Justice in Dementia Care Resource Allocation: How Should We Plan for Dementia Services?
Abstract
1. Introduction
2. Materials and Methods
2.1. Participants
2.2. Materials
Definitions of General and High Level of Need for Dementia Care Services Based on the WHODAS 2.0-36-item
2.3. Data Analysis
2.3.1. Spatial Analysis
2.3.2. PWD and TLD Measurements: Indices of Accessibility of Services
3. Results
3.1. Characteristics of Service Users and Providers
3.2. Service Availability/Accessibility and Burden of Distance
4. Discussion
4.1. PWD & TLD vs. 2SFCA & E2SFCA
4.2. Policy Priorities When Setting up Dementia Services
5. Conclusions
Author Contributions
Funding
Acknowledgments
Conflicts of Interest
Appendix A
Variables | Cutoff Point | Sensitivity | Specificity | AUC | 95% Cl | p-Value | |
---|---|---|---|---|---|---|---|
Domain 1 | 77.50 | 0.657 | 0.584 | 0.659 | 0.649 | 0.668 | <0.001 * |
Domain 2 | 78.00 | 0.599 | 0.721 | 0.712 | 0.704 | 0.721 | <0.001 * |
Domain 3 | 55.00 | 0.546 | 0.714 | 0.659 | 0.649 | 0.668 | <0.001 * |
Domain 4 | 96.00 | 0.519 | 0.730 | 0.652 | 0.643 | 0.661 | <0.001 * |
Domain 5 | 95.00 | 0.754 | 0.477 | 0.623 | 0.614 | 0.632 | <0.001 * |
Domain 6 | 60.50 | 0.521 | 0.703 | 0.647 | 0.638 | 0.657 | <0.001 * |
Total | 66.50 | 0.669 | 0.630 | 0.704 | 0.695 | 0.713 | <0.001 * |
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Variables | Dementia Cases Living in the Community | Dementia Cases with General Demand a | Dementia Cases with High Level of Need b | p-Value ab | |
---|---|---|---|---|---|
n = 9704 | n = 6593 | n = 3111 | |||
n (%) | n (%) | n (%) | |||
Age (mean ± SD) | 78.22 ± 9.78 | 76.98 ± 9.93 | 82.10 ± 8.48 | <0.001 | |
21–30 | 5 (0.1) | 5 (0.1) | 0 | <0.001 | |
31–-40 | 30 (0.3) | 26 (0.4) | 4 (0.1) | ||
41–50 | 117 (1.2) | 102 (1.5) | 15 (0.5) | ||
51–60 | 403 (4.2) | 349 (5.3) | 54 (1.7) | ||
61–70 | 1181 (12.2) | 967 (14.7) | 214 (6.9) | ||
71–80 | 3432 (35.4) | 2553 (38.7) | 879 (28.3) | ||
81–90 | 3975 (41.0) | 2374 (36) | 1601 (51.5) | ||
91–100 | 553 (5.7) | 215 (3.3) | 338 (10.9) | ||
101–110 | 8 (0.1) | 2 (0.03) | 6 (0.2) | ||
Gender | Male | 3590 (37) | 2456 (37.3) | 1134 (36.5) | 0.446 |
Female | 6114 (63) | 4137 (62.7) | 1977 (63.5) | ||
Severity of Disability | Mild | 2729 (28.1) | 2526 (38.3) | 203 (6.5) | <0.001 |
Moderate | 3615 (37.3) | 2686 (40.7) | 929 (29.9) | ||
Severe | 734 (7.6) | 432 (6.6) | 302 (9.7) | ||
Extremely serious | 2626 (27.1) | 949 (14.4) | 2626(53.9) |
Score | Dementia Cases Living in the Community | Median | Dementia Cases with General Demand a | Median | Dementia Cases with High Level of Need b | Median | p-Value ab |
---|---|---|---|---|---|---|---|
n = 9704 | n = 6593 | n = 3111 | |||||
(mean ± SD) | (mean ± SD) | (mean ± SD) | |||||
Summary score | 65.74 ± 23.33 | 68.87 | 54.56 ± 19.60 | 56.52 | 89.43 ± 7.58 | 90.22 | <0.001 |
D1 Cognition | 72.13 ± 25.65 | 80.00 | 61.17 ± 23.89 | 60.00 | 95.35 ± 7.02 | 100 | <0.001 |
D2 Mobility | 60.61 ± 35.42 | 62.50 | 44.64 ± 31.62 | 43.75 | 94.45 ± 10.41 | 100 | <0.001 |
D3 Self-care | 57.70 ± 35.42 | 60.00 | 40.05 ± 29.16 | 40.00 | 95.11 ± 7.15 | 100 | <0.001 |
D4 Getting along | 70.47 ± 29.56 | 80.34 | 59.21 ± 28.86 | 58.33 | 94.35 ± 11.02 | 100 | <0.001 |
D5 Life activities | 83.06 ± 26.90 | 100.00 | 75.37 ± 29.45 | 90.00 | 99.37 ± 5.28 | 100 | <0.001 |
D6 Participation | 52.11 ± 25.74 | 50.0 | 43.33 ± 22.33 | 41.67 | 70.74 ± 22.36 | 75.00 | <0.001 |
City or County | Area | Providers a | Dementia Cases Living in the Community b | Dementia Cases with General Demand | Dementia Cases with High Level of Need | Ratio of Dementia Cases to Providers (b/a) |
---|---|---|---|---|---|---|
km2 | n (%) | |||||
Taipei City | 271.8 | 162 (9.1) | 1564 (16.1) | 996 (15.1) | 568 (18.3) | 9.65 |
New Taipei City | 2052.6 | 227 (12.7) | 1554 (16.0) | 1010 (15.3) | 544 (17.5) | 6.85 |
Keelung City | 132.8 | 38 (2.1) | 105 (1.1) | 81 (1.2) | 24 (0.8) | 2.76 |
Taoyuan City | 1221.0 | 102 (5.7) | 622 (6.4) | 409 (6.2) | 213 (6.9) | 6.10 |
Hsinchu County | 1427.5 | 48 (2.7) | 153 (1.6) | 84 (1.3) | 69 (2.2) | 3.19 |
Hsinchu City | 104.2 | 26 (1.5) | 90 (0.9) | 59 (0.9) | 31 (1.0) | 3.46 |
Miaoli County | 1820.3 | 41 (2.3) | 194 (2.0) | 122 (1.9) | 72 (2.3) | 4.73 |
Taichung City | 2214.9 | 149 (8.4) | 868 (8.9) | 563 (8.5) | 305 (9.8) | 5.83 |
Changhua County | 1074.4 | 90 (5.1) | 416 (4.3) | 292 (4.4) | 124 (4.0) | 4.62 |
Nantou County | 4106.4 | 42 (2.4) | 232 (2.4) | 178 (2.7) | 54 (1.7) | 5.52 |
Yunlin County | 1290.8 | 72 (4.0) | 388 (4.0) | 251 (3.8) | 137 (4.4) | 5.39 |
Chiayi County | 1903.6 | 54 (3.0) | 358 (3.7) | 261 (4.0) | 97 (3.1) | 6.63 |
Chiayi City | 60.0 | 40 (2.2) | 152 (1.6) | 103 (1.6) | 49 (1.6) | 3.80 |
Tainan City | 2191.7 | 169 (9.5) | 965 (9.9) | 719 (10.9) | 246 (7.9) | 5.71 |
Kaohsiung City | 2951.9 | 237 (13.3) | 1005 (10.4) | 737 (11.2) | 268 (8.6) | 4.24 |
Pingtung County | 2775.6 | 98 (5.5) | 394 (4.1) | 279 (4.2) | 115 (3.7) | 4.02 |
Yilan County | 2143.6 | 72 (4.0) | 263 (2.7) | 197 (3.0) | 66 (2.1) | 3.65 |
Hualien County | 4628.6 | 40 (2.2) | 181 (1.9) | 126 (1.9) | 55 (1.8) | 4.53 |
Taitung County | 3515.3 | 47 (2.6) | 123 (1.3) | 78 (1.2) | 45 (1.5) | 2.62 |
Penghu County | 126.9 | 13 (0.7) | 32 (0.3) | 20 (0.3) | 12 (0.4) | 2.46 |
Kinmen County | 151.7 | 9 (0.5) | 42 (0.4) | 27 (0.4) | 15 (0.5) | 4.67 |
Lienchiang County | 28.8 | 6 (0.3) | 3 (0.0) | 1 (0.0) | 2 (0.1) | 0.50 |
Total | 36,194.4 | 1782 (100) | 9704 (100) | 6593 (100) | 3111 (100) | 5.45 |
City or County | Providers a | Dementia Cases Living in the Community b | Dementia Cases with General Demand | Dementia Cases with High Level of Need for | |||
---|---|---|---|---|---|---|---|
n | PWD (m) | TLD (m) | PWD (m) | TLD (m) | PWD (m) | TLD (m) | |
Taipei City | 162 | 650 | 1200 | 350 | 1300 | - | 600 |
New Taipei City | 227 | 200 | 2200 | 200 | 1800 | - | 950 |
Keelung City | 38 | 300 | 1250 | - | - | - | 550 |
Taoyuan City | 102 | 200 | 3250 | 250 | 1850 | 150 | 2250 |
Hsinchu County | 48 | 200 | 1500 | 300 | 1200 | - | - |
Hsinchu City | 26 | 150 | - | - | 1200 | - | - |
Miaoli County | 41 | 150 | 2950 | 150 | 1000 | - | - |
Taichung City | 149 | 150 | 3000 | 150 | 3000 | 150 | 2150 |
Changhua County | 90 | 150 | 4750 | - | - | - | - |
Nantou County | 42 | 150 | 3650 | - | 4050 | - | - |
Yunlin County | 72 | - | 6250 | - | - | - | - |
Chiayi County | 54 | 300 | 1200 | 400 | 700 | - | - |
Chiayi City | 40 | 250 | - | 350 | - | 350 | - |
Tainan City | 169 | 350 | 1200 | 300 | 1450 | 450 | 4500 |
Kaohsiung City | 237 | 350 | 1600 | 300 | 1700 | 300 | 1600 |
Pingtung County | 98 | 150 | 3600 | 150 | 2950 | - | - |
Yilan County | 72 | 150 | 1200 | - | 1100 | - | - |
Hualien County | 40 | 600 | 1700 | 550 | 1650 | - | - |
Taitung County | 47 | - | 1300 | - | - | - | 900 |
Penghu County | 13 | - | - | - | - | - | - |
Kinmen County | 9 | - | - | - | - | - | - |
Lienchiang County | 6 | - | - | - | - | - | - |
The Status of PWD and TLD | All Dementia Cases | Dementia Cases with General Demand | Dementia Cases with High Level of Need | |||
---|---|---|---|---|---|---|
n | City or County | n | City or County | n | City or County | |
With both PWD and TLD | 15 | Taipei City | 11 | Taipei City | 4 | Taoyuan City |
New Taipei City | New Taipei City | Taichung City | ||||
Keelung City | Taoyuan City | Tainan City | ||||
Taoyuan City | Hsinchu County | Kaohsiung City | ||||
Hsinchu County | Miaoli County | |||||
Miaoli County | Taichung City | |||||
Taichung City | Chiayi County | |||||
Changhua County | Tainan City | |||||
Nantou County | Kaohsiung City | |||||
Chiayi County | Pingtung County | |||||
Tainan City | Hualien County | |||||
Kaohsiung City | ||||||
Pingtung County | ||||||
Yilan County | ||||||
Hualien County | ||||||
Only PWD | 2 | Hsinchu City | 1 | Chiayi City | 1 | Chiayi City |
Chiayi City | ||||||
Only TLD | 2 | Yunlin County | 3 | Hsinchu City | 4 | Taipei City |
Taitung County | Nantou County | New Taipei City | ||||
Yilan County | Keelung City | |||||
Taitung County | ||||||
Neither PWD nor TLD | 3 | Penghu County | 7 | Keelung City | 13 | Hsinchu County |
Kinmen County | Changhua County | Hsinchu City | ||||
Lienchiang County | Yunlin County | Miaoli County | ||||
Taitung County | Changhua County | |||||
Penghu County | Nantou County | |||||
Kinmen County | Yunlin County | |||||
Lienchiang County | Chiayi County | |||||
Pingtung County | ||||||
Yilan County | ||||||
Hualien County | ||||||
Penghu County | ||||||
Kinmen County | ||||||
Lienchiang County |
Year | 2005 | 2009 | 2009 | 2016 | 2015 | Present Study |
---|---|---|---|---|---|---|
Author(s) | Wang and Luo | McGrail and Humphreys | Luo and Qi | Kilinc et al. | Lin et al. | Yen & Lin |
Purpose | Assessing the accessibility of primary care in Illinois | Assessing the accessibility of primary care in rural areas in Victoria, Australia | Measuring the accessibility of primary care physicians | Assessing and measuring the accessibility and disparity in home care services | Developing new indices to compare nursing home care services in urban and rural areas | Using the PWD and TLD to examine the accessibility of dementia services and plan for resource allocation based on distributive justice |
Method | 2SFCA, factor analysis | 2SFCA, closest facility analysis (a tool of network analysis) | E2SFCA, spatial cluster analysis | Revised 2SFCA, spatial cluster analysis | Spatial autocorrelation, regression | Spatial autocorrelation, join point analysis |
Index used * | Moran’s I | PWD TLD | Revised PWD and TLD | |||
Index development & variables collected (level of complexity) | Spatial and non-spatial factors (e.g., individual’s age, gender, race, socioeconomic status and language skills) and characteristics of a population or area (e.g., land use, university graduation rate, ratio of single-parent families, state of unemployment, and ratio of occupational categories). Weighted factors are derived based on their eigenvalues and fuzzy logic. | Spatial (i.e., locations of service users and providers) and non-spatial factors (i.e., service availability, acuteness of service demand). The WHODAS 2.0 assessment results (as in the present study) or other measurements of health needs (target group). |
© 2019 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/).
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Yen, C.-F.; Lin, S.-W. Justice in Dementia Care Resource Allocation: How Should We Plan for Dementia Services? Int. J. Environ. Res. Public Health 2019, 16, 1754. https://doi.org/10.3390/ijerph16101754
Yen C-F, Lin S-W. Justice in Dementia Care Resource Allocation: How Should We Plan for Dementia Services? International Journal of Environmental Research and Public Health. 2019; 16(10):1754. https://doi.org/10.3390/ijerph16101754
Chicago/Turabian StyleYen, Chia-Feng, and Shyang-Woei Lin. 2019. "Justice in Dementia Care Resource Allocation: How Should We Plan for Dementia Services?" International Journal of Environmental Research and Public Health 16, no. 10: 1754. https://doi.org/10.3390/ijerph16101754
APA StyleYen, C.-F., & Lin, S.-W. (2019). Justice in Dementia Care Resource Allocation: How Should We Plan for Dementia Services? International Journal of Environmental Research and Public Health, 16(10), 1754. https://doi.org/10.3390/ijerph16101754