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Article

COVID-19 Vaccinations: Perceptions and Behaviours in People with Primary Ciliary Dyskinesia

1
Institute of Social and Preventive Medicine, University of Bern, 3012 Bern, Switzerland
2
Graduate School for Health Sciences, University of Bern, 3012 Bern, Switzerland
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Associazione Italiana Discinesia Ciliare Primaria Sindrome di Kartagener Onlus, 70124 Bari, Italy
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Association ADCP, 42218 Saint-Étienne, France
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PCD Support UK, London MK18 9DX, UK
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Asociación Española de Pacientes con Discinesia Ciliar Primaria, Santo Ángel 30151, Philippines
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PCD Foundation, Minneapolis, MN 55420, USA
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Primary Ciliary Dyskinesia Centre, NIHR Biomedical Research Centre, University Hospital Southampton NHS Foundation Trust, Southampton SO16 6YD, UK
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Faculty of Medicine, School of Clinical and Experimental Medicine, University of Southampton, Southampton SO17 1BJ, UK
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Department of Translational Medical Sciences, Federico II University, 80138 Naples, Italy
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Division of Paediatric Respiratory Medicine and Allergology, Department of Paediatrics, Inselspital, Bern University Hospital, University of Bern, 3010 Bern, Switzerland
*
Author to whom correspondence should be addressed.
COVID-PCD Patient Advisory Group (in alphabetical order): Sara Bellu, Associazione Italiana Discinesia Ciliare Primaria Sindrome di Kartagener Onlus Italy; Isabelle Cizeau, Association ADCP, France; Fiona Copeland, PCD support UK; Katie Dexter, PCD support UK; Lucy Dixon, PCD support UK; Trini López Fernández, Asociación Española de Pacientes con Discinesia Ciliar Primaria, Spain; Susanne Grieder, Selbsthilfegruppe Primäre Ciliäre Dyskinesie, Switzerland; Catherine Kruljac, PCD Australia Primary Ciliary Dyskinesia, Australia; Michele Manion, PCD Foundation, USA; Bernhard Rindlisbacher, Selbsthilfegruppe Primäre Ciliäre Dyskinesie, Switzerland; Hansruedi Silberschmidt, Verein Kartagener Syndrom und Primäre Ciliäre Dyskinesie, Germany.
Academic Editor: Giuseppe La Torre
Vaccines 2021, 9(12), 1496; https://doi.org/10.3390/vaccines9121496
Received: 8 November 2021 / Revised: 12 December 2021 / Accepted: 13 December 2021 / Published: 17 December 2021
(This article belongs to the Section Epidemiology)
Primary ciliary dyskinesia (PCD) is a rare genetic disease that causes recurrent respiratory infections. People with PCD may be at higher risk of severe coronavirus disease 2019 (COVID-19), and therefore vaccination against severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) is important. We studied vaccination willingness, speed of vaccination uptake, side effects, and changes in social contact behaviour after vaccination in people with PCD. We used data from COVID-PCD, an international participatory cohort study. A COVID-19 vaccination questionnaire was emailed to participants in May 2021 and 423 participants from 31 countries replied (median age: 30 years, range 1–85 years; 261 (62%) female). Vaccination uptake and willingness were high, with 273 of 287 adults (96%) being vaccinated or willing to be in June 2021; only 4% were hesitant. The most common reason for hesitancy was fear of side effects, reported by 88%. Mild side effects were common, but no participant reported severe side effects. Half of the participants changed their social behaviour after vaccination by seeing friends and family more often. The high vaccination willingness in the study population might reflect the extraordinary effort taken by PCD support groups to inform people about COVID-19 vaccination. Clear and specific information and involvement of representatives is important for high vaccine uptake. View Full-Text
Keywords: SARS-CoV-2; COVID-19; PCD; primary ciliary dyskinesia; vaccine; vaccinations; pandemic SARS-CoV-2; COVID-19; PCD; primary ciliary dyskinesia; vaccine; vaccinations; pandemic
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MDPI and ACS Style

Pedersen, E.S.L.; Mallet, M.C.; Lam, Y.T.; Bellu, S.; Cizeau, I.; Copeland, F.; Fernandez, T.L.; Manion, M.; Harris, A.L.; Lucas, J.S.; Santamaria, F.; Goutaki, M.; Kuehni, C.E.; COVID-PCD Patient Advisory Group. COVID-19 Vaccinations: Perceptions and Behaviours in People with Primary Ciliary Dyskinesia. Vaccines 2021, 9, 1496. https://doi.org/10.3390/vaccines9121496

AMA Style

Pedersen ESL, Mallet MC, Lam YT, Bellu S, Cizeau I, Copeland F, Fernandez TL, Manion M, Harris AL, Lucas JS, Santamaria F, Goutaki M, Kuehni CE, COVID-PCD Patient Advisory Group. COVID-19 Vaccinations: Perceptions and Behaviours in People with Primary Ciliary Dyskinesia. Vaccines. 2021; 9(12):1496. https://doi.org/10.3390/vaccines9121496

Chicago/Turabian Style

Pedersen, Eva S.L., Maria C. Mallet, Yin T. Lam, Sara Bellu, Isabelle Cizeau, Fiona Copeland, Trini L. Fernandez, Michele Manion, Amanda L. Harris, Jane S. Lucas, Francesca Santamaria, Myrofora Goutaki, Claudia E. Kuehni, and COVID-PCD Patient Advisory Group. 2021. "COVID-19 Vaccinations: Perceptions and Behaviours in People with Primary Ciliary Dyskinesia" Vaccines 9, no. 12: 1496. https://doi.org/10.3390/vaccines9121496

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