Feasibility & Acceptability of Patient and Family Directed Active Music Making during Pediatric Bone Marrow Transplant Process
Abstract
:1. Introduction
2. Method
2.1. Setting and Participants
2.2. Materials
2.3. Analysis
3. Results
4. Discussion
5. Conclusions
Supplementary Materials
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
References
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Age | Gender | Ethnicity | Diagnosis | Length of Stay | Parent/Family Participants |
---|---|---|---|---|---|
8 | F | White | Leukemia | 37 days | Mom and two younger siblings (ages 6 and 4) |
12 | M | White | Neuroblastoma | 46 days | Mom and Dad |
9 | M | Black | Leukemia | 39 days | Mom and Grandmother |
11 | F | White | Hurler syndrome | 33 days | Mom and brother (age 9) |
13 | F | White | Leukemia | 29 days | Dad and sister (age 10) |
7 | M | Hispanic | Rhabdomyosarcoma | 41 days | Dad |
9 | M | White | Leukemia | 27 days | Mom |
10 | F | Black | Leukemia | 31 days | Mom, Dad and brother (age 4) |
12 | F | White | Lymphoma | 38 days | Mom, Dad, Grandmother, and Grandfather |
8 | F | Hispanic | Leukemia | 34 days | Mom and sister (age 11) |
Patient Age | Family Involved Active Music Making | Reasons for Engaging in Active Music Making |
---|---|---|
8 | Mom and two siblings | Enjoyment, relaxation, manage stress and anxiety, to soothe patient, and help patient sleep |
12 | Mom and Dad | Distraction, improve mood, manage discomfort and nausea, and relaxation |
9 | Mom and Grandmother | Curiosity about the instruments, enjoyment, foster relaxation, means distraction, and manage discomfort |
11 | Mom and brother | Provide distraction, foster relaxation, and means of enjoyment, way to engage with one another |
13 | Dad and sister | Engaging with each other, foster relaxation, and to help the patient sleep |
7 | Dad | Manage boredom, improve mood, relaxation, and manage discomfort and nausea |
9 | Mom | Manage stress and anxiety, distraction from boredom, manage pain and discomfort |
10 | Mom, Dad and brother | Enjoyment, manage anxiety, foster relaxation, and manage boredom |
12 | Mom, Dad, Grandmother, and Grandfather | Engaging with each other, enjoyment, foster relaxation, manage anxiety, and distract from discomfort |
8 | Mom and sister | Provide distraction, manage discomfort and nausea, and foster relaxation |
Subthemes | Patients and Families Reported |
---|---|
Decision to use music | Making music was one decision they felt they could make for ourselves in the treatment process |
Independently able to make a choice to use music | |
Able to choose to use music whenever wanted or needed | |
Manage symptoms | Discovered music could be used to address symptoms rather than to only have to rely on medication |
Use of music to manage many different symptoms | |
Music addressed different symptoms for each family member simultaneously | |
Different ways to engage with music | Various instruments and tools provided many different ways to engage with music |
Possible for some family members to play music while others listened | |
Continued to learn new and different ways to make music from MT |
Sub Themes | Patients and Families Reported |
---|---|
Accessible | Instruments and play along tracks were accessible 24 h a day |
MT-BC provided information and instruction to make music accessible | |
Learning different ways to use the instruments and music increased capacity to use it | |
Discovering ability to make music | Overcoming doubt and judgement about one’s musical ability |
Learning different ways to play the instruments helped them feecomfortable and more confident with actively making music | |
Using play along tracks on the GetWell NetworkTM provided structure needed to actively engage in making music | |
A way to cope | Music engagement adapted to address different needs of patientand family simultaneouls |
Helped manage different challenges in the BMT process (isolation, boredome, stress, anxiety, and symptoms) | |
A collaborative means of coping as a family unit |
Sub Themes | Patients and Families Reported |
---|---|
Ability to act | Access to the instruments and other music resources |
at all times affoded them the ability to use the music | |
When treatment felt unmanageable or overwhelming active engage with the music was still possible | |
Integrated active music making into other aspects of treatment that were especially challenging | |
Sense of agency | Making music was often the only area of treatment that provided choice |
Change and adapt the music to what they needed it to be | |
Discovered capacity to utilize music as a resource to cope | |
Exert control | Ablility to choose to make music afforded feeling a sense of control |
Music was integrated with medication to enhance symptom management or used in lieu of medication | |
When things felt too difficult to manage making music provided a means of managinig what felt out of control |
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Heiderscheit, A. Feasibility & Acceptability of Patient and Family Directed Active Music Making during Pediatric Bone Marrow Transplant Process. Eur. J. Investig. Health Psychol. Educ. 2022, 12, 1867-1877. https://doi.org/10.3390/ejihpe12120131
Heiderscheit A. Feasibility & Acceptability of Patient and Family Directed Active Music Making during Pediatric Bone Marrow Transplant Process. European Journal of Investigation in Health, Psychology and Education. 2022; 12(12):1867-1877. https://doi.org/10.3390/ejihpe12120131
Chicago/Turabian StyleHeiderscheit, Annie. 2022. "Feasibility & Acceptability of Patient and Family Directed Active Music Making during Pediatric Bone Marrow Transplant Process" European Journal of Investigation in Health, Psychology and Education 12, no. 12: 1867-1877. https://doi.org/10.3390/ejihpe12120131