Search Results (120)

Background: Pediatric Crohn’s Disease (CD) affects more than physical health, influencing emotional well-being, social integration, and developmental milestones, with an impact on disease management. This study aimed to explore adolescents’ lived experiences with CD and identify factors influencing their motivation for self-management. Methods: A descriptive, cross-sectional qualitative study was conducted using a semi-structured, self-administered online questionnaire. Participants (n = 10) were adolescents with CD who had been diagnosed for over three years and were recruited from a tertiary pediatric gastroenterology center. Data included demographics, clinical characteristics, IMPACT-III (HRQOL), and PROMIS short forms. Open-ended responses underwent thematic analysis using the framework developed by Braun and Clarke. Results: Participants (80% female, median age 16.2 years, median disease duration 4.6 years) were all in clinical remission (median PCDAI = 2) and with good quality of life (median IMPACT-III = 80.7). Six themes emerged: (1) disease knowledge, (2) emotional responses, (3) coping and adaptation, (4) social support, (5) daily life and school impact, and (6) transition to adult care. Most participants demonstrated strong disease literacy and reported effective coping strategies. Emotional responses to diagnosis ranged from relief (60%) to distress (40%); relapses commonly triggered anxiety and fear. Therapeutic changes and disease monitoring were perceived as beneficial (100%) but with concern. Diagnostic procedures were viewed as burdensome by 70% of respondents. School performance and extracurricular participation were negatively affected in 40% during flares. Concerns regarding the future were reported by 40% of participants, with 30% believing that CD might limit life aspirations. While 60% managed their disease independently, 30% relied on parental support. All acknowledged the need for transition to adult care, though readiness varied. Conclusions: This study illustrates the overall impact of disease on pediatric CD patients. It reports significant emotional challenges and difficulties, as well as an impact on daily life, despite good disease knowledge. The findings underscore the importance of psychosocial well-being, ongoing mental health assessment, non-invasive monitoring, and holistic care, emphasizing the patient perspective, in managing pediatric CD. Full article

Background/Objectives: Men choosing active surveillance (AS) for low- and intermediate risk prostate cancer (PCa) must weigh its harms and benefits against those of active treatment (AT). To understand factors influencing treatment decision-making (TDM) for and adherence to AS, we performed a systematic review. Methods: This systematic review followed the PRISMA guidelines and was registered with PROSPERO (ID CRD42024490427). A comprehensive search strategy from 1990 to 2024 was executed across multiple databases, including Medline and Embase. Studies were included if they examined factors influencing TDM for AS or active monitoring (AM) and adherence to AS/AM. Results: Of the 8316 articles identified, 223 articles were eligible for inclusion. The decision for AS was influenced by different factors, including comprehensive information about treatment options, social support, and wanting to avoid side-effects. Key reasons to choose AT over AS included a lack of information from healthcare professionals about AS and fear of disease progression. Reasons for adhering to the AS protocol included better quality of life and social support. While non-adherence to the AS protocol is prompted by, e.g., biopsy burden and uncertainty, AS discontinuation is generally a results of medical reasons (namely disease upgrading) or from anxiety and family pressure. Conclusions: Numerous factors influence men’s treatment pathway choices. Involving family members in shared decision-making and ensuring that patients have detailed information about AS as a treatment option could help to improve AS uptake. Addressing psychosocial challenges through education and family involvement could improve AS adherence. These insights can help healthcare providers by addressing men’s needs during TDM and AS. Full article

Injury or fear of injury can cause stress for everyone. This is especially true for dancers, whose careers can be ruined by a serious injury. Stress or various psychological problems can play a role in the development of injury. Our research aims to explore the psychosocial patterns associated with injuries among Hungarian professional folk dancers. A cross-sectional study was carried out with 96 professional dancers (47.9% male, 52.1% female, mean age 29.9 years). Data was collected through an online questionnaire survey. Among psychological factors, perceived stress (using the Perceived Stress Scale), burnout (using the Athletic Burnout Questionnaire), coping skills (using the Athletic Coping Skills Inventory), relationship with the leader (using the Coaching Behaviour Questionnaire) and perceived social support (using the Multidimensional Scale of Perceived Social Support) were examined among injured and non-injured dancers. The two groups were compared along psychological subscales using Multivariate Analysis of Variance (MANOVA) followed by a post hoc ANOVA and Mann–Whitney test regarding social support. Our results showed a significant correlation between psychosocial factors and injuries sustained during the study period. Positive correlation was found between injuries and perceived stress (p < 0.001) and burnout (reduced sense of accomplishment p = 0.021; dance devaluation p < 0.001). Factors reflecting dancer’s behavior and coping skills also correlated with injuries, such as a decrease in coachability (p = 0.007), less concern (p = 0.029), and negative reactions to the leader’s behavior (p = 0.019). In addition, perceived social support from family also negatively correlates with injury (p = 0.019). Our findings suggest a multidirectional relationship between physical injuries and the mental state of dancers. Further investigation of the causal relationships is recommended, with the aim of using psychosocial support tools during the prevention and treatment of injuries by the professionals dealing with dance artists. It is also recommended to investigate whether individual psychological factors are directly related to injuries or interact with each other. It would also be useful to introduce prevention programs that help dancers manage their emotions related to injuries. Full article

Background/Objectives: The aim of this study was twofold: first, to assess the extent to which patients diagnosed with lung cancer accept their condition and, second, to characterize the profiles and dimensions of the hope experienced by these patients. Methods: In order to achieve the aforementioned goals, the following research tools were utilized: the NCN-36 scale to examine hope, the AIS to ascertain the acceptance of one’s condition, and the KI scale to present socio-demographic–temperamental variables. Results: The patients exhibited an average level of acceptance of their disease while simultaneously demonstrating a high level of hope. Cluster analysis identified four groups of patients that differed significantly in terms of disease acceptance and felt hope (p < 0.001). Significantly higher acceptance of the disease was found in urban patients (p = 0.038) and those with higher education (p = 0.011), while lower acceptance was noted in those aged over 75 (p = 0.006). In turn, the experienced hope was influenced by variables such as age, place of residence, education, housing situation (living alone or with family), overall pace of activity, basic mood, and social and professional status. Conclusions: The researchers identified four distinct attitudes among the patients based on their disease-related experiences. These attitudes were categorized as follows: non-accepting–fearful, indifferent–desperate, non-accepting–fighting, and accepting–trusting. Full article

YouTube is the most popular social media platform for children and adolescents, yet relatively little research has been conducted on adolescents’ use and their motivations for use. Prior research has predominantly focused on measuring the quantity of time spent on the platform, and less is known about the motivations and self-awareness of using YouTube as children turn into tweens and teens. Stemming from a larger survey study of adolescent social technology use, we interviewed a subset of 35 youths (50% female, 49% male, 1% non-binary) to qualitatively explore the benefits and challenges of YouTube use. Thematic analyses revealed the wide range of emotional responses and regulation that were attributed to YouTube use, including humor, fear, anger, insecurity, and anxiety. Some participants experienced wishful identification with YouTube influencers, and others viewed YouTube as entertainment or an escape from boredom. Sleep regulation was mixed, in that for some, YouTube was a distraction from getting enough sleep, and for others, it helped them fall asleep. Parental monitoring was a developmental challenge as the youths described their parents as lacking knowledge about the length of time they spend on the platform and/or the risky YouTube content that they watch, particularly as they got older. These exploratory findings may be pertinent for parents, educators, and clinicians. Full article

This essay explores how the concept of enfreakment can be used to analyze older adult characters in late 1970s US American theatre, focusing on D.L. Coburn’s The Gin Game and Tennessee Williams’s This is the Peaceable Kingdom. These tragicomedies reflect societal fears and stigmas surrounding aging, linking back to the historical context of freak shows. Enfreakment intersects with themes of otherness and ableism, highlighting the sensationalism associated with freak culture. The social construction of P.T. Barnum’s freak and older adults as non-hybrids (Haim Hazan) shares common ground. Using a comparative approach and close reading, this research reveals that the fictional nursing home setting limits freedom and produces both repulsion and compassion through its residents, showcasing invective as a protocol of enfreakment. Full article

Background/Objectives: In recent years, Brazil has experienced declining vaccination coverage, raising concerns about vaccine hesitancy and barriers to access. This research analyzes the reasons for non-vaccination among children born in 2017 and 2018 in a metropolitan area of the state of São Paulo in 2020 and 2021. Methods: Data were obtained from a retrospective cohort of children born in 2017 and 2018, living in Campinas, monitored during the first 24 months by vaccination records. A stratified and clustered sample by census sector was performed according to socioeconomic conditions. The reasons for non-vaccination were obtained from interviews with the children’s guardians. Results: A total of 1775 caregivers were interviewed, and 63.1% of children had complete vaccination coverage, with lower socioeconomic groups presenting the highest rates for non-vaccination. The study identified three main groups for non-vaccination: vaccine hesitancy (e.g., fear of side effects, misinformation) in 1.7% of respondents, access difficulties (e.g., service location, financial constraints) in 7.9%, and missed opportunities (e.g., lack of vaccines, administrative barriers) in 16.4%. Conclusions: The findings indicate that the main reported barriers to childhood vaccination are missed opportunities in healthcare services, often due to vaccine shortages or administrative issues, along with social vulnerabilities. Vaccine hesitancy stems from misinformation and fear of side effects. Despite these challenges, families persist in seeking vaccination. However, coverage remains below the national targets, particularly in the second year of life. Targeted public health interventions are urgently needed to improve vaccine confidence, accessibility, and healthcare system efficiency. Full article

Reducing enteric methane production from ruminant livestock has been positioned as a key intervention to reduce global greenhouse gas emissions. Bovaer©, a feed additive purported to reduce enteric methane emissions in dairy cows by nearly a third, has received regulatory authorization in many countries. However, there is a dearth of evidence on the consumer’s response to the use of such products. In the three weeks after 27 November 2024, there was a significant increase in media communications associated with the use of Bovaer© in Europe, and especially the United Kingdom (UK). This structured review of academic and gray literature and an iterative non-systematic survey of media discourse online explored and characterized the narratives that emerged in this three-week period of intense activity in both social media and mainstream media communications in order to critique the narratives and grammars within the public response and the implications for policymakers, industry and academia. The main narrative that emerged reflected the science-consumer tensions associated with the use of Bovaer© and the four sub-narratives shaping it (mainstream media influence and narrative framing, distrust in science and lack of relatability, conspiracy theories and fear-based narratives, consumer buycotts and market responses). Organizations adopting technological solutions to address ‘wicked’ societal problems need to understand the factors that trigger, amplify and attenuate social concern as expressed in mainstream and social media and need to adopt appropriate communication and dissemination activities to reduce the circulation of mis-dis-mal-information and promote information that is appropriate for multiple audiences and levels of understanding. Full article

Objectives: This study aimed to enhance the understanding of factors influencing changes in binge drinking (BD) behavior during the COVID-19 pandemic, with a particular focus on its impact on the health of individuals aged 12 to 25 years. Methods: A systematic review was conducted, encompassing studies published between January 2020 and September 2024. Articles were retrieved from PubMed, Web of Science, and Scopus, following PRISMA guidelines and the Joanna Briggs Institute (JBI) review protocols. Inclusion criteria targeted studies focusing on BD during the COVID-19 pandemic in adolescents or school-aged individuals without specific medical conditions. Exclusions included studies limited to a single gender, ethnicity, or profession, as well as doctoral theses and editorials. JBI tools were used to assess the quality of the selected studies. Results: From 33 studies (19 cross-sectional and 14 longitudinal), trends in BD during the pandemic varied: 2 studies reported an increase, while 21 indicated a decrease. Key factors linked to increased BD included pandemic stressors (e.g., isolation, social disconnection and non-compliance with restrictions), psychosocial issues (e.g., depression, anxiety, boredom, and low resilience), prior substance use, and sociodemographic variables (e.g., low education, economic extremes, living arrangements, and limited family support). Female gender and academic disengagement were also risk factors. Conversely, factors like stay-at-home orders, fear of contagion, family support, studying health sciences, and resilient coping strategies contributed to reduced BD. Other variables, such as pandemic stress and self-efficacy, had inconsistent effects. Conclusions: Factors contributing to increased BD included pandemic-related stress, mental health conditions, and unhealthy habits, while protective factors included stay-at-home orders, social support, and resilient coping. The study highlights the need for effective prevention and intervention strategies, emphasizing a holistic approach in healthcare, early detection, and tailored interventions, particularly for vulnerable groups such as adolescents. Full article

Aim: To understand the factors that influence family violence towards First Nations women, to inform practises and policies to support these women and improve their engagement in maternal child health services. Design: A qualitative study, using narrative inquiry integrated with the Indigenous philosophy ‘Dadirri’, and thematic analysis of the data. Materials and Methods: Survey of 10 Maternal Child Health nurses in 2019, and interviews of 35 Aboriginal mothers in 2021. Results: The nurses identified drugs, alcohol, socio-economic issues, the history of effects of colonisation on First Nations peoples, and stress as perceived factors influencing family violence, and acceptance, fear, cultural beliefs, and mistrust, for women’s low reporting of violence. Factors that influenced nurses’ ability to identify family violence were mistrust and understanding of Aboriginal culture. Low self-esteem, lack of belonging, and not being heard were identified by the mothers as factors that influence family violence. Fear of child protective services, shame, mistrust, and poor rapport with the nurses contributed to their low reporting of violence. The most significant factor for the mothers to disclose violence is fear of losing her child, mistrust, and the questioning process. Conclusions: Nurses’ understanding of Indigenous culture is critical to develop trust and improve the engagement of First Nations women. A significant difference in the synthesis of data between the nurses and their First Nations consumers was conspicuous. Research regarding the benefit of models and interventions that recognise the social determinants of health and well-being on health outcomes as well as the value of culturally strong health services aimed to encourage an earlier identification of risk, ideally from the antenatal period to the child’s fifth birthday, is imperative. The implications of this research are of international importance for First Nations families and challenge current nursing practises to address the human rights challenge of the inequity in health outcomes between First Nation and non-First Nation children, their exposure to family violence, and their over-representation in child protection services. Full article

Background/Objectives: Breast cancer-related lymphedema (BCRL) is a chronic disease with lasting effects, making it one of the most feared sequelae of breast cancer with significant personal and social impacts. Therapeutic exercises play a fundamental role in its treatment. This systematic review aims to provide the most up-to-date findings on the impact of physical exercise on the management of BCRL. Methods: Following the PRISMA statement guidelines, searches were conducted in the Web of Science, Scopus, and Science Direct databases. Results: Sixteen studies published between 2019 and 2024 were analyzed in detail. The combination of strength and aerobic exercises emerged as an effective strategy for both the treatment and prevention of lymphedema, also highlighting the innovative potential of virtual reality. Conclusions: It is essential to emphasize tailoring exercise programs to each patient individually. Additionally, the promising role of thermography as a non-invasive and safe tool for evaluating lymphedema progress is underscored. Full article

Autism spectrum disorder (ASD) is a neurodevelopmental disorder characterized by deficits in social interaction and communication. While many studies suggest that individuals with ASD struggle with emotion processing, the association between emotion processing and autistic traits in non-clinical populations is still unclear. We examine whether neurotypical adults’ facial emotion recognition and expression imitation are associated with autistic traits. We recruited 32 neurotypical adults; each received two computerized tasks, the Dynamic Emotion Recognition and Expression Imitation, and two standardized measures: the Chinese version AQ and the Twenty-Item Prosopagnosia Index (PI-20). Results for the dynamic emotion recognition showed that happiness has the highest mean accuracy, followed by surprise, sadness, anger, fear, and disgust. For expression imitation, it was easiest to imitate surprise and happiness, followed by disgust, while the accuracy of imitating sadness, anger, and fear was much lower. Importantly, individual AQ scores negatively correlated with emotion recognition accuracy and positively correlated with PI-20. The AQ imagination, communication sub-scores, and PI-20 positively correlated with the expression imitation of surprise. In summary, we found a significant link between recognizing emotional expressions and the level of autistic traits in non-clinical populations, supporting the concept of broader autism phenotype. Full article

Background: Canine behavior plays an important role in the success of the human–dog relationship and the dog’s overall welfare, making selection for behavior a vital part of any breeding program. While behaviors are complex traits determined by gene × environment interactions, genetic selection for desirable behavioral phenotypes remains possible. Methods: No genomic association studies of dog behavior to date have been reported on a commercial breeding (CB) cohort; therefore, we utilized dogs from these facilities (n = 615 dogs). Behavioral testing followed previously validated protocols, resulting in three phenotypes/variables [social fear (SF), non-social fear (NSF), and startle response (SR)]. Dogs were genotyped on the 710 K Affymetrix Axiom CanineHD SNP array. Results: Inbreeding coefficients indicated that dogs from CB facilities are statistically less inbred than dogs originating from other breeding sources. Heritability estimates for behavioral phenotypes ranged from 0.042 ± 0.045 to 0.354 ± 0.111. A genome-wide association analysis identified genetic loci associated with SF, NSF, and SR; genes near many of these loci have been previously associated with behavioral phenotypes in other populations of dogs. Finally, genetic risk scores demonstrated differences between dogs that were more or less fearful in response to test stimuli, suggesting that these behaviors could be subjected to genetic improvement. Conclusions: This study confirms several canine genetic behavioral loci identified in previous studies. It also demonstrates that inbreeding coefficients of dogs in CB facilities are typically lower than those in dogs originating from other breeding sources. SF and NSF were more heritable than SR. Risk allele and weighted risk scores suggest that fearful behaviors could be subjected to genetic improvement. Full article

Introduction: Collegiate mental health continues to be a worrisome public health concern among college students in the U.S. The unprecedented COVID-19 pandemic has caused an upward trend of mental health crises, especially among lesbian, gay, bisexual, and transgender (LGBTQ+) college students. The objective of this study was to assess the mental health statuses, attitudes towards disease control and mitigation measures, and coping strategies among this vulnerable group. Methods: A web-based survey was conducted at a medium-sized public university in the mid-Atlantic region during the summer and fall of 2021 when COVID-19 was still a major public health concern. The survey was distributed through the listservs of the college and was advertised through campus-wide social media. Descriptive and inferential statistics including a t-test for the differences in group means and a logit regression model for comparing the groups were used. Results: Our final sample is composed of 611 students with 79% of the respondents identifying as straight, and 20% in the LGBTQ+ group. Our results showed that LGBTQ+ students exhibited higher levels of anxiety and fear compared to the non-LGBTQ+ groups. Also, a large proportion of LGBTQ+ students were negatively impacted by the pandemic as compared to the non-LGBTQ+ groups (p = 0.05), while they generally have more positive views on the public health measures to alleviate the adverse impacts from COVID-19 (p = 0.001). Conclusions: Public health emergency management should adopt appropriate strategies and adapt their services to support the mental health needs of LGBTQ+ students. Our study highlighted the need to design tailored health promotion programs and enhance support systems for LGBTQ+ college students during similar emergencies. Full article

This article will use syndemic theory to identify and analyze overlapping health and social conditions, focusing specifically on how gender-based violence is systemically interconnected with contemporary public health issues. The overdose death crisis that continues to afflict Canadian populations is not an isolated health issue. Across Canada, it is intertwined with mental health, HIV/AIDS, COVID-19 and structural violence—the chronic and systemic disadvantages affecting those living in poverty and oppressive circumstances. Opioid use is an often-avoidant coping strategy for many experiencing the effects of trauma, relentless fear, pain, ill health and social exclusion. In particular, Indigenous and non-Indigenous women’s experiences with opioid addiction are entangled with encounters with gender based-violence, poverty and chronic ailments within structurally imposed processes and stressors shaped by a history of colonialism, ruptured lifeways and Western ways of knowing and doing, leading to disproportionate harms and occurrences of illness. While biomedical models of comorbidity and mortality approach substance misuse, gender-based violence and major infectious diseases such as HIV/AIDS and COVID-19 as distinct yet compounding realities, this article argues that these conditions are synergistically interrelated via the critical/reflexive lens of syndemic frameworks. Through secondary research using academic, media and policy sources from the past decade in Canada, complemented by prior ethnographic research, the synergistic connections among opioid addiction, gender-based violence and the effects of the COVID pandemic on diverse women will be shown to be driven by socio-structural determinants of health including poverty, intergenerational trauma, the legacy of colonialism and Western optics. Together, they embody a contemporary Canadian syndemic necessitating coordinated responses. Full article