Clinician Experiences with Adolescents with Comorbid Chronic Pain and Eating Disorders
Abstract
1. Introduction
Present Study
2. Materials and Methods
2.1. Study Questions, Design, and Setting
2.2. Participants
2.3. Participant Sampling and Recruitment
2.4. Semi-Structured Interview Guide
2.5. Interview and Data Acquisition
2.6. Data Analysis
3. Results
3.1. Participants
3.2. Themes
3.2.1. Main Theme 1: Clinical Practice
Subtheme 1: Patient Presentation
“By the time these patients get to me, the ones with functional pain, they’ve had the ultrasounds, the scopes, the colonoscopies… and they still don’t have answers as to what’s causing the pain. Then you have to tell them that there might not be an organic cause. That’s really tough.”(Physician, Anesthesiology)
Subtheme 2: Screening and Assessment
“I’m looking at the behavior. If the kid is saying pain is impacting eating and daily activity yet is exercising a ton and eating foods that tend to cause gas and bloating, like cauliflower rice and sugar free stuff, I’m paying attention… alarm bells are going off.”(Psychologist, Pain)
Subtheme 3: Intervention
“FBT is the gold standard as you know for eating disorder treatment. I still think it’s relevant for these kids who also have pain issues. These kids need to be eating and having parents take control is the best way to ensure that, because if we leave it up to the eating disorder or pain the kid isn’t going to eat.”(Physician, Adolescent Medicine)
3.2.2. Main Theme 2: Clinician Training
Subtheme 1: Training Experiences
“I have career long experience with eating disorders. In regard to pain, I don’t have any training. Of course, I have attended some workshops. I’ve talked with colleagues at the hospital.”(Physician, Adolescent Medicine)
Subtheme 2: Desired Training
“It’s unfortunate, because the pain these kids have is real and we don’t always do a great job of validating functional stuff in the medical world. I’m not confident that I have the best language to respond when kids come in with functional pain or somatic symptoms. I would love more training on that.”(Physician, Adolescent Medicine)
3.2.3. Main Theme 3: Collaboration and Consultation
Subtheme 1: Referrals
“If ever I felt like someone needed true treatment for an eating disorder, I’m going to refer because I’m not, you know, I don’t have the expertise for that. So I don’t typically do the weight focus. I just say we have to stop the weight loss. How do we do that? Let’s come up with some strategies and go from there.”(Psychologist, Gastroenterology)
Subtheme 2: Care Setting
“In the inpatient intensive rehab program for kids who have been affected by chronic pain, you can’t walk, is in a wheelchair, can’t attend school, they manage everything except for eating. You must be able to eat. Otherwise, they’re not able to participate, which makes no sense to me. They have to be strong enough nutritionally to do physical therapy, but they can’t restore nutritionally because of chronic pain. Our eating disorder program doesn’t accept kids with chronic pain either.”(Physician, Adolescent Medicine)
Subtheme 3: Collaboration
“It’s so important to collaborate on our teams. I don’t know how many calories a patient should be consuming. I don’t have that expertise, so I loop in their dietitian if there are questions. I also don’t know if they’re orthostatic by heart rate or blood pressure unless they’re following with a pediatrician. We need to work together.”(Psychologist, Eating Disorders)
4. Discussion
4.1. Clinical Implications
4.2. Limitations and Future Directions
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
Abbreviations
ED | Eating Disorder |
AN | Anorexia Nervosa |
FBT | Family based treatment |
CBT | Cognitive behavioral therapy |
Appendix A
Subtheme | Code(s) | Physician Quotes | Psychologist Quotes |
---|---|---|---|
Patient Presentation | CFAP and ARFID are the most common presentations. | (ADOLMED_2) The most common way I see a patient who has both an eating disturbance and chronic pain is when they’re referred to me by GI to rule out ARFID, which is one of the most common eating disorders from people who have gastrointestinal problems. | (PAIN_4) They [patients] present for chronic pain problems and during the assessment or in reviewing the medical record there is evidence of weight loss due to chronic functional abdominal pain and food avoidance, because of loss of appetite or nausea or something like that. That’s usually where I first encounter them. |
Patient Presentation | Some patients present first with pain symptoms and then develop ED symptoms. | (ADOLMED_4) The adolescent brain is very vulnerable, so sometimes just the fact that they lost weight from avoiding food or pain could trigger their eating disorder. (ANESTH_6) I see kids come in with abdominal pain usually a secondary pain complaint to something like headaches or MSK pain… those kids are the ones who would fit this category. | (PAIN_7) The kids I see, see me for help with their pain and then I come to find that they’ve lost a bunch of weight and are avoiding food trying to avoid pain… and sometimes the weight loss is praised by peers, which can be reinforcing to the food restriction. |
Patient Presentation | Some patients present first with ED symptoms and then develop pain symptoms. | (ADOLMED_7) In the process of losing weight, then they had secondary GI issues that cause the constipation, the gastroparesis, the delayed gastric emptying, whatever we call it, the stomach pain as you start to refeed. (GI_10) I get a mix of kids who have an eating disorder diagnosis already and are worried about a secondary GI issue. I also get kids with GI pain who also have some restrictive behaviors and more eating stuff. | (EATING_6) Parents come in with their child who is refusing to try new foods and is afraid of foods for textural reasons or something like that. Then we find that they’re complaining about stomach pain. (EATING_3) It’s definitely a chicken or the egg kind of situation, like obviously during the refeeding process, there’s going to be GI discomfort and pain. |
Patient Presentation | Patients/families present with treatment fatigue and frustration | (ANESTH_5) By the time these patients get to me, the ones with functional pain, they’ve had the ultrasounds, the scopes, the colonoscopies… and they still don’t have answers as to what’s causing the pain. Then you have to tell them that there might not be an organic cause. That’s really tough. | (EATING_8) So many parents are frustrated, their child is losing weight and they’ve tried making them eat and they’ve tried accommodating their preferences or pushing back on them... they’re often scared and exhausted once they get to us. |
Patient Presentation | Parents feel guilt and fear | (ADOLMED_3) Parents often express fears like, “Can I do this? I’m afraid they’ll refuse food.” They also express guilt, like they say things like, “I wasn’t paying enough attention to my kid. I should have brought them in earlier.” (ANESTH_5) It’s tough, because parents feel like it’s mean to make them [their child] do something that causes pain. | (EATING_3) Many parents say things like, “I can’t feed my kid… they’re malnourished, they keep losing weight… I should have noticed earlier.” (PAIN_9) Parents feel awfully guilty when they realize that they’ve unintentionally enabled their child’s avoidance. One example is if they let their kid stay home from school day after day because of pain. |
Patient Presentation | Patients rarely present with chronic pain or EDs alone. Often comorbidities. | (GI_10) We do sometimes have someone with an eating disorder and chronic pain, and we have a lot of kids with a specific type of eating disorder called ARFID. Many of them report chronic abdominal pain. Fewer of them have chronic pain in general, but a lot of them have like chronic abdominal pain and anxiety or abdominal pain and functional nausea. | (PAIN_9) Very few kids are engaging only in eating disorder behaviors or only have chronic pain. Most of the time, there’s something else that triggered it or came along with it, like anxiety for example. Some kids also have depression, OCD, and/or other somatic complaints. |
Screening and Assessment | Important to ask questions beyond primary diagnosis, especially if suspected comorbidity. | (ANESTH_1)…A lot of times the kids come pre-labeled. Every once in a while, we’ll get a kid where you will ask some generic stuff and they’ll go, “Well, I’ve lost some weight.” We’ll [physicians] look at the growth curve, really quick and go, yeah, you know, you’ve lost 10 pounds in the last six months. Did you do this on purpose or have you been otherwise unwell? | (EATING_8) Sometimes kids come in with diagnoses and it’s not that I’m questioning those… I just think it’s important to keep an open mind. We need to ask all of the questions, because they often meet criteria for an additional diagnosis that would involve different interventions. |
Screening and Assessment | No formal measures are used in screening and assessment. | (ADOLMED_4) I don’t use any questionnaires or measures to assess for an underlying pain condition. I just ask follow-up questions if they describe any pain. For example, I might ask how often they’re stooling. If they’re experiencing pain related to constipation, I’ll recommend an osmotic laxative. | (PAIN_4) I have no formal measures that I’m administering, and it probably falls along the same lines as if abdominal pain is the primary presenting problem. I definitely do the eating assessment as part of their new visit in pain clinics or if I flag the chart from a GI, if I flag like a weight loss issue, that even if abdominal pain is not the primary pain complaint, if they have widespread pain, but they’ve seen GI and there is a weight loss issue, then I do more of the assessment. (PAIN_2) Truthfully, like, we don’t have screening measures in that clinic and that’s a problem. In the context for that patient and for similar patients, what I really learned to do was to look at the growth chart and see change in weight status over the course of time. And if I could see that there was a drop that would immediately raise my red flags, I would immediately be concerned. |
Screening and Assessment | Clinicians acquire history of symptom presentation. | (GI_8) I like a sense of the history of onset and change of behaviors to cause, I think sometimes that’s helpful if there... was it the pain first or was it that you were restricting and then you started to notice more pain or noticed more pain and if it’s chronic it might have been there like long standing, | (EATING_3) It’s really important for me to think about when things started to come up for them… did the pain symptoms come up before food restriction or was it the food restriction and eating issues that preceded the pain symptoms? It helps me to better conceptualize the presenting problem. (GI_5) I think it’s very hard, because these symptoms bleed into one another… that’s why I want to ask questions to get at what came first. I guess it’s possible that things develop at the same time. These are things I’m trying to figure out. |
Screening and Assessment | Even if a patient does not endorse ED symptoms, behaviors might indicate the presence of pathology. | (GI_10) Looking at the behavior is really helpful with teens in particular, because I think sometimes they not only lack insight, but then also it’s like sometimes they’re not going to be the most forthcoming. For example, they don’t always say “I would like to be a lot skinnier” or “I have body image issues”, but they might be willing to share, oh, “I don’t want to eat snacks like that.” (ADOLMED_2) If someone wants to lie, it doesn’t matter what I ask them. their behaviors can often tell us a lot. They can sleep through the night and get continuous feeds without pain, but during the day, if you try to feed them through an NG tube and every time you come into the room, the pump has been shut off because they say they “couldn’t take the pain anymore”. That’s someone I would have a higher oh, you probably have an eating disorder. | (PAIN_10) When I bring up eating and doing an intervention, if I don’t get a lot of resistance, I’m not thinking about the eating piece because I’m not getting 20 reasons why it won’t work. It’s not systematic. I’m not doing a body image assessment or using any set questionnaires that might assist me. It’s kind of like how things unfold during treatment. (PAIN_7) I’m looking at the behavior. If the kid is saying pain is impacting eating and daily activity yet is exercising a ton and eating foods that tend to cause gas and bloating, like cauliflower rice and sugar free stuff, I’m paying attention… alarm bells are going off. |
Screening and Assessment | Determine what is driving food avoidance. | (ADOLMED_7) I try to figure out what the function of like avoiding eating would be and some of the behaviors. So asking like, OK, so you are skipping meals tell me a little bit about like what that was like and why. I think being able to kind of figure out what’s prompting the behaviors and the reason is sometimes helpful because there have been times where patients have just been like, “I don’t want to be in pain.” That changes my conceptualization. | (GI_5) I try to figure out what the function of like avoiding eating would be and some of the behaviors. I’m so asking like, OK, so you were kind of like skipping meals like tell me a little bit about like what that was like and why. And I’ve been able to kind of figure out what’s prompting the behaviors and the reason is sometimes helpful because there have been times where patients have just been like, I don’t want to experience pain. |
Screening and Assessment | Teasing apart pain and ED symptoms is challenging. | (ANESTH_1) It’s hard to know… do they really meet those criteria? What’s the difference between that [a pain condition] and an eating disorder is not always clear. Is this a variant of ARFID or something separate? So we end up seeing a number of those kids where it’s not clear. Is it an overlapping condition? Is it two separate things or is all the same thing? | (EATING_3) It’s really challenging to tease apart always like what is the pain piece and what is secondary to nutrition or serving like some sort of psychosocial function? (GI_5) It [the presenting problem of the patient] was a combination of fear of pain and fear of weight gain, you know, and it was just… it was hard to parse out. |
Screening and Assessment | Parent involvement | (GI_10) Parents need to be involved and bought in…they aren’t always receptive to the psych referral. Many parents are committed to a physical explanation for their child’s symptoms- be it pain or nausea or weight loss. | (PAIN_9) I’m providing active coaching, education, modeling, and sending parents home with a plan because they are the ones who are with their kids the most. It’s not me. |
Intervention | Patients must be medically stable to participate in pain treatment. | (ADOLMED_2) They have to be strong enough nutritionally to do physical therapy, but they can’t restore nutritionally because of chronic pain and if they are engaging in physical activity. | (PAIN_4) you would stop everything and make feeding weight like weight restoration the sole purpose of treatment. So until there are signs, either until their weight restored or until their signs, their body is now like responding and is getting enough calories in to be able to function. |
Intervention | Parents’ buy-in to diagnosis(es) impacts intervention. | (ADOLMED_7) I work closely with the parents, because if they aren’t on board with the diagnosis or treatment recommendations we aren’t going to get very far. (ANESTH_9) I work hard to get parents on board. It’s interesting, functional pain can be challenging to get buy in from parents, but it’s been even harder for me to get parents to believe that their child might also have an eating disorder. | (EATING_8) It’s tough. I had a teen who was struggling with persistent abdominal pain and nausea. She was definitely restricting food to avoid these things. Parents did not want to stop taking her for medical tests, even though our team knew that this was a functional problem related to an eating disorder. They didn’t understand how therapy could help. |
Intervention | Family Based Treatment | (ADOLMED_3) FBT is the gold standard as you know for eating disorder treatment. I still think it’s relevant for these kids who also have pain issues. These kids need to be eating and having parents take control is the best way to ensure that. If we leave it up to the eating disorder or pain, the kid isn’t going to eat. | (EATING_5) I’ve had like a few cases where we kind of had to use a family- based treatment approach to kind of encourage parents to help their kids push on and eat while trying to manage some of the pain. (PAIN_2) The FBT model would map on well to what we do for pain treatment. We do a lot of externalizing the pain. Parents are very involved in treatment and we train parents to be validating that they’re asking their kid to push through pain… like going to school, engaging in physical activity, or for these kids, eating. There’s no negotiation. |
Intervention | ACT and CBT combination | (ANESTH_5) I know our psychologists use CBT for pain and some ACT strategies for pain. I’m sure they could also be helpful for kids who aren’t eating or are afraid of certain foods… gaining weight… I think that might be helpful, but that’s not my area of expertise. | (PAIN_4) We need to provide some kind of coping skills to navigate in the world. So I would use some ACT approaches infused with CBT. (EATING_6) It could actually work well to do some combination of interventions for pain and eating… I’m thinking possibly ACT and CBT. For eating it is especially important to have parents play a significant role, though. |
Intervention | Exposure therapy | (ADOLMED_7) I recently had a patient 11 years old, and she experienced mild symptoms that became more severe, and she completely refused to eat. She agreed with the NG tube placement was discharged with a tube. So she received NG tube treatment and went to exposure therapy and after starting exposure therapy, she started to eat more and more, and then we removed the NG tube, which was great. | (EATING_8) I think oftentimes if, for example, the patient presents more like ARFID, the treatment is often exposure like we need to get you eating a wider variety of foods. We need to get you eating more food or like a higher volume. And I think that’s oftentimes like a lot of times with pain, like, for example, like fear of movement, like exposure, like you have to get out and do it as much as you don’t want to do it in your brain, you have to do it. |
Intervention | Tube feeding | (ADOLMED_2) What I have found is that it doesn’t seem physiologically to help pain, whether they have a G tube like an NG tube or an NJ tube, pain is pain. (ANESTH_1) We turn the pump away or we put a bag over it again, just the visual cues, right? And some of the kids will still know. So it becomes really hard to suss out, you know, is this an eating disorder? Or, you know, is it a physiologic change in the gut that just makes it very painful to eat? And then, of course, they don’t eat because it hurts. | (PAIN_1) And when we first started, I feel like we had a slew of kids that came with feeding tubes. And I know that other intensive pain programs that know to the feeding tube like you have to be off the tube before you can do our program. And I think we learned that the hard way that there is actually a reason people are saying no to that because it really is a whole separate thing and not something that anyone on our team was equipped to manage. |
Intervention | Medication | (ADOLMED_4) We often use cyproheptadine when patients have eating issues and are also restricting food for various reasons, sometimes including pain. (ADOLMED_7) Meds are something that we try not to use in these cases, but some things are helpful. SSRIs, cyproheptadine, um sometimes over the counter antacids can help. It depends. Most of the time medication isn’t the most helpful way to help these kids. | No comment |
Intervention | Difficult to find setting appropriate for addressing both symptoms | (ADOLMED_4) Unfortunately, we don’t accept patients with chronic pain to our eating disorder program. It’s just part of our criteria. We are able to address mild pain complaints, such as discomfort due to fullness, nausea or constipation… if they have pain lasting for more than three months, we can’t take them. | (PAIN_2) I work in an interdisciplinary pain treatment program, and we have had several patients now that have come into our program. The program takes kids that have the highest levels of pain and impairment, or they’re being evaluated for the program. One of our criteria that we actually had to make because we were running into it so much was nutritional stability and no concerns for body image or weight loss, because we were seeing more and more patients come in with comorbid eating disorder and chronic pain symptoms. |
Subtheme | Code | Physician Quotes | Psychologist Quotes |
---|---|---|---|
Training Experience | Clinicians feel undertrained in non-specialty. | (ANEST_1) Given that it was several ago, we probably received something that was reasonable for the time (eating disorder training). Given the greater awareness and so on now, would that be that amount then be enough now? Probably not. (ADOLMED_2) We got 0-2 h max in functional pain disorders and somatic symptoms. You know, it might be a didactic lecture or something, but it’s not a common thing that falls into adolescent medicine. | (PAIN_1) During graduate school and post grad, I didn’t get a lot of experience working with kids or teens with eating disorders. I don’t feel super confident in working with the population for that reason. (PAIN_10) I did get some training in pain management, both with adults and kids. Zero training in eating disorders. It was like never even a topic that was brought up. It was like they were separate worlds. |
Training Experiences | Clinicians learn more in practice or on the job about comorbid EDs and pain than in graduate or medical school. | (ADOLMED_7) I have career long experience with eating disorders. In regards to pain, I don’t have any training. Of course, I have attended some workshops. I’ve talked with colleagues at the hospital. (ADOLMED_4) I got more experience with pain patients on the job than in med school trainings. | (EATING_8) I haven’t really had much pain training, unfortunately. I think it would have been a nice area to focus more on, but I’ve experienced it. I shadowed someone when I was on internship doing consultation liaison work and there was a case or two that was more related to pain. And I definitely see pain, chronic pain, even on the eating disorder inpatient unit. (EATING_8) You kind of learn as you experience those patients in clinic and have people to consult and supervise and help you with stuff, but nothing that was in my formal training. (PAIN_3) A lot of us are talking about how we haven’t trained much in eating disorders, and we’ve had to kind of learn on the job in the moment. And I think it’s kind of just because there’s a lack of integration into graduate or doctoral training. |
Desired Training | Opportunities for exposure to population during post-doctoral training. | (ADOLMED_3) I would have loved to have more coursework on this in med school or I mean, coursework may not be possible, but just it’s so interesting. The intersection of these complex medical presentations with these psychiatric presentations is something that I think people don’t necessarily get a ton of exposure to until they are like physicians and on their own. (ANESTH_9) I saw some kids with eating disorders during my residency, but until I maybe got an hour or two lecture in med school on eating disorders. There wasn’t much. | (PAIN_7) There were some peds psych experiences that involved eating disorders on internship. It was a mix kind of child clinical slash pediatric psychology internship. There was no specific eating disorders program at the site. |
Desired Training | Clinicians want more training in assessing functional/somatic symptoms and EDs. | (ADOLMED_7) It’s unfortunate, because the pain these kids have is real and we don’t always do a great job of validating functional stuff in the medical world. I’m not confident that I have the best language to respond when kids come in with functional pain or somatic symptoms. I would love more training on that. | (PAIN_10) I think I need more education on how to assess for eating disorders. I think we all need a lot more time to be able to assess especially if we aren’t super streamlined in assessing for eating disorders or pain. |
Desired Training | Clinicians want training to improve identification of treatment targets. | (ADOLMED_2) It would be helpful to learn what I can do as a physician to better support the treatment targets of psychotherapy. I do work closely with the psychologists on our team, but I’m not well versed in the treatment targets for functional pain. I’d like to learn more. (ADOLMED_3) I think training in adolescent medicine could be improved for chronic functional pain. I think that since we don’t really know how to treat functional pain, we don’t know how to treat the malnutrition caused by functional pain. As medical physicians were not great at convincing parents what the illness is and how to push through functional pain… that although it seems mean to make your kid eat even though they have pain, you have to. | (EATING_3) It would be great for someone to develop a training with a panel of therapists to treat functional abdominal pain and functional nausea since we are sent so many patients with that chief complaint from the community. (PAIN_2) We just need to be doing a better job of identifying when an eating disorder is present and making appropriate treatment decisions and knowing enough to be able to know when to treat someone for an eating disorder versus when to treat pain. |
Desired Training | Clinicians seeking training with a biopsychosocial lens. | (ANESTH_9) I think medical school creates too many subspecialists… they only travel down their isolated pathway in their tiny little subspecialty, and then when they hit a dead end, like, oh, I can’t figure out what’s wrong with you, gee, I wonder if it’s mental health? Then they [pain physicians] start referring them. We’d much rather see people up front. Like truly at the same moment, like, oh, you might have Crohn’s disease, but before we do a colonoscopy, let’s have you see our psychologist. In an ideal world. | (PAIN_10) I think it would be helpful if patients were to get to us sooner. It’s not the fault of any provider in particular… I just don’t think there’s enough training on somatic symptoms or functional pain, and how to go about that. Like, how the combination of biology and psychology, and environment can drive a lot of these things. |
Subtheme | Code(s) | Physician Quotes | Psychologist Quotes |
Referrals | Clinicians refer cases to other providers when they do not feel they have the expertise. | (ANESTH_1) I am not going to diagnose anybody with an eating disorder. I’m not qualified to do that, but I am qualified to be suspicious and make a referral. | (GI_10) If ever I felt like someone needed true treatment for an eating disorder, I’m going to refer because I don’t have the expertise for that. So, I don’t typically do the weight focus. I just say we have to stop the weight loss. How do we do that? Let’s come up with some strategies and go from there. |
Care Setting | Communicating with providers in different care settings. | (ADOLMED_2) I collaborate with mental health people, whether they’re in the community or in our own program. I take the time to go and reach out to all of those people, I talk to community therapists, I call psychiatrists in the community…everyone needs to be talking to one another. | (EATING_6) Community psychologists and therapists sometimes reach out to us to see if we can provide any education on eating disorder treatment, especially when it’s a complex presentation- like a kid with pain and restrictive eating. |
Care Setting | Clinicians see the benefit in working with adolescents with chronic pain and ED symptoms in interdisciplinary settings. | (ADOLMED_4) We are very much an interdisciplinary team. We have adolescent medicine physicians and fellows. The patients and then psychologists and social workers meet with patients for more like therapy side. We do have a dietitian who will sometimes meet with families and nursing staff, and that’s on the outpatient level. But if we’re on the inpatient unit, which is FBT informed, it’s, you know, the whole gamut. Again, nursing staff, PCAs, psychologists, physicians. So yeah, we very much collaborate on cases. | (GI_5) I really like that interdisciplinary approach. I think it helps patients move and improve a lot quicker than, you know, seeing me for outpatient and then seeing their doctor every three months. I just feel like it’s better when we’re all a team and presenting information in a uniform fashion. |
Care Setting | It is challenging to find a higher level of care options for kids with both EDs and chronic pain. | (ADOLMED_7) In the inpatient intensive rehab program for kids who have been affected by chronic pain, they [patients] can’t walk, could be in a wheelchair, can’t attend school… they manage everything except for eating. They must be able to eat. Otherwise, they’re not able to participate, which makes no sense to me. They have to be strong enough nutritionally to do physical therapy, but they can’t restore nutritionally because of chronic pain. Our eating disorder program doesn’t accept kids with chronic pain either. | (PAIN_4) And our inpatient pain program really struggles, because part of their criteria... like they won’t take kids who have eating problems because they only can focus on the pain. They don’t think they have the capacity to do the additional things that come with eating disorder treatment. (EATING_6) We get really stuck… we are forced to decide what this kid needs more at the time, but often times neither options of higher level of care are able to address the intertwined issues. |
Collaboration | Clinicians feel confident in knowing who to ask/consult within the interdisciplinary team. | (ANESTH_6) I know enough to know when I need to consult with someone on a case. We are an interdisciplinary team, so if there’s functional pain or psychological distress in the context of eating I know I need to get this patient to see psychology. | (GI_5) I work right with a gastroenterologist and we have nursing and dietitians and a speech language pathologist with us, so we’re getting the whole picture. I know I have support when things come up. (EATING_8) Sometimes there’s comorbid mental and physical health conditions, that’s why it’s good to have a whole team to look at the bigger picture. I can ask someone on my team to see the patient and give me insight. |
Collaboration | Importance of defining roles in treatment team | (ADOLMED_2) If the patient’s primary problem appears to be phobia, fear related/choking type or food allergy fear of having an allergic reaction is fed by a body image-driven eating disorder then I collaborate with mental health people. I collaborate with dietitians, and I collaborate with GI. I take the time to go and reach out to all of those people, but if their primary problem is functional, I say that they should see a therapist. | (EATING_3) It’s so important to collaborate on our teams. I don’t know how many calories a patient should be consuming. I don’t have that expertise, so I loop in their dietitian if there are questions. I also don’t know if they’re orthostatic by heart rate or blood pressure unless they’re following with a pediatrician. We need to work together. |
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Focus Area | Questions | Probes |
---|---|---|
Clinical Experiences |
|
|
|
| |
Training |
|
|
Collaboration |
|
|
Variable | N (%) |
---|---|
Sex | |
Male | 13 (65) |
Female | 7 (35) |
Race | |
White | 10 (50) |
Asian | 3 (15) |
Black | 2 (10) |
Latine | 1 (5) |
More than one race | 1 (5) |
Location of Academic Medical Center | |
Midwest | 9 (45) |
West | 5 (25) |
Northeast | 4 (20) |
South | 2 (10) |
Specialty | |
Physician | |
Adolescent Medicine | 4 (40) |
Anesthesiology | 4 (40) |
Gastroenterology | 2 (20) |
Psychologist | |
Pain | 6 (60) |
Eating Disorders | 3 (30) |
Gastroenterology | 1 (10) |
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Beckmann, E.A.; Aarnio-Peterson, C.M.; Homan, K.J.; Stough, C.O.; Jastrowski Mano, K.E. Clinician Experiences with Adolescents with Comorbid Chronic Pain and Eating Disorders. J. Clin. Med. 2025, 14, 5300. https://doi.org/10.3390/jcm14155300
Beckmann EA, Aarnio-Peterson CM, Homan KJ, Stough CO, Jastrowski Mano KE. Clinician Experiences with Adolescents with Comorbid Chronic Pain and Eating Disorders. Journal of Clinical Medicine. 2025; 14(15):5300. https://doi.org/10.3390/jcm14155300
Chicago/Turabian StyleBeckmann, Emily A., Claire M. Aarnio-Peterson, Kendra J. Homan, Cathleen Odar Stough, and Kristen E. Jastrowski Mano. 2025. "Clinician Experiences with Adolescents with Comorbid Chronic Pain and Eating Disorders" Journal of Clinical Medicine 14, no. 15: 5300. https://doi.org/10.3390/jcm14155300
APA StyleBeckmann, E. A., Aarnio-Peterson, C. M., Homan, K. J., Stough, C. O., & Jastrowski Mano, K. E. (2025). Clinician Experiences with Adolescents with Comorbid Chronic Pain and Eating Disorders. Journal of Clinical Medicine, 14(15), 5300. https://doi.org/10.3390/jcm14155300