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Case Report

Life-Threatening Malnutrition in Very Severe ME/CFS

1
25% ME Group, Troon KA10 6HT, UK
2
Medical Advisor to 25% ME Group, Durham DH1 1QN, UK
3
NHS Consultant Physician, London W1G 9PF, UK
*
Author to whom correspondence should be addressed.
Academic Editors: Kenneth J. Friedman, Lucinda Bateman and Kenny Leo De Meirleir
Healthcare 2021, 9(4), 459; https://doi.org/10.3390/healthcare9040459
Received: 10 March 2021 / Revised: 7 April 2021 / Accepted: 7 April 2021 / Published: 14 April 2021
(This article belongs to the Special Issue ME/CFS – the Severely and Very Severely Affected)
Very severe Myalgic Encephalomyelitis (ME), (also known as Chronic Fatigue Syndrome) can lead to problems with nutrition and hydration. The reasons can be an inability to swallow, severe gastrointestinal problems tolerating food or the patient being too debilitated to eat and drink. Some patients with very severe ME will require tube feeding, either enterally or parenterally. There can often be a significant delay in implementing this, due to professional opinion, allowing the patient to become severely malnourished. Healthcare professionals may fail to recognize that the problems are a direct consequence of very severe ME, preferring to postulate psychological theories rather than addressing the primary clinical need. We present five case reports in which delay in instigating tube feeding led to severe malnutrition of a life-threatening degree. This case study aims to alert healthcare professionals to these realities. View Full-Text
Keywords: Myalgic Encephalomyelitis (ME); Chronic Fatigue Syndrome (CFS); enteral feeding; Nasogastric Tube (NGT); Nasojejunal Tube (NJT); Percutaneous Endoscopic Gastrostomy (PEG); Total Parenteral Nutrition (TPN); Home Enteral Nutrition Service (HENS); Mast Cell Activation Disorder (MCAD) Myalgic Encephalomyelitis (ME); Chronic Fatigue Syndrome (CFS); enteral feeding; Nasogastric Tube (NGT); Nasojejunal Tube (NJT); Percutaneous Endoscopic Gastrostomy (PEG); Total Parenteral Nutrition (TPN); Home Enteral Nutrition Service (HENS); Mast Cell Activation Disorder (MCAD)
MDPI and ACS Style

Baxter, H.; Speight, N.; Weir, W. Life-Threatening Malnutrition in Very Severe ME/CFS. Healthcare 2021, 9, 459. https://doi.org/10.3390/healthcare9040459

AMA Style

Baxter H, Speight N, Weir W. Life-Threatening Malnutrition in Very Severe ME/CFS. Healthcare. 2021; 9(4):459. https://doi.org/10.3390/healthcare9040459

Chicago/Turabian Style

Baxter, Helen, Nigel Speight, and William Weir. 2021. "Life-Threatening Malnutrition in Very Severe ME/CFS" Healthcare 9, no. 4: 459. https://doi.org/10.3390/healthcare9040459

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