Next Article in Journal
Analysis of Altmetrics in Social Recognition of Neurology and Neurological Disorders
Next Article in Special Issue
Analysis of SF-6D Health State Utility Scores: Is Beta Regression Appropriate?
Previous Article in Journal
Influencing Factors of Undermet Care Needs of the Chinese Disabled Oldest Old People When Their Children Are Both Caregivers and Older People: A Cross-Sectional Study
Article

Translation and Cultural Adaptation of the Patient Self-Administered Financial Effects (P-SAFE) Questionnaire to Assess the Financial Burden of Cancer in French-Speaking Patients

1
Centre de Recherche Charles-Le Moyne–Saguenay–Lac-Saint-Jean sur les Innovations en Santé, 150 Place Charles-Le Moyne, Longueuil, QC J4K 0A8, Canada
2
Faculté de Médecine et des Sciences de la Santé, Université de Sherbrooke, Campus de Longueuil, Longueuil, QC J4K 0A8, Canada
3
Département de Gestion, Évaluation et Politique de Santé, École de Santé Publique de l’Université de Montréal (ESPUM), Université de Montréal, Montréal, QC H3N 1X9, Canada
4
Centre de Recherche de l’Institut Universitaire en Santé Mentale de Montréal, CIUSSS de l’Est de l’Île de Montréal, Montréal, QC H1N 3M5, Canada
5
École Nationale D’administration Publique, Montréal, QC H2T 2C8, Canada
6
DeGroote School of Business, McMaster University, Hamilton, ON L8S 4L8, Canada
*
Author to whom correspondence should be addressed.
Healthcare 2020, 8(4), 366; https://doi.org/10.3390/healthcare8040366
Received: 17 August 2020 / Revised: 15 September 2020 / Accepted: 23 September 2020 / Published: 25 September 2020
(This article belongs to the Special Issue Health Care Management and Cost Estimation)
People living with and beyond cancer (PLC) experience financial hardship associated with the disease and its treatment. Research demonstrates that the “economic toxicity” of cancer can cause distress and impair well-being, health-related quality of life and, ultimately, survival. The Patient Self-Administered Financial Effects (P-SAFE) questionnaire was created in Canada and tested in English. The objective of this study is to describe the processes of translation and cultural adaptation of the P-SAFE for use with French speaking PLC in Canada. The Canadian P-SAFE questionnaire was translated from English to French in collaboration with the developer of the initial version, according to the 12-step process recommended by the Patient-Reported Outcome (PRO) Consortium. These steps include forward and backward translation, a multidisciplinary expert committee, and cross-cultural validation using think-aloud, probing techniques, and clarity scoring during cognitive interviewing. Translation and validation of the P-SAFE questionnaire were performed without major difficulties. Minor changes were made to better fit with the vocabulary used in the public healthcare system in Quebec. The mean score for clarity of questions was 6.4 out of a possible 7 (totally clear) Cognitive interviewing revealed that lengthy questionnaire instructions could be confusing. Our team produced a Canadian-French version of the P-SAFE. After minor rewording in the instructions, the P-SAFE questionnaire appears culturally appropriate for use with French-speaking PLC in Canada. Further testing of the French version will require evaluation of psychometric properties of validity and reliability. View Full-Text
Keywords: financial burden; questionnaire; Quebec; French; patient-reported experience; cancer; translation financial burden; questionnaire; Quebec; French; patient-reported experience; cancer; translation
Show Figures

Figure 1

MDPI and ACS Style

Tremblay, D.; Poder, T.G.; Vasiliadis, H.-M.; Touati, N.; Fortin, B.; Lévesque, L.; Longo, C. Translation and Cultural Adaptation of the Patient Self-Administered Financial Effects (P-SAFE) Questionnaire to Assess the Financial Burden of Cancer in French-Speaking Patients. Healthcare 2020, 8, 366. https://doi.org/10.3390/healthcare8040366

AMA Style

Tremblay D, Poder TG, Vasiliadis H-M, Touati N, Fortin B, Lévesque L, Longo C. Translation and Cultural Adaptation of the Patient Self-Administered Financial Effects (P-SAFE) Questionnaire to Assess the Financial Burden of Cancer in French-Speaking Patients. Healthcare. 2020; 8(4):366. https://doi.org/10.3390/healthcare8040366

Chicago/Turabian Style

Tremblay, Dominique, Thomas G. Poder, Helen-Maria Vasiliadis, Nassera Touati, Béatrice Fortin, Lise Lévesque, and Christopher Longo. 2020. "Translation and Cultural Adaptation of the Patient Self-Administered Financial Effects (P-SAFE) Questionnaire to Assess the Financial Burden of Cancer in French-Speaking Patients" Healthcare 8, no. 4: 366. https://doi.org/10.3390/healthcare8040366

Find Other Styles
Note that from the first issue of 2016, MDPI journals use article numbers instead of page numbers. See further details here.

Article Access Map by Country/Region

1
Back to TopTop