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Article

Learning and Well-Being in Educational Practices with Children and Adolescents Undergoing Cancer Treatment

by
Paulo Ricardo dos Santos
1,*,
Débora N. F. Barbosa
1,*,
Eduardo G. Azevedo Neto
2,
Jorge L. V. Barbosa
2,
Sérgio D. Correia
3,4 and
Valderi R. Q. Leithardt
3,4
1
Cultural Diversity and Social Inclusion Graduate Program, Feevale University, ERS-239, 2755, Novo Hamburgo 93525-075, Brazil
2
Applied Computing Graduate Program, University of Vale do Rio dos Sinos, Av. Unisinos 950, Bairro Cristo Rei, São Leopoldo 93022-750, Brazil
3
COPELABS, Universidade Lusófona de Humanidades e Tecnologias, 1749-024 Lisboa, Portugal
4
VALORIZA, Research Center for Endogenous Resources Valorization, Instituto Politécnico de Portalegre, 7300-555 Portalegre, Portugal
*
Authors to whom correspondence should be addressed.
Educ. Sci. 2021, 11(8), 442; https://doi.org/10.3390/educsci11080442
Submission received: 5 July 2021 / Revised: 30 July 2021 / Accepted: 13 August 2021 / Published: 18 August 2021
(This article belongs to the Special Issue ICT in Education Contexts of 21 Century)

Abstract

:
The use of information communication technologies (ICT) in education brings up new possibilities of promoting learning and health experiences. In this sense, education contexts of the 21st century must consider these two areas of knowledge, especially their integration. This article presents learning practices developed with mobile devices and games in order to improve learning and well-being in children and adolescents undergoing cancer treatment in a non-formal educational setting. The methodology is based on qualitative case studies with content-based data analyses, involving informal interviews and observation methods. The study considers data from five patients who participated in the research between 2015 and 2019. The results demonstrate a positive influence of the practices with mobile technologies and games in terms of learning and in the well-being experience of patients during the treatment.

1. Introduction

Digital technologies, such as computers, tablets, and smartphones, are used worldwide for the production and sharing of innovations in the social environment [1,2]. Besides influencing transformations in different sectors of industry and economy, technology is also present in the educational processes of young people and adults [3,4,5,6]. Technology in education involves both the teacher’s practices and the entire school organization to provide learning conditions for students [7]. With an appropriate methodology, mobile technology can be used in the learning of various subjects, from mandatory content in the school curriculum to subjects of general knowledge, such as health care and disease prevention [8,9].
Thus, in the area of health [10,11,12,13,14], there has been a growth in the development of applications and software with the purpose of contributing to the training and performance of doctors, nurses and health agents [15,16,17]. Technology, allied to health and education, can help the well-being and quality of life of subjects in different contexts, such as childhood cancer [17,18].
In this scenario, the research project entitled “Learning with Mobility” developed weekly workshops using mobile devices (tablets) and games in the learning practices of children and adolescents undergoing cancer treatment. The learning activities also involved their families. The Support Association in Oncopediatrics (AMO) (http://www.amocrianca.com.br/ (accessed on 30 June 2021)) was a partnership in this research. AMO is located in Novo Hamburgo, a city in the south of Brazil and assists children and adolescents with cancer and in vulnerable social situations. The patients, in general, have the need for accompaniment in school activities due to the periods of absence from school caused by the disease and the treatment. The research developed workshops, including mobile learning activities and moments of free use of tablets, joining learning and playing to promote education and well-being.
Therefore, this article presents how mobile learning practices and the use of appropriate digital resources have assisted in the learning process and well-being of subjects undergoing cancer treatment. The text addresses (a) the learning activities developed in the context of the research between 2015 and 2019, and (b) the profile of the patients who participated in the workshops, analyzing their learning process and the impact on their well-being.
The article is organized as follows. After the introduction, Section 2 presents the background, with emphasis on information about childhood cancer in Brazil and mobile learning. Section 3 approaches the materials and methods in which the methodology and the “Learning with Mobility” project are presented. Section 4 and Section 5 present the results and discuss them, considering the objective of this research. Finally, Section 6 addresses final considerations and future works.

2. Background

According to INCA (National Cancer Institute), Brazil reported around 13,000 new cases of childhood cancer in 2019, in addition to an approximate number of 3000 deaths as a result of the cancer disease. The treatment of childhood cancer is associated with other issues that need attention. The family goes through a restructuring of routines and organization to meet the needs of the cancer patient [19]. When dealing with the patient in treatment, one seeks to act on the problems that arise with the disease [20], such as physical pain and the psychological impact. Generally, the patient constantly suffers with malaise, social isolation, and stress. In addition, it is common for patients to have learning problems [21], which can be caused by periods of school absence, especially in the case of childhood cancer.
This scenario stimulates the research related to mobile learning practices and the use of appropriate digital resources in the learning process and well-being of subjects undergoing cancer treatment. According to Masini et al. [22], school performance is one of the dimensions of health-related quality of life in childhood.
The “Learning with Mobility” project considers learning and well-being to be important aspects for children and adolescents with cancer. Although patients are going through a difficult period, this project considers that the fun of digital games and the learning through pedagogical practices can help them with the disease, enabling good times and positive learning experiences, even during treatment.
Well-being involves subjective issues but the initial references of well-being are physical health, happiness and pleasure—synonymous with well-living [23,24,25]. Well-being encompasses several elements that should consider relevant aspects of children, such as health, safety, education and socialization. Therefore, education also influences well-being since it is an element that impacts the personal development of any citizen.
Learning strategies using technologies have the potential to improve the methods applied in education settings. In this sense, mobile and ubiquitous technologies have promoted learning strategies through mobile learning [26,27,28,29,30] and ubiquitous learning [31,32,33,34,35,36]. Since mobility enables learning to occur disassociated from fixed spaces, the practices with technology can be an alternative for those subjects who, due to health problems, cannot be present in a conventional classroom, such as children and adolescents undergoing cancer treatment. Thus, mobile and ubiquitous technologies can be used in the context of learning practices to improve learning strategies, potentially helping students’ scientific competences development and self-regulated learning [37]. The use of mobile learning strategies is also important in children’s physical activity, contributing to cognitive-motor skills and health [38].
During cancer treatment, the interest of patients is also related to their future. Therefore, for young people in cancer treatment, to continue learning and be in contact with the school routine is related to the future perspective. School represents an important social space for the child’s development. School withdrawal is a consequence of cancer that can cause problems and generate uncertainty in patients, which can produce harmful effects to their treatment [18]. By using technologies to learn, young people are again faced with the culture of which they are a part and with which they identify, contributing to their quality of life.
In addition to learning, technological resources can assist in the cancer treatment of patients in relation to aspects of well-being and quality of life [21,39]. It is important that, during cancer treatment, patients receive attention, and have moments of leisure, fun, and play, because the physical difficulty of performing these activities, in addition to periods of hospitalization, can affect their psycho-social development [40,41]. Currently, digital games have become the kind of games that young people like the most and with which they associate a pleasurable practice. It is perceived that playing a digital game is an action that makes the subjects feel interested and entertained with the challenges that arise in the games [21,42]. Thus, through games and apps, the patients divert their attention from the disease and start to have a positive experience at that moment.
The scope of mobile learning, childhood cancer, digital games, and educational practices is a emergent research theme in the Brazilian context. The research of Matos et al. [43] demonstrated that several types of digital technologies can be used and combined in the teaching–learning process, aiming at generating meaningful learning. However, the authors do not consider the context of health or oncology. The work of Brandao et al. [44] analyzed articles published between 2007 and 2017 related to health, reaching the conclusion that most of works dealt with the promotion and prevention of chronic diseases, mainly diabetes mellitus and obesity. Cunha et al. [17] reviewed articles that addressed the use of mobile applications in healthcare, not considering the educational context.
Santos et al. [45] presented pedagogical practices carried out in an oncology treatment support institution in the state of Bahia/Brazil. In this work, the researchers used desktop computers and patients developed the school content through online games. The results demonstrated that both children and adolescents are quite receptive to the use of games as the main means of teaching any subject [45]. This work did not use mobile tablet technologies, which enable outdoor dynamics, mobility, and various applications, among others.
Regarding the use of digital games as a resource to work on patients’ well-being and quality of life, Feitosa et al. [46] proposed a digital game for Android tablets, providing learning about the procedure that is necessary in cancer situations. The game also was used as a way to calm the child’s nervousness and tension [46].
Fernandes et al. [47] used a mobile application with augmented reality (AR) for use in the area of health education, more specifically considering the topic of neuroanatomy. The study concluded that the use of mobile technology seems to improve learning when used with other learning materials. Even though they have analyzed a specific mobile resource, the study is strategic to this research, as the authors also concluded the relevance of practices associated with learning technologies.
The project “Learning with Mobility” used games and mobile applications to work on reading, writing, and logical reasoning, proposing activities in which the subjects developed these skills while playing and having fun [21]. Regarding reading and writing, the project developed these aspects by discussing everyday life issues, such as the environment, sustainability, and literature, among others, and developing writing with applications that enable the production of different textual genres. In addition, the project used digital games in conjunction with writing activities in which subjects have to write short stories, give opinions about the games and mobile learning activities, and recount their experiences [48,49,50].

3. Materials and Methods

The Support Association in Oncopediatrics (AMO) assists children and teenagers with the vulnerable social situation of a cancer diagnosis. AMO offers a range of activities involving patients and their families, such as physiotherapy, social assistance, tutoring and computer. One of the main difficulties faced by those receiving assistance from AMO is that of keeping up with the school curriculum during and after periods of hospitalization or low immunity. In order to accomplish this, AMO relies on social assistance and a pedagogical educator. They are responsible for the communication between schools and patients for the development of school activities. In addition, they also inform researchers about the school demand of each patient who participates in the workshops. The research team collaborates with AMO’s educators to follow the progress of the patients. Thus, the workshops within the “Learning with Mobility” project took place weekly at AMO, in a room available for the project, where tablets and internet access via Wi-Fi were available. The research developed learning activities, using mobile devices (tablets) to improve the linguistic development and logical reasoning of children and adolescents between 8 and 16 years of age. Learning activities were planned to last 1 or 2 meetings, although the general theme lasted the whole semester.
The methodology is characterized as action research with qualitative data analysis [51]. As a technique of qualitative analysis, the project used a variant of the “Life History” method called “Edited Life History”, which is characterized as a method of interpretation. In this sense, the researcher provided sociological explanations and made comments and questions related to the material collected. From this method, the project considered the comments of the patients and took into account the observations of the researchers to analyze how the subjects participated in the workshops. The research also selected and organized mobile apps to be applied in learning practices [6,52].
The project was developed from 2015 to 2019, involving 11 patients undergoing cancer treatment. The names of the subjects were omitted, in order to preserve their social integrity, using the term “Patient” (for example, Patient 1, Patient 2, and so on) in the charts and analyses. Due to the treatment process, disease progression and difficulties of travel of some patients to the AMO to participate in the workshops, not all 11 patients could be present in all workshops during the research period. Furthermore, among the total number of participating patients, 3 passed away during the research period. The analysis of how mobile learning practices and the use of digital resources have helped in the process of learning and well-being depends on the regularity of participation in the workshops, as well as on the year of participation of the patients. Therefore, the following criteria were established for the selection of patients who would participate in the study: patients who attended at least 4 consecutive workshops (1 month) and patients who participated as much as possible in the project considering the year, covering the practices developed throughout the entire survey period.
Therefore, cases discussed in this research analyzed data from 5 patients who met the established criteria. Section 4 discusses the results and describes the profiles of these patients, including their age, school year and type of cancer. The learning practices and digital resources used during workshops considered the following aspects:
(a)
“Learning” aspect: the practices should work on logical reasoning and linguistic development, through activities that develop critical thinking, problem solving, writing and reading texts, use of educational digital games, discussion of various subjects, among others;
(b)
“Well-being/Quality of life” aspect: the practices should promote the patients’ well-being through activities and games that were also playful, fun, challenging, and interactive. In addition, patients could also choose games during the learning process.
To carry out the workshops, the research used mobile devices with Android system. In them, besides the original system resources, the applications from the Google Playstore were selected by researchers or by students, who also had freedom to test games and applications.
Three elements were considered in the Learning aspect: reading, writing, and logical thinking. Digital games are an excellent way to develop logical thinking skills. A game constantly demands an active, quick, and accurate response in solving the problems and challenges that arise. Regarding reading and writing, the use of tablets becomes a means to develop these basic skills, as verbal language is a constant element of digital games and apps [53].
In relation to the characteristics of technological resources that can influence the well-being aspect, the elements of fun, interactivity, connectivity, identification, accessibility, and adaptability were considered. All these elements were analyzed in relation to how or how much the use of mobile devices, applications, digital games, and pedagogical practices provided the elements. In the fun aspect, it was perceived that for the patient undergoing cancer treatment, the pleasure generated by playing games using a tablet contributes to ease the stress and stigmas of the disease [3,18]. As for interactivity, interaction via tablet is constant and fast, and information is received and sent automatically. By swiping a window with one touch, another opens behind it; by holding an app, one can move it; to open the app, one simply touches the screen. For patients, this helps to stay focused and motivated on their activities.
The third aspect is connectivity. With a mobile device and access to the internet, the user can interact with other people and with the information available in cyberspace [2]. The fourth aspect is identification. Children and adolescents like to use tablets because they identify with the habit of playing digital games and using internet resources, which are elements of their culture and generation. The fifth aspect is accessibility. Tablet PCs have functions and resources adapted to the user’s needs, such as font size and text insertion by voice command, among others. The sixth aspect is adaptability. Applications and resources can be adapted and selected, according to what the user needs to do or learn.

4. Results

This section describes the workshops and analysis the results, mainly considering five specific cases of patients.

4.1. Conducting the Workshops

In 2015, the project developed two different themes. In the first semester, the practices with technology focused on developing the theme “identity and history”. Through the use of such applications as Supernote (writing text notes) and Comic Strip IT (production of comics), among others, subjects were encouraged to tell their personal stories and record their routine in the format of a diary in comics. In the second semester, the project focused on linguistic development through the creation of short stories, writing them in the Evernote application, which allowed students to organize the texts in virtual notebooks, being able to share them virtually with other people. A total of 5 children and adolescents participated in the workshops, including Patient 1 (9 years old, 3rd grade, leukemia). This patient was in a controlled stage of the disease and participated in almost every workshop of the year. Figure 1 shows a textual production in Evernote created from the inspiration of the games that this subject used. This activity also developed a textual structure chosen for providing patients with the expression of their interests on various topics, such as music, game characters and hobbies.
In 2016, in the first semester, the project developed logical reasoning and computational thinking through the Code.org initiative. Figure 2 shows an activity involving Code.org programming. This tool presents key programming concepts, using a game-based perspective. Therefore, during the activity, they developed reasoning skills while programming in a playful way.
In parallel, the project carried out reading and writing practices. In this case, the participants produced short stories about digital games, written in the Evernote application, inspired by the games they were playing. In the second semester, the project worked on a role-playing game (RPG) created by researchers. For this, students used the Google Docs application to write the story. Figure 3 presents the patients using tablets in RPG activities. Students created their own characters for the RPG and wrote a story based on their point of view. They also had to develop activities involving drawing, speaking, and writing. For this, they used the AMO spaces to produce photos and videos to be included in their stories.
This year, 3 patients and 2 family members participated in the workshops. The same patient from the previous year, Patient 1 (now 10 years old, 4th grade, leukemia), kept attending workshops and participated in almost all meetings. Patient 2 (16 years old, 6th grade, malignant neoplasm) was able to attend most of the meetings throughout the year. Patient 3 (11 years old, 5th grade, osteochondromatose) participated in a few workshops during the period.
During 2017, the project developed the theme “sustainability of water resources”. The learning activities involved debates, readings, writing various texts, and using games, all related to the discussion on the sustainable use of water. Among the main resources used, the game WaterGeneration ( http://games.feevale.br/loa/watergenerations/ (accessed on 30 June 2021)) stands out. In this game, the player must help a family to improve the infrastructure of their home so that water is not wasted. This game was developed by the research team and addressed more specific gameplay focused on the needs of patients, such as control buttons, layout and text message. Figure 4 shows the participants playing the game.
This year, the project had a total of four patients in which only Patient 1 (now 11 years old, 5th grade, leukemia) participated in all workshops. Among the others, Patient 4 (12 years old, 7th grade, osteosarcoma) participated in some workshops, attending sporadically. Patient 6 (15 years old, 10th grade, craniopharyngioma) participated in only one meeting, due to the advanced stage of the disease. Patient 5 (17 years old, 10th grade, osteosarcoma) was able to attend four meetings, but had to be absent during treatment because the stage of the disease.
In 2018, the project worked with the theme “identity and personal history”, discussing with the subjects such issues as personal tastes, routine, dreams, and interests, among others. For this, they wrote micro-stories. The main resources used were applications, such as Google Docs (writing), Autodesk Sketchbook (drawings) and Google Classroom, as a virtual classroom space for collaboration and information sharing. Figure 5 shows a group working with micro-stories about the digital theme proposed.
This year, a total of seven children and adolescents participated in the workshops. As in the previous year, Patient 1 participated in all workshops. Patient 7 (6 years old, 1st grade, sacral teratoma) attended one workshop. Patient 4 (now 13 years old, 8th grade, osteosarcoma) was only at the first meeting and attended with his sister.
In 2019, the project worked with diverse activities for a few months; in the second semester, participants developed the project “Guardians of the Waters—An RPG adventure”. This activity used the logic of narrative and decision making of a role-playing game, such as support for the activities about the digital game called Guardians of the Waters [54], which deals with issues related to environmental sanitation and water preservation. Figure 6 shows the patients doing the activities during the workshop.
In this year, a total of seven children participated. Patient 10 (5 years old, kindergarten, malignant neoplasm of supra renal gland) participated in all workshops. Patient 11 (6 years old, 1st grade, E.S medulloblastoma) attended one workshop. Patient 8 (13 years old, 4th grade, H.S. leukemia) started to participate after some months. Patient 9 (7 years old, 2nd grade, craniopharyngioma) participated in several meetings at the beginning of the year but had to be absent during the semester due to surgery.
During all workshops, participants also used the mobile application to search for information and to capture and manipulate images. Sometimes they also used email to share their productions with colleagues. Table 1 presents a summary of the main learning activities, objectives and technologies used in the research.

4.2. Analysis of the Results

As not all patients were able to participate for long periods of time, cases were selected according to the selection criteria indicated in Section 3. Therefore, the study considered data from five patients, which allowed a specific assessment of their educational contexts, their responses to the practices and the improvement allowed in their learning practices.
Each case is presented based on a qualitative analysis of the data and reports based on the “edited life history” method, where subjective experiences of certain situations are analyzed to understand [51] how educational practices with mobility and digital resources assist in the learning process and well-being of subjects in oncological treatment.
The materials produced by the patients during the workshops were analyzed within the context of the proposed projects, in addition to the interviews conducted and the observation journal of the workshops developed by the researchers. From the analysis of the various materials produced, at the end of each project, it was established for each patient to analyze whether the proposed objectives were met. For two patients, the study presents interviews that were addressed, considering the following questions:
  • Do you think that the workshops are helping you to better understand the contents worked on at school?
  • What did you most enjoy learning and doing in the workshops?
  • Do you feel that the workshops help you at school? Why?
  • For you, is learning using games interesting? Why or why not?
  • How do you feel about accessing game networks to learn new subjects or remember content you have already seen in school? Why or why not?
All five patients whose data were analyzed lived in a situation of social vulnerability and constituted low-income families. All of them studied in public schools, and the cancer treatment was carried out in a public health network. They also did not have access to a computer or tablet at home or at school. At home, they generally had access to the smartphone used by their parents, which they usually used for entertainment or to access the internet. Therefore, the workshops were the moment when they had contact with technology and used it in a learning practice and for fun.
The following subsections describe the five cases considered in the research.

4.2.1. Patient 1 (Case A)

The first case is a girl who participated in the workshops from 2015 to 2018, totaling four years of engagement in the research. Despite being in a school year appropriate for her age group, the young girl had learning difficulties, related mainly to grammatical issues, such as spelling, punctuation, and phonemic–graphemic correspondence, among others. Throughout each semester, reading and writing were worked through text production in applications, such as Google Docs, Evernote and Supernote. These activities helped her to improve the texts since the adaptability of mobile devices allowed an adequate selection of the resources needed to develop writing.
She highlighted in answers how the Code.org game contributed to the development of her logical thinking, citing that the games and applications helped her to review the contents and learn meaningful things (Table 2).

4.2.2. Patient 2 (Case B)

This patient attended 20 of the 34 meetings held in 2016. Patient 2 participated, mainly, in the logical thinking from games of the Code.org and writing micro-stories with Evernote application. During the workshops, the patient mitigated his difficulties and the technological resources motivated his learning, as the subject himself highlights in his answers (Table 3).
The fun factor is also seen in Patient 2’s answers, as he mentioned that he is “distracted by the game”. In addition, the relevance of connectivity can also be seen, as when playing with other users he felt motivated to achieve better results, compared to what other players are able to do. In addition, Patient 2 also revealed during the workshop that the Code.org game promoted a pleasant learning experience: “With CODE I learned better what is right and left, what are degrees and what are they for. I learned how to think faster and how to solve mathematical problems more efficiently”.

4.2.3. Patient 5 (Case C)

The following case is of a boy who participated in four workshops in 2017. This patient was 17 years old. Although the project on “sustainability of water resources” was already being developed since the beginning of the year, the game Generation Water was used to insert him in the discussions of the theme.
During the period in which he participated in the project, and even though he was undergoing treatment, this patient made an effort to contribute to the most focused activities in addition to exploring the features of tablets and enjoying a moment of fun. The experience provided him with a fun and learning time, discussing important knowledge for his life. Therefore, the workshops also acted as palliative care, favoring his well-being, regardless of the outcome of the treatment.

4.2.4. Patient 8 (Case D)

The following case is of a 13-year-old boy who participated in the workshops in 2019. He was away from school and stagnant in the 4th grade (repeating school), with learning difficulties prior to the disease. This patient was very shy and had difficulty in staying together with others. However, when he explored the tablets and discovered new applications and games, he was motivated to participate and interact. In this case, the tablet was an object of identification and with the right incentives, it was possible for him to experience fun and learning.
The interactivity, connectivity and fun aspects of mobile devices started to positively influence his well-being, as his behavior in the workshops gradually changed. This patient used the YouTube® to record videos about the games. For him, being a content creator was a way to overcome the difficulties of the disease.
In the activity in which they needed to imagine a “slumber night” theme party and create invitation cards using a suitable application, Patient 8 produced his card with a lot of motivation, because he was able to choose the theme of “Mortal Kombat Games”. In this association between the game that interested him and writing, it was possible to observe how he made an effort to participate in the practice and produce his text. Thus, the games motivated his learning because, even while away from school, he was able to continue developing his writing and reading activities. During the workshops, the researchers also helped him with his grammatical difficulties (punctuation and spelling).

4.2.5. Patient 9 (Case E)

The participation of Patient 9 involved playing the game called “The Amazing Adventures of Apollo and Rosetta in Space” (http://games.feevale.br/loa/home/jogos/apollorosetta.html (accessed on 30 June 2021)), which develops the control of executive functions. In this case, the player needs to think when acting and does not make decisions driven by impulses. Adaptability and accessibility were important, as the game helped to work on the motor issues with which Patient 9 was having difficulties, due to the disease.
A game called “Pizza Maker” provided a fun experience and allowed him to develop logical thinking correctly by following the steps of producing a pizza, according to the ingredients ordered by the customers, and reading since the instructions were given through text, contributing to his learning. The movements that he needed to make to play the game were adequate for his physical limitations (accessibility), demanding simple movements, such as touching the tablet screen, and holding and dragging objects through the game scenario. Through the adaptability of tablets, the group selected games that were suitable for the patient, promoting learning and fun at the same time.
Patient 9 also completed word reading activities with QR CODES. The researchers also took care to display the applications and games in a larger size because his vision was slightly impaired. So, the accessibility of the tablets was an important aspect at this moment. After about 30 min of activities, Patient 9 generally began to complain of fatigue and asked to walk a bit, showing signs of pain and fatigue.

5. Discussion

The main difficulty in this research was following the patients on a regular basis for a long period of time. As the subjects can be in different phases of treatment, some patients were able to participate in the workshops for a short time, or not regularly. Regardless of which period in which patients attended, on the day of their participation, they were able to participate in the discussions, play a game, use an application, and learn something, and they also had moments of fun, even if they participated only in one workshop.
The practices with technological resources positively influenced the learning of Patient 1, especially in relation to writing, which was one of the main difficulties of the patient. There was also observed an improvement in their well-being since their delay in studies compared to other schoolmates was being attenuated. This information was reported by the patient’s parents, who emphasized the importance of the workshops for the patient’s development. Moreover, regarding the characteristics of the tablets, the influence of the fun aspect could be noticed since, in her statement, the patient mentioned that the act of playing and learning at the same time makes learning interesting. Patient 1 was discharged from the AMO in 2019, after the end of the 6-month period after clinical discharge.
For Patient 2, the games were resources that contributed to his quality of life through the learning and logical thinking that they provided. In addition, there was a contribution to his well-being since the playful and interactive aspects of the games were important for the subject, who was away from school and interacted with other subjects during the workshops. Unfortunately, this patient could not return to the workshops and passed away during the following year.
Based on the report about the participation of Patient 5, even though he participated in few workshops, it is clear that the practices with technological resources contributed mainly to his learning, because the game “Generation Water” allowed the patient to make connections with his reality and build knowledge, sharing his reflections with colleagues and actively contributing to debates and discussions.
The workshops also influenced his well-being since the practice of the game opened a space for the subject to receive attention from colleagues and positive feedback about his ideas. This patient was in a delicate stage of treatment and had to leave after a few workshops, passing away the following year.
Regarding Patient 8, the practices contributed to learning thanks to activities that involved the association with games, mainly writing texts, research in the playstore and storytelling. In addition, the resources contributed to the improvement of the subject’s well-being due to the aspects of fun, interactivity, identification, and connectivity, which kept the patient motivated to interact with his peers, express his opinion, and share things he liked. For Patient 8, the workshops allowed a socialization environment where he enjoyed being, participating in something good and positive. Patient 8 was in a controlled stage of the disease.
In the case of Patient 9, the workshops contributed mainly to his well-being, as they provided a pleasant experience, contributing to his quality of life. The accessibility of the applications, allied with the adaptability of selecting those that best developed his cognitive and motor skills, made it easier for him to enjoy the workshops. The patient played games, developed reading and logical thinking skills, interacted with peers and played fun games, which were moments in which the difficulties caused by the disease were not a barrier for him to have happy experiences, and he was able to concentrate on something he liked, like any other child.
Considering the results of the analyzed patients, this study is close to the work proposed by Matos et al. [43]. However, the authors do not consider the context of health or oncology. Santos et al. [45] developed pedagogical practices, using desktop computers and online games, demonstrating that the use of games in the learning practices improves patient learning. However, the work does not consider the use of mobile devices, different learning practices and the context of well-being. On the other hand, Feitosa et al. [46] considered well-being and quality of life, using games. The focus of this work is to calm the child’s nervousness and tension during cancer treatment procedures. Considering these aspects, the main contribution of the “Learning with Mobility” project is to apply mobile learning technologies and games in order to improve the learning and well-being of children and adolescents undergoing cancer treatment in a non-formal educational setting.

6. Final Remarks

This work presented learning practices and appropriate digital resources to assist in the learning process and well-being of children and adolescents undergoing cancer treatment. The analysis of data from the five patients allowed the verification that the practices of the workshops favored the subjects’ learning and well-being, resulting in benefits for their quality of life. The findings of this research are restricted to five specific case studies and cannot be generalized to the entire community. The five subjects that participated in the study felt motivated and interested in participating in the practices, engaging both in the interaction through the tablets and in the production of the activities. In addition, patients who were away from school could have their learning problems alleviated, as they developed writing, reading, and logical thinking in practices in which playing was associated with learning. Considering the context of this research, the results showed that the integration of digital games and applications with pedagogical practices motivates young people to participate in the meetings.
This research contributed to the knowledge related to the use of technological resources in the learning of young patients undergoing cancer treatment. The results will allow the project to continue improving educational practices in search of a learning experience that meets the needs of school-age youth who, due to illness, face problems of personal, social and educational development. In this sense, the research aims to allow them to continue learning using technological resources with appropriate methodologies. The “Learning with Mobility” project is currently ongoing, in the same general scenario described in this article, but with new approaches and practices guided by the restrictions imposed by the COVID-19 pandemic. These results will be presented in future articles. Future works should involve a greater number of subjects in the research, allowing the generalization of the study results. In this sense, the remote workshop modality has allowed greater engagement of the participants, as it reduces the problem of traveling to the AMO. Furthermore, most current patients are involved in more stable phases of cancer treatment.
Finally, in recent years, Ambient Intelligence [55] and Smart Environments [56] have used time series of Contexts [57] to organize and analyze data. This type of data organization is called Context Histories [58,59,60,61]. Future work will explore the use of Context Histories to organize the data produced during the workshops, allowing the use of these data to include intelligence in patient care environments. In this sense, the project will explore advanced data analysis strategies, such as pattern analysis [62], context prediction [63], learning analytics [64,65], and similarity analysis [66,67]. These strategies for handling context histories will be applied in the analysis of project data, mainly enabling prediction, personalization and content recommendation to improve the user experience.

Author Contributions

Conceptualization, P.R.d.S., D.N.F.B. and J.L.V.B.; investigation, D.N.F.B. and J.L.V.B.; methodology, P.R.d.S., D.N.F.B. and J.L.V.B.; software, E.G.A.N.; project administration, J.L.V.B., S.D.C., V.R.Q.L. and D.N.F.B.; supervision, J.L.V.B.; validation, P.R.d.S., D.N.F.B., E.G.A.N. and J.L.V.B.; writing—original draft, E.G.A.N., D.N.F.B., P.R.d.S. and J.L.V.B.; writing—review and editing, J.L.V.B., V.R.Q.L. and S.D.C.; financial, V.R.Q.L. and S.D.C. All authors have read and agreed to the published version of the manuscript.

Funding

This work was supported by national funds through the Fundação para a Ciência e a Tecnologia, I.P. (Portuguese Foundation for Science and Technology) by the project UIDB/05064/2020 (VALORIZA—Research Centre for Endogenous Resource Valorization) and it was partially supported by Fundação para a Ciência e a Tecnologia under Project UIDB/04111/2020, and ILIND—Instituto Lusófono de Investigação e Desenvolvimento, under projects COFAC/ILIND/COPELABS/ 1/2020 and COFAC/ILIND/COPELABS/3/2020.

Institutional Review Board Statement

Not applicable.

Informed Consent Statement

This project had the ethical approval of the Ethical Committee of the Feevale University (registry number CAAE: 57192416.5.0000.5348).

Data Availability Statement

Not applicable.

Acknowledgments

The authors would like to thank the University of Vale do Rio dos Sinos (Unisinos), the Applied Computing Graduate Program (PPGCA), the Mobile Computing Laboratory (Mobilab), the Research Support Foundation of the State of Rio Grande do Sul (FAPERGS), the National Development Council Scientific and Technological (CNPq), and the Coordination for the Improvement of Higher Education Personnel—Brazil (CAPES)—Code Funding 001.

Conflicts of Interest

The authors declare no conflict of interest.

Abbreviations

The following abbreviations are used in this manuscript:
AMOThe Support Association in Oncopediatrics
ICTInformation Communication Technologies
INCANational Cancer Institute
RPGRole-Playing Game

References

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Figure 1. Writing in Evernote (text is the original, in Portuguese).
Figure 1. Writing in Evernote (text is the original, in Portuguese).
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Figure 2. Activities involving Code.org game programming.
Figure 2. Activities involving Code.org game programming.
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Figure 3. Examples of the RPG activity using tablet PCs.
Figure 3. Examples of the RPG activity using tablet PCs.
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Figure 4. Water generation game.
Figure 4. Water generation game.
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Figure 5. Production of micro-stories using writing editor.
Figure 5. Production of micro-stories using writing editor.
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Figure 6. Playing games.
Figure 6. Playing games.
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Table 1. Summary of activities carried out between 2015 and 2019.
Table 1. Summary of activities carried out between 2015 and 2019.
YearMain Learning
Activities
Learn GoalsMain
Applications
2015Searching about
identity and history.
To think and to learn
more about their own
identity using technology.
Linguistic development
through the creation of
comics and short stories.
To develop logical
reasoning.
Comic Strip IT.
Supernote.
Evernote.
2016Developing logical
programming using
code.org.
Producing stories about
digital games and RPGs.
Playing RPGs with
mobile devices.
To develop logical
reasoning and
computational thinking.
Linguistic development
through the creation of
short stories.
Code.org.
Google Docs.
Evernote.
Qr.Code Reader.
2017Developing debates,
readings, texts, and use
of games related to
the sustainable use of
water.
To develop the theme
“sustainability of water
resources”.
Water Generation
game.
Google Docs.
Google Chrome.
2018Writing micro-stories with
the theme “identity and
personal history”,
discussing about personal
tastes, routine, dreams,
interests, among others.
To develop logical
reasoning.
Linguistic
development through
the creation of
micro-stories.
Google Docs.
Autodesk
Sketchbook.
Google Classroom.
2019Free activities involving
reading and writing with
tablets.
Playing the project
“Guardians of the Waters
An RPG Adventure” with
mobile devices
To think about
environmental
sanitation and
water preservation.
To develop logical
reasoning and
decision making.
Linguistic
development
through role-playing
activities
Guardians of the
Waters game.
Free app to
write text.
Table 2. Patient 1 (Case A)—Answers taken from questionnaire.
Table 2. Patient 1 (Case A)—Answers taken from questionnaire.
QuestionResponse
1Yes, because they worked on about commas and writing, helping me in
the school.
2Code.org, I enjoyed learning the right and left turn phases and the writing
parts as it helped me to write faster.
3Yes, because in the workshops I learn not to confuse letters like “C” and “S”
and so I do better in school.
4Yes, because we can play and learn at the same time.
5Cool, because we can review content that we didn’t see right at school.
Table 3. Patient 2 (Case B)—Answers taken from questionnaire.
Table 3. Patient 2 (Case B)—Answers taken from questionnaire.
QuestionPatient Response
1Yes, because the Code.org game helps to learn some things like left and right.
2Play Code.org
3Yes, I started to pay more attention in class, because in games we have to
pay attention to do it right.
4Yes, we learn while being distracted by the game.
5It is very cool, because I like to compare the results and be the best.
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MDPI and ACS Style

dos Santos, P.R.; Barbosa, D.N.F.; Neto, E.G.A.; Barbosa, J.L.V.; Correia, S.D.; Leithardt, V.R.Q. Learning and Well-Being in Educational Practices with Children and Adolescents Undergoing Cancer Treatment. Educ. Sci. 2021, 11, 442. https://doi.org/10.3390/educsci11080442

AMA Style

dos Santos PR, Barbosa DNF, Neto EGA, Barbosa JLV, Correia SD, Leithardt VRQ. Learning and Well-Being in Educational Practices with Children and Adolescents Undergoing Cancer Treatment. Education Sciences. 2021; 11(8):442. https://doi.org/10.3390/educsci11080442

Chicago/Turabian Style

dos Santos, Paulo Ricardo, Débora N. F. Barbosa, Eduardo G. Azevedo Neto, Jorge L. V. Barbosa, Sérgio D. Correia, and Valderi R. Q. Leithardt. 2021. "Learning and Well-Being in Educational Practices with Children and Adolescents Undergoing Cancer Treatment" Education Sciences 11, no. 8: 442. https://doi.org/10.3390/educsci11080442

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