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Taking Another Look: Thoughts on Behavioral Symptoms in Dementia and Their Measurement

1
School of Nursing, Azusa Pacific University, Azusa, CA 91702, USA
2
College of Nursing, University of Iowa, Iowa City, IA 52242, USA
*
Author to whom correspondence should be addressed.
Healthcare 2018, 6(4), 126; https://doi.org/10.3390/healthcare6040126
Received: 15 August 2018 / Revised: 12 October 2018 / Accepted: 16 October 2018 / Published: 22 October 2018
(This article belongs to the Special Issue Care of People Living with Dementia)
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PDF [218 KB, uploaded 22 October 2018]

Abstract

This article proposes taking another look at behavioral symptoms of dementia (BSDs) both from a theoretical perspective that informs research and practice and from a measurement perspective. We discuss why this rethinking of behaviors impacts current models of care and our ability to better detect outcomes from interventions. We propose that BSDs be viewed from a pattern perspective and provide some suggestions for how to identify and measure these patterns that can influence the timing and type of intervention. Evidence suggests that BSDs are complex, sequential, patterned clusters of behavior recurring repeatedly in the same individual and escalate significantly without timely intervention. However, BSDs are frequently viewed as separate behaviors rather than patterns or clusters of behaviors, a view that affects current research questions as well as the choice, timing, and outcomes of interventions. These symptoms cause immense distress to persons with the disease and their caregivers, trigger hospitalizations and nursing home placement, and are associated with increased care costs. Despite their universality and that symptoms manifest across disease etiologies and stages, behaviors tend to be underrecognized, undertreated, and overmanaged by pharmacological treatments that may pose more harm than benefit. View Full-Text
Keywords: reconceptualization; behavioral symptoms; measurement; clustering reconceptualization; behavioral symptoms; measurement; clustering
This is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited (CC BY 4.0).
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Woods, D.L.; Buckwalter, K. Taking Another Look: Thoughts on Behavioral Symptoms in Dementia and Their Measurement. Healthcare 2018, 6, 126.

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