Experiences of Diabetes Self-Management: A Focus Group Study among the Middle-Aged Population of Rural Pakistan with Type 2 Diabetes
Abstract
:1. Introduction
2. Methods
2.1. Study Design
2.2. Setting and Sample Size
2.3. Ethical Consideration
2.4. Data Collection and Procedure
2.5. Data Analysis
2.6. The Study’s Reliability
- (1)
- True value: In order to enhance the true value of the analysis, the writers of this article examined data jointly, followed by the distribution of the article to six participants to review the article.
- (2)
- Scope of Application: Confidentiality was assured for ideas voiced during the group sessions discussions by the participants to explore their experiences in a safe and trustworthy environment, resulting in extensive descriptions.
- (3)
- Consistency: The researcher (the first author) led each group session and engaged personally in data collecting to avoid discrepancies in data collection procedures and the biases were avoided.
- (4)
- Confirmability: The researcher checked and rechecked the data throughout the study to ensure the confirmability of the outcome of the data analysis.
3. Results
Participant Characteristics
“I am rather active at my workplace.” However, if my physical power deteriorates significantly and I experience excessive exhaustion, I feel that my blood glucose level is gone up…”(Participant 14)
“I have a new sensation, one of ‘fatigue,’ which may be related to my low blood glucose level… After being diagnosed with type 2 diabetes, I am compelled to monitor any physical changes that occur to me.”(Participant 15)
“I am living in terror of what may be impacted next. At the moment, I’m experiencing some nerve difficulties, which is really concerning…”(Participant 6)
“I’ve noticed that I’m unable to see clearly but I used to see well, it also signals that I am suffering with some problem and may be my sugar level is elevated…”(Participant 5)
“I have blurred vision and experience dizziness on occasion… When I am unable to see clearly, my heart rate increases. Occasionally, my sugar level drops so low that I am unable to see well.”(Participant 2)
“I have no idea when diabetes happened, I was feeling well, eating well but suddenly started feeling thirsty and hungry…”(Patient 10)
“The most challenging part is to cope with the conditions due to changes in our daily routines particularly after the diagnosis of the disease—that is the time we need more support to understand the impact of the disease and our health condition.”(Patient 1)
“I worked extremely hard for my career and was looking forward to enjoying delicious meals. I imagined that I might now have delicious meals daily and a great life. However, since being diagnosed with diabetes, I am unable to enjoy them at all.”(Participant 5)
“I understand that there is no problem in consuming delectable cuisine; it simply means that we must exercise control over how we eat nutritious food…”(Participant 8)
“We can still enjoy delectable healthful foods, but adherence to a balanced diet is important in order to maintain blood sugar…”(Participant 7)
“It is always difficult to cook the diabetic friendly food in a joint family set up. The food choices are very much dictated by the males living in the joint family.”(Participant 9)
“It is critical to engage in physical exercise on a regular basis, as this uses glucose and is critical for blood glucose control.”(Participant 9)
“I make it a point to workout at least three days a week. Every time, I chose to stroll for 30–40 min…”(Participant 8)
“It is physically difficult for someone in their sixties to run or jump. The only form of exercise available to us is strolling… After meals, I’ll take a half-hour stroll…”(Participant 15)
“I know that eating cookies and cakes will increase my sugar level. However, I always eat cakes knowing that it brings high spikes to my blood sugar, I am emotionally influenced to continue doing it…”(Participant 7)
“It is courteous to decline invitations in social gatherings with friends. If I abstain from something or eat less during social gatherings, my friends become unhappy… However, when I lose self-control, I experience guilt…”(Participant 12)
“I am aware that I must exercise… However, I am powerless to perform it. I am aware that no one wishes to suffer from chronic hyperglycemia, and that everyone wishes to maintain control of their physical health and illness status…”(Participant 10)
“When I wake up in the morning, I ponder what should I eat and how much I consume… I need to get some workout. I am unable to take my medication till I have consumed food. I’m concerned that if I don’t eat anything, my blood glucose will drop to low level.... reduced activity may also result in poor glycemic control…”(Participant 12)
“Whatever I do, I must keep my diabetes in mind. I must monitor and manage my diabetes on a daily basis… to come to terms with the fact that my diabetes disease is for the rest of my life. It’s quite challenging and stressful…”(Participant 14)
4. Discussion
4.1. Public Health Perspective
4.2. Clinical Perspective
5. Strength and Limitations
6. Relevance to Clinical Practice
7. Conclusions
Author Contributions
Funding
Acknowledgments
Conflicts of Interest
Appendix A
- 1.
- State your name, how long you’ve had diabetes for and why you decided to participate in the focus group.
- -
- What was going on in your life when you found out you had diabetes? (Describe your overall experience living with and managing diabetes over the past year)
- -
- Diet and nutrition
- -
- Physical activity
- -
- Taking medication
- -
- Managing stress
- -
- Care received
- 2.
- Overall, how well do you feel and think you are able to manage your diabetes?
- 3.
- What were your difficulties with having diabetes over the past year?
- -
- Diet: social gatherings, watching what you eat
- -
- Personal life
- -
- Treatment
- -
- Fears/anxieties about having diabetes over the past year
- 4.
- What kinds of resources have been most helpful to you in managing your diabetes?
- -
- How do your family/friends help you?
- -
- Family physician
- -
- Books/Magazine/Media
- 5.
- Describe your experience during your visits to the Diabetes Clinic/Center.
- -
- Experience with the professionals and clerical staff
- -
- Experience with the programs (one-on-one visits included)
- 6.
- How were your difficulties addressed during your visits to the Center?
- -
- How were your fears/anxieties addressed during visits to the Center?
- -
- Draw on prior answers for difficulties and fears
- 7.
- How would you like to see improvement in Diabetes Center services?
- -
- Staff
- -
- Resources
- -
- Why didn’t you come back to the Center?
- -
- What would keep you going back to the Center?
- 8.
- Overall, describe your experiences accessing healthcare in regards to your diabetes
- -
- Physician
- -
- Hospital
- -
- Specialists
- 9.
- Summarize the general themes of the focus group/ interview and ask:
- -
- Is this a good representation of what was said?
- -
- Does anyone else have anything to add?
- -
- Does it spark any ideas for anyone of you?
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Demographic | Men (n = 10) | Women (n = 10) | Total (n = 20) |
---|---|---|---|
Age (average, in years) | 58 | 52 | 55 |
Marital Status | |||
Single/never married | 4 | 2 | 6 |
Married | 5 | 8 | 13 |
Separated/divorced | 1 | 0 | 1 |
Widowed | 0 | 0 | 0 |
Education | |||
Less than grade 9 | 2 | 1 | 3 |
Some/completed high school | 2 | 2 | 4 |
Some/completed college or university | 6 | 4 | 10 |
Graduate/professional degree | 2 | 1 | 3 |
Employment | |||
Full/part-time, self-employed | 8 | 7 | 15 |
Unemployed | 1 | 3 | 4 |
Retired | 1 | 0 | 1 |
Diabetes Duration (Mean years) | 12 | 10 | - |
HbA1c level (Mean %) | 8.2 | 8.5 | - |
Main Themes | Sub-Themes |
---|---|
Diabetes as a challenging disease |
|
Understanding diabetes and its challenges |
|
Following diabetes self-management practices |
|
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Ansari, R.M.; Harris, M.F.; Hosseinzadeh, H.; Zwar, N. Experiences of Diabetes Self-Management: A Focus Group Study among the Middle-Aged Population of Rural Pakistan with Type 2 Diabetes. Diabetology 2022, 3, 17-29. https://doi.org/10.3390/diabetology3010002
Ansari RM, Harris MF, Hosseinzadeh H, Zwar N. Experiences of Diabetes Self-Management: A Focus Group Study among the Middle-Aged Population of Rural Pakistan with Type 2 Diabetes. Diabetology. 2022; 3(1):17-29. https://doi.org/10.3390/diabetology3010002
Chicago/Turabian StyleAnsari, Rashid M., Mark F. Harris, Hassan Hosseinzadeh, and Nicholas Zwar. 2022. "Experiences of Diabetes Self-Management: A Focus Group Study among the Middle-Aged Population of Rural Pakistan with Type 2 Diabetes" Diabetology 3, no. 1: 17-29. https://doi.org/10.3390/diabetology3010002
APA StyleAnsari, R. M., Harris, M. F., Hosseinzadeh, H., & Zwar, N. (2022). Experiences of Diabetes Self-Management: A Focus Group Study among the Middle-Aged Population of Rural Pakistan with Type 2 Diabetes. Diabetology, 3(1), 17-29. https://doi.org/10.3390/diabetology3010002