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Article

Psychometric Performance of HRQoL Measures: An Australian Paediatric Multi-Instrument Comparison Study Protocol (P-MIC)

1
Health Services, Murdoch Children’s Research Institute, Melbourne 3052, Australia
2
Centre for Health Economics Research and Evaluation, University of Technology Sydney, Ultimo 2007, Australia
3
Centre for Health Policy, Health Economics Unit, The University of Melbourne, Melbourne 3053, Australia
4
Health Services Research Unit, Royal Children’s Hospital, Melbourne 3052, Australia
5
Department of Paediatrics, The University of Melbourne, Melbourne 3010, Australia
*
Author to whom correspondence should be addressed.
Membership of the “Quality Of Life in Kids: Key Evidence to Strengthen Decisions in Australia (QUOKKA) Project Team” is provided in the Acknowledgements.
Academic Editor: Wendy J. Ungar
Children 2021, 8(8), 714; https://doi.org/10.3390/children8080714
Received: 23 July 2021 / Revised: 16 August 2021 / Accepted: 17 August 2021 / Published: 20 August 2021
(This article belongs to the Special Issue Assessing Value in Child Health)
Background: There is a lack of psychometric evidence about pediatric health-related quality of life (HRQoL) instruments. Evidence on cost effectiveness, involving the measurement of HRQoL, is used in many countries to make decisions about pharmaceuticals, technologies, and health services for children. Additionally, valid instruments are required to facilitate accurate outcome measurement and clinical decision making. A pediatric multi instrument comparison (P-MIC) study is planned to compare the psychometric performance and measurement characteristics of pediatric HRQoL instruments. Methods: The planned P-MIC study will collect data on approximately 6100 Australian children and adolescents aged 2–18 years via The Royal Children’s Hospital Melbourne and online survey panels. Participants will complete an initial survey, involving the concurrent collection of a range of pediatric HRQoL instruments, followed by a shorter survey 2–8 weeks later, involving the collection of a subset of instruments from the initial survey. Children aged ≥7 years will be asked to self-report HRQoL. Psychometric performance will be assessed at the instrument, domain, and item level. Conclusions: This paper describes the methodology of the planned P-MIC study, including benefits, limitations, and likely challenges. Evidence from this study will guide the choice of HRQoL measures used in clinical trials, economic evaluation, and other applications. View Full-Text
Keywords: pediatrics; quality of life; cost-benefit analysis; psychometrics; chronic disease; mental health; patient reported outcome measures pediatrics; quality of life; cost-benefit analysis; psychometrics; chronic disease; mental health; patient reported outcome measures
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MDPI and ACS Style

Jones, R.; Mulhern, B.; McGregor, K.; Yip, S.; O'Loughlin, R.; Devlin, N.; Hiscock, H.; Dalziel, K.; on behalf of the Quality Of Life in Kids: Key Evidence to Strengthen Decisions in Australia Project Team. Psychometric Performance of HRQoL Measures: An Australian Paediatric Multi-Instrument Comparison Study Protocol (P-MIC). Children 2021, 8, 714. https://doi.org/10.3390/children8080714

AMA Style

Jones R, Mulhern B, McGregor K, Yip S, O'Loughlin R, Devlin N, Hiscock H, Dalziel K, on behalf of the Quality Of Life in Kids: Key Evidence to Strengthen Decisions in Australia Project Team. Psychometric Performance of HRQoL Measures: An Australian Paediatric Multi-Instrument Comparison Study Protocol (P-MIC). Children. 2021; 8(8):714. https://doi.org/10.3390/children8080714

Chicago/Turabian Style

Jones, Renee, Brendan Mulhern, Kristy McGregor, Shilana Yip, Rachel O'Loughlin, Nancy Devlin, Harriet Hiscock, Kim Dalziel, and on behalf of the Quality Of Life in Kids: Key Evidence to Strengthen Decisions in Australia Project Team. 2021. "Psychometric Performance of HRQoL Measures: An Australian Paediatric Multi-Instrument Comparison Study Protocol (P-MIC)" Children 8, no. 8: 714. https://doi.org/10.3390/children8080714

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