OK, I wouldn’t call it ‘breathing exercises’. I will tell you why. But but that’s me that I’m very particular about this because we are not exercising anything. If they are like breathing techniques, I will call it, and perhaps not all are effective, not all are actually good, but it’s like you could mention one technique which got some evidence is called pursed breathing.(P33)
No, it’s it’s good. It’s good, I think it’s. I think it’s a good start. You know, it’s to start the conversation as well between the healthcare professionals and patients. And you know and give the information because it’s like it may be easier for healthcare professionals to to, you know, to give to have a place to go to, to start these conversations.(P33)
4. Discussion
4.1. Strengths and Limitations
4.2. Implications for Future Research and Clinical Practice
5. Conclusions
Supplementary Materials
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
Abbreviations
| COPD | Chronic Obstructive Pulmonary Disease |
| HCP | Healthcare Practitioner |
| UK | United Kingdom |
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| Inclusion Criteria | Exclusion Criteria |
|---|---|
|
|
| Participant Number *, Role (n = 21) | Co-Define | Co-Design | Co-Refine | |||||
|---|---|---|---|---|---|---|---|---|
| Workshop 1 (06/2023) | Workshop 2 (07/2023) | Workshop 3 (07/2023) | 1-1 Interviews | Workshop 4 (01/2024) | Workshop 5 (04/2024) | 1-1 Interviews | Feedback via Email | |
| 1, HCP | X | |||||||
| 2, HCP | 09/2023 | |||||||
| 3, Friend | X | X | 09/2023 | 08/2024 | X | |||
| 4, COPD | X | X | 10/2023 | X | 03/2024 | |||
| 5, COPD | X | X | ||||||
| 9, COPD | X | 11/2023 | X | 10/2024 | ||||
| 12, HCP | X | X | X | |||||
| 14, HCP | X | X | X | |||||
| 15, HCP | X | X | ||||||
| 16, HCP | X | X | X | |||||
| 18, HCP | 09/2024 | |||||||
| 21, COPD | 12/2023 | X | ||||||
| 22, HCP | 09/2024 | |||||||
| 24, HCP | X | 05/2024 | ||||||
| 26, Charity | 04/2024 | |||||||
| 27, Friend | 05/2024 | |||||||
| 28, HCP | 08/2024 | X | ||||||
| 32, Friend | X | |||||||
| 33, HCP | 10/2024 | |||||||
| 34, Researcher | X | |||||||
| 35, Researcher | X | |||||||
| Demographic | Age in years, Mean (Range) | Gender |
|---|---|---|
| Friend, family or carer (n = 3) | 33.7 (31–38) | 1 female, 2 male |
| People with COPD (n = 4) | 60.5 (38–69) | 1 female, 2 male, 1 transgender |
| Healthcare practitioners (n = 11) | 41.9 (24–63) | 8 female, 3 male |
| Researchers (n = 2) | 38.5 (27–50) | 2 female |
| Charity representative (n = 1) | 67 | 1 male |
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Share and Cite
Wilde, L.J.; Sewell, L.; Holliday, N. Co-Creating a Digital Resource to Support Smartwatch Use in COPD Self-Management: An Inclusive and Pragmatic Participatory Approach. Healthcare 2026, 14, 37. https://doi.org/10.3390/healthcare14010037
Wilde LJ, Sewell L, Holliday N. Co-Creating a Digital Resource to Support Smartwatch Use in COPD Self-Management: An Inclusive and Pragmatic Participatory Approach. Healthcare. 2026; 14(1):37. https://doi.org/10.3390/healthcare14010037
Chicago/Turabian StyleWilde, Laura J., Louise Sewell, and Nikki Holliday. 2026. "Co-Creating a Digital Resource to Support Smartwatch Use in COPD Self-Management: An Inclusive and Pragmatic Participatory Approach" Healthcare 14, no. 1: 37. https://doi.org/10.3390/healthcare14010037
APA StyleWilde, L. J., Sewell, L., & Holliday, N. (2026). Co-Creating a Digital Resource to Support Smartwatch Use in COPD Self-Management: An Inclusive and Pragmatic Participatory Approach. Healthcare, 14(1), 37. https://doi.org/10.3390/healthcare14010037

