Bi5: An Autoethnographic Analysis of a Lived Experience Suicide Attempt Survivor Through Grief Concepts and ‘Participant’ Positionality in Community Research
Abstract
“Let none of you wish for death because of a calamity that has befallen him. But if he must wish for something, let him say: ‘O Allah, keep me alive as long as life is better for me, and cause me to die when death is better for me.’”—[Sahih al-Bukhari 5671, Sahih Muslim 2680]
1. Introduction
1.1. Significance: Theory, Methodology, and Demography
1.2. Background and Context
1.3. On Grief
1.4. On Suicide, Suicidality, and Violence: Terminology Matters
1.5. Theoretical Framework and Conceptual Model
1.6. Positionality Statement
2. On Identifying Multidimensionally as “Bi-___” as Analyzed Through Disenfranchised Grief
2.1. Excerpt: Bi1
Where do I go to feel seen? I was born and raised in sunny Southern California as a second-generation immigrant. My parents come from Bihar, India. Should I act Pakistani, Muslim, brown, American—full-time—or just channel whatever frequency occurs momentarily?Could I share common feelings with people who identify as biracial? Which societies would outcast me if I came out as a genderfluid non-binary woman? What makes disclosing bipolar depression a question of morality and ethics: to institutions, colleagues, friends, human subjects?Where is my camouflage today, do I modify it to ‘pass’ or adapt? How will I know my identity is celebrated, not stigmatized, across time and dynamic social networks? Is my lived experience the embodiment of stigma as a fundamental cause of health inequity?
Can empirical evidence attest I am not the only one feeling this way? Would my faith community support my scientific views? Would the scientific community support my spiritual views? Who can I trust? How could personal narratives sustain and promote empowered lives in diverse populations?Why does such a great task befall me? My life mission…to reclaim humanity? I am disabled; I need more spoons.1 Living means so much more. Should I hope for a better afterlife? Will my hope run out? End this isolation, I can’t take it anymore! I pray for peace in all souls.
2.2. Bi1 Analysis: Disenfranchised Grief
3. On Identifying Beyond the Binary as Analyzed Through Ambiguous Loss
3.1. Excerpt: Bi2 as Genderfluid Non-Binary
2008 would be the birth year for some early adults who are age 15 today. That was a monumental year for so many reasons. As was customary in my older sister’s household, we discussed most matters openly. California’s Prop 8 was distressingly instigated. “I am not a member of that community, so I didn’t vote on it,” I gently protested. I felt courage to speak up on the matter but suppressed my pain simultaneously. It happened to be the first year I was eligible to vote as I had just turned 18.Why do I feel such injustice when my loved ones speak against civil rights for queer people? I just know what it feels like to experience crippling discrimination and I relate to having no idea who or what is safe to ‘be’ around. Now, in 2023, the conversation has evolved, as have I. Ironically, Muslim elders and Islamic teachings led to me embracing my queer vibes. During a session with my spouse around 2019, our Black Muslim marital therapist conveyed she sensed a strong masculine energy from me. I was taken aback.Last year, I encountered messaging on Instagram from a nonprofit organization called HEART. It talked about two of the 99 names of Allah. Names describing God as “compassionate” derive from the Arabic term for “womb.” In fact, it is a divine characteristic of God to be outside social constructs such as gender. He is not “he.” Is this affirmation what I had been looking for all along? Finally, I get it, I am enby, genderfluid, too, as a parent, a mom. Many creations gender bend for survival. The Creator divinely fashioned me.God makes no mistakes. God says “Be! and it is.” So, I am.
3.2. Analysis: Ambiguous Loss
Even for those trans persons who do not transition from one sex category to another, moving to a more gender-fluid identity involves a shift away from one if not clearly toward another. For family members, transition brings about a renegotiation of meaning regarding the trans person’s identity, which often incites ambiguous loss. This loss is related to contradiction in the meaning making process resulting in the perception that the trans person is both present and absent, the same and different.
3.3. On Gender and Suicide
4. On Identifying as a Patient with a Post-Partum Bipolar Diagnosis as Analyzed Through Anticipatory Grief
4.1. Excerpt: Bi3 as Bipolar
What use is my lived experience to a psychiatrist? As a young person, I felt gaslighted when I would bring up issues that affect my daily life to clinicians. It could be their unintended ignorance, or bias. I spent so many years perseverating, feeling suicidal ruminating over how powerless I felt. Will I grow cancer in my throat because I have grown accustomed to self-censorship for my own survival? When I do speak up, why does it sound like I’m the crazy one?How do I know whether your diagnosis of me pathologizes discrimination? Are you sure it wasn’t racism-based traumatic stress that twisted the mind of my father, Mohammad, into schizophrenia? Is it adjustment disorder still adjusting since his arrival in the 80s? How do I know I can trust you when diagnostic classifications derive from ungeneralizable samples who do not represent me or my life?Will my voice count to the medical establishment if I speak in scientific terms? I reclaim power with conviction and diction to describe paranoia or hypervigilance as normal reactions to surviving historically oppressive systems. My world-renowned advisor stated that women of color are disproportionately diagnosed as bipolar. Most psychiatrists and psychologists cannot relate to my disabled, nonconforming, racialized lived experience. At 29 years old, I roll into the hospital of my home institution—the finest in the world—a pregnant patient in a wheelchair. A white nurse speaks to me in Spanish, racializing me as the kind of brown I am not.I catch myself feeling triggered. I realize I don’t need to be triggered, but now our dynamic becomes racialized. Postpartum, I go back for a routine 6-week checkup. It’s July 2020. I inform the midwife I am symptomatic of psychosis. What? “Psychosis.” She gaped into my eyes, unaware of protocol. Later, policemen show up and forcefully take me away to the hospital by court order. It’s a ‘voluntary’ hospitalization, they tell me to say…
4.2. Analysis: Anticipatory Grief
4.3. On Mental Illness and Suicide
5. On Identifying with Biracial Dualities as Analyzed Through Secondary Loss
5.1. Excerpt: Bi4 as Biracial
Race is socially constructed, right? That’s why Muslims are racialized despite being a faith group. My adolescent years were spent at the Islamic Center of Irvine, where undercover FBI Agent Craig Monteilh infiltrated our Southern California mosque, posing as a new convert, unlawfully targeted our community, abused our sacred spaces, and violated us. (Rafei 2021) We are so often surveilled by undercover agents that I was abnormally distrustful of my own ex-spouse before marrying; he identifies as a convert.Who counts as Muslim? The answer varies depending on who is asking. FBI? CIA? TSA? Matchmaking aunties? Remarkably, even Muslims don’t agree on who is Muslim. I feel intuitively connected to racialized dualisms of belongingness. I am an insider as a Muslim yet an outsider as American. Or is it the other way around? I could be President, but I am not American enough. Even my own South Asian family ridiculed me: “American Born Confused Desi (ABCD).”On 9/11 one year, I wrote on Facebook that I would truly “never forget.” The media hijacks my narrative with wrongful Islamophobic messaging about my people. How could I ever have the audacity to call myself a term that does not even belong to me? America spans Canada, America spans Mexico. Sure, I am American, but I fail to be a patriot. Does being American mean I can travel to Israel with a hijab, brown skin, and a U.S. passport without being detained? Am I American then, too, or just racially Muslim?Muslims who dichotomize hijab—wear it or not—might not consider me as one of their own. How do I conduct community based participatory research if I am not accepted by my own people? Should I just abandon my hypothesis that living as American Muslim is theoretically a biracial or multiracial experience, which scientifically contributes to suicide risk? Who will believe me, and accept my story in science, in community, in media?
5.2. Analysis: Secondary Loss
5.3. On Socioeconomic Status and Suicide
6. On Identifying with Arabic-Speaking Bilingual Diasporas as Analyzed Through Collective Grief
6.1. Excerpt: Bi5 as Bilingual
Arabic script on an envelope of a letter I wrote to my advisor read: “In the Name of Allah, the Most Beneficent, the Most Merciful.” On the evening of October 7, 2023, joined by colleagues and my children, I was enjoying dinner at the home of my advisors. I passed by their kitchen, and saw a little cubby with ornaments and decorations, showcasing this letter I had written years ago. It was not long after that I received news of what happened overseas. God placed me there at that time, so divine. I passionately prayed for my colleagues, including Dr. Bahzad AlAkhras, a child psychiatrist native to Gaza, who I had met through the State Department just five months before.They say that the genocide began that day, yet I disagree. As a part of the greater Muslim diaspora, or Ummah as we say in Arabic, I knew this was just a resurgence of the violence and forced displacement that Palestinians have faced over the past century. Although I do not fluently speak in Arabic, I knew enough to get by in my travels to Arabic-speaking countries in West Asia and North Africa. I had no consoling words to share with my colleagues in Gaza, when, within a week, I found out that some of them and their families were murdered early in the first days of the war outbreak. What do I say, in Arabic, to my Gazan colleagues overseas, to convey what was in my heart? I did not have the words, not even in English.The Prophet Muhammad (peace and blessings upon him) stated: “None of you should wish for death because of a calamity befalling him; but if he must wish for death, he should say: ‘Oh Allah, keep me alive so long as life is better for me, and let me die if death is better for me.’” This is a saying, or hadith, I only found recently. Now, it is January 2025, and with the implementation of a ceasefire plan, my only prayer is that the lives of innocent Israelis and Palestinians alike are spared. Why is there no birthright for Palestinians? How can we reconnect with our roots?Before we prayed in the direction of the Kaaba, or house of God, in Mecca, Saudia Arabia, our Muslim ancestors prayed in the direction of the Al-Aqsa Mosque, also known as the Dome of the Rock. This is where the Prophet Muhammad miraculously ascended to the heavens and directly spoke to Allah on the holy night known as Israa wa Miraj. He met with Prophets Adam, Abraham, Moses, and Jesus. It was the night when our Islamic practice of the five daily prayers were sealed, as the Prophet spoke directly to Allah on ordaining them. When I prayed in Jerusalem at the Dome of the Rock in 2012, in the small cave underneath the prayer area, I felt connected to Allah and to the people of Jerusalem—the Hebrew speakers and Arabic speakers, alike.We share so many ancestors, yet conflict persists. Though geographically disconnected, every night I went to sleep and every morning I woke up, over the past 15 months, all that connected me to Gazans was an overwhelming survivors’ guilt. Every shower I took, every sip of water I drank, every jacket I wore, every bite of food I ate—all of it was a part of my daily mourning. If I could speak better Arabic, maybe I could process the pain better. But suffering has no language, and neither does sympathy. Our universal language is prayer.“In the Name of Allah, the Most Beneficent, the Most Merciful.”
6.2. Analysis: Collective Grief
6.3. On Genocide and Suicide
7. Discussion
7.1. Rigor of Methodology
7.2. Future Directions
8. Conclusions
“By having no illusions about the system, and by being ready to die, we begin to live.”—Huey P. Newton
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
1 | “Spoons” is an informal term referencing the popular cultural concept of ‘spoon theory.’ It is a term commonly used by people with chronic illnesses or disabilities. The term refers to a daily quota of 10 spoons worth of energy, to be strategically divvied up by priority in terms of survivalism. |
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noor, a.e. Bi5: An Autoethnographic Analysis of a Lived Experience Suicide Attempt Survivor Through Grief Concepts and ‘Participant’ Positionality in Community Research. Soc. Sci. 2025, 14, 405. https://doi.org/10.3390/socsci14070405
noor ae. Bi5: An Autoethnographic Analysis of a Lived Experience Suicide Attempt Survivor Through Grief Concepts and ‘Participant’ Positionality in Community Research. Social Sciences. 2025; 14(7):405. https://doi.org/10.3390/socsci14070405
Chicago/Turabian Stylenoor, amelia elias. 2025. "Bi5: An Autoethnographic Analysis of a Lived Experience Suicide Attempt Survivor Through Grief Concepts and ‘Participant’ Positionality in Community Research" Social Sciences 14, no. 7: 405. https://doi.org/10.3390/socsci14070405
APA Stylenoor, a. e. (2025). Bi5: An Autoethnographic Analysis of a Lived Experience Suicide Attempt Survivor Through Grief Concepts and ‘Participant’ Positionality in Community Research. Social Sciences, 14(7), 405. https://doi.org/10.3390/socsci14070405