Why Do Individuals with Diabetes Miss Their Dietitian Appointments? A Mixed-Methods Study on Barriers and Strategies for Improved Engagement in Diabetes Care
Abstract
:1. Introduction
2. Materials and Methods
2.1. Study Design
2.2. Data Collection
Interview Guide
2.3. Recruitment for Interviews
2.4. Interviewed Participants
2.5. Data Analyses
2.6. Ethics Considerations
3. Results
3.1. Findings from Descriptive Data
3.2. Qualitative Findings
3.2.1. Reasons for Missed Dietitian Appointments
- Theme 1: Administrative, digital, and logistical challenges
“e-Boks is difficult to use and confusing” (Male, T1D, 46 years, MDI treated, missed a follow-up dietitian appointment)
“It’s easy to overlook an appointment or forget to check e-Boks—especially if the message comes on without any reminders” (Male, T1D, 67 years, MDI and sensor treated, missed a follow-up dietitian appointment)
“There’s too much time between receiving the appointment notification and the actual appointment, so you forget your appointment and the information you were given, especially if it’s, for example, three months away.” (Male, T1D, 30 years, MDI treated, missed an initial dietitian appointment)
“If you miss an appointment, you automatically get a new one in e-Boks, which is scheduled far into the future. It then gets buried among other messages, and you might forget it again.” (Male, 31 years, T1D, MDI treated, missed an initial dietitian appointment)
“It would be smart to have an SMS reminder both when the appointment is scheduled and another SMS shortly before the appointment” (Nondisclosure of gender, T2D, 23 years, missed a follow-up dietitian appointment)
“I received an SMS reminder about an appointment at SDCC, but it came too late—my dietitian appointment had already taken place earlier the same day, so I ended up missing it.” (Male, T2D, 62 years, missed follow-up dietitian appointment)
- Theme 2: Competing health concerns
“I have so many [healthcare] appointments every week, it’s almost unbelievable.” (Male, T1D, 54 years, MDI treated, missed follow-up dietitian appointment)
“I was struggling mentally at the time [of the missed dietitian appointment]. I have PTSD and I am dealing with the municipality. That’s why I don’t have the energy to attend. Sometimes I sleep poorly at night and end up sleeping into the day.” (Male, 58 years, T2D, missed an initial dietitian appointment).
“I’m bipolar and have a very irregular sleep pattern. If I have an early appointment, I try to stay awake all night, but sometimes I still end up falling asleep” (Male, T1D, 29 years, missed dietitian video-follow-up).
- Theme 3: Other personal priorities in daily life
“I forgot my appointment because I was busy at work.” (Male, T1D, 54 years, MDI treated, missed follow-up dietitian appointment)
“I was called into work on the day I was supposed to go to SDCC, so I didn’t attend.” (Male, 28 years, T1D, MDI treated, missed a follow-up dietitian appointment)
“I had exams during that period, so I was very busy and had a lot on my mind.” (Male, T1D, 30 years, MDI treated, missed an initial dietitian appointment)
- Theme 4: Misalignment of expectations and perceived need for dietitian care
“I didn’t attend because I didn’t understand the purpose (Male, T2D, 79 years, missed an initial dietitian appointment).”
“The purpose wasn’t clear; I think people stay away if they don’t know what they’ll get out of it.” (Female, T1D, 67 years, MDI treated, missed an initial dietitian appointment)
“I’m not interested in getting a pump or learning to count carbohydrates.” (Female, T1D, 67 years, MDI treated, missed an initial dietitian appointment)
“I spoke with the nurse—or was it the doctor?—about whether it was relevant for me right now. I felt confident in managing the diet, so I didn’t attend.” (Female, T1D, 17 years, treated with insulin pump treated T1, missed a follow-up dietitian appointment)
“I didn’t really feel like I needed nutritional counseling… I don’t know why I was supposed to see a dietitian. Something about my blood sugar, I’m not sure.” (Male, T1D, 19 years, MDI treated, missed a follow-up dietitian appointment)
“It was because I didn’t feel like I was getting anything out of it that I missed the follow-up appointment.” (Male, T2D, 68 years, missed a telephone follow-up dietitian appointment)
3.2.2. Factors Influencing Dietitian Attendance
- Theme 1: Balancing the ideal with the practical possible
“It’s not always possible to make the changes the dietitian wants you to make. Unfortunately, not all of us have the finances to eat as healthily as we’d like. But there are still some easier things, like replacing soda or juice with sugar-free options, which were relatively easy to do and didn’t cost more.” (Nondisclosure of gender, T2D, 23 years, missed a follow-up dietitian appointment)
“It’s really good [to talk to a dietitian], but I can’t always follow through. Taste also plays a big role—you don’t always choose the healthiest option. I think the bar is set a bit too high”. (Male, T1D, 54 years, MDI treated, missed a follow-up dietitian appointment)
“I know what I should do, but I find it hard to make it work in my daily life.” (Female, T2D, 60 years, missed a follow-up dietitian appointment)
“It’s way too complicated [to count carbohydrates] in everyday life, to spend so much time counting. You go to work, you need lunch—it’s just too much trouble. Sometimes you eat out, and it’s way too difficult to count and figure out what contains carbohydrates (Male, T1D, 46 years, MDI treated missed an initial dietitian appointment).
“The dietitians provided a good “starter pack”, but from there it gets harder when you have to weigh all your food to count [carbohydrates] and figure out whether they’re fast or slow carbohydrates. You catch yourself weighing your food all the time.” (Male, T1D, 31 years, MDI treated, missed an initial dietitian appointment)
“I can’t find the energy to count [carbohydrates] with my work. I can’t get into a rhythm with counting. Inputting data into an app or doing food records—I just completely shut down on that.” (Male, T1D, 28 years, MDI treated, missed a follow-up dietitian appointment)
“I can only find the energy to log what I’ve eaten [in a bolus calculator app], but not the insulin I’ve taken, so it ends up being pointless.” (Male, T1D, 28 years, MDI treated, missed an initial dietitian appointment)
“The techniques [for carbohydrate counting] are a bit outdated, and the app design is old-fashioned. It would be great to have an app that could use the phone’s camera—like, you’re eating a portion of oatmeal, this many carbs—this much insulin you need to take.” (Male, T1D, 31 years, MDI treated, missed an initial dietitian appointment)
“Every time I talk to a dietitian, I learn more about how much insulin I should take for my meals… It’s the math of it that the dietitian helps with.” (Male, T1D, 56 years, MDI treated, missed a virtual follow-up dietitian appointment)
- Theme 2: Past negative experiences and the need for continuity in dietitian care
“I’m a bit scared. I went to XX [another hospital in Denmark’s capital region] before and was given a 1400 kcal meal plan because I needed to lose weight. I was hungry all the time. I don’t want to go through that again.” (Male, T1D, 30 years, MDI treated, missed an initial dietitian appointment)
“I had BED [binge eating disorder] as a child, before it was recognized as a diagnosis, and I was put on a lot of very strict diets. I wasn’t allowed to participate in class when there was cake. That has made my relationship with food difficult.” (Gender nondisclosure, T2D, 23 years, missed a dietitian follow-up appointment)
“In the past, you were constantly told that you were fat. The focus was always on what you shouldn’t do. It’s different today.” (Male, T1D, 46 years, MDI treated, missed a follow-up dietitian appointment)
“It would be really nice to have the same dietitian again. I’ve seen two to three different ones, and they’ve asked about the same things.” (Female, T1D, 17 years, MDI treated, missed a follow-up dietitian appointment)
“It would be nice to talk to the same person each time, and it would make follow-up better.” (Male, T2D, 65 years, missed a follow-up dietitian appointment)
- Theme 3: Scheduling and consultation format preferences
“I could talk to the dietitian during work hours for 15 minutes; I wouldn’t need to take time off and spend nearly two hours on it.” (Male, T1D, 54 years, MDI treated, missed a follow-up dietitian appointment)
“I could save transport time, making it more flexible.” (Male, T1D, 31 years, MDI treated, missed an initial dietitian appointment)
“My appointments don’t need to be combined; I can just have a single phone call with the dietitian” (Male, T1D, 29 years, missed video-follow-up).
“There’s no real dialogue. It’s hard to have a proper dialogue [during telephone consultations]. Body language is important, and you can’t have that in a phone call. It’s also hard for the dietitian to assess if I’m overweight when I say I’m too fat.” (Male, T1D, 44 years, MDI treated, missed a follow-up dietitian appointment)
“You will miss the personal connection; the conversation becomes more meaningful when you’re sitting together.” (Male, T1D, 46 years, MDI treated, missed follow-up dietitian appointment).
4. Discussion
5. Conclusions
Supplementary Materials
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
Abbreviations
AAP | Andrea Aaen Petersen |
BE | Bettina Ewers |
BMI | Body mass index |
COREQ | Consolidated Criteria for Reporting Qualitative Research |
DSMES | Diabetes self-management education and support |
EMR | Electronic medical records |
HbA1c | Hemoglobin A1c |
IQR | Interquartile range |
LPL | Lærke Pinstrup Lidegaard |
MDI | Multiple daily injections |
SDCC | Steno Diabetes Center Copenhagen |
T1D | Type 1 diabetes |
T2D | Type 2 diabetes |
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Type 1 Diabetes (n = 17) | Number (%) or Median (IQR, Range) |
Biological gender, n (%) male | 13 (77) |
Age, years | 42 (IQR: 30–55, range 17–67) |
Living with a partner, n (%) | 6 (36) |
Employed, n (%) | 11 (65) |
BMI, m/kg2 | 26 (IQR: 21–32, range 15–42) |
Duration of diabetes, years | 15 (IQR: 5–23, range 3–29) |
HbA1c, mmol/mol | 70 (IQR: 61–78, range 47–114) |
HbA1c, % | 8.6 (IQR: 7.7–9.3, range 6.5–12.6) |
Comorbidities, n (%) | 11 (65) |
Insulin pump | 1 (6) |
Type 2 Diabetes (n = 8) | Number (%) or Median (IQR, Range) |
Biological gender, n (%) male | 5 (63) |
Age, years | 59 (IQR: 58–66, range 23–79) |
Living with a partner, n (%) | 4 (50) |
Employed, n (%) | 2 (25)1 |
BMI, m/kg2 | 37 (IQR: 33–41, range 27–43) |
Duration of diabetes, years | 13 (IQR: 8–16, range 4–28) |
HbA1c, mmol/mol | 70 (IQR: 62–76, range 43–113) |
HbA1c, % | 8.6 (IQR: 7.8–9.1, range 6.1–12.5) |
Comorbidities, n (%) | 7 (88) |
Antihyperglycaemics, n (%) | 8 (100) |
Interviewed Participants n = 25 | All Patients with Missed Dietitian Appointments 1 n = 528 | |
---|---|---|
Biological gender, n (%) male | 18 (72) | 309 (59) |
Age, years | 50 (IQR: 33–62) | 40 (IQR: 29–56) |
Diabetes type, n (%) | ||
Type 1 diabetes | 14 (64) | 358 (68) |
Type 2 diabetes | 8 (36) | 170 (32) |
Complications 2, n (%) | ||
None | 7 (28) | 224 (42) |
1 complication | 10 (40) | 186 (35) |
2 complications | 5 (20) | 100 (19) |
≥3 complications | 3 (12) | 18 (3) |
Metabolic data | ||
HbA1c, mmol/mol | 67 (IQR: 61–77) | 62 (IQR: 54–73) |
HbA1c, % | 8.3 (IQR: 7.7–9.2) | 7.8 (IQR: 7.1–8.8) |
BMI, kg/m2 | 27 (IQR: 22–36) | 27 (IQR: 24–31) |
Same-day cancellations ≥ 1 time 3, n (%) | 13 (59) | 420 (80) |
Missed appointments | ||
All types 3, median n of missed visits | 2.5 (IQR: 1–3) | 2.0 (IQR: 1–4) |
Dietitian, n of missed visits | 1.0 (IQR: 1–2), range 1–3 | 1.0 (IQR:1–2), range 1–5 |
Endocrinologist, n (%) | 7 (32) | 188 (36) |
Diabetes nurse, n (%) | 2 (9) | 177 (34) |
Ophthalmic nurse, n (%) | 5 (23) | 92 (17) |
Podiatrist, n (%) | 1 (5) | 45 (9) |
Category | Theme | Subtheme |
---|---|---|
Reasons for missed dietitian appointments | 1. Administrative, digital, and logistical challenges |
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2. Competing health concerns |
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3. Other personal priorities in daily life |
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4. Misalignment of expectations and perceived need for dietitian care |
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Factors influencing dietitian attendance | 1. Balancing the ideal with the practical possible |
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2. Past negative experiences and the need for continuity in dietitian care |
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3. Scheduling and consultation format preferences |
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Lidegaard, L.P.; Petersen, A.A.; Ewers, B. Why Do Individuals with Diabetes Miss Their Dietitian Appointments? A Mixed-Methods Study on Barriers and Strategies for Improved Engagement in Diabetes Care. Healthcare 2025, 13, 1409. https://doi.org/10.3390/healthcare13121409
Lidegaard LP, Petersen AA, Ewers B. Why Do Individuals with Diabetes Miss Their Dietitian Appointments? A Mixed-Methods Study on Barriers and Strategies for Improved Engagement in Diabetes Care. Healthcare. 2025; 13(12):1409. https://doi.org/10.3390/healthcare13121409
Chicago/Turabian StyleLidegaard, Lærke P., Andrea A. Petersen, and Bettina Ewers. 2025. "Why Do Individuals with Diabetes Miss Their Dietitian Appointments? A Mixed-Methods Study on Barriers and Strategies for Improved Engagement in Diabetes Care" Healthcare 13, no. 12: 1409. https://doi.org/10.3390/healthcare13121409
APA StyleLidegaard, L. P., Petersen, A. A., & Ewers, B. (2025). Why Do Individuals with Diabetes Miss Their Dietitian Appointments? A Mixed-Methods Study on Barriers and Strategies for Improved Engagement in Diabetes Care. Healthcare, 13(12), 1409. https://doi.org/10.3390/healthcare13121409