Disrupted Sensemaking—Understanding Family Experiences of Physical Restraints in ICU: A Phenomenological Approach in the Context of COVID-19
Abstract
:1. Introduction
2. Methods
2.1. Participant Recruitment and Ethical Considerations
2.2. Data Collection Procedures
- “Can you describe what was happening at that moment?”
- “How did you react to seeing your family member restrained?”
- “What thoughts were going through your mind?”
- “How did the healthcare staff explain the use of restraints to you?”
2.3. Participant Demographics
2.4. Data Analysis
3. Results
Articulation of Essential Themes through Participant Voices
- P01: “It was not an easy thing to have her [mother] there. I thought about, when she was here, I could look after her. But then I couldn’t.”
- P05: “Even though I couldn’t be there, I had to put my faith in the doctors and nurses to take care of my father.”
- P06: “I could barely look at him [father] in his state with all the tubes and lines in him. I just saw his face and basically there was, you know, obviously a lot of machines.”
- P01: “It’s not a good thing to do that—especially if you’re old, why would you want to do that? It’s for her own good, yes, for her own good. It was a necessity. I didn’t agree that they had to do that, but they had to do it. I didn’t want that to happen to her [mother], but it came to the point that they had to do that. How else could you have a patient with an IV in the arm? If they keep pulling it out, what else can you do?”
- P02: “I’m not okay with having my husband tied up, but I don’t have any option because he needed to do that so that he can heal.”
- P04: “They deemed it necessary because she [sister] kept taking off her oxygen mask. That’s what they said. I don’t know. I wasn’t there…. If there was somebody there who would have been able to just put her mask back on, you wouldn’t have needed to put restraints on. The restraints were there so that no one—that they [nursing staff] can just go ahead and watch TV or whatever it is what that they did and go about their merry little way.”
- P06: “I don’t know if there were any other purposes for restraining. But the purpose they gave us sounded reasonable and everything. And then we didn’t really question that…. I would’ve questioned it if he was awake and everything.”
- P04: “I couldn’t get straight answers. Every time I asked about the restraints, I got different responses. It was frustrating and scary not knowing.”
- P03: “Disgruntled to send my mom to the hospital. I felt she was very sad, very despondent…. The nurse and the doctor did not do good service. The hospital could not heal the people, and one by one, they left.”
- P07: “I knew they were busy. They had schedules, and they had to get to see all the patients and everything. But a little better communication would have, you know, made the situation a little better, you know.”
- P10: “I tried to call the nurse, call the doctor. I left the message, but the doctor was not as fast to give me the response.”
- P06: “It was hard, but I had to trust that they were doing the best they could for him [father].”
- P08: “Not being able to be there to advocate for him [father], I felt like I had no control over what was happening to him.”
- P04: “How was it done? Were they fighting with her [sister]? Because someone who does not want to be restrained is not going to want to be restrained. So, were you talking about four, five, or six men? Like, what are we talking about here? I thought about that. I don’t know how it was done.”
- P06: “I could barely look at him [father] in his state with all the tubes and lines in him. I just saw his face and basically there was, you know, obviously a lot of machines.”
- P02: “All I wanted was to hold her [wife’s] hand, to tell her it was going to be all right. But I couldn’t, and it hurt so much.”
- P07: “I just feel a lot of sadness because I didn’t know exactly how she [mother] felt or what she wanted in that moment.”
- P09: “I needed them to be honest with me, to explain why this was necessary. That would have made a difference.”
- P07: “Some days, we tried to get in touch, and we weren’t able to, and the nurses weren’t fully aware of the whole situation, so they couldn’t provide us anything. It was only up to the doctor, and doctors are always busy. But they did get back, you know, and I just wished there was a little more…urgency, I guess.”
4. Discussion: Interpreting Family Experiences in the ICU Context
4.1. Impact of the Pandemic Context
4.2. Policy Implications
- Strengthened communication practices: Implementing clear, compassionate, and regular communication strategies between healthcare providers and family members to alleviate psychological strain and ensure family involvement in care decisions.
- Alternate Interventions: Identifying and prioritizing alternative interventions to physical restraints, ensuring that restraints are considered only as a last resort.
- Family-centered care principles: Incorporating family-centered care principles into pandemic response planning and ICU practices to better accommodate family needs and support family members’ psychological well-being. This aligns with the recommendations by Hart et al., who emphasize the importance of family-centered care during the COVID-19 era [15].
4.3. Proposal for Better Communications with Family Members
- Regular updates: ensuring that healthcare providers implement protocols that give consistent updates to family members, including explanations of medical decisions and care plans.
- Use of technology: facilitating virtual meetings and updates through secure video-conferencing platforms to maintain family involvement, even when physical presence is not possible.
- Empathetic communication training: providing training for healthcare staff on how to communicate effectively and empathetically with family members, especially in high-stress situations. Via-Clavero et al. highlight the importance of understanding critical care nurses’ beliefs regarding physical restraint use, which can inform communication strategies with family members [16].
- Family liaison roles: establishing dedicated roles to maintain communication with families while ensuring that their questions and concerns are addressed promptly.
4.4. Limitations
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
References
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Participant ID | Nationality | Loved One’s Relation to Participant | Age of Loved ONE | Diagnosis | ICU Unit | Discharge Status |
---|---|---|---|---|---|---|
P01 | Guyanese | Mother | 90 | Pulmonary Edema | IMCU | Transferred, Discharged to Home |
P02 | Ghanaian | Husband | 60 | Stroke | IMCU | Transferred to Nursing Home |
P03 | Cantonese | Mother | 63 | PNA due to COVID-19 | ICU | Deceased |
P04 | Hispanic | Sister | 57 | Acute Respiratory Failure due to COVID-19 | ICU | Deceased |
P05 | Bangladeshi | Father | 68 | ARDS due to COVID-19 | ICU | Deceased |
P06 | Bangladeshi | Father | 68 | ARDS due to COVID-19 | ICU | Deceased |
P07 | Black/Biracial | Mother | 65 | PNA | ICU | Deceased |
P08 | Bangladeshi | Father | 82 | STEMI ST Elevation/Myocardial Infarction | CCU | Discharged to Home |
P09 | Togolese/West African/Black | Mother | 81 | AV Block 2nd Degree | MICU | Recovered, Transferred to Step-down Unit |
P10 | Guyanese/ West Indian | Mother | 69 | Acute Respiratory Failure due to COVID-19 | IMCU | Deceased |
Theme Category | Themes | Essential Themes |
---|---|---|
Hospitalization Journey | Navigating the patient’s ICU stay and post-discharge period | Managing complex hospital care challenges throughout the continuum of hospital care |
Ethical Dilemmas | Restraint necessity vs. moral concerns | Ethical conflict regarding physical restraint use |
Communication Issues | Frustration with healthcare communication | Barriers in obtaining consistent information |
Perceived Control | Grappling with powerlessness during visitation restrictions | Lack of control and trust in healthcare providers |
Emotional Responses | Shock, helplessness, and anxiety | Emotional turmoil |
Connection and Support | Desire for physical and emotional closeness | Longing for connection |
Need for Transparency | Desire for honest communication | Need for transparency in healthcare decisions |
Participant ID | Reason for Restraint | Visit Type |
---|---|---|
P01 | Pulling at medical devices | Physical and Virtual |
P02 | Pulling at medical devices | Virtual |
P03 | Pulling at medical devices | Virtual |
P04 | Pulling at medical devices | Virtual |
P05 | Pulling at medical devices | Virtual |
P06 | Pulling at medical devices | Virtual |
P07 | Pulling at medical devices, trying to get out of bed | Virtual |
P08 | Pulling at medical devices | Virtual |
P09 | Pulling at medical devices | Physical |
P10 | Pulling at medical devices | Physical and Virtual |
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Flynch, M.; Frederickson, K. Disrupted Sensemaking—Understanding Family Experiences of Physical Restraints in ICU: A Phenomenological Approach in the Context of COVID-19. Healthcare 2024, 12, 1182. https://doi.org/10.3390/healthcare12121182
Flynch M, Frederickson K. Disrupted Sensemaking—Understanding Family Experiences of Physical Restraints in ICU: A Phenomenological Approach in the Context of COVID-19. Healthcare. 2024; 12(12):1182. https://doi.org/10.3390/healthcare12121182
Chicago/Turabian StyleFlynch, Michele, and Keville Frederickson. 2024. "Disrupted Sensemaking—Understanding Family Experiences of Physical Restraints in ICU: A Phenomenological Approach in the Context of COVID-19" Healthcare 12, no. 12: 1182. https://doi.org/10.3390/healthcare12121182
APA StyleFlynch, M., & Frederickson, K. (2024). Disrupted Sensemaking—Understanding Family Experiences of Physical Restraints in ICU: A Phenomenological Approach in the Context of COVID-19. Healthcare, 12(12), 1182. https://doi.org/10.3390/healthcare12121182