Strengths and Weaknesses of Children Witnessing Relatives with Amyotrophic Lateral Sclerosis
Abstract
1. Introduction
2. Materials and Methods
2.1. Aims
2.2. Participants
2.3. Method
2.4. Instruments
2.5. Statistical Analysis
3. Results
3.1. First Aim: Validation of Instruments Used in the Study
3.2. Second Aim: Examination of the Experiences of Children Living under the Specter of a Family Member with ALS
4. Discussion
5. Conclusions and Limitations
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
References
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Factors | Item | Statements | Coding | Corrected Item-Total Correlation |
---|---|---|---|---|
RFQ_C | 1 | People’s thoughts are a mystery to me | (1 = 3) (2 = 2) (3 = 1) (4 thru 7 = 0) | 0.19 |
α = 0.64 M = 0.93; SD = 0.68 | 2 | I don’t always know why I do what I do | (1 = 3) (2 = 2) (3 = 1) (4 thru 7 = 0) | 0.36 |
3 | When I get angry I say things without really knowing why I am | (1 = 3) (2 = 2) (3 = 1) (4 thru 7 = 0) | 0.52 | |
4 | When I get angry I say things that I later regret | (1 = 3) (2 = 2) (3 = 1) (4 thru 7 = 0) | 0.29 | |
5 | If I feel insecure I can behave in ways that put others’ backs up | (1 = 3) (2 = 2) (3 = 1) (4 thru 7 = 0) | 0.33 | |
6 | Sometimes I do things without really knowing why | (1 = 3) (2 = 2) (3 = 1) (4 thru 7 = 0) | 0.55 | |
RFQ_U | 2 | I don’t always know why I do what I do | (1 thru 4 = 0) (5 = 1) (6 = 2) (7 = 3) | 0.33 |
α = 0.49 M = 0.83 SD = 0.58 | 4 | When I get angry I say things that I later regret | (1 thru 4 = 0) (5 = 1) (6 = 2) (7 = 3) | 0.19 |
5 | If I feel insecure I can behave in ways that put others’ backs up | (1 thru 4 = 0) (5 = 1) (6 = 2) (7 = 3) | 0.24 | |
6 | Sometimes I do things without really knowing why | (1 thru 4 = 0) (5 = 1) (6 = 2) (7 = 3) | 0.37 | |
7 | I always know what I feel | (1 = 3) (2 = 2) (3 = 1) (4 thru 7 = 0) | 0.24 | |
8 | Strong feelings often cloud my thinking | (1 thru 4 = 0) (5 = 1) (6 = 2) (7 = 3) | 0.16 |
Factors | Items | Statements (English Version) | Coding | Corrected Item-Total Correlation |
---|---|---|---|---|
Total TDRS-C α = 0.83 M = 2.51 SD = 1.11 | 1 | Death is only a passage. After their death, people continue to exist and remember this life’s experiences. | (1 = 5) (2 = 4) (3 = 3) (4 = 2) (5 = 1) | 0.67 |
2 | Death is a definitive annihilation. After their death, people no longer exist, so they will not experience anything. | (1 = 1) (2 = 2) (3 = 3) (4 = 4) (5 = 5) | 0.73 | |
3 | Death is a definitive annihilation. After death, even if the others remember the person who is no longer there, she will no longer remember anything. | (1 = 1) (2 = 2) (3 = 3) (4 = 4) (5 = 5) | 0.56 | |
4 | Death is only a passage. After their death, people continue to exist and therefore to have new experiences. | (1 = 5) (2 = 4) (3 = 3) (4 = 2) (5 = 1) | 0.67 |
Model | N Item | Chi-Square | df | p | RMSEA | AIC Model | NNFI | CFI | GFI |
---|---|---|---|---|---|---|---|---|---|
RFQ | |||||||||
One factor for RFQ_C | 6 | 35.92 | 9 | <0.001 | 0.12 | 3667.51 | 0.72 | 0.83 | 0.94 |
One factor for RFQ_U | 6 | 2.95 | 9 | 0.966 | 0.00 | 3613.80 | 1.22 | 1.00 | 1.00 |
One factor for RFQ_Total | 12 | 95.06 | 50 | <0.001 | 0.07 | 7019.21 | 0.88 | 0.91 | 0.93 |
Two factors RFQ_C, RFQ_U | 12 | 66.28 | 49 | 0.051 | 0.04 | 6992.42 | 0.95 | 0.97 | 0.95 |
TDRS-C | |||||||||
One factor for TDRSC_Total | 4 | 10.37 | 2 | 0.006 | 0.14 | 25.90.01 | 0.92 | 0.97 | 0.98 |
Measures | 9–10 Years | 11–14 Years | Anova Results a | ||||||||
---|---|---|---|---|---|---|---|---|---|---|---|
Males | Females | Males | Females | ||||||||
M | DS | M | DS | M | DS | M | DS | Gender | Age | Gender × Age | |
RFQ_C | 0.83 | 0.58 | 1.19 | 0.81 | 0.96 | 0.68 | 0.83 | 0.63 | 1.34 | 1.42 | 6.17 * |
RFQ_U | 0.85 | 0.55 | 0.85 | 0.72 | 0.68 | 0.46 | 0.92 | 0.59 | 1.97 | 0.45 | 1.93 |
TDRS-C | 2.74 | 1.21 | 1.99 | 1.00 | 2.64 | 1.19 | 2.38 | 1.04 | 6.69 * | 2.20 | 4.38 * |
PA | 59.73 | 7.66 | 58.77 | 11.35 | 54.28 | 9.06 | 53.58 | 11.02 | 2.15 | 21.41 *** | 0.63 |
NA | 27.21 | 9.10 | 27.46 | 10.07 | 26.77 | 8.52 | 32.53 | 12.33 | 7.33 ** | 5.13 * | 6.49 * |
SDQ_EMO | 3.18 | 2.38 | 4.28 | 2.36 | 2.35 | 2.33 | 4.25 | 2.34 | 18.81 *** | 1.63 | 1.30 |
SDQ_PEER | 2.00 | 1.64 | 2.21 | 1.96 | 1.77 | 2.17 | 1.83 | 1.70 | 0.03 | 2.12 | 0.36 |
SDQ_Internalizing Problems | 5.18 | 3.22 | 6.49 | 3.82 | 4.12 | 3.82 | 6.08 | 3.25 | 9.47 ** | 2.76 | 0.21 |
SDQ_COND | 2.48 | 2.03 | 1.95 | 1.92 | 2.40 | 1.76 | 2.38 | 1.82 | 0.42 | 1.10 | 1.83 |
SDQ_HYPER | 4.09 | 2.59 | 2.79 | 2.19 | 3.79 | 1.92 | 3.38 | 2.23 | 4.86 * | 0.79 | 3.32 |
SDQ_Externalizing Problems | 6.58 | 3.95 | 4.74 | 3.73 | 6.19 | 3.08 | 5.77 | 3.65 | 2.93 | 1.21 | 3.39 |
SDQ_Tot. | 11.76 | 6.10 | 11.23 | 6.35 | 10.32 | 5.96 | 11.85 | 5.74 | 0.58 | 0.09 | 1.89 |
SDQ_PROS | 7.33 | 1.59 | 7.62 | 2.12 | 7.18 | 1.65 | 7.90 | 1.70 | 5.49 * | 0.29 | 1.41 |
Measures | 1 | 2 | 3 | 4 | 5 | 6 | 7 | 8 | 9 | 10 | 11 | 12 | 13 |
---|---|---|---|---|---|---|---|---|---|---|---|---|---|
1.RFQ_C | |||||||||||||
2.RFQ_U | −0.55 *** | ||||||||||||
3.TDRS | −0.06 | 0.07 | |||||||||||
4.PA | −0.02 | −0.05 | −0.22 ** | ||||||||||
5.NA | −0.23 ** | 0.30 *** | 0.06 | −0.43 *** | |||||||||
6.SDQ_EMO | −0.20 ** | 0.35 *** | 0.03 | −0.27 *** | 0.43 *** | ||||||||
7.SDQ_PEER | −0.06 | 0.26 *** | −0.01 | −0.24 *** | 0.32 *** | 0.30 *** | |||||||
8.Intern.Probl. | −0.18 ** | 0.38 *** | 0.01 | −0.32 *** | 0.48 *** | 0.87 *** | 0.74 *** | ||||||
9.SDQ_COND | −0.36 *** | 0.33 *** | 0.17 * | −0.20 ** | 0.29 *** | 0.26 *** | 0.35 *** | 0.37 *** | |||||
10.SDQ_HYPER | −0.39 *** | 0.29 *** | 0.20 ** | −0.31 *** | 0.36 *** | 0.23 ** | 0.30 *** | 0.32 *** | 0.53 *** | ||||
11.Extern.Probl. | −0.43 *** | 0.35 *** | 0.21 ** | −0.30 *** | 0.38 *** | 0.28 *** | 0.37 *** | 0.39 *** | 0.85 *** | 0.90 *** | |||
12.SDQ_Tot. | −0.37 *** | 0.44 *** | 0.14 * | −0.37 *** | 0.51 *** | 0.68 *** | 0.66 *** | 0.83 *** | 0.73 *** | 0.73 *** | 0.84 *** | ||
13.SDQ_PROS | 0.15 * | −0.07 | −0.16 * | 0.22 ** | −0.07 | 0.07 | −0.14 * | −0.02 | −0.29 *** | −0.27 *** | −0.32 *** | −0.21 ** |
Measures | Research Group (n = 38) | Comparison Group (n = 210) | t (246) | Cohen’s d | ||
---|---|---|---|---|---|---|
M | DS | M | DS | |||
RFQ_C | 0.80 | 0.76 | 0.93 | 0.68 | −1.04 | −0.18 |
RFQ_U | 0.45 | 0.42 | 0.83 | 0.58 | −3.88 *** | −0.68 |
TDRS | 2.60 | 0.68 | 2.51 | 1.11 | 0.48 | 0.09 |
PA | 52.87 | 12.07 | 54.73 | 10.24 | −1.00 | −0.18 |
NA | 34.32 | 11.52 | 30.13 | 11.24 | 2.10 * | 0.37 |
SDQ_EMO | 3.84 | 2.88 | 3.57 | 2.48 | 0.61 | 0.11 |
SDQ_PEER | 1.71 | 2.08 | 1.84 | 1.82 | −0.40 | −0.07 |
Intern.Probl. | 5.55 | 4.60 | 5.41 | 3.49 | 0.22 | 0.04 |
SDQ_COND | 2.45 | 1.88 | 2.40 | 1.83 | 0.13 | 0.02 |
SDQ_HYPER | 4.55 | 2.65 | 3.60 | 2.22 | 2.35 * | 0.41 |
Extern.Probl. | 7.00 | 4.27 | 11.42 | 5.87 | 1.53 | 0.27 |
SDQ_Tot. | 12.55 | 8.22 | 6.01 | 3.55 | 1.02 | 0.18 |
SDQ_PROS | 8.00 | 1.68 | 7.61 | 1.69 | 1.29 | 0.23 |
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Testoni, I.; Palazzo, L.; Ronconi, L.; Macelloni, T.; Calvo, V. Strengths and Weaknesses of Children Witnessing Relatives with Amyotrophic Lateral Sclerosis. Children 2023, 10, 140. https://doi.org/10.3390/children10010140
Testoni I, Palazzo L, Ronconi L, Macelloni T, Calvo V. Strengths and Weaknesses of Children Witnessing Relatives with Amyotrophic Lateral Sclerosis. Children. 2023; 10(1):140. https://doi.org/10.3390/children10010140
Chicago/Turabian StyleTestoni, Ines, Lorenza Palazzo, Lucia Ronconi, Tamara Macelloni, and Vincenzo Calvo. 2023. "Strengths and Weaknesses of Children Witnessing Relatives with Amyotrophic Lateral Sclerosis" Children 10, no. 1: 140. https://doi.org/10.3390/children10010140
APA StyleTestoni, I., Palazzo, L., Ronconi, L., Macelloni, T., & Calvo, V. (2023). Strengths and Weaknesses of Children Witnessing Relatives with Amyotrophic Lateral Sclerosis. Children, 10(1), 140. https://doi.org/10.3390/children10010140