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Children 2018, 5(12), 161; https://doi.org/10.3390/children5120161

Parenting in the Context of Children’s Chronic Pain: Balancing Care and Burden

1
Connecticut Children’s Medical Center, Hartford, CT 06106, USA
2
Department of Pediatrics, University of Connecticut School of Medicine, Farmington, CT 06030, USA
3
Department of Human Development and Family Studies, The University of Connecticut, Storrs, CT 06269, USA
4
Division of Behavioral Medicine and Clinical Psychology, Cincinnati Children’s Hospital Medical Center, Cincinnati, OH 45229, USA
5
Department of Pediatrics, University of Cincinnati College of Medicine, Cincinnati, OH 45267, USA
6
Division of Social Services, Cincinnati Children’s Hospital and Medical Center, Cincinnati, OH 45229, USA
*
Author to whom correspondence should be addressed.
Received: 1 November 2018 / Revised: 21 November 2018 / Accepted: 23 November 2018 / Published: 27 November 2018
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PDF [241 KB, uploaded 27 November 2018]

Abstract

Parents of youth with chronic health conditions encounter numerous challenges in supporting their children across pediatric treatment contexts. Structural barriers to care, such as access issues and coordinating care across school, health, and family settings, can exacerbate challenges to daily functioning. Parents are often concomitantly managing their child’s chronic condition, their own health care needs, work and family demands. For these parents, accomplishing a manageable “work-life balance” feels elusive, if not impossible, when a chronic health condition is part of family life. Based on a recent symposium presentation, combined perspectives from the disciplines of pediatric psychology, parenting, and human development and family studies consider key challenges and opportunities to assist parent coping with stress associated with caregiving amidst pervasive changes in healthcare service delivery. Two innovative interventions to support parents in both an outpatient (“Parents as Coping Coaches”) and an inpatient (“Putting Parents FIRST”) context are described, with commonalities and unique aspects highlighted for each. These programs are considered in reference to a rapidly changing healthcare landscape, growing focus on the family as a core context for care, and importance of parent/caregiver self-care and crucial role in supporting children’s long-term health and resiliency. View Full-Text
Keywords: children; parents; family; chronic pain; barriers to care; resiliency; human development; intervention children; parents; family; chronic pain; barriers to care; resiliency; human development; intervention
This is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited (CC BY 4.0).
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Guite, J.W.; Russell, B.S.; Homan, K.J.; Tepe, R.M.; Williams, S.E. Parenting in the Context of Children’s Chronic Pain: Balancing Care and Burden. Children 2018, 5, 161.

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