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Article

Visualizing the Invisible—The Needs and Wishes of Childhood Cancer Survivors for Digitally Mediated Emotional Peer Support

1
Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, 405 30 Gothenburg, Sweden
2
University of Gothenburg Centre for Person-Centred Care (GPCC), Sahlgrenska Academy, University of Gothenburg, 405 30 Gothenburg, Sweden
3
Department of Applied IT, University of Gothenburg, 417 56 Gothenburg, Sweden
4
Institute of Clinical Sciences, Department of Oncology, University of Gothenburg, 405 30 Gothenburg, Sweden
*
Author to whom correspondence should be addressed.
Curr. Oncol. 2022, 29(2), 1269-1278; https://doi.org/10.3390/curroncol29020108
Received: 7 December 2021 / Revised: 17 February 2022 / Accepted: 18 February 2022 / Published: 20 February 2022
(This article belongs to the Special Issue Cancer Survivorship Research, Practice and Policy)
This study aims to identify the needs and wishes of childhood cancer long-term survivors for digitally mediated emotional peer support. Survivors of childhood cancer (six men, seven women) aged 19–33, participated in semi-structured interviews (November–December 2020). Age of diagnosis ranged from 1 to 13 years. The interviews lasted between 45 and 85 min. A thematic analysis was used to identify three themes for needs: processing long-term complications of cancer treatment, processing psychosocial health and meeting others who share similar experiences; and another three themes reflecting wishes: digital tools for connecting with people who had had similar experiences, different modes of communication and a safe place with varying degrees of anonymity. The findings emphasized the needs and wishes of childhood cancer survivors to meet others who had had similar experiences using a digital tool that offered a secure place, with options for a variety of communication methods and levels of anonymity. Peer support can serve as an important complement to professional psychosocial support. View Full-Text
Keywords: adolescents and young adults; childhood cancer long-term survivors; digital support; emotional support; qualitative research adolescents and young adults; childhood cancer long-term survivors; digital support; emotional support; qualitative research
MDPI and ACS Style

Nilsson, S.; Segerstad, Y.H.a.; Olsson, M. Visualizing the Invisible—The Needs and Wishes of Childhood Cancer Survivors for Digitally Mediated Emotional Peer Support. Curr. Oncol. 2022, 29, 1269-1278. https://doi.org/10.3390/curroncol29020108

AMA Style

Nilsson S, Segerstad YHa, Olsson M. Visualizing the Invisible—The Needs and Wishes of Childhood Cancer Survivors for Digitally Mediated Emotional Peer Support. Current Oncology. 2022; 29(2):1269-1278. https://doi.org/10.3390/curroncol29020108

Chicago/Turabian Style

Nilsson, Stefan, Ylva H.a. Segerstad, and Maria Olsson. 2022. "Visualizing the Invisible—The Needs and Wishes of Childhood Cancer Survivors for Digitally Mediated Emotional Peer Support" Current Oncology 29, no. 2: 1269-1278. https://doi.org/10.3390/curroncol29020108

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