The Effects of COVID-19-Related Restrictions on Parkinson’s Disease Patients in Italy: Results of a Structured Survey
Abstract
:1. Introduction
2. Materials and Methods
- Opinion and perception of the epidemic (8 questions, 8 items).
- Personal experience and involvement in the epidemic (7 questions, 20 items).
- Current situation (3 questions, 11 items).
- Personal data (9 questions, 11 items).
3. Results
3.1. Section A—Opinion and Perception of the Epidemic
3.2. Section B—Personal Experience and Involvement in the Epidemic
3.3. Section C—Current Situation
3.4. Section D—Personal Data
4. Discussion
5. Conclusions
Supplementary Materials
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
References
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Code | Question in the Survey |
---|---|
A1 | Do you feel worried about the SARS-CoV-2 epidemic? |
A2 | Do you think your risk of being infected is worsened by your disease? |
A3 | Are you worried about social distancing and being in crowded places? |
A4 | What is your opinion about information on the pandemic provided by newspapers, TV, social media? |
A5 | Do you fear the epidemic will hinder your access to healthcare for your disease? |
A6 | Are you afraid of going in places such as ambulatories and hospitals? |
A7 | Do you think your risk of being infected is worsened by the medications you take? |
A8 | Do you think effective therapies are available for the SARS-CoV-2 infection? |
B1 | During the 2019/2020 SARS-CoV-2 outbreak, have you suffered from symptoms suggestive of a possible infection? |
B2 | If that was the case, list your symptoms. |
B3.1 | Did you receive health care at home? |
B3.2 | Were you tested with one or more nasopharyngeal swabs? |
B3.2.1 | Were such tests positive? |
B3.3 | Were you quarantined at home? |
B3.4 | Were you admitted to the hospital? |
B4.1 | During the lockdown period, did you find it harder to get food? |
B4.2 | During the lockdown period, did you find it harder to obtain antiparkinsonian drugs? |
B4.3 | During the lockdown period, did you find it harder to obtain other drugs? |
B4.4 | During the lockdown period, did you find it harder to obtain face masks? |
B5.1.1 | During the lockdown period, did you find it harder to make contact with your primary care physician? |
B5.1.2 | In case you found it harder, were there any consequences on your health? |
B5.2.1 | During the lockdown period, did you find it harder to make contact with your neurologist? |
B5.2.2 | In case you found it harder, were there any consequences on your health? |
B6.1 | During the lockdown period, you engaged in daily activities as usual: |
B6.2 | During the lockdown period, you engaged in motor activity as usual: |
B6.3 | During the lockdown period, you received physical therapies as usual: |
B6.4 | During the lockdown period, symptoms control was the same as before: |
B7 | Use this space to freely write any comments on your experience during lockdown (from 9 March 2020 to 18 May 2020): |
C1.1 | In the current situation, is obtaining food still harder than before lockdown? |
C1.2 | In the current situation, is obtaining antiparkinsonian drugs still harder than before lockdown? |
C1.3 | In the current situation, is obtaining other drugs still harder than before lockdown? |
C1.4 | In the current situation, is obtaining face masks still harder than before lockdown? |
C1.5 | In the current situation, is contacting your primary care physician still harder than before lockdown? |
C1.6 | In the current situation, is contacting your neurologist still harder than before lockdown? |
C2.1 | Is your coping with daily activities back to normal? |
C2.2 | Is your engagement in motor activities back to normal? |
C2.3 | Is symptoms control back to normal after the lockdown period? |
C2.4 | Are you receiving physical therapies as usual, after the lockdown period? |
C3 | Use this space to freely write any comments on your experience in the current situation: |
Sex | Select your sex: |
Age | State your age: |
D1 | What is your marital status? |
D2 | Do you live with other persons? |
D3 | What is your education level? |
D4 | Are you currently working? |
D5 | Select your contract type: |
D6 | Select your work type: |
D7 | Select the size of your town or city: |
D8 | At what age were you diagnosed with Parkinson? |
D9 | Are you self-sufficient? |
Item | Not at All | Slightly | Moderately | Very | Extremely |
---|---|---|---|---|---|
A1 | 5 (1.47%) | 44 (12.98%) | 162 (47.79%) | 102 (30.09%) | 26 (7.67%) |
A2 | 42 (12.39%) | 98 (28.91%) | 124 (36.58%) | 56 (16.52%) | 19 (5.6%) |
A3 | 4 (1.18%) | 52 (15.34%) | 154 (45.43%) | 89 (26.25%) | 40 (11.8%) |
A4 | Totally inadequate | Inadequate | Adequate | Excessive | Overly excessive |
12 (3.54%) | 49 (14.45%) | 148 (43.66%) | 112 (33.04%) | 18 (5.31%) | |
Not at all | Slightly | Moderately | Very | Extremely | |
A5 | 33 (9.73%) | 77 (22.71%) | 103 (30.38%) | 81 (23.89%) | 45 (13.27%) |
A6 | 23 (6.78%) | 63 (18.58%) | 127 (37.46%) | 84 (24.78%) | 42 (12.39%) |
A7 | 109 (32.15%) | 131 (38.64%) | 71 (20.94%) | 21 (6.19%) | 7 (2.06%) |
A8 | No | Maybe | Yes | ||
135 (39.82%) | 167 (49.26%) | 37 (10.91%) |
Thematic | Experience in the Pandemic (n = 276) | Current Situation (n = 260) | |||||||
---|---|---|---|---|---|---|---|---|---|
Item | Much Easier than Usual | Easier than Usual | Same | Harder than Usual | Much Harder than Usual | Item | Still Harder | Not Still Harder | |
Food | B4.1 | 2 (0.72%) | 2 (0.72%) | 187 (67.75%) | 73 (26.45%) | 12 (4.35%) | C1.1 | 8 (3.08%) | 252 (96.92%) |
Parkinson drugs | B4.2 | 5 (1.81%) | 1 (0.36%) | 245 (88.77%) | 22 (7.97%) | 3 (1.09%) | C1.2 | 5 (1.92%) | 255 (98.08%) |
Other drugs | B4.3 | 4 (1.45%) | 3 (1.09%) | 247 (89.49%) | 18 (6.52%) | 4 (1.45%) | C1.3 | 5 (1.92%) | 255 (98.08%) |
Face masks | B4.4 | 3 (1.09%) | 4 (1.45%) | 121 (43.84%) | 97 (35.14%) | 51 (18.48%) | C1.4 | 8 (3.08%) | 252 (96.92%) |
Primary care | B5.1.1 | 2 (0.72%) | 7 (2.54%) | 158 (57.25%) | 90 (32.61%) | 19 (6.88%) | C1.5 | 50 (19.23%) | 210 (80.77%) |
Neurologist | B5.2.1 | 2 (0.72%) | 3 (1.09%) | 150 (54.35%) | 82 (29.71%) | 39 (14.13%) | C1.6 | 58 (22.31%) | 202 (77.69%) |
No, much less | No, less | Yes | More than usual | Much more than usual | Back to normal | Not back to normal | |||
Daily activities | B6.1 | 47 (17.03%) | 83 (30.07%) | 130 (47.1%) | 15 (5.43%) | 1 (0.36%) | C2.1 | 165 (63.46%) | 95 (36.54%) |
Motor activity | B6.2 | 105 (38.04%) | 109 (39.49%) | 55 (19.93%) | 6 (2.17%) | 1 (0.36%) | C2.2 | 125 (48.08%) | 135 (51.92%) |
Yes | No | I never did | |||||||
Physical therapies | B6.3 | 37 (13.41%) | 181 (65.58%) | 58 (21.01%) | C2.3 | 175 (67.31%) | 85 (32.69%) | ||
No, much less | No, less | Yes | More than usual | Much more than usual | |||||
Symptoms control | B6.4 | 21 (7.61%) | 103 (37.32%) | 149 (53.99%) | 3 (1.09%) | 0 (0%) | C2.4 | 90 (44.12%) | 114 (55.88%) |
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Martini, S.; Magistrelli, L.; Vignaroli, F.; Colombatto, F.; Comi, C.; Cosentino, M. The Effects of COVID-19-Related Restrictions on Parkinson’s Disease Patients in Italy: Results of a Structured Survey. J. Clin. Med. 2022, 11, 3007. https://doi.org/10.3390/jcm11113007
Martini S, Magistrelli L, Vignaroli F, Colombatto F, Comi C, Cosentino M. The Effects of COVID-19-Related Restrictions on Parkinson’s Disease Patients in Italy: Results of a Structured Survey. Journal of Clinical Medicine. 2022; 11(11):3007. https://doi.org/10.3390/jcm11113007
Chicago/Turabian StyleMartini, Stefano, Luca Magistrelli, Francesca Vignaroli, Federico Colombatto, Cristoforo Comi, and Marco Cosentino. 2022. "The Effects of COVID-19-Related Restrictions on Parkinson’s Disease Patients in Italy: Results of a Structured Survey" Journal of Clinical Medicine 11, no. 11: 3007. https://doi.org/10.3390/jcm11113007