Partnering with Young Parents to Improve Early Hearing Detection and Intervention Programmes
Abstract
:1. Introduction
- Understanding: What do adolescent parents in high-strain families know about hearing in infants under the age of two?
- Sources of Knowledge: What sources of information have shaped their understanding?
- Teaching Tool Development: What does a teaching tool need to contain to effectively communicate the importance of early hearing to families experiencing high strain?
2. Materials and Methods
2.1. Design
2.2. Positionality
2.3. Setting
2.4. Study Timeline
2.5. Participant Eligibility Criteria
2.5.1. Inclusion Criteria
- Being a first-time parent of an infant who is under 2 years of age;
- Being hapū (pregnant) with their first infant.
2.5.2. Exclusion Criteria
- They were unable to provide consent (due to their own diminished understanding or comprehension);
- They had children older than 2 years of age;
- They did not attend FG2 (in reference to participating in FG3).
2.6. Participants
2.7. Data Collection
2.8. Data Analysis
2.9. Reciprocation
3. Results
3.1. Understanding
3.2. Sources of Knowledge
3.2.1. Interactions with the Health Sector
I reckon kids interact more when you interact with them. Doing whatever it may be… (Erin, FG1)
…like what are we supposed to eat during pregnancy? [said in a defensive manner] (Abby, FG1)
So, I ate BK [fast food] chickens, and drank Coca-Cola...most of the time. (Abby, FG1)
I drunk coffee... (Clara, FG1)
Yeah same, I ate seafood, I ate everything. (Brooke, FG1)
Same, I didn’t care. Well, it’s not that I didn’t care, my body was just… (Clara, FG1)
Wanting it, aye? (Erin, FG1)
Yeah. (Clara, FG1)
I ate everything you weren’t allowed. “Just stay away from raw sea food” or whatever, I still ate it. (Erin, FG1)
…I didn’t tell anyone. Only one person. (Clara, FG1)
So not seeing a midwife was part of keeping it a secret? (Researcher, FG1)
[head nod showing agreement] And my sister actually, two people. (Clara, FG1)
Was your sister younger or older? (Researcher, FG1)
She’s older. (Clara, FG1)
She didn’t encourage you to have a scan or anything? Do the check-ups? (Researcher, FG1)
No. She’s only like a year older than me. (Clara, FG1)
‘Cause in the olden days, they didn’t know all of that [information about diet restrictions], and their babies still came out fine. (Brooke, FG1)
Honest, just look at all of us! Nothing wrong with us! [said in an assertive manner] (Clara, FG1)
Sometimes what they say doesn’t really affect you. [said following reports of eating seafood and feeling good afterwards] (Erin, FG1)
3.2.2. Communication with Infants
Music is a good tool for like happiness with babies I reckon. Cause you play an Old McDonalds song, and you just see the baby’s head just nodding, nodding, and you’re like what!? [said with an expression of awe] (Erin)
…He likes mimicking people and their voice, and he likes to sing songs, like, he doesn’t sing it proper but…you know… (Brooke, FG1)
Can you tell the tune? (Researcher, FG1)
Yeah. (Brooke, FG1)
I got told that I am not allowed to be angry around them. (Brooke, FG1)
You just like go out, even if you just go out for a couple minutes and have a breather or something. (Abby, FG1)
They’re like sponges, aye [regarding infants’ behaviour being noticeably different when their parents are fighting compared to when their parents are happy]. (Abby, FG1)
Yeah, they’re like sponges. They absorb what they see and feel. (Erin, FG1)
3.2.3. Sources of Knowledge
My aunty and uncle had this fat-as [big] argument, and my cousins were probably like five or six [years of age]. And them just sitting there in shock. I can tell…when their parents are happy, they’re always happy and excited and wanting to be around them, but as soon as their parents are like having a go at each other, they would just, “aye, oh what’s going on, I don’t want to be by them”…make them more stand-off….So if you feel like shit, don’t be around your kids. (Erin, FG1)
…I got told by my aunty…when she had my older cousin… she used to have like post-partum depression or whatever and she used to get like real mad, and when she was mad, she wouldn’t face him. She’d turn her back to him, so that he couldn’t feel her emotions. (Brooke, FG1)
Like when baby had colic, and she was crying for too long, I’d just like, if I was getting frustrated it wouldn’t help her, it would just make her cry even more. Like, I wasn’t like frustrated like where other people could tell. But I don’t know, it was like she could feel my inside emotions. And so, I just put her down and went into the bathroom for a little bit. Had a breather and then went back out. And then she’d settle down. (Abby, FG1)
Do you think you just figured out by seeing her reactions? That that was a good thing to do? (Researcher, FG1)
Yep. (Abby, FG1)
Or did you see someone else do it… (Researcher, FG1)
Na, I just seen her reactions. (Abby, FG1)
…Your family member giving you a growling… My mum used to say it [tinnitus] was my Nan [who had passed away], and she was... growling. (Abby, FG1)
3.3. Teaching Tool Development
- Effectiveness of teaching tools;
- Group learning helpful for all, despite there being individual learning needs;
- “Busy” [families experiencing high strain];
- Te Ao Māori (the Māori world).
3.3.1. Effectiveness of Teaching Tools
Filling them up with words…And why do we want to do that lots within the 0–2 period? (Researcher, FG3)
Because they have a big, what is it called, oh, because you are trying to mould their things, their connections! (Darla, FG3)
What is the property of slime, and play dough, that links to the concepts we were talking about last week? (Researcher, FG3)
It’s mouldable. (Darla, FG3)
Yes, that’s right. Can you remember any other terms? (Researcher)
Neuroplasticity! (Darla, FG3)
Yeah, excellent, well done. And when is the highest time of neuroplasticity for an infant? (Researcher, FG3)
When they are little… was it [up to] three [years old]?... or was it two? (Darla, FG3)
Like if she starts babbling, I’ll start talking back to her (Freya, FG3)
…The car seat one…so I was like “what sound does it make?” and then I go “click”. (Clara, FG3)
I just sung those things to her, that you gave, those cards. [song cards, see Supplementary Material S2] (Abby, FG3)
I think straight after the talk I tried to talk more to Daniel. (Darla, FG3)
Cool. (Researcher, FG3)
But that was the only time I’ve tried. (Darla, FG3)
Haha, did you not try again after that? (Abby, FG3)
Well, just like actually trying, but otherwise it’s just been normal, like what I normally do. (Darla, FG3)
Wait sorry, what? A hand? (Darla, FG3)
Yea, a handful of language, as a little cue. It’s a tip on how to interact with talking with your infant. (Researcher, FG3)
Oh, the um Deaf one? Oh no, wait. Oh, um the spider one? (Clara, FG3)
No. Oh, Pungawerewere? That was just… (Researcher, FG3)
Ok, what are we actually talking about? (Clara, FG3)
We talked about a helpful…tip about how to speak to your infants is to use four statements for every one question. (Researcher, FG3)
Aye? Na, I don’t remember that one. (Clara, FG3)
Neither, sorry. (Darla, FG3)
We had the little harakeke balls when we were talking about it last time. (Researcher, FG3)
Oh, I was playing with that [harakeke ball]. And looking at it. Weren’t we just talking about tapu? (Abby, FG3)
Do you remember what any of those [executive functions] were? (Researcher)
No. (Darla, FG3)
Laughter (all participants, FG3)
[with further prompting, Freya had volunteered “self-control”]
Can you think of any other higher level thinking things we talked about last time? (Researcher, FG3)
Silence (all, FG3)
Did we talk about that last time? (Clara, FG3)
Oh, well, I liked them both. I liked like the scientific research kind of stuff behind this. But I liked the traditional one because, I don’t know, just probably because I’m a Māori. (Abby, FG2)
The part out of the story that really opened my eyes [made me stop and think/gave me understanding/reminder/realisation] was…that Māui heard his brothers’ names while he was in the womb. So… I knew like while I was pregnant, cause my midwives always told me “talk to your baby because they will recognise your voice…” but I didn’t really think much of it, ‘cause I thought, “oh, they won’t really remember it”. (Darla, FG2)
3.3.2. Group Learning Helpful for All
…Because you are trying to mould their things, their connections! (Participant A, FG3)
[Why might we] want to fill them up with lots of language? (Researcher, FG3)
Why? So, they can understand what you are talking about. [pause] How much do I have to give? (Participant B, FG3)
[It had been Participant B’s turn to practice “a handful of language”. She had given four statements and was now thinking of a question.]
I don’t know. (Participant B, FG3)
“Do you like this?” (Participant A, FG3)
Oh, “do you like this?” (Participant B, FG3)
Yeah, yep. (Researcher, FG3)
Oh, or I’ll just ask him what the colour was. (Participant B, FG3)
Yep, you could do that. [said hesitantly] (Researcher, FG3)
To see if he would know. (Participant B, FG3)
Um, oh, [exasperation] how do you explain this!? (Darla, FG3)
Colourful. (Abby, FG3)
Metallic. (Clara, FG3)
…Yeah, metallic colour… (Darla, FG3)
…So, they were really, I reckon kids are, just pick off by what they see. (Erin, FG1)
They’re like sponges, aye? (Abby, FG1)
Yea, they’re like sponges. They absorb what they see and feel. (Erin, FG1)
3.3.3. “Busy” [Families Experiencing High Strain]
[Darla had described her infant opening a book and flipping the pages] That is what Ameilia does! But I’m guessing she wants me to read her a book when she does that. That’s why I go “oh not yet” or “mummy read you one tonight” because I’m usually busy like cleaning or something when she goes up to the books... (Abby, FG2)
So maybe like involving her with your cleaning can be another thing… (Researcher, FG2)
Oh no! Involving her with my cleaning just makes it messier. (Abby, FG2)
It does. It’s hard work. (Researcher, FG2)
It doesn’t even bloody help! [disgruntled, tired, overwhelmed, at her limit] (Abby, FG2)
So, Miss Rachel [a kids’ TV programme], she makes them like repeat after her, and stuff like that…and she sings songs… (Abby, FG3)
She’s like “can you say mama”… (Clara, FG3)
…Then she starts making a song out of it. It is stuff that…you would want to do with your kid, but you don’t want to. (Abby, FG3)
Laughter (all, FG3)
So why wouldn’t you want to? (Researcher, FG3)
Na, you do want to, but say you were busy…then they go and watch that instead. (Abby, FG3)
3.3.4. Te Ao Māori
[Harakeke balls were handed out. It was explained that karakia had been performed prior to harvesting this harakeke]… She [researcher’s sister] got her Māori partner [to harvest the harakeke], ‘cause she was hapu [pregnant], so it’s too, it’s, I forget the word… (Researcher, FG2)
Tapu [sacred]. (Clara, FG2)
Yep…and you are not allowed to karanga onto the marae either when you are pregnant…(Abby, FG2)
…I didn’t know any of that! [happy and excited tone, following a peer participant’s explanation of tikanga] (Darla, FG2)
See, I don’t even know any of these things! (Darla, FG2)
Don’t you! And you went to kohanga. (Abby, FG2)
‘Cause I went to kohanga, but then after kohanga I went to a kinda white school, and they didn’t really, like I didn’t know any of that. (Darla, FG2)
Why?… (Darla, FG2)
Because it is tapu!... (Carla, FG2)
Oh, action songs. I don’t do that [head, shoulders knees and toes. Abby’s expression shows distain for this English action song]. I do Pipi Mā and Tākaro Tribe [action songs from TV shows that are in Te Reo Māori], ‘cause that’s what she likes. (Abby, FG2)
[Abby had explained that she had not completed a real karanga but had practiced a karanga in a group at a Te Reo Māori class.]
Mine [karanga] was at intermediate. (Clara, FG2)
Really? You did the karanga? (Researcher, FG2)
Yep [said confidently and in a proud manner] …the one that goes [Clara then sang the first line of the karanga]. (Clara, FG2)
4. Discussion
4.1. Implications for Practice
- Group learning activities should be integrated into EHDI programs;
- Teaching sessions should be frequent but short and tailored to the developmental stage of the infant;
- Where possible, interactions should take place in locations identified as safe spaces. Potential safe spaces include libraries, Plunket rooms, primary care settings, community centres, and marae (Māori community meetings spaces, with a high cultural value);
- Culturally appropriate teaching should be prioritised. This requires early investment in rapport building and understanding the caregiver’s cultural context, which may be shaped by ethnicity, family traditions, or chosen adult identities;
- A co-design approach to the EHDI journey will enable the main caregivers and families to express, in their own words, what motivates them to support their infant’s early language development.
4.2. Limitations and Future Research
5. Conclusions
Supplementary Materials
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
Abbreviations
ABR | Auditory Brainstem Response |
AP | Adolescent Parent |
EF | Executive Function |
EHDI | Early Hearing Detection and Intervention |
FG | Focus Group |
LTFU | Loss to Follow-Up |
NZ | New Zealand |
TPU | Teen Parent Unit |
References
- Busse, A.M.L.; Mackey, A.R.; Hoeve, H.L.J.; Goedegebure, A.; Carr, G.; Uhlen, I.M.; Simonsz, H.J.; Fdn, E. Assessment of hearing screening programmes across 47 countries or regions I: Provision of newborn hearing screening. Int. J. Audiol. 2021, 60, 821–830. [Google Scholar] [CrossRef] [PubMed]
- Yoshinaga-Itano, C.; Sedey, A.L.; Coulter, D.K.; Mehl, A.L. Language of early- and later-identified children with hearing loss. Pediatrics 1998, 102, 1161–1171. [Google Scholar] [CrossRef] [PubMed]
- Kolb, B.; Gibb, R. Brain plasticity and behaviour in the developing brain. J. Can. Acad. Child Adolesc. Psychiatry 2011, 20, 265–276. [Google Scholar]
- Ching, T.Y.C.; Dillon, H. Major findings of the LOCHI study on children at 3 years of age and implications for audiological management. Int. J. Audiol. 2013, 52, S65–S68. [Google Scholar] [CrossRef] [PubMed]
- Wallander, J.L.; Berry, S.; Carr, P.A.; Peterson, E.R.; Waldie, K.E.; Marks, E.; D’Souza, S.; Morton, S.M.B. Patterns of risk exposure in first 1000 days of life and health, behavior, and education-related problems at age 4.5: Evidence from Growing Up in New Zealand, a longitudinal cohort study. BMC Pediatr. 2021, 21, 285. [Google Scholar] [CrossRef]
- Morton, S.M.B.; Napier, C.; Morar, M.; Waldie, K.; Peterson, E.; Atatoa Carr, P.; Meissel, K.; Paine, S.-J.; Grant, C.C.; Bullen, P.; et al. Mind the gap—Unequal from the start: Evidence from the early years of the Growing Up in New Zealand longitudinal study. J. R. Soc. N. Z. 2022, 52, 216–236. [Google Scholar] [CrossRef]
- Nicholson, N.; Rhoades, E.A.; Glade, R.E. Analysis of Health Disparities in the Screening and Diagnosis of Hearing Loss: Early Hearing Detection and Intervention Hearing Screening Follow-Up Survey. Am. J. Audiol. 2022, 31, 764–788. [Google Scholar] [CrossRef]
- Findlen, U.M.; Gerth, H.; Zemba, A.; Schuller, N.; Guerra, G.; Vaughan, C.; Brimmer, M.; Benedict, J. Examining Barriers to Early Hearing Diagnosis. Am. J. Audiol. 2024, 33, 369–378. [Google Scholar] [CrossRef] [PubMed]
- Cunningham, M.; Thomson, V.; McKiever, E.; Dickinson, L.M.; Furniss, A.; Allison, M.A. Infant, Maternal, and Hospital Factors’ Role in Loss to Follow-Up After Failed Newborn Hearing Screening. Acad. Pediatr. 2018, 18, 188–195. [Google Scholar] [CrossRef]
- Zeitlin, W.; McInerney, M.; Aveni, K.; Scheperle, R.; Chontow, K. Better late than never? Maternal biopsychosocial predictors of late follow-up from new Jersey’s early hearing detection and intervention program. Int. J. Pediatr. Otorhinolaryngol. 2021, 145, 110708. [Google Scholar] [CrossRef]
- Ministry of Health. Universal Newborn Hearing and Early Intervention Programme: Monitoring Report January to December 2020; Ministry of Health: Wellington, New Zealand, 2023.
- Nicholson, N.; Rhoades, E.A.; Glade, R.E.; Smith-Olinde, L. Impact of Social Determinants of Health on Early Hearing Detection and Intervention Screening/Diagnosis Outcomes. Am. J. Audiol. 2022, 7, 16–34. [Google Scholar]
- SmithBattle, L.; Bekaert, S.; Phengnum, W.; Schneider, J. Untangling risky discourse with evidence: A scoping review of outcomes for teen mothers’ offspring. Child. Youth Serv. Rev. 2024, 161, 107609. [Google Scholar] [CrossRef]
- Rowlands, A.; Juergensen, E.C.; Prescivalli, A.P.; Salvante, K.G.; Nepomnaschy, P.A. Social and Biological Transgenerational Underpinnings of Adolescent Pregnancy. Int. J. Environ. Res. Public Health 2021, 18, 12152. [Google Scholar] [CrossRef] [PubMed]
- Berlin, L.J.; Brady-Smith, C.; Brooks-Gunn, J. Links between childbearing age and observed maternal behaviors with 14-month-olds in the Early Head Start Research and Evaluation Project. Infant Ment. Health J. 2002, 23, 104–129. [Google Scholar] [CrossRef]
- Towson, J.; Canty, M.; Schwartz, J.; Barden, S.; Sims, T. Adolescent mothers’ implementation of strategies to enhance their children’s early language and emergent literacy skills. Commun. Disord. Q. 2020, 41, 231–241. [Google Scholar] [CrossRef]
- Yoshinaga-Itano, C. Principles and Guidelines for Early Intervention After Confirmation That a Child Is Deaf or Hard of Hearing. J. Deaf Stud. Deaf Edu. 2014, 19, 143–175. [Google Scholar] [CrossRef] [PubMed]
- Sultana, N.; Brock, A.S.; Purdy, S.C. Caregiver response types and children language outcomes in preschoolers with and without hearing loss in Aotearoa New Zealand. J. R. Soc. N. Z. 2024, 55, 574–595. [Google Scholar] [CrossRef]
- Reilly, S.; Wake, M.; Ukoumunne, O.C.; Bavin, E.; Prior, M.; Cini, E.; Conway, L.; Eadie, P.; Bretherton, L. Predicting Language Outcomes at 4 Years of Age: Findings From Early Language in Victoria Study. Pediatrics 2010, 126, E1530–E1537. [Google Scholar] [CrossRef]
- Cupples, L.; Ching, T.Y.; Crowe, K.; Seeto, M.; Leigh, G.; Street, L.; Day, J.; Marnane, V.; Thomson, J. Outcomes of 3-year-old children with hearing loss and different types of additional disabilities. J. Deaf Stud. Deaf Educ. 2014, 19, 20–39. [Google Scholar] [CrossRef]
- Hoff, E. The specificity of environmental influence: Socioeconomic status affects early vocabulary development via maternal speech. Child Dev. 2003, 74, 1368–1378. [Google Scholar] [CrossRef] [PubMed]
- Lanzi, R.G.; Bert, S.C.; Jacobs, B.K.; Centers for the Prevention of Child Neglect. Depression among a sample of first-time adolescent and adult mothers. J. Child Adolesc. Psychiatr. Nurs. 2009, 22, 194–202. [Google Scholar] [CrossRef] [PubMed]
- Oxford, M.; Spieker, S. Preschool language development among children of adolescent mothers. J. Appl. Dev. Psychol. 2006, 27, 165–182. [Google Scholar] [CrossRef] [PubMed]
- Abarca, D.L.; Towson, J.; López Castillo, H. Breaking Cyclic Intergenerational Literacy Deficits: Describing Linguistic Interactions Between Adolescent Mothers and Their Young Children. Commun. Disord. Q. 2024, 45, 107–115. [Google Scholar] [CrossRef]
- Garcia Coll, C.T.; Hoffman, J.; Van Houten, L.J.; Oh, W. The social context of teenage childbearing: Effects on the infant’s care-giving environment. J. Youth Adolesc. 1987, 16, 345–360. [Google Scholar] [CrossRef]
- Ware, F.; Breheny, M.; Forster, M. The politics of government ‘support’ in Aotearoa/New Zealand: Reinforcing and reproducing the poor citizenship of young Māori parents. Crit. Soc. Policy 2016, 37, 499–519. [Google Scholar] [CrossRef]
- Ware, F.; Breheny, M.; Forster, M. Mana mātua: Being young Māori parents. MAI J. 2018, 7, 18–30. [Google Scholar] [CrossRef]
- Ware, F. “It’s Hard Being a Young Parent, It’s Even Harder Being a Young Māori Parent”: Young Māori Parents’ Experiences of Raising A Family. Ph.D. Thesis, Massey University, Palmerston North, New Zealand, 2019. [Google Scholar]
- Ricks, N. The strengths perspective: Providing opportunities for teen parents and their families to succeed. J. Fam. Strengths 2016, 15, 11. [Google Scholar] [CrossRef]
- Wall-Wieler, E.; Lee, J.B.; Nickel, N.; Roos, L.L. The multigenerational effects of adolescent motherhood on school readiness: A population-based retrospective cohort study. PLoS ONE 2019, 14, e0211284. [Google Scholar] [CrossRef]
- Johansen, E.R.; Nielsen, H.S.; Verner, M. Teenage mothers and the next generation: Benefits of delay? Rev. Econ. Househ. 2024, 22, 451–476. [Google Scholar] [CrossRef]
- Crouch, E.; Probst, J.C.; Radcliff, E.; Bennett, K.J.; McKinney, S.H. Prevalence of adverse childhood experiences (ACEs) among US children. Child Abus. Negl. 2019, 92, 209–218. [Google Scholar] [CrossRef]
- Leung, C.Y.Y.; Hernandez, M.W.; Suskind, D.L. Enriching home language environment among families from low-SES backgrounds: A randomized controlled trial of a home visiting curriculum. Early Child. Res. Q. 2020, 50, 24–35. [Google Scholar] [CrossRef]
- Ferjan Ramírez, N.; Lytle, S.R.; Kuhl, P.K. Parent coaching increases conversational turns and advances infant language development. Proc. Natl. Acad. Sci. USA 2020, 117, 3484–3491. [Google Scholar] [CrossRef] [PubMed]
- Jelleyman, T.; Spencer, N. Residential mobility in childhood and health outcomes: A systematic review. J. Epidemiol. Community Health 2008, 62, 584–592. [Google Scholar] [CrossRef]
- Smith, L. Decolonising Methodologies: Research and Indigenous Peoples; Zed Books: New York, NY, USA; Otago University Press: Dunedin, New Zealand, 1999. [Google Scholar]
- Goodyear-Smith, F.; Jackson, C.; Greenhalgh, T. Co-design and implementation research: Challenges and solutions for ethics committees. BMC Med. Ethics 2015, 16, 78. [Google Scholar] [CrossRef] [PubMed]
- Given, L. The SAGE Encyclopedia of Qualitative Research Methods; SAGE Publications, Inc: Thousand Oaks, California, USA, 2008; Available online: https://methods.sagepub.com/reference/sage-encyc-qualitative-research-methods (accessed on 30 August 2024).
- Olmos-Vega, F.M.; Stalmeijer, R.E.; Varpio, L.; Kahlke, R. A practical guide to reflexivity in qualitative research: AMEE Guide No. 149. Med Teach. 2023, 45, 241–251. [Google Scholar] [CrossRef]
- Vaismoradi, M.; Turunen, H.; Bondas, T. Content analysis and thematic analysis: Implications for conducting a qualitative descriptive study. Nurs. Health Sci. 2013, 15, 398–405. [Google Scholar] [CrossRef]
- Krueger, R.A. Analyzing Focus Group Data. In Analyzing and Reporting Focus Group Results; Sage: Thousands Oaks, CA, USA, 1998; pp. 115–140. [Google Scholar]
- Braun, V.; Clarke, V. Using thematic analysis in psychology. Qual. Res. Psychol. 2006, 3, 77–101. [Google Scholar] [CrossRef]
- Braun, V.; Clarke, V. Reflecting on reflexive thematic analysis. Qual. Res. Sport Exerc. Health 2019, 11, 589–597. [Google Scholar] [CrossRef]
- Smith, L.T. Kaupapa Māori Research—Some Kaupapa Māori Principles. In Kaupapa Rangahau A Reader: A Collection of Readings from the Kaupapa Maori Research Workshop Series; South, K.L.P., Ed.; Te Kotahi Research Institute: Hamilton, New Zealand, 2015; pp. 46–52. [Google Scholar]
- Sutrisno, D.; Abidin, N.A.Z.; Pambudi, N.; Aydawati, E.; Sallu, S. Exploring the benefits of multimodal literacy in English teaching: Engaging students through visual, auditory, and digital modes. Glob. Synth. Educ. J. 2023, 1, 1–14. [Google Scholar] [CrossRef]
- León-Herrera, S.; Oliván-Blázquez, B.; Sánchez-Recio, R.; Méndez-López, F.; Magallón-Botaya, R.; Sánchez-Arizcuren, R. Effectiveness of an online multimodal rehabilitation program in long COVID patients: A randomized clinical trial. Arch. Public Health 2024, 82, 159. [Google Scholar] [CrossRef]
- Linder, R.; Falk-Ross, F. Multimodal Resources and Approaches for Teaching Young Adolescents: A Review of the Literature. Educ. Sci. 2024, 14, 1010. [Google Scholar] [CrossRef]
- Moreno, R.; Mayer, R. Interactive multimodal learning environments: Special issue on interactive learning environments: Contemporary issues and trends. Educ. Psychol. Rev. 2007, 19, 309–326. [Google Scholar] [CrossRef]
- Kim, R.; McMahon, C.M. Delivery of audiological diagnoses for infants: A linguistic analysis of clinical communication. Int. J. Audiol. 2022, 61, 380–389. [Google Scholar] [CrossRef]
- Austrian, K.; Soler-Hampejsek, E.; Behrman, J.R.; Digitale, J.; Jackson Hachonda, N.; Bweupe, M.; Hewett, P.C. The impact of the Adolescent Girls Empowerment Program (AGEP) on short and long term social, economic, education and fertility outcomes: A cluster randomized controlled trial in Zambia. BMC Public Health 2020, 20, 349. [Google Scholar] [CrossRef] [PubMed]
- Austin, C.; Hills, D.; Cruickshank, M. Models and Interventions to Promote and Support Engagement of First Nations Women with Maternal and Child Health Services: An Integrative Literature Review. Children 2022, 9, 636. [Google Scholar] [CrossRef]
- Kennett, D.J.; Chislett, G. The benefits of an enhanced Nobody’s Perfect Parenting Program for child welfare clients including non-custodial parents. Child. Youth Serv. Rev. 2012, 34, 2081–2087. [Google Scholar] [CrossRef]
- Katz, L.F.; Lederman, C.S.; Osofsky, J.D. Use of evidence-based parenting programs for parents of at-risk young children. Juv. Fam. Court. J. 2011, 62, 37. [Google Scholar] [CrossRef]
- Barlow, J.; Smailagic, N.; Huband, N.; Roloff, V.; Bennett, C. Group-based parent training programmes for improving parental psychosocial health. Campbell Syst. Rev. 2012, 8, 1–197. [Google Scholar] [CrossRef]
- Shilling, V.; Morris, C.; Thompson-Coon, J.; Ukoumunne, O.; Rogers, M.; Logan, S. Peer support for parents of children with chronic disabling conditions: A systematic review of quantitative and qualitative studies. Dev. Med. Child Neurol. 2013, 55, 602–609. [Google Scholar] [CrossRef]
- Adcock, A.; Cram, F.; Edmonds, L.; Lawton, B. He Tamariki Kokoti Tau: Families of Indigenous infants talk about their experiences of preterm birth and neonatal intensive care. Int. J. Environ. Res. Public Health 2021, 18, 9835. [Google Scholar] [CrossRef]
- Hartman, A.F.; Radin, M.B.; McConnell, B. Parent-To-Parent Support: A Critical Component of Health Care Services for Families. Issues Compr. Pediatr. Nurs. 1992, 15, 55–67. [Google Scholar] [CrossRef] [PubMed]
- Graham, M.; Avent, J. A Discipline-Wide Approach to Group Treatment. Top. Lang. Disord. 2004, 24, 105. [Google Scholar] [CrossRef]
- Miller, J. What if Becoming a Teenage Parent Saved Your Life. In Re/Assembling the Pregnant Parenting Teenager, Narratives from the Field; Kamp, A., McSharry, M., Eds.; Peter Lang Ltd., International Academic Publishers: Oxford, UK, 2018; pp. 243–268. [Google Scholar]
- Hindin-Miller, J. Re-Storying Identities: Young Women’s Narratives of Teenage Parenthood and Educational Support. Ph.D. Thesis, University of Canterbury, Canterbury, New Zealand, 2012. [Google Scholar]
- Chittleborough, C.R.; Lawlor, D.A.; Lynch, J.W. Young maternal age and poor child development: Predictive validity from a birth cohort. Pediatrics 2011, 127, e1436–e1444. [Google Scholar] [CrossRef] [PubMed]
- Durie, M.H. A Maori Perspective of Health. Soc. Sci. Med. 1985, 20, 483–486. [Google Scholar] [CrossRef] [PubMed]
- Pio, E.; Graham, M. Transitioning to higher education: Journeying with Indigenous Maori teen mothers. Gend. Educ. 2018, 30, 846–865. [Google Scholar] [CrossRef]
- Allison-Burbank, J.; Conn, A.; Vandever, D. Interpreting Diné Epistemologies and Decolonization to Improve Language and Literacy Instruction for Diné Children. Lang. Speech Hear. Serv. Sch. 2023, 54, 707–715. [Google Scholar] [CrossRef]
- Levack, W.M.; Jones, B.; Grainger, R.; Boland, P.; Brown, M.; Ingham, T.R. Whakawhanaungatanga: The importance of culturally meaningful connections to improve uptake of pulmonary rehabilitation by Māori with COPD—A qualitative study. Int. J. Chronic Obstr. Pulm. Dis. 2016, 11, 489–501. [Google Scholar] [CrossRef]
- Komene, E.; Pene, B.; Gerard, D.; Parr, J.; Aspinall, C.; Wilson, D. Whakawhanaungatanga-Building trust and connections: A qualitative study indigenous Māori patients and whānau (extended family network) hospital experiences. J. Adv. Nurs. 2024, 80, 1545–1558. [Google Scholar] [CrossRef]
- Edmonds, L.K.; Cram, F.; Bennett, M.; Lambert, C.; Adcock, A.; Stevenson, K.; Geller, S.; MacDonald, E.J.; Bennett, T.; Storey, F.; et al. Hapū Ora (pregnancy wellness): Māori research responses from conception, through pregnancy and ‘the first 1000 days’—A call to action for us all. J. R. Soc. N. Z. 2022, 52, 318–334. [Google Scholar] [CrossRef]
- Kruske, S.; Belton, S.; Wardaguga, M.; Narjic, C. Growing Up Our Way: The First Year of Life in Remote Aboriginal Australia. Qual. Health Res. 2012, 22, 777–787. [Google Scholar] [CrossRef]
- Smith, L.T.; Maxwell, T.K.; Puke, H.; Temara, P. Indigenous knowledge, methodology and mayhem: What is the role of methodology in producing Indigenous insights? A discussion from mātauranga Māori. Knowl. Cult. 2016, 4, 131–156. [Google Scholar]
- Tamis-Lemonda, C.S.; Shannon, J.; Spellmann, M. Low-income adolescent mothers’ knowledge about domains of child development. Infant Ment. Health J. Infancy Early Child. 2002, 23, 88–103. [Google Scholar] [CrossRef]
- Allen, A.; Spencer, S. Regimes of motherhood: Social class, the word gap and the optimisation of mothers’ talk. Sociol. Rev. 2022, 70, 1181–1198. [Google Scholar] [CrossRef]
- Arabena, K. The first 1000 days: Catalysing equity outcomes for aboriginal and torres strait islander children. Med. J. Aust. 2014, 200, 442. [Google Scholar] [CrossRef]
- Ritte, R.; Panozzo, S.; Johnston, L.; Agerholm, J.; Kvernmo, S.E.; Rowley, K.; Arabena, K. An Australian model of the First 1000 Days: An Indigenous-led process to turn an international initiative into an early-life strategy benefiting indigenous families. Glob. Health Epidemiol. Genom. 2016, 1, e11. [Google Scholar] [CrossRef]
- Sivertsen, N.; Anikeeva, O.; Deverix, J.; Grant, J. Aboriginal and Torres Strait Islander family access to continuity of health care services in the first 1000 days of life: A systematic review of the literature. BMC Health Serv. Res. 2020, 20, 829. [Google Scholar] [CrossRef]
- McArthur, B.A.; Volkova, V.; Tomopoulos, S.; Madigan, S. Global Prevalence of Meeting Screen Time Guidelines Among Children 5 Years and Younger: A Systematic Review and Meta-analysis. JAMA Pediatr. 2022, 176, 373–383. [Google Scholar] [CrossRef]
- Corkin, M.T.; Peterson, E.R.; Henderson, A.M.; Waldie, K.E.; Reese, E.; Morton, S.M. Preschool screen media exposure, executive functions and symptoms of inattention/hyperactivity. J. Appl. Dev. Psychol. 2021, 73, 101237. [Google Scholar] [CrossRef]
- Howe, A.S.; Heath, A.-L.M.; Lawrence, J.; Galland, B.C.; Gray, A.R.; Taylor, B.J.; Sayers, R.; Taylor, R.W. Parenting style and family type, but not child temperament, are associated with television viewing time in children at two years of age. PLoS ONE 2017, 12, e0188558. [Google Scholar] [CrossRef]
- Corkin, M.T.; Peterson, E.R.; Henderson, A.M.; Bird, A.L.; Waldie, K.E.; Reese, E.; Morton, S.M. The predictors of screen time at two years in a large nationally diverse cohort. J. Child Fam. Stud. 2021, 30, 2076–2096. [Google Scholar] [CrossRef]
Phase 1 | Phase 2 | |||
---|---|---|---|---|
Whakawhanaungatanga/rapport building. | Focus group sessions. | |||
Introduction and short presentation. | Weekly, half-day, working alongside and being available for health questions for 4–6 weeks. | FG1 Ascertaining the views of AP learners about the role of hearing in infancy. | FG2 Using teaching tools to explain the purpose of hearing in infancy. | FG3 Evaluation and critique of the teaching tools. |
Whole class. | Whole class. | Study participants only. | Study participants only | Only study participants who had been present at FG2. |
Participant Number | Participant Pseudonym | Infant Pseudonym | Focus Group Sessions Attended |
---|---|---|---|
1 | Abby | Amelia | 1, 2, 3 |
2 | Brooke | Blake | 1 |
3 | Clara | Carter | 2, 3 |
4 | Darla | Daniel | 2, 3 |
5 | Erin | Ella | 1 |
6 | Freya | Fox | 1, 2, 3 |
7 | Georgia | George | 1 |
8 | Hayley | Harper | 1 |
9 | Indie | Isla | 1 |
Category | Row # | Description of What Participants Discussed. (Researchers’ Words) | Transcript Excerpts. (Participants’ Words) |
---|---|---|---|
Sounds infants hear | 1 | There was a discussion about what infants typically hear. | Hayley: [They hear] their mum’s voice. Erin: white noise [can be used to help infants sleep]. |
2 | There was acknowledgement that infants can hear in utero. | Abby: [They can hear their mum’s] heart beats | |
3 | Infants can hear in utero, from 20 weeks’ gestation. | Researcher: Does anyone know what number of weeks in utero? Abby: Is it like 20, something? Researcher: Yeah, it’s 20. Abby: Oh, 20 exactly? Oh, shit! | |
4 | For some APs, music was routinely heard by their infants. | [The prior discussion was about sounds or phrases that are heard routinely.] Darla: A song when we are cleaning up. Researcher: When you are cleaning up? Darla: Yep, then I put the music on. | |
5 | AP learners thought that infants’ hearing may be more sensitive than adults’ hearing. This occurred after discussing that generally infants are quite sensitive to many things due to everything being new to them. | Erin: I think babies can hear volumes like, we think it’s normal, but to them it’s like… real high intensity. | |
Hearing checks | 6 | For two participants, the infant hearing screening machine touching the soft spot made them feel uneasy. | Brooke: I was just scared of the big machine. Researcher: Why was that? What was scary about the machine? Brooke: I don’t know, it was just where it went on his head… I don’t know Erin: Mmm [agreement]. Erin: And the head thing, actually, I didn’t like that it was going over her soft spot. Researcher: Ok. Which did you find worse, the heel prick or the hearing screen? Erin: Heel prick, definitely. Researcher: Ok Erin: For the hearing thing [check], she was asleep so… it was just that… it bothered me. |
7 | For most participants, the hearing screen took place at a convenient location and was an unremarkable memory. | India: It [her own infant’s hearing screen] went good. Georgia: It went good. Researcher: Was it in the hospital or the birthing centre? Georgia: Hospital. Freya: Um, yeah it [her own infant’s hearing screen] was all good. Hayley: Was that with the gel on the…? [Hand actions to indicate head.] Researcher: Yep Hayley: At [local birthing centre]. Researcher: At [local birthing centre], cool. It makes it easy if they come see you there. Hayley: Yeah. Abby: Yeah, Amelia’s one was at the hospital, and she was 10 days, ‘cause we were getting discharged from NICU, and she failed it. …she just wouldn’t stay still. She was crying and stuff. Unsettled. So we went to the, um….I think we went to… [local birthing centre] as well [for the second attempt at the hearing screen]. …then she passed that one and everything was all good. They said she didn’t fail the first one, it was just because she was moving. They didn’t get to do a reading properly. Clara: I was at the hospital too [her own infant’s hearing screen]. Researcher: Before you were discharged? Clara: Yep. | |
Infant development | 8 | In response to the prompt ‘first 1000 days’, they thought that this was referring to the first three years of life being crucial for development. | Brooke: Isn’t that the first three years are crucial? |
9 | AP learners showed knowledge of the importance of the bidirectional nature of main carer and infant interactions, and that this is more engaging for an infant compared with a sensory experience that does not involve the main carer, such as listening to music from a speaker. | Erin: [previous discussion about music, and the conversation topic changed to singing] I reckon kids interact more when you interact with them. Doing whatever it may be. | |
10 | AP learners showed knowledge of the importance of being expressive when interacting with infants. | Researcher: Have you guys been taught some things about the ways things impact babies over their first two years of life? Hayley: Yeah, like showing, like expressing the way you feel. Researcher: Yeah. Like being extra expressive with it [your communication]? Hayley: Yeah. Researcher: To help communicate things to them? Hayley: Yep | |
11 | AP learners showed awareness of the ways that pre-verbal infants can communicate using non-verbal responses. There was also awareness that infants were able to comprehend familiarity, despite not having the brain development to support episodic memory. | Researcher: Do you think they remember what they have heard? Abby: Yep Researcher: Yep. And how do they show that? Abby: Because they are familiar with it, when they hear it again. Researcher: Yep… How do they show familiarity do you think? …Can you think of any examples? Abby: Like they look for it? Like they look outside. Clara: They look to the side. | |
12 | Brooke describes the Lombard effect, which she has observed in the behaviour of her son. This is a concept that is specifically about hearing and sound. This sharing occurs at the very end of FG1, perhaps showing that there was discussion and thinking about many things that were close to or interrelated with hearing, and perhaps for this AP learner, she was able to progress in her thinking over the session towards identifying and sharing a story that was specifically related to the hearing sense. As well as the Lombard effect, Brooke’s final thoughts, shared quickly at the end of the session, included her infant’s imitation of speech and voice tone, as well as the rhythm and pitch of music. The achievement of these milestones in expressive language indicates that her infant has had good hearing and a good language environment over their first 12 months of life. It also illustrates that Brooke has an awareness of these early and subtle infant development milestones, suggesting she is well bonded with her infant and responsive to his subtle expressions. | Brooke: Oh, um, I noticed that when we were in, like, a loud place and there were lots of people talking or there is loud music, he gets really loud. Researcher: Oh, he gets loud with his own voice? Brooke: Yeah. Abby: Does he like match the volume in the room or something? Brooke: Yeah. Researcher: Cool, that’s good. Brooke: Yea. And he likes mimicking people and their voice, and he likes to sing songs, like, he doesn’t sing it proper but…you know…[giggle. The giggle suggested she was unsure about whether she should be articulating this story to the group and the researcher]. Researcher: Can you tell the tune? Brooke: Yeah. Researcher: Cool. How old is he? Brooke: One. Researcher: One, oh yep. Oh, that’s very good. Cool. | |
13 | Music was raised by a participant as something that infants hear often, and she then expanded on this as she linked hearing music to the infant’s emotions and described it as something that was supportive of infant development. | Erin: Music is a good tool for like happiness with babies I reckon. | |
14 | Infants can detect some emotions of their main carers, and this has the potential to influence their developmental trajectory. The discussion was about a multisensory experience for infants, of which the hearing sense and the voice of the main carer are a significant portion of the interaction. The mother’s voice had been previously identified in FG1 as something infants hear often. | Brooke: I got told that I am not allowed to be angry around them… Erin: They read, off like, you know [they are able to detect the emotions of their main carers when the parent conveys this in an expressive manner. When these interactions are harsh, they have the potential to negatively impact the developing infant. This is a multisensory experience for the infant, which the parents voice (infant’s hearing) is part of] … Brooke: …’Cause I got told, um, by my aunty when she had my older cousin, um, she got real mad, oh, ‘cause she used to have like postpartum depression or whatever and she used to get like real mad. And when she was mad, she wouldn’t face him, she’d turn her back to him, so that he couldn’t feel her emotions. | |
15 | In this fast and flowing conversation, Abby supports Erin by providing an analogy for the point she is trying to make using a story about her family. Abby’s input was appreciated by Erin, as it conveyed more succinctly what she was trying to express. Erin then expanded on this analogy using the terms “see and feel”. There is an absence of the word “hear”. It is noteworthy that the hearing sense may not be as prominent or front-of-mind as the other senses when AP learners think about infant development. | Erin: Um…yeah I’ve…..My aunty and uncle had this fat as argument and my cousins, and I was six [years old] and [I remember] just sitting there in shock. I can tell if, you know like, when their parents are happy, they’re always happy and excited and wanting to be around them, but as soon as their parents are like having a go at each other, they would just aye, oh I don’t want to be by them. And then they would make them more standoff. So they were really… I reckon kids are just pick off by what they see. Researcher: Yep Abby: They’re like sponges, aye. Erin: Yeah, they’re like sponges, they absorb what they see and feel [infant hearing is also part of how these children would have detected the emotions of their parents in the described story, but the word hear was not stated by Erin]. |
Question or Prompt from GC | Absence of Discussion |
---|---|
Have you had any school science lessons about hearing? | No (all participants, FG1) |
Have you ever heard of the “first 1000 days” concept or phrase? | No (many participants, FG1) [silence] Isn’t that the first three years are crucial? (Brooke, FG1) [No further expansion or discussion; the group conversation quickly moved onto the surprise that the first 1000 days started at conception] |
Have you ever heard of the “first 1000 days” concept or phrase? [asked to the whole group a second time later in the discussion] | [silence] I don’t know (Clara, FG1) |
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Choi, G.; Teagle, H.; Purdy, S.C.; Wood, A. Partnering with Young Parents to Improve Early Hearing Detection and Intervention Programmes. Children 2025, 12, 629. https://doi.org/10.3390/children12050629
Choi G, Teagle H, Purdy SC, Wood A. Partnering with Young Parents to Improve Early Hearing Detection and Intervention Programmes. Children. 2025; 12(5):629. https://doi.org/10.3390/children12050629
Chicago/Turabian StyleChoi, Genevieve, Holly Teagle, Suzanne C. Purdy, and Andrew Wood. 2025. "Partnering with Young Parents to Improve Early Hearing Detection and Intervention Programmes" Children 12, no. 5: 629. https://doi.org/10.3390/children12050629
APA StyleChoi, G., Teagle, H., Purdy, S. C., & Wood, A. (2025). Partnering with Young Parents to Improve Early Hearing Detection and Intervention Programmes. Children, 12(5), 629. https://doi.org/10.3390/children12050629