Psychosocial Impact of Powered Wheelchair, Users’ Satisfaction and Their Relation to Social Participation
Abstract
:1. Introduction
2. Methods
3. Results
3.1. Descriptive Statistics
3.2. Inferential Statistics
3.2.1. Psychosocial Impact, Satisfaction and Participation
3.2.2. Impact of Age, Time of Disease and PW Use
3.2.3. Impact of Training with PW and Previous AT
4. Discussion
5. Conclusions
- There was an overall positive psychosocial impact of the PW in all three PIADS areas (competence, adaptability and self-esteem) and in the PIADS total score, regardless age, with a potential increase in the QoL.
- The best participation profiles were noted among the most satisfied users.
- There was a higher psychosocial impact in terms of adaptability among the ones who transitioned from a MW to a PW compared to those who had already experienced one.
Author Contributions
Funding
Conflicts of Interest
References
- WHO. World report on disability 2011. Am. J. Phys. Med. Rehabil. Assoc. Acad. Physiatr. 2011, 91, 549. [Google Scholar]
- Brandt, Å.; Kreiner, S.; Iwarsson, S. Mobility-related participation and user satisfaction: Construct validity in the context of powered wheelchair use. Disabil. Rehabil. Assist. Technol. 2010, 5, 305–313. [Google Scholar] [PubMed]
- Kenyon, L.K.; Hostnik, L.; McElroy, R.; Peterson, C.; Farris, J.P. Power Mobility Training Methods for Children: A Systematic Review. Pediatric Phys. Ther. 2018, 30, 2–8. [Google Scholar]
- Smith, E.M.; Sakakibara, B.M.; Miller, W.C. A review of factors influencing participation in social and community activities for wheelchair users. Disabil. Rehabil. Assist. Technol. 2016, 11, 361–374. [Google Scholar] [CrossRef] [PubMed]
- Seymour, N.; Geiger, M.; Scheffler, E. Community-based rehabilitation workers’ perspectives of wheelchair provision in Uganda: A qualitative study. Afr. J. Disabil. 2019, 24, 432. [Google Scholar] [CrossRef]
- Magasi, S.; Wong, A.; Miskovic, A.; Tulsky, D.; Heinemann, A.W. Mobility Device Quality Affects Participation Outcomes for People with Disabilities: A Structural Equation Modeling Analysis. Arch. Phys. Med. Rehabil. 2018, 99, 1–8. [Google Scholar] [CrossRef]
- Flaubert, J.L.; Spicer, C.M.; Jette, A.M. The Promise of Assistive Technology to Enhance Activity and Work Participation; National Academies Press: Washington, DC, USA, 2017; pp. 1–8. [Google Scholar]
- Routhier, F.; Mortenson, W.B.; Demers, L.; Mahmood, A.; Chaudhury, H.; Martin Ginis, K.A.; Miller, W.C. Mobility and Participation of People with Disabilities Using Mobility Assistive Technologies: Protocol for a Mixed-Methods Study. JMIR Res. Protoc. 2019, 8, e12089. [Google Scholar] [CrossRef]
- Douglas, H.; Georgiou, A.; Westbrook, J. Social participation as an indicator of successful aging: An overview of concepts and their associations with health. Aust. Health Rev. 2017, 41, 455–462. [Google Scholar] [CrossRef]
- Martins, A.C.; Pinheiro, J.; Farias, B.; Jutai, J. Psychosocial Impact of Assistive Technologies for Mobility and Their Implications for Active Ageing. Technologies 2016, 4, 28. [Google Scholar] [CrossRef]
- Salminen, A.; Samuelsson, K.; Töytäri, O.; Malmivaara, A. Mobility devices to promote activity and participation: A systematic review. J. Rehabil. Med. 2009, 41, 697–706. [Google Scholar] [CrossRef] [Green Version]
- Rousseau-Harrison, K.; Rochette, A.; Routhier, F.; Dessureault, D.; Thibault, F.; Cote, O. Perceived impacts of a first wheelchair on social participation. Disabil. Rehabil. Assist. Technol. 2012, 7, 37–44. [Google Scholar] [CrossRef] [PubMed]
- Samuelsson, K.; Wressle, E. Powered wheelchairs and scooters for outdoor mobility: A pilot study on costs and benefits. Disabil. Rehabil. Assist. Technol. 2014, 9, 330–334. [Google Scholar] [CrossRef] [PubMed]
- Evans, S.; Frank, A.O.; Neophytou, C.; De Souza, L. Older adults’ use of, and satisfaction with, electric powered indoor/outdoor wheelchairs. Age Ageing 2007, 36, 431–435. [Google Scholar] [CrossRef] [PubMed]
- Pettersson, I.; Ahlstrom, G.; Törnquist, K. The Value of an Outdoor Powered Wheelchair with Regard to the Quality of Life of Persons with Stroke: A Follow-Up Study. Assist. Technol. 2007, 19, 143–153. [Google Scholar] [CrossRef] [PubMed]
- Buning, M.E.; Angelo, J.A.; Schmeler, M.R. Occupational performance and the transition to powered mobility: A pilot study. Am. J. Occup. Ther. 2001, 55, 339–344. [Google Scholar] [CrossRef] [PubMed]
- Fehr, L.; Langbein, W.E.; Skaar, S.B. Adequacy of power wheelchair control interfaces for persons with severe disabilities: A clinical survey. J. Rehabil. Res. Dev. 2000, 37, 353–360. [Google Scholar] [PubMed]
- Larsson Ranada, A.; Lidström, H. Satisfaction with assistive technology device in relation to the service delivery process—A systematic review. Assist. Technol. 2019, 31, 82–97. [Google Scholar] [CrossRef]
- Hersh, M.A. The Design and Evaluation of Assistive Technology Products and Devices Part 3: Outcomes of Assistive Product Use; Dept of Electronics and Electrical; Engineering, University of Glasgow: Glasgow, UK, 2010; pp. 1–6. [Google Scholar]
- Rodrigues, S. Validação Intercultural do Instrumento de Medição—Evaluation de la Satisfaction Envers une Aide Technique; Versão 2.0; Escola Superior de Tecnologia da Saúde de Coimbra: Coimbra, Portugal, 2013. [Google Scholar]
- Demers, L.; Wessels, R.D.; Weiss-Lambrou, R.; Ska, B.; De Witte, L.P.; Weiss-Lambrou, R. An international content validation of the Quebec User Evaluation of Satisfaction with assistive Technology (QUEST). Occup. Ther. Int. 1999, 6, 159–175. [Google Scholar] [CrossRef]
- Martins, A. Adaptação cultural e linguística da versão portuguesa do PIADS: Escala do impacto psicossocial das tecnologias de apoio (P-PIADS). Integrar 2004, 21–22, 120–124. [Google Scholar]
- Martins, A. Development and initial validation of the activities and participation profile related to mobility (PAPM). BMC Health Serv. Res. 2016, 16, 78–79. [Google Scholar]
- Jutai, J.; Day, H. Psychosocial Impact of Assistive Devices Scale (PIADS). Technol. Disabil. 2002, 14, 107–111. [Google Scholar] [CrossRef]
- De Groot, S.; Post, M.W.; Bongers-Janssen, H.M.; Bloemen-Vrencken, J.H.; van der Woude, L.H. Is manual wheelchair satisfaction related to active lifestyle and participation in people with a spinal cord injury? Spinal Cord 2011, 49, 560–565. [Google Scholar] [CrossRef] [PubMed]
- Chan, S.C.; Chan, A.P. User satisfaction, community participation and quality of life among Chinese wheelchair users with spinal cord injury: A preliminary study. Occup. Ther. Int. 2007, 14, 123–143. [Google Scholar] [CrossRef] [PubMed]
- Varshney, M.; Walia, S.; Noohu, M.M. Association of Assistive Device User Satisfaction and Participation in Manual Wheelchair Users with Chronic Spinal Cord Injury. J. PMR Sci. 2017, 20, 105–110. [Google Scholar]
- Smith, R.O.; Scherer, M.J.; Cooper, R.; Bell, D.; Hobbs, D.A.; Pettersson, C.; Seymour, N.; Borg, J.; Johnson, M.J.; Lane, J.P.; et al. Assistive technology products: A position paper from the first global research, innovation, and education on assistive technology (GREAT) summit. Disabil. Rehabil. Assist. Technol. 2018, 13, 473–485. [Google Scholar] [CrossRef]
- Devitt, R.; Chau, B.; Jutai, J. The Effect of Wheelchair Use on the Quality of Life of Persons with Multiple Sclerosis. Occup. Ther. Health Care 2003, 17, 63–79. [Google Scholar] [CrossRef]
- Löfqvist, C.; Pettersson, C.; Iwarsson, S.; Brandt, A. Mobility and mobility-related participation outcomes of powered wheelchair and scooter interventions after 4-months and 1-year use. Disabil. Rehabil. Assist. Technol. 2012, 7, 211–218. [Google Scholar] [CrossRef]
- Hemmingsson, H.; Lidström, H.; Nygård, L. Use of assistive technology devices in mainstream schools: Students’ perspective. Am. J. Occup. Ther. 2009, 63, 463–472. [Google Scholar] [CrossRef]
- Parette, P.; Scherer, M. Assistive technology use and stigma. Educ. Train. Dev. Disabil. 2004, 39, 217–226. [Google Scholar]
- Mountain, A.D.; Kirby, R.L.; Smith, C.; Eskes, G.; Thompson, K. Powered wheelchair skills training for persons with stroke: A randomized controlled trial. Am. J. Phys. Med. Rehabil. 2014, 93, 1031–1043. [Google Scholar] [CrossRef]
- World Health Organization. WHOQOL—Measuring Quality of Life. Available online: http://www.who.int/healthinfo/survey/whoqolqualityoflife/en/ (accessed on 8 January 2018).
- Davies, A.; De Souza, L.H.; Frank, A.O. Changes in the quality of life in severely disabled people following provision of powered indoor/outdoor chairs. Disabil. Rehabil. 2003, 25, 286–290. [Google Scholar] [CrossRef] [PubMed]
Participants (n = 30) | Mean (SD) | n= | % |
---|---|---|---|
Age | 40.63 (13.09) | ||
Gender | |||
Male | 18 | 60 | |
Female | 12 | 40 | |
Occupation before starting to use current PW | |||
Employed | 8 | 26.7 | |
Unemployed | 22 | 73.3 | |
Student | 0 | 0 | |
Occupation after starting to use current PW | |||
Employed | 2 | 6.7 | |
Unemployed | 28 | 93.3 | |
Student | 0 | 0 | |
Diagnosis | |||
Cerebral palsy | 11 | 36.7 | |
Muscular dystrophy | 6 | 20 | |
Spinal cord injury | 4 | 13.3 | |
Amputation | 3 | 10 | |
Ataxia | 2 | 6.7 | |
Multiple sclerosis | 1 | 3.3 | |
Stroke | 1 | 3.3 | |
Other | 2 | 6.7 | |
Time since onset of the disease (years) | 25.97 (12.21) | ||
Years using current PW | 5.53 (3.87) | ||
Hours using PW per day | 10.10 (3.77) | ||
Training with current PW | |||
Yes | 6 | 20 | |
No | 24 | 80 | |
Previous AT | |||
Different PW | 20 | 66.7 | |
MW | 8 | 26.7 | |
Crutches | 1 | 3.3 | |
None | 1 | 3.3 |
Minimum | Maximum | Mean | SD | |
---|---|---|---|---|
QUEST AT | 3.25 | 5.00 | 4.34 | 0.48 |
QUEST services | 1.50 | 5.00 | 4.05 | 0.66 |
QUEST total | 3.25 | 4.83 | 4.24 | 0.45 |
P-PIADS competence | 0.00 | 2.50 | 1.39 | 0.71 |
P-PIADS adaptability | 0.00 | 2.83 | 1.32 | 0.81 |
P-PIADS self-esteem | 0.00 | 2.25 | 1.38 | 0.57 |
P-PIADS total | 0.04 | 2.35 | 1.37 | 0.63 |
PAPM | 0.58 | 3.00 | 1.72 | 0.69 |
PAPM | QUEST Total | QUEST AT | QUEST Services | |||||
---|---|---|---|---|---|---|---|---|
r | p | r | p | r | p | r | p | |
PAPM | - | - | −0.449 | 0.013 | −0.363 | 0.049 | −0.383 | 0.037 |
P-PIADS competence | −0.096 | 0.615 | 0.269 | 0.150 | 0.335 | 0.070 | 0.059 | 0.758 |
P-PIADS adaptability | −0.012 | 0.615 | 0.143 | 0.450 | 0.221 | 0.240 | −0.031 | 0.872 |
P-PIADS self-esteem | 0.000 | 1.000 | 0.203 | 0.283 | 0.191 | 0.313 | 0.134 | 0.481 |
P-PIADS total | −0.053 | 0.782 | 0.237 | 0.207 | 0.291 | 0.119 | 0.058 | 0.759 |
Age | Time Using PW | Time Since Onset of Disease | ||||
---|---|---|---|---|---|---|
r | p | r | p | r | p | |
PAPM | −0.584 | 0.001 | 0.409 | 0.025 | −0.159 | 0.402 |
P-PIADS competence | 0.217 | 0.249 | 0.056 | 0.768 | −0.378 | 0.039 |
P-PIADS adaptability | 0.157 | 0.407 | 0.032 | 0.865 | −0.478 | 0.008 |
P-PIADS self-esteem | 0.287 | 0.124 | 0.090 | 0.635 | −0.225 | 0.233 |
P-PIADS total | 0.238 | 0.206 | 0.064 | 0.739 | −0.398 | 0.030 |
QUEST AT | 0.481 | 0.007 | −0.370 | 0.044 | 0.068 | 0.720 |
QUEST services | 0.355 | 0.055 | −0.363 | 0.048 | 0.219 | 0.244 |
QUEST total | 0.519 | 0.003 | −0.444 | 0.014 | 0.157 | 0.408 |
Training with the PW | Mean | SD | p | |
---|---|---|---|---|
PAPM | Yes (n = 6) | 2.25 | 0.63 | 0.035 |
No (n = 24) | 1.59 | 0.66 | ||
P-PIADS competence | Yes (n = 6) | 1.38 | 0.60 | 0.958 |
No (n = 24) | 1.39 | 0.74 | ||
P-PIADS adaptability | Yes (n = 6) | 1.50 | 0.84 | 0.543 |
No (n = 24) | 1.27 | 0.81 | ||
P-PIADS self-esteem | Yes (n = 6) | 1.40 | 0.46 | 0.938 |
No (n = 24) | 1.38 | 0.61 | ||
P-PIADS total | Yes (n = 6) | 1.41 | 0.50 | 0.863 |
No (n = 24) | 1.36 | 0.67 | ||
QUEST AT | Yes (n = 6) | 4.23 | 0.68 | 0.545 |
No (n = 24) | 4.36 | 0.43 | ||
QUEST services | Yes (n = 6) | 4.33 | 0.58 | 0.245 |
No (n = 24) | 3.98 | 0.67 | ||
QUEST total | Yes (n = 6) | 4.26 | 0.64 | 0.894 |
No (n = 24) | 4.24 | 0.40 | ||
Age (years) | Yes (n = 6) | 37.50 | 8.80 | 0.410 |
No (n = 24) | 41.42 | 14.00 | ||
Years on current PW | Yes (n = 6) | 7.67 | 5.01 | 0.133 |
No (n = 24) | 5.00 | 3.45 | ||
Time since diagnosis (years) | Yes (n = 6) | 22.50 | 12.39 | 0.446 |
No (n = 24) | 26.83 | 12.27 |
Previous AT | Mean | SD | p | |
---|---|---|---|---|
PAPM | MW (n = 8) | 1.55 | 0.76 | 0.314 |
PW (n = 20) | 1.85 | 0.67 | ||
P-PIADS competence | MW (n = 8) | 1.72 | 0.79 | 0.128 |
PW (n = 20) | 1.29 | 0.59 | ||
P-PIADS adaptability | MW (n = 8) | 1.85 | 0.95 | 0.020 |
PW (n = 20) | 1.10 | 0.62 | ||
P-PIADS self-esteem | MW (n = 8) | 1.64 | 0.48 | 0.110 |
PW (n = 20) | 1.26 | 0.58 | ||
P-PIADS total | MW (n = 8) | 1.73 | 0.70 | 0.053 |
PW (n = 20) | 1.24 | 0.53 | ||
QUEST AT | MW (n = 8) | 4.25 | 0.65 | 0.592 |
PW (n = 20) | 4.36 | 0.42 | ||
QUEST services | MW (n = 8) | 4.09 | 0.53 | 0.712 |
PW (n = 20) | 3.99 | 0.73 | ||
QUEST total | MW (n = 8) | 4.20 | 0.59 | 0.839 |
PW (n = 20) | 4.24 | 0.41 | ||
Age (years) | MW (n = 8) | 49.00 | 13.07 | 0.026 |
PW (n = 20) | 46.90 | 11.98 | ||
Years on current PW | MW (n = 8) | 4.88 | 5.06 | 0.462 |
PW (n = 20) | 6.10 | 3.42 | ||
Time since diagnosis (years) | MW (n = 8) | 14.25 | 9.56 | 0.001 |
PW (n = 20) | 28.80 | 9.05 |
© 2019 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/).
Share and Cite
Domingues, I.; Pinheiro, J.; Silveira, J.; Francisco, P.; Jutai, J.; Correia Martins, A. Psychosocial Impact of Powered Wheelchair, Users’ Satisfaction and Their Relation to Social Participation. Technologies 2019, 7, 73. https://doi.org/10.3390/technologies7040073
Domingues I, Pinheiro J, Silveira J, Francisco P, Jutai J, Correia Martins A. Psychosocial Impact of Powered Wheelchair, Users’ Satisfaction and Their Relation to Social Participation. Technologies. 2019; 7(4):73. https://doi.org/10.3390/technologies7040073
Chicago/Turabian StyleDomingues, Inês, João Pinheiro, João Silveira, Patrícia Francisco, Jeffrey Jutai, and Anabela Correia Martins. 2019. "Psychosocial Impact of Powered Wheelchair, Users’ Satisfaction and Their Relation to Social Participation" Technologies 7, no. 4: 73. https://doi.org/10.3390/technologies7040073
APA StyleDomingues, I., Pinheiro, J., Silveira, J., Francisco, P., Jutai, J., & Correia Martins, A. (2019). Psychosocial Impact of Powered Wheelchair, Users’ Satisfaction and Their Relation to Social Participation. Technologies, 7(4), 73. https://doi.org/10.3390/technologies7040073