Are Mid to Late Adolescents with Asthma Ready for Transition of Care? A Qualitative Study
Abstract
1. Introduction
2. Materials and Methods
2.1. Study Design and Study Sample
2.2. Study Procedure and Data Collection
2.3. Data Analysis
3. Results
3.1. Sample Characteristics
3.2. Living with Asthma
[I]t was very hard, probably, for me to manage…because it was a lot of responsibility… just to always have to leave the house and remember to grab my inhaler, all that.(female, 17 year-old, White)
It’s kind of scary because you never know what’s like gonna happen. Because I could easily have an asthma attack or you know have to be hospitalized because my asthma is acting up.(female, 19 year-old, Black)
I kind of grow different from kids who didn’t have asthma. You know it’s like, having it just puts you in a different place than someone who doesn’t have it.(female, 19 year-old, Black)
3.3. Becoming Adults with Asthma
[I]t seems that my asthma gets progressively worse.(female, 19 year-old, White)
Living alone and if I can’t reach my asthma pump in time. That’s what worries me.(male, 17 year-old, unknown race)
[S]ome of the stuff that I wanna do, I have to be very careful doing it, because certain stuff is like hard for asthma attacks.(female, 17 year-old, Black)
If you want to be like an active worker like a cop, a firefighter, a personal trainer or a runner or like an athlete you will know that you can’t really do that because you have asthma.(male, 16 year-old, Black)
3.4. Asthma Self-Management
I mostly know most of the things that trigger my asthma, and I just kind of…most of the time I wait to see how long my symptoms persist for and I kind of act accordingly.(female, 16 year-old, Black)
I know how to control like…not getting to the point where need to grab my inhaler. I know my restrictions.(female, 20 year-old, Black)
I don’t use it [inhaler] as much now, because I know how to control it. When I’m running or when I’m wheezing, I’ll stop and take deep breaths and I’ll sit down for a couple seconds until I feel better.(female, 17 year-old, Black)
I’m confident but I’m not fully confident because I have a tendency to go off… Because I’ll say one minute ‘okay I’ll take my medicine at this time’ and then I’ll completely forget or I’ll-I’ll just push it off to the side. So I’ll say a 7 or 8 [out of 10] because I’m not quite yet confident but I’m also not lacking too much confidence.(female, 16 year-old, Black)
I feel confident…because like the way it is like whenever I don’t take it [medicine] like before I leave out the door, my mom will be like you should take your medicine and that’s when I’ll take it.(male, 16 year-old, Black)
3.5. Parental Involvement in Asthma Management
I would kind of prefer that she waited until I said I was running low because I tell her in advance about things of me… But with asthma she just comes to me, instead of letting me come to her about it.(female, 16 year-old, Black)
I still want her [mom] to like, like if I do move out, I still want her to come, like, check on me or call me… and just to see if I’m awake or make sure I’m alive(male, 17 year-old, Black)
[I]f it [inhaler] wasn’t just there I probably wouldn’t use it because I wouldn’t have it…if I didn’t have my inhaler which I wouldn’t have had it…if it wasn’t for her [mom], I would been in much worse situation(male, 18 year-old, White)
I think she’s [mom] scared to let me go by myself cause she know I’m not gonna take my medicine.(female, 17 year-old, Black)
3.6. Communication with Providers
I would feel more comfortable when the parent not in the room… there’s some things you’d rather share just with your doctor, not with your parent.(male, 19 year-old, White)
[P]arents like to put their opinion into everything. And a lot of their opinions don’t even be right”.(female, 17 year-old, Black)
[T]hey’ll [providers] talk to my parents about me while I’m sitting right there.(female, 20, Biracial)
I felt like what I said wasn’t well received. Or they didn’t fully digest what I said. And that was my first one-on-one. And that’s why it kind of bothered me.(male, 19 year-old, White)
4. Discussion
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
References
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Questions | |
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Overall experience and perspectives |
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Transition readiness and needs |
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N | % | |
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Age (years) | ||
16–17 | 20 | 48.8 |
18–20 | 21 | 51.2 |
Gender | ||
Male | 17 | 41.5 |
Female | 24 | 58.5 |
Race | ||
White | 16 | 39.0 |
Black, bi/multi-racial, Hispanic | 23 | 56.1 |
Missing | 2 | 4.9 |
Health insurance | ||
Private | 16 | 39.0 |
Public | 20 | 48.8 |
Missing | 5 | 12.2 |
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Rhee, H.; Batek, L.; Wallace-Farquharson, T.; Tumiel-Berhalter, L. Are Mid to Late Adolescents with Asthma Ready for Transition of Care? A Qualitative Study. Children 2022, 9, 1573. https://doi.org/10.3390/children9101573
Rhee H, Batek L, Wallace-Farquharson T, Tumiel-Berhalter L. Are Mid to Late Adolescents with Asthma Ready for Transition of Care? A Qualitative Study. Children. 2022; 9(10):1573. https://doi.org/10.3390/children9101573
Chicago/Turabian StyleRhee, Hyekyun, Lindsay Batek, Tanya Wallace-Farquharson, and Laurene Tumiel-Berhalter. 2022. "Are Mid to Late Adolescents with Asthma Ready for Transition of Care? A Qualitative Study" Children 9, no. 10: 1573. https://doi.org/10.3390/children9101573
APA StyleRhee, H., Batek, L., Wallace-Farquharson, T., & Tumiel-Berhalter, L. (2022). Are Mid to Late Adolescents with Asthma Ready for Transition of Care? A Qualitative Study. Children, 9(10), 1573. https://doi.org/10.3390/children9101573