Initial Development of a Patient-Reported Experience Measure for Older Adults Attending the Emergency Department: Part II—Focus Groups with Professional Caregivers
Abstract
:1. Introduction
2. Materials and Methods
2.1. Research Team and Reflexivity
2.2. Theoretical Framework
2.3. Study Setting
2.4. Study Participants
2.5. Data Collection
2.6. Data Analysis
3. Findings
3.1. Description of Participants
3.2. Coding and Emerging Themes
3.3. Presentation of Findings
3.3.1. Communication Needs
When we are under pressure we don’t have or allow enough time to explain the meaning of the attendance, and yes, we’ve focused on the diagnosis and ruling out conditions, which is good- but we might not have addressed their issue at all.(Nurse, Site 02)
There are some aspects like ‘who’s who?’, that’s important, isn’t it? We’ve made a poster which should be in every cubicle showing team colours … you could make a very good argument that if a patient doesn’t have glasses … or even if they do … can they read it? So we’ve got to emphasise how you introduce yourself. Who you are, what you are …(Physician, Site 02)
For us, ED is familiar … but to patients … they don’t realise that majors is majors and minors is minors. They’ve got nothing to help them understand. [I think] that’s a piece of work that needs to be done … [always] explaining where you are, what is going to happen, who is going to come and have some expectations of what is going to happen.(Physician, Site 01)
Repetition of questions can be a problem. It’s not done intentionally but the level of communication between teams sometimes isn’t there and patients sometimes get upset that they’re being asked the same questions.(Physician, Site 03)
3.3.2. Emotional Needs
The uncertainty of whether they’re going to be admitted. It’s a big deal for everybody, but especially the elderly patients who may have other considerations like frail elderly partners, pets, those sorts of things … complications with families … I think one of the really big anxieties is ‘am I going to be admitted’ ‘how long am I going to be in for’, ‘what are the knock-on effects for my family’.(Nurse, Site 02)
I have people trying to pull my uniform and say “I really need the toilet” because they haven’t been given a call bell, which happens very often, or because they’re in the corridor unaccompanied and all they can do is wave frantically for help to go to the toilet.(Occupational Therapist, Site 01)
The minute you disempower somebody … you put them in an ambulance, and you ask them to wait for a period of time, you immediately disempower them so that they don’t care for themselves for that period of time and it doesn’t take long for that to become a longer lasting state and because we are in this environment where there isn’t enough space, it compounds the issue.(Physician, Site 01)
Sometimes we undertake distressing things to elderly and frail people and the recognition of dying and [not providing] CPR as a normal course of death, and changing that so that people feel empowered to say ‘let’s sign this form’ … I know it doesn’t mean I’m not going to be treated but they know my ceiling of care’.(Nurse, Site 01)
I had a patient come into [the Resuscitation area] and the doctor came in to discuss the treatment escalation form and straight away the daughter said, ‘you don’t need to ask him anything, you can speak to me’ and she said straight away he’s for full resuscitation and the patient didn’t even get a look in. The doctor was still trying to talk to him [the patient], and she was butting in all the time.(Healthcare Assistant, Site 03)
3.3.3. Care Needs
There is a lack of recognition of the occult injury or reason for presentation underlying injury in these patients … there’s lots of evidence out there to suggest we are not assessing the underlying reasons that have brought elderly patients to us … comorbidities, polypharmacy, the home situation, that sort of thing.(Advanced Clinical Practitioner, Site 01)
If you look at things like the sepsis guidelines, they are very focused on fast tracking children but not the elderly … [the elderly] just get lumped with adults. But actually a 20-year-old is very different from a 90-year-old.(Physician, Site 03)
So we had a patient last week … and we stopped [active treatment] … well, we spoke to the patient and asked her what she’d like and she said ‘I want to go to sleep’ so we tucked her up in bed. She’s expressed her wishes and then we planned to discuss with the family about her expectations and agree a plan. And we signed the treatment escalation form and admitted her for end-of-life care.(Physician, Site 03)
I think achieving good clinical outcomes goes back to what the patient actually wants. For patients, going back to the PREMs [Patient Reported Experience Measures] is about looking at the clinical outcomes they actually want. So, if the pain gets under control so they are able to mobilise then that should be a good outcome.(Advanced Clinical Practitioner, Site 03)
3.3.4. Physical and Environmental Needs
Most older people are not interested in their physiology, they are not particularly interested in having a lactate taken within seconds of arrival. They are interested in whether a window is there … whether there is a clock … and if the nurse offered them a cup of tea (field note: agreement from group).(Physician, Site 03)
There’s a general lack of dignity … a lack of privacy. It’s not a ward here, but it gets used like a ward because people are here for hours and hours … it’s not satisfactory, is it? We’d like to give everyone a sandwich, but often we run out of them. We run out of chairs these days.(Healthcare Assistant, Site 02)
Dehydration certainly makes it harder to discharge patients. Concentration, memory and focus all decrease.(Occupational Therapist, Site 01)
I think the [ED] environment must be very distressing for them [older people] … the hustle, bustle, police being around, monitors, alarms and swearing.(Nurse, Site 03)
3.3.5. Waiting Needs
The elderly patients are least likely to make a fuss … so they’re most likely to be forgotten. Whilst you are busy with somebody who is exhibiting challenging behaviour and running amok in the department, the poor [elderly patient] in the corner has wet herself because she can’t reach her call-bell, or she lacks capacity to make herself heard.(Nurse Practitioner, Site 02)
We could issue books to read, newspapers, a jigsaw puzzle. There are so many things you could think of introducing … to improve the experience.(Physician, Site 03)
Sometimes it’s like being on double beds, isn’t it? The patients are coughing all over each other, so you fail on every nursing element ever imaginable … you fail on dignity, on infection control … every single thing that you’ve ever learnt you’ve failed on because of the crowding. And there’s not an awful lot you can do about it.(Advanced Clinical Practitioner, Site 01)
3.3.6. Attitudes and Values of the Team
Patients have often said to me ‘look at that doctor making the bed!’, and I’m like ‘yeah, that’s called teamwork, that’s what we do’. And patients and relatives are often surprised that doctors do basic care as well.(Nurse, Site 02)
In the past four months I have done more that I would deem ‘out of my doctor role’ because the nurses are short staffed. I am regularly giving medications and getting commodes and urine dips and urine bottles and fluids and stuff. Which is fine … but that then actually impacts on our role as doctors and what we can achieve. And we don’t have the time either so what you’ve got is a group of professionals who are each interplaying with each other’s job roles, and no-one is taking responsibility for that person’s care.(Physician, Site 01)
If you go back a few years, we didn’t have therapy/OT [Occupational Therapy]/MSK [Musculoskeletal] practitioners at the front door. We now have a true MDT at the front door, and we know that’s the right thing for older people. And everyone’s happy to make their own decisions, and quite often if the therapy team is happy with their mobility, then they go home. And I think the patients like that.(Frailty Nurse Specialist, Site 03)
3.4. Supplementary Themes
3.4.1. Staff Distress
I just feel really guilty: sometimes you have a choice between providing medical care or providing compassionate care.(Physician, Site 01)
Sometimes you just feel ashamed. The poor patient is on a commode in a cubicle … it’s just … you wouldn’t want to be in that situation … you wouldn’t want your mother to be in that situation.(Physician, Site 01)
We’re the first point of contact for that patient coming in but we seem to be the last people to be drip fed any sort of budget … where we can make holistic improvements? You know, they’re talking about redesigning and remodeling and rebuilding but … it’s just simple things we need, like, basic human comforts.(Healthcare Assistant, Site 02)
3.4.2. Recognising Older People as a Vulnerable User Group
Yeah, I find that they don’t want to trouble you as much as other patient populations … so they are sitting in pain for longer perhaps, and they don’t want to ask to go to the toilet. I had one chap who even wet the bed, because it was so busy in the department he didn’t want to trouble anyone because he saw it as a minor problem.(Physician, Site 01)
Older people don’t always have a voice, do they, not like the younger generation. They will just sit quietly and wait patiently … so it’s making sure there’s an advocate for them. They don’t always have family … someone to stand up for them.(Nurse, Site 01)
3.4.3. Views on Emergency Care Systems for Older People
Do you not make the older patients your core user group and others have to fit in around this, especially as we know this population is going to skyrocket in the future. I think it should be more focused on the elderly … you should make that your core business and figure out how others fit around it, rather than put them aside.(Physician, Site 03)
At [locality] they’ve just recently opened a geriatric ED run by a geriatrician. It runs from 8am to 10pm and everybody over 75 who goes into majors is seen in that area. They have a particularly high percentage of older patients. But they’ve really grabbed the bull by the horns by creating a separate environment and it’s a nice structure to ensure there is daylight and more privacy and people are more oriented. And I think that’s the way to go.(Physician, Site 03)
4. Discussion
4.1. Relevance of Focus Group Findings to Development of PREM-ED 65
4.2. Limitations
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
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Site Identifier | Site Characteristics |
---|---|
Hospital 1 | Type 1 ED Major Trauma Centre 100,000 attendances per annum |
Hospital 2 | Type 1 ED Regional Major Trauma Unit 80,000 attendances per annum |
Hospital 3 | Type 1 ED Regional Major Trauma Unit Specialist OPEL service 80,000 attendances per annum |
Hospital Number | Focus Group Number | Duration hh:mm | Total n Participants Occupational Group, n | Gender, n |
---|---|---|---|---|
01 | 1 | 01:18 | Total 6 Physician, 5 Nurse, 1 | Male, 2 Female, 4 |
01 | 2 | 00:54 | Total 5 Physician, 4 Nurse, 1 | Female, 5 |
01 | 3 | 01:09 | Total 6 Physician, 3 Nurse, 1 Therapist, 2 | Male, 1 Female, 5 |
02 | 4 | 01:34 | Total 4 Physician, 1 Nurse, 1 ACP, 1 HCA, 1 | Male, 2 Female, 2 |
02 | 5 | 01:24 | Total 5 Physician, 2 OPEL Nurse, 3 | Male, 1 Female, 4 |
03 | 6 | 01:00 | Total 6 Physician, 2 Nurse, 3 HCA, 1 | Male, 3 Female, 3 |
03 | 7 | 01:06 | Total 5 Physician, 3 Nurse, 2 | Male, 3 Female, 2 |
Analytical Theme | Existing Sub-Theme | New Sub-Theme | Supplementary Theme 1 |
---|---|---|---|
Communication Needs | Interpersonal Communication Informational Communication | Social Communication | |
Emotional Needs | Acknowledging Uncertainty Recognising Suffering Providing Empowerment | Reassurance | |
Care Needs | Symptom Relief Procedural Care | Responsiveness | |
Waiting Needs | Impact of Crowding | Waiting experience | |
Physical/Environmental Needs | Fundamental Needs Equipment and Devices | ||
Attitudes and Values of the team (new) | - | Perceptions of teamwork Staff attitudes and professionalism | |
Supplementary Theme 1 | Staff distress Recognising older people as a vulnerable user group Views on emergency care systems for older people |
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Graham, B.; Smith, J.E.; Nelmes, P.; Squire, R.; Latour, J.M. Initial Development of a Patient-Reported Experience Measure for Older Adults Attending the Emergency Department: Part II—Focus Groups with Professional Caregivers. Healthcare 2023, 11, 714. https://doi.org/10.3390/healthcare11050714
Graham B, Smith JE, Nelmes P, Squire R, Latour JM. Initial Development of a Patient-Reported Experience Measure for Older Adults Attending the Emergency Department: Part II—Focus Groups with Professional Caregivers. Healthcare. 2023; 11(5):714. https://doi.org/10.3390/healthcare11050714
Chicago/Turabian StyleGraham, Blair, Jason E. Smith, Pam Nelmes, Rosalyn Squire, and Jos M. Latour. 2023. "Initial Development of a Patient-Reported Experience Measure for Older Adults Attending the Emergency Department: Part II—Focus Groups with Professional Caregivers" Healthcare 11, no. 5: 714. https://doi.org/10.3390/healthcare11050714
APA StyleGraham, B., Smith, J. E., Nelmes, P., Squire, R., & Latour, J. M. (2023). Initial Development of a Patient-Reported Experience Measure for Older Adults Attending the Emergency Department: Part II—Focus Groups with Professional Caregivers. Healthcare, 11(5), 714. https://doi.org/10.3390/healthcare11050714