A Qualitative Exploration of the Needs of Community-Dwelling Patients Living with Moderate Dementia
Abstract
:1. Introduction
2. Materials and Methods
2.1. Research Design and Participants
2.2. Data Collection
- How are you feeling today?
- Would you like to share with me how you have been feeling recently?
- What life experiences would you like to share?
- Do you have any needs/wishes that you want me to know?
- Would you mind providing some examples to describe your needs or wishes?
- What are the most important things that you care about at this moment and why?
2.3. Data Analysis
2.4. Study Rigor
2.5. Ethical Considerations
3. Results
3.1. The Participants’ Information
3.2. The Needs of the Participants Living with Moderate Dementia
3.3. The Demand for Being Company and Cared
3.3.1. Need to Be Listened to
3.3.2. Need for Company
3.4. The Wish to Recall Familiar Images
3.4.1. Over-Increasing Severity of Forgetfulness and Confusion
3.4.2. Tendency to Deal with Anxiety and Frustration with Evasion
3.5. The Need of Reaffirming Life Purpose and Value through Reflection and Reminiscence
3.5.1. Increasing Difficulty in Recognizing Self-Worth
3.5.2. Fondness of Reminiscing about Past Significant Events
3.5.3. Reliance on Compliance with Moral and Social Norms to Build Self-Recognition
3.6. The Desire for Making Autonomous End-of-Life Decisions
3.6.1. Need for Religious Faith-Based Strength
3.6.2. Preparedness to Face Death on Their Own Wishes
4. Discussion
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
References
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Participant | Gender | Age | Education | CDR | MMSE | Religion | Notes |
---|---|---|---|---|---|---|---|
01 | Female | 79 | Illiterate | 2 | 17 | Christian | Diabetes after brain tumor operation; vascular dementia |
02 | Female | 80 | Illiterate | 2 | 16 | Taoist | Operation for prolapse of uterus; Alzheimer’s disease |
03 | Male | 87 | Middle school | 2 | 17 | Taoist | History of myocardial infarction; Alzheimer’s disease |
04 | Male | 78 | Primary school | 2 | 16 | Buddhist | Stroke; vascular dementia |
05 | Female | 71 | Illiterate | 2 | 17 | Christian | Hypertension; diabetes mellitus; mixed vascular dementia |
06 | Male | 86 | Primary school | 2 | 16 | Christian | Scoliosis corrective surgery; vascular dementia |
07 | Male | 68 | High school | 2 | 17 | Taoist | Degenerative arthritis; 2/3 gastrectomy; dementia with Lewy bodies |
Main Themes | Subthemes |
---|---|
1. The demand for being company and care | Need someone to listen |
Need for companionship | |
2. The wish to recall familiar images | Worry over increasing severity of forgetfulness and confusion |
Tendency to deal with anxiety and frustration with evasion | |
3. The need of reaffirming life purpose and value through reflection and reminiscence | Increasing difficulty in recognizing self-worth |
Fondness of reminiscing about past significant events | |
Reliance on compliance with moral and social norms to build self-recognition | |
4. The desire for making autonomous end-of-life decisions | Need for religious faith-based strength |
Preparedness to face death on their own wishes |
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Yeh, T.-P.; Chen, H.-C.; Ma, W.-F. A Qualitative Exploration of the Needs of Community-Dwelling Patients Living with Moderate Dementia. Int. J. Environ. Res. Public Health 2021, 18, 8901. https://doi.org/10.3390/ijerph18178901
Yeh T-P, Chen H-C, Ma W-F. A Qualitative Exploration of the Needs of Community-Dwelling Patients Living with Moderate Dementia. International Journal of Environmental Research and Public Health. 2021; 18(17):8901. https://doi.org/10.3390/ijerph18178901
Chicago/Turabian StyleYeh, Tzu-Pei, Hsing-Chia Chen, and Wei-Fen Ma. 2021. "A Qualitative Exploration of the Needs of Community-Dwelling Patients Living with Moderate Dementia" International Journal of Environmental Research and Public Health 18, no. 17: 8901. https://doi.org/10.3390/ijerph18178901