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Children 2018, 5(7), 85; https://doi.org/10.3390/children5070085

Supporting Parent Caregivers of Children with Life-Limiting Illness

Steve Hicks School of Social Work, University of Texas at Austin, 1925 San Jacinto Blvd., D3500, Austin, TX 78712, USA
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Received: 6 June 2018 / Accepted: 20 June 2018 / Published: 26 June 2018
(This article belongs to the Special Issue Pediatric Palliative Care)
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PDF [256 KB, uploaded 26 June 2018]

Abstract

The well-being of parents is essential to the well-being of children with life-limiting illness. Parents are vulnerable to a range of negative financial, physical, and psychosocial issues due to caregiving tasks and other stressors related to the illness of their child. Pediatric palliative care practitioners provide good care to children by supporting their parents in decision-making and difficult conversations, by managing pain and other symptoms in the ill child, and by addressing parent and family needs for care coordination, respite, bereavement, and social and emotional support. No matter the design or setting of a pediatric palliative care team, practitioners can seek to provide for parent needs by referral or intervention by the care team. View Full-Text
Keywords: palliative care; special needs; parent; respite; life-limiting illness; caregiver; pediatric; psychosocial; stress; medically complex palliative care; special needs; parent; respite; life-limiting illness; caregiver; pediatric; psychosocial; stress; medically complex
This is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited (CC BY 4.0).
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Koch, K.D.; Jones, B.L. Supporting Parent Caregivers of Children with Life-Limiting Illness. Children 2018, 5, 85.

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