Palliative Care Awareness Among Caregivers of Cancer Patients in Turkey: A Cross-Sectional Study
Simple Summary
Abstract
1. Introduction
2. Materials and Methods
2.1. Study Design and Participants
2.2. Data Collection
- Sociodemographic characteristics (age, gender, education level, marital status, and employment status);
- Socioeconomic and occupational characteristics;
- Clinical characteristics of the patients (cancer diagnosis and duration since diagnosis);
- Awareness and knowledge of palliative care.
2.3. Ethical Considerations
2.4. Statistical Analysis
3. Results
3.1. Characteristics of the Participants
3.2. Association Between Sociodemographic and Clinical Factors and Palliative Care Awareness
3.3. Experiential Factors Associated with Palliative Care Awareness
3.4. Multivariable Logistic Regression Analysis
4. Discussion
5. Limitations
6. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
References
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| Variable | Category | n (%) |
|---|---|---|
| Gender | Female | 266 (48.4) |
| Male | 284 (51.6) | |
| Marital status | Married | 474 (86.2) |
| Single | 76 (13.8) | |
| Education level | Primary school | 166 (30.2) |
| Middle school | 60 (10.9) | |
| High school | 174 (31.6) | |
| University | 150 (27.3) | |
| Employment status | Unemployed | 207 (37.6) |
| Self employed | 109 (19.8) | |
| Full time | 166 (30.2) | |
| Retired | 68 (12.4) | |
| Relationship with patient | Mother | 38 (6.9) |
| Father | 43 (7.8) | |
| Sibling | 50 (9.1) | |
| Child | 216 (39.3) | |
| Spouse | 200 (36.4) | |
| Cancer diagnosis | Lung | 109 (19.8) |
| Prostate | 45 (8.2) | |
| Breast | 167 (30.4) | |
| Colon | 74 (13.5) | |
| Gastric | 54 (9.8) | |
| Gynecological | 56 (10.2) | |
| Other | 45 (8.2) | |
| Disease stage | Stage I | 113 (20.5) |
| Stage II | 120 (21.8) | |
| Stage III | 113 (20.5) | |
| Stage IV | 204 (37.2) | |
| Palliative care awareness | No knowledge | 277 (50.4) |
| Yes, sufficient knowledge | 141 (25.6) | |
| Yes, but insufficient knowledge | 131 (23.8) | |
| Source of information about palliative care | Physician | 83 (31.8) |
| Nurse | 8 (3.1) | |
| Social network | 162 (62.1) | |
| Media | 8 (3.1) | |
| Was palliative care recommended to the patient? | Yes | 70 (24.7) |
| No | 213 (75.3) | |
| Previous exposure to palliative care in relatives | Yes | 90 (16.9) |
| No | 442 (83.1) | |
| Relationship with person receiving palliative care | Grandfather | 25 (28.4) |
| Grandmother | 17 (19.3) | |
| Sibling | 13 (14.8) | |
| Father | 10 (11.4) | |
| Other | 23 (26.1) | |
| Reasons for not receiving palliative care | Ongoing curative treatment | 92 (29.2) |
| Lack of belief in benefit | 48 (15.2) | |
| Perception of giving up on life | 31 (9.8) | |
| No perceived need | 144 (45.8) |
| Variable | Category | No Knowledge n (%) | Yes, Sufficient Knowledge n (%) | Yes, But Insufficient Knowledge n (%) | Total n (%) | p Value |
|---|---|---|---|---|---|---|
| Gender | Male | 131 (47.1) | 77 (27.2) | 75 (25.7) | 283 (100) | 0.120 |
| Female | 146 (54.9) | 64 (24.1) | 56 (21.0) | 266 (100) | ||
| Age group | 18–45 years | 186 (55.2) | 75 (22.3) | 76 (22.5) | 337 (100) | 0.034 |
| 46–65 years | 68 (45.3) | 51 (34.0) | 31 (20.7) | 150 (100) | ||
| >65 years | 23 (38.3) | 15 (25.0) | 22 (36.7) | 60 (100) | ||
| Marital status | Married | 242 (51.1) | 124 (26.2) | 107 (22.6) | 473 (100) | 0.282 |
| Single | 34 (45.9) | 17 (23.0) | 23 (31.1) | 74 (100) | ||
| Education level | İlliterate | 12 (80.0) | 1 (6.7) | 2 (13.3) | 15 (100) | <0.001 |
| Primary school | 118 (78.1) | 15 (9.9) | 18 (11.9) | 151 (100) | ||
| Middle school | 32 (53.3) | 14 (23.3) | 14 (23.3) | 60 (100) | ||
| High school | 81 (46.8) | 31 (17.9) | 61 (35.3) | 173 (100) | ||
| University | 34 (22.7) | 80 (53.3) | 36 (24.0) | 150 (100) | ||
| Employment status | Unemployed | 132 (63.8) | 30 (14.5) | 45 (21.7) | 207 (100) | <0.001 |
| Self employed | 63 (57.8) | 16 (14.7) | 30 (27.5) | 109 (100) | ||
| Full time | 46 (28.0) | 75 (45.7) | 43 (26.2) | 164 (100) | ||
| Retired | 35 (51.5) | 20 (29.4) | 13 (19.1) | 68 (100) | ||
| Relationship with patient | Spouse | 118 (59.3) | 36 (18.1) | 45 (22.6) | 199 (100) | <0.001 |
| Child | 79 (36.6) | 82 (38.0) | 55 (25.5) | 216 (100) | ||
| Parent | 53 (61.6) | 11 (12.8) | 17 (19.8) | 81 (100) | ||
| Sibling | 27 (54.0) | 12 (24.0) | 11 (22.0) | 50 (100) | ||
| Primary cancer diagnosis | Breast | 79 (47.3) | 42 (25.1) | 46 (27.5) | 167 (100) | 0.248 |
| Lung | 58 (53.2) | 26 (23.9) | 25 (22.9) | 109 (100) | ||
| Colon | 42 (56.8) | 17 (23.0) | 15 (20.3) | 74 (100) | ||
| Other | 98 (56.3) | 56 (32.2) | 25 (11.5) | 179 (100) | ||
| Disease stage | Stage I | 62 (55.4) | 25 (22.3) | 25 (22.3) | 112 (100) | <0.001 |
| Stage II | 71 (59.2) | 27 (22.5) | 22 (18.3) | 120 (100) | ||
| Stage III | 71 (62.8) | 17 (15.0) | 25 (22.1) | 113 (100) | ||
| Stage IV | 72 (35.5) | 72 (35.5) | 59 (29.0) | 203 (100) |
| Variable | Category | No Knowledge n (%) | Yes, Sufficient Knowledge n (%) | Yes, But Insufficient Knowledge n (%) | Total n (%) | p Value |
|---|---|---|---|---|---|---|
| Source of information | Physician | 1 (1.2) | 57 (68.7) | 25 (30.1) | 83 (100) | 0.004 |
| Nurse | 0 (0.0) | 6 (75.0) | 2 (25.0) | 8 (100) | ||
| Family/Friends | 2 (1.7) | 43 (37.4) | 70 (60.9) | 115 (100) | ||
| Social media | 0 (0.0) | 19 (40.4) | 28 (59.6) | 47 (100) | ||
| Television/Radio | 0 (0.0) | 4 (50.0) | 4 (50.0) | 8 (100) | ||
| Received information or recommendation about palliative care | Yes | 1 (1.4) | 45 (64.3) | 24 (34.3) | 70 (100) | 0.006 |
| No | 19 (8.8) | 91 (42.3) | 105 (48.8) | 215 (100) | ||
| Having relatives who received palliative care | Yes | 4 (4.4) | 53 (58.9) | 33 (36.7) | 90 (100) | <0.001 |
| No | 261 (59.2) | 85 (19.3) | 95 (21.5) | 441 (100) | ||
| Relationship with person receiving palliative care | Grandfather | 1 (4.0) | 14 (56.0) | 10 (40.0) | 25 (100) | 0.160 |
| Grandmother | 0 (0.0) | 9 (52.9) | 8 (47.1) | 17 (100) | ||
| Sibling | 1 (7.7) | 8 (61.5) | 4 (30.8) | 13 (100) | ||
| Uncle | 0 (0.0) | 6 (75.0) | 2 (25.0) | 8 (100) | ||
| Aunt | 0 (0.0) | 0 (0.0) | 5 (100.0) | 5 (100) | ||
| Time since diagnosis | Ongoing treatment | 33 (35.9) | 27 (29.3) | 32 (34.8) | 92 (100) | <0.001 |
| Lack of belief in benefit | 18 (37.5) | 16 (33.3) | 14 (29.2) | 48 (100) | ||
| Perception of giving up on life | 4 (12.9) | 16 (51.6) | 11 (35.5) | 31 (100) | ||
| No perceived need | 116 (80.6) | 18 (12.5) | 10 (6.9) | 144 (100) | ||
| Time since diagnosis | ≤1 year | 135 (51.3) | 72 (27.4) | 56 (21.3) | 263 (100) | 0.485 |
| 1–5 years | 102 (47.9) | 53 (24.9) | 58 (27.2) | 213 (100) | ||
| ≥5 years | 39 (56.5) | 15 (21.7) | 15 (21.7) | 69 (100) |
| Variable | β | OR | 95% CI | p Value |
|---|---|---|---|---|
| Education level | 0.72 | 2.05 | 1.35–3.15 | <0.001 |
| Employment status | 0.58 | 1.79 | 1.23–2.61 | 0.003 |
| Age | 0.04 | 1.04 | 1.01–1.07 | 0.004 |
| Disease stage | 0.29 | 1.34 | 1.05–1.72 | 0.016 |
| Relationship with patient | 0.66 | 1.94 | 1.18–3.17 | 0.008 |
| Previous exposure to palliative care | 0.85 | 2.34 | 1.42–3.84 | <0.001 |
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Özkan, F.E.; Demir, H.; Urvay, S.; Culha, Y.; Ünlü, B.; Özaşkın, D.; Yıldız, S.; Yıldız, C.; Kuday Özkan, M. Palliative Care Awareness Among Caregivers of Cancer Patients in Turkey: A Cross-Sectional Study. Curr. Oncol. 2026, 33, 458. https://doi.org/10.3390/curroncol33080458
Özkan FE, Demir H, Urvay S, Culha Y, Ünlü B, Özaşkın D, Yıldız S, Yıldız C, Kuday Özkan M. Palliative Care Awareness Among Caregivers of Cancer Patients in Turkey: A Cross-Sectional Study. Current Oncology. 2026; 33(8):458. https://doi.org/10.3390/curroncol33080458
Chicago/Turabian StyleÖzkan, Fariz Emrah, Hacer Demir, Semiha Urvay, Yaşar Culha, Beyza Ünlü, Duygu Özaşkın, Sedat Yıldız, Canan Yıldız, and Merve Kuday Özkan. 2026. "Palliative Care Awareness Among Caregivers of Cancer Patients in Turkey: A Cross-Sectional Study" Current Oncology 33, no. 8: 458. https://doi.org/10.3390/curroncol33080458
APA StyleÖzkan, F. E., Demir, H., Urvay, S., Culha, Y., Ünlü, B., Özaşkın, D., Yıldız, S., Yıldız, C., & Kuday Özkan, M. (2026). Palliative Care Awareness Among Caregivers of Cancer Patients in Turkey: A Cross-Sectional Study. Current Oncology, 33(8), 458. https://doi.org/10.3390/curroncol33080458

