Next Article in Journal
Efficacy and Safety of Dor Fundoplication in Patients with Severe Gastroparesis and Refractory Gastroesophageal Reflux Disease
Next Article in Special Issue
Apparent Disparities in Hospital Admission and Biologic Use in the Management of Inflammatory Bowel Disease between 2014–2018 in Some Black and Ethnic Minority (BEM) Populations in England
Previous Article in Journal
Nonceliac Gluten Sensitivity—A Masquerading IBS or a Real Phenomenon?
Previous Article in Special Issue
The Role of Vitamin D in the Pathogenesis of Inflammatory Bowel Disease
Open AccessArticle

Quality of Life and Eligibility for Specific Financial Assistance for Medical Expenses: A Cross-Sectional Web-Based Survey among Patients with Inflammatory Bowel Disease in Japan

1
Field of Health Informatics and Business Administration, Graduate School, Niigata University of Health and Welfare, Niigata 950-3198, Japan
2
Center for Clinical Epidemiology and Health Technology Assessment, St. Luke’s International University, Tokyo 104-0045, Japan
3
Department of Occupational Therapy, Niigata University of Health and Welfare, Niigata 950-3198, Japan
*
Author to whom correspondence should be addressed.
Gastrointest. Disord. 2020, 2(2), 123-133; https://doi.org/10.3390/gidisord2020012
Received: 23 March 2020 / Revised: 30 April 2020 / Accepted: 1 May 2020 / Published: 3 May 2020
Specific financial assistance for people with rare and intractable diseases is part of Japan’s public health system. This survey aimed to clarify the relationship between eligibility for this specific financial assistance and quality of life (QOL) among individuals with inflammatory bowel disease (IBD) in Japan. A nationwide, web-based survey was conducted in Japan among 300 people with IBD. Questionnaire items covered socioeconomic characteristics and QOL, assessed with the five-dimension, five-level EuroQol (EQ-5D-5L). The percentage of respondents who were ineligible for specific financial assistance was 11.0% among those with Crohn’s disease (CD) and 34.0% among those with ulcerative colitis (UC). For those with CD, the median EQ-5D-5L utility weight did not differ significantly between the non-assistance and assistance groups (p = 0.2222). For those with UC, the median EQ-5D-5L utility weight was significantly higher in the non-assistance group than in the assistance group (p = 0.0034). The present study demonstrated that the revision of the law on intractable and rare diseases has not had a negative influence on the QOL of patients with IBD in Japan. Based on our findings, further research on patient-reported outcomes among individuals with IBD may be necessary to inform health policy makers. View Full-Text
Keywords: inflammatory bowel disease; specific financial assistance; quality of life; utility; web-based survey inflammatory bowel disease; specific financial assistance; quality of life; utility; web-based survey
Show Figures

Figure 1

MDPI and ACS Style

Thi Thanh Tran, H.; Saito, S.; Noto, S.; Suzuki, K. Quality of Life and Eligibility for Specific Financial Assistance for Medical Expenses: A Cross-Sectional Web-Based Survey among Patients with Inflammatory Bowel Disease in Japan. Gastrointest. Disord. 2020, 2, 123-133.

Show more citation formats Show less citations formats

Article Access Map by Country/Region

1
Back to TopTop