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Adolescent and Parent Experiences of Acceptance and Commitment Therapy for Pediatric Chronic Pain: An Interpretative Phenomenological Analysis

1
Department of Clinical Neuroscience (CNS), K8, Psychology, Karolinska Institutet, 171 77 Stockholm, Sweden
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Functional Area Medical Psychology, Karolinska University Hospital, 171 76 Stockholm, Sweden
3
Centre for Pain Research, University of Bath, Bath, BA2 7AY, UK
4
Department of Psychology, University of Bath, Bath, BA2 7AY, UK
*
Author to whom correspondence should be addressed.
Children 2019, 6(9), 101; https://doi.org/10.3390/children6090101
Received: 1 August 2019 / Revised: 31 August 2019 / Accepted: 5 September 2019 / Published: 7 September 2019
Pediatric chronic pain is common and can be related to reduced functioning in many domains for the young person and their parents. Existing psychological treatments such as Acceptance and Commitment Therapy (ACT) have shown to be effective, but improvements are needed. Qualitative approaches can help improve our understanding of treatment processes and outcomes. The aim of the present qualitative interview study was to explore the lived experiences of young people and parents who had participated in ACT for pediatric chronic pain. Four young persons and four parents were interviewed, and data was analyzed using Interpretative Phenomenological Analysis (IPA). Three themes were generated, each comprising two subthemes: (1) ‘Warning system’, which included experiences from being offered this psychological intervention, and the alternative explanations provided for pain; (2) ‘Change and challenges’, which suggested the importance of the values-based work, and of individual adaptation; and (3) ’A common language’ in which the interaction with others and new ways to communicate around the pain experience were described. Findings highlight the importance of pain education, formulating and acting in line with personal values, and communication around the pain experience, as well as the need for developmental and individual adaptations of interventions. View Full-Text
Keywords: pediatric chronic pain; Acceptance and Commitment Therapy (ACT); Interpretative Phenomenological Analysis (IPA); lived experience; values; children; adolescents; parents; experiences of treatment pediatric chronic pain; Acceptance and Commitment Therapy (ACT); Interpretative Phenomenological Analysis (IPA); lived experience; values; children; adolescents; parents; experiences of treatment
MDPI and ACS Style

Kanstrup, M.; Jordan, A.; Kemani, M.K. Adolescent and Parent Experiences of Acceptance and Commitment Therapy for Pediatric Chronic Pain: An Interpretative Phenomenological Analysis. Children 2019, 6, 101.

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