3.1. Parents’ Perspectives
While the children of both caregivers interviewed were diagnosed with SEN at different points in their lives (one was diagnosed in kindergarten, the other was diagnosed during the transition from kindergarten to compulsory schooling), and therefore faced different challenges and expressed different concerns, the analysis did show some overarching categories. This concerned (1) the (diagnosis of) SEN, (2) the selection of kindergarten/school as parental responsibility, and (3) worries about the future, which are detailed in the following sections.
3.1.1. Diagnosis Process
The interviewed parents have a child with a diagnosed SEN, and both fled, with their children, to Austria in the course of the forced migration movement around 2015. While the diagnosis of SEN and the long way there played a big role in the interview with P1, whose daughter was about two years old when she first consulted with clinical professionals for a diagnosis, the process of the SEN diagnosis of P2′s son seemed to happen quite fast.
As the kindergarten places were fully booked and only the last year of kindergarten is compulsory in Austria, P1 remembered talking to an educator beforehand and expressed her fear of her daughter not being “like the other kids” (P1, L 86). She further elaborated that her daughter was nonverbal back then and that, according to P1, she was not very independent. She also stressed her fear of “not knowing what to do with her” (P1, L 91). P1 felt lucky to get a place in kindergarten for her daughter when she was two years old “despite her difficulties” (P1, L 97) and stressed “I don’t know how other families can do that, maybe it’s even harder” (P1, L 102–103).
When her daughter started kindergarten, P1 took her to several doctors and psychologists, after which it took about one and a half years before she finally received the diagnosis of autism spectrum disorder (ASD). The meantime consisted of waiting and her belief that things were not supposed to take this long, as P1 intended to give her daughter better support than she had previously been able to, and wanted to know what to do, which steps to take, and how to further encourage her development. P1 also expressed that if she had been gainfully employed or wealthier, she would have paid privately for quicker appointments with specialists instead of waiting for the regular appointments granted by regular health insurance, which points to another aspect of how her forced migration background impacted the situation. During this time, her main focus of attention centered around taking care of her daughter, with no time left to work outside the home, attend German classes, or engage in other activities:
“I wanted it faster, faster, my daughter—I had to do something for her, but later I noticed, that I can do a lot for her. That she needs my love and support, not only the doctors, they can’t do everything ... and I haven’t taken a German course, I was at home with her for two years, without course, without anything”.
(P1, L 444–449)
Here, P1 stressed her change of perspective, and also provided insight into the hardship she put up with over the years. According to P1, one of the main problems delaying the diagnosis was that ASD is not usually diagnosed for children under three years of age and that there were not enough available appointments that prioritized older kids. P1 described it as a “shock” (P1, L 444) and expressed her sadness about it.
P2′s son was diagnosed with a complex disability during the transition from kindergarten to compulsory schooling, when she received the school authority’s “administrative decision” (P2, L 146). P2 explained that, in the last year of kindergarten, there was a conference regarding her son and the principal decided that her son would not be allowed to continue on to primary school. Even if this decision was guided by a conversation with P2 and several other people, P2 did not fully understand the decision. In the interview, she expressed her feelings in the following way:
“He had to go to a special education school. (...) It’s for kids with physical problems and this was really bad for me. I had, mhm, really, when this principal said that he had to go to that school. Because this school was just for kids, like a hospital, the kids couldn’t do anything (...). And I already talked to a friend of mine. (...) Because my son speaks Arabic really well and he can understand. Why does he, my son, have to go to this school?”.
(P2, L 160–174)
Later on in the interview, P2 said that she “accepted” special schooling (P2, L 269), but not the selection of this specific hospital-like school. P1 and P2 both expressed acceptance of the diagnosis, which sounded more like giving up. For most of the interview, it seemed as if P1 had impatiently awaited the diagnosis and welcomed it in order to access better support for her daughter’s development and also her educational pathway/career. Yet, some parts also showed ambivalence in the process of accepting a child with SEN, which did not seem completed at the time of the interview: “She is learning, but slower but-, yes, good” (P1, L 454–455).
Some lines could even be read as doubt of the future need of the SEN diagnosis, “sometimes I say she is ok, she is normal, well, she is like other children, she, she, it is like, these conflicts…. For me it was hard. Well (sighs) but yes” (P1, L 460–462). Briefly, after that, “there were times when I could not talk about my daughter in this way, or I would cry” (P1, L 470/474).
3.1.2. (Pre)school Selection as an Individual/Parental Responsibility
When talking about the school first assigned, P2 always talked of it as hospital-like and came up with a new category of schools when she said. “at first it was really bad for me, because it is, the first school was like a hospital, only like a hospital. Not normal or like a special education school” (P2, L 185–186). The school, according to P2, neither fit her description of a regular school, nor a special education school.
Several times, P2 talked about this hospital-like school before she went on to explain that she managed, with the help of a friend, to get authorization for her son to attend another special education school between the administrative decision and the start of the school year, so that her son did not have to go there in the first place, “I accepted it [special education school], I accepted it. But I haven’t accepted a school like a hospital. (...) I was sure it doesn’t fit my son’s needs” (P2, L 269–273/310). According to P2, a friend of hers helped her find a school more fitting to her son. She described previously having a “bad feeling” (P2, L 302) and also being “unsatisfied” (P2, L 298). When asked whether there was just one school up for selection or a range of schools, P2 replied that there was this administrative decision by the school authorities, “because the, the principal said, isn’t, my son isn’t allowed to go to a primary school” (P2, L 155–156). One interpretation of this interview sequence is that the reason for SEN was not properly explained to P2 (as she referred to the administrative decision and the principal’s decision only), and also that there was not a wide range of opportunities (such as various options for several schools, counseling, etc.). P2 said that a friend had helped her to get her son into another school, which included visiting a school looking for a better option, accompanying her to the meeting with the principal, and helping with getting the authorization for the new school. Due to P2′s initiative, the re-selection of the school took place in the summer before the child started school, and therefore he did not have to change settings, school surroundings, or friends later on.
When elaborating on the selection process, P2 also mentioned that she was interested in some private schools. One of them, which she found especially fitting, would have cost about 500 euros a month, which is why she could not further consider it.
Receiving the diagnosis was required in order to request an additional educator skilled in autism spectrum disorder and with the knowledge on how to ideally support autistic children. Better support and looking for answers were some of the reasons why P1 kept in touch with specialists for a long time before the diagnosis was made. When the proposal for an additional educator was denied by the municipality, P1 organized a special educator for three hours a week at her own expense.
According to P1, the regular kindergarten, even with the additional educator, did not fit her daughter’s needs. P1 justified the change of kindergarten, which is about to take place in the near future, by talking to “parents of kids, acquaintances, Austrian acquaintances” (P1, L 186–187), and family friends and expressed finding “it” (L 187) very hard as she saw herself of not having enough experience. The sequence in the interview itself does not give clear information about what the difficulty was. Referring to “it” as a difficult experience, P1 could either mean (1) talking to family friends, (2) deciding to change the kindergarten, or (3) the selection of the kindergarten in particular. Interpretation one, reading the phrase as if the conversation itself were difficult, could show the stigma of a SEN diagnosis. As there is no indication in this sentence of her friends being Austrian or Syrian (in the passage mentioned above she is explicitly referring to her Austrian acquaintances), interpretations about the cultural differences of seeing the diagnosis/disability as stigma cannot be made. If interpretation two or three are taken into consideration, they could show the need for (further) institutional counseling when it comes to the selection of the kindergarten and/or an educational expert to help guide life-impacting decisions like these. Additionally, a change of residence in Vienna led to the daily commute to the former kindergarten becoming unreasonably long. Due to these reasons, P1 was looking for a change in kindergarten for her daughter and decided on a kindergarten for children with special needs. According to P1, a regular kindergarten would not fit her daughter’s needs as “she wears diapers, [and] she speaks even less” (P1, L 290).
Looking for guidance, P1 asked an educational expert at a center for child development,
“And she was examining my daughter and decided that therapy, child development therapy, she decided that this is better for her. And I don’t have that much experience in Austria. I can’t decide. I tried it with a regular kindergarten but she is developing very very little”.
(P1, L 314–320)
As P1 is fond of inclusive (pre)schools, which she expressed a few times, she chose a kindergarten where the kids are “mixed” (P1, L 235), at least in the afternoon. However, this option is only available to gainfully employed parents, which currently does not apply to P1. She is hoping to find a job soon in order to apply for the inclusive setting.
3.1.3. Worries about the Future of the Child
Worries concerning the past were also intermingled with the categories described above. Worries about the future, however, were expressed from both caregivers and seemed to be of utter importance.
P1 cared intensively for her daughter over the last years and also endured some privation to accommodate her daughter’s needs, “My whole time was for her and (sighs), yes, well, it is, she is ok, she is singing, she is dancing, she is learning, but slower but-, yes, good” (P1, L 454–455). While finding a job was personally important for P1 as well as in order to get her daughter admitted to a more inclusive setting in kindergarten, P1 also worried about whether she would be able to take care of her daughter (e.g., taking her to school) once she was employed, “yes there is a bus. And I, I can’t imagine how I can work later” (P1, L 252–253). Spending most of her time caring for her daughter over the past couple of years had impacted P1′s thinking about a future where this might collide with the wish for a job.
As mentioned earlier, P1 is currently not employed. As her Syrian teacher training is not fully recognized in Austria, P1 is currently in requalification training and aims to work as a secondary school teacher soon. P1′s requalification measures also impacted the process of the SEN diagnosis and later the decision on the kindergarten, according to her,
“The certificate courses really helped me a lot (...) and I had experiences with topics, which concern me personally. About forced migration, about kids, about intersectionality, about such things. I experienced it a lot and in the school where I am doing my internship right now, there are such kids (...) this gave me the feeling my daughter will go to a normal school later. A good feeling”.
(P1, L 474–483, 487, 495)
P2 also stressed how worried she is about her son’s future, “I always ask myself that, for example, What can my son do in the future? Because I am afraid, really, about the future of my son” (P2, L 499–501). Furthermore, she stresses a dilemma, which pupils with disability in Austria currently face,
“Yes, these kids need to be independent in the future. Not for example, when my son is 14 years old, staying at home, because I think this school is up to an age of 14 for these kids”.
(P2, L 514–516)
The interviews both touched on topics such as decision-making, insecurities about the future, as well as insecurities on the process so far, and personal/parental engagement. Despite totally different family histories, different SENs with the diagnosis at different point of times, and other circumstances, both interviews show similarities when it comes to the process of choosing a new education institution out of a feeling that the current educational institution does not fit the needs of the respective child as well as struggling to find guidance in the decision process. P1 and P2 both managed the change of school locations despite these struggles. In P2 and her son’s case, she rejected the school recommended by the school authority, raising the question of why parents and authorities diverge on the best school choice for a pupil with SEN.
The parents’ perspectives stressed their wish for the best school possible for the further development of their child. Yet, difficulties of compatibility with the child’s special needs, the lack of suitable and available schools that are also reachable by a reasonable commute, and difficulties with job compatibility also became clear.
3.2. School-Based Experts’ Perspectives
In the interviews with school-based experts (E2 and E3), the following categories were developed in the field of SEN, language, and forced migration background: (1) the different functions of identifying SEN, (2) the connection between SEN and language/forced migration background, (3) the role of parents as persons to be advised by experts (such as teachers, expert reviewers, and consultants), and (4) the diagnosis process of SEN.
3.2.1. Different Functions of Determining SEN
In the interview with an expert on special needs education, three different functions of SEN were identified. The first one was SEN as a “resource hub” (E2, L 206). In Austria, the identification of SEN is associated with the approval of certain resources, for example, additional teachers and also the possibility to graduate from compulsory schooling (E2, L 209–210). Therefore, pupils need the label SEN in order to receive the support they need in school. In addition to seeing SEN as a resource for additional support, the identification of SEN can also have an effect of redemption and opportunity for pupils. Pupils who receive SEN status must first fail in the Austrian school system and the general curriculum. This means that these pupils need to undergo many negative experiences during their educational career before they get SEN status.
Because the feeling that their performance is not sufficient extends to the whole person, the educational experts stated that after all these negative experiences, the SEN status can have a redeeming effect for many pupils. By creating a more comfortable and positive class experience through, for instance, a different curriculum, pupils would not be constantly confronted with the feeling of their own failure (E2, L 163–167). In contrast to this positive aspect of SEN status, the diagnosis of SEN could also turn into a self-fulfilling prophecy. In this regard, once a pupil’s information about SEN gets registered in their general school data, their performance, without ever seeing this pupil in class, may be appraised worse than it actually is by teachers. One special education expert explained,
“because you know then self-fulfilling prophecy and when a pupil has got something like that [SEN] in his file yes well then (...) he is appraised worse than he is”.
(E2, L 318–321)
The conclusion that can be drawn from the special education expert’s assumption is that the diagnosis of SEN must be well considered and supported by special education expert opinion(s).
3.2.2. The Role of Parents as Advisees
In Vienna, a pupil’s parents apply for their children to receive SEN status (L 407–408). However, the impetus comes from teachers or diversity managers. The interviewed educational expert stated that parents often consider it very bad news when they are informed of their child’s special education needs,
“Uh I have a consultation with the parents there. When I am there, I am the bad news person. The second-worst thing (after death) that can happen in the life of parents (…)”.
(E2, L 333–337)
The news that a child has special education needs offends many parents. This can be due to the fact that many parents are not knowledgeable about SEN and its consequences for the educational career of their child. The complex process of determining SEN and difficulties in understanding the procedure itself as well as the consequences of SEN due to language or culture could be reasons for parents’ lack of knowledge or rather an unawareness, according to the educational expert. This unknowingness and, to a certain extent, powerlessness on the part of parents often arises from the fact that they are not able to accept offers (e.g., advice on SEN or school choice) for various reasons. These reasons could be, for example, language difficulties or their own psychological problems such as traumatization or simply feeling overwhelmed with the situation (E2, L 859–863).
E3 refers to parents’ lack of information regarding the location of available school types and disability. She associates this with levels of involvement, cultural backgrounds, and language knowledge. Identifying disability at the onset and distinguishing disability from behavioral issues poses special challenges. It was only after being asked for a specific example and being tempted by the use of the term trauma that E3 referred to the importance of considering psychological issues and the specific challenges posed to the families at their arrival. Transdisciplinary collaboration, also during transitional phases, for example, between kindergarten and school, plays an important role in coping with the specific challenges of these children.
3.2.3. Diagnosis Process of SEN
During the interview, E2 outlined the diagnosis procedure of identifying SEN, which is also depicted in
Figure 3. Special education experts working in special education centers in the school region or special education teachers at the school are contacted by the principal or teacher(s). After receiving the call that the school needs their advice, the key data (background information, grades, teachers’ observation and assessment) of the respective pupil is provided to the special education expert (E2, L 113–114). After that, a short anamnesis interview with the class teacher (E2, L 421–423) about the pupil occurs where they try to clarify whether the child is unable to cope with the demands of the curriculum (a) owing to a special situation (e.g., trauma, family) or (b) would there also have been problems otherwise and to clarify whether there was previous school attendance and whether the pupil has a first language (E2, L 473–485). Checking whether the pupil has a first language is important according to E2, because there are some pupils who do not have any first language at all (E2, L 484–485). Interestingly, the special education expert decisively raised the question of the pupil’s (first) language in connection with the diagnosis process of SEN. After this short anamnesis interview, the expert observed the pupil in class and single setting to check the child’s skills in terms of school-level requirements and their individual abilities (E2, L 126–130).
After observation, the special education expert tries to classify the pupil into one of the following groups: (1) Pupils where the “problem” (E2, L 240) is so virulent that something has to be done promptly because the child cannot be frustrated any further (E2, L 240–242); (2) pupils where the SEN is already apparent because of, for example, medical reasons (E2, L 253–257); (3) there are difficulties regarding the pupil and the requirements of the curriculum, but no SEN status is required (E2, L 276–280); (4) as a fourth group, the special education expert mentioned pupils with considerable problems related to certain categories, for example, SEN in language, and, if that is the case, the experts refers them to another expert (E2, L 281–286).
While a special educaiton expert prepares a kind of special education report on the pupil, the aptitude of the pupil is also assessed by a school psychologist. The special education expert finds this procedure and especially the test formats of this psychological report highly problematic (E2, L 176–180).
In a further step, the special education expert gives their recommendation to the class teacher or principal on how to proceed, although the special education expert does not officially have an advisory function (E2, L 289–292). Once two special education expert opinions have been drawn up, the application for proceedings is forwarded to the legal department of the Vienna School Board which is responsible for issuing the administrative decision.
After a child has received SEN status by the legal department of the local school board, the special education expert, together with the school management of the respective district of the pupil, takes care of the choice of school. In most cases, if a pupil is in primary school and gets SEN status, they remain in their class (individual integration), and if not, the special education expert looks for a suitable school in consultation with parents and principals of different schools (E2, L 328–333). Once a place at a school has been found and the procedure has been completed by the Vienna School Board, the parents have to sign the decision. E3 defines the moment of visiting the prospective school as vital in the decision-making process. Seeing the premises and understanding school provision seems to play an important role for some parents to understand the concept of special education schools. If they refuse to sign, theoretically the local school board may initiate legal proceedings, but in most cases, parents eventually sign the SEN decision.
3.2.4. Age at the Time of Diagnosis
The school-based experts both perceive the age at the time of the allocation of SEN status as pivotal. E3 also points out that in some cases, the exact diagnosis of a child’s age is not possible due to missing documents. Most often, SEN status is allocated during primary school. In some cases, however, SEN status is already identified in kindergarten. In this case, many expert opinions, especially psychological assessments, have already been obtained and a so-called integration status (E2, L 362) in kindergarten usually leads to pupils receiving the curriculum for pupils with increased support needs at school (E2, L 361–368). In these cases, the school-based expert is called regarding children starting school in order to advise parents on the choice of school or special preschool classes with intensive support (E2, L 382–388). Regarding SEN diagnosis during primary school, the educational expert stated that, actually, there is a rule that the identification of SEN may only be applied for the first time during primary school (E2, L 715–716). However, there are some restrictions during primary school, as well as no applications for SEN should be made during the first year of school, except when absolutely necessary, in order to allow the pupil to arrive at school (E2, L 712–715).
There are exceptions to the rule to only identify SEN by the end of primary school in the case of children with a forced migration background, for example, if they arrive in Austria during secondary school or at the age of a secondary school pupil (E2, L 716–720).
3.2.5. Interconnectedness of SEN, Language, and Forced Migration
One category that could be identified as connecting SEN, language, and forced migration background concerns the so-called German language support classes and courses in Austria. According to E2, it is important to invest in the field of language support, but this fails to be implemented. The problem begins with the fact that only pupils with insufficient German language skills attend German language support classes, and therefore no remedial effect can be achieved by learning from each other. The educational expert is also critical of the way in which the German language support classes are allocated. The so-called MIKA-D procedure, a language test, does not differentiate between language groups regarding the pupil’s first language, and therefore disadvantages pupils because of the levels of relatedness of their first language to German (E2, L 997–1005). According to the educational expert, a further weakness of the German language support classes is that there are no subject lessons and the pupils, therefore, cannot follow the requirements of the curriculum after their return to regular classes because of their lack of basic subject matter knowledge. The nexus between German language support classes and SEN is that after two years, the status of extraordinary pupils is invalidated and they return to the regular classes. After this return, some teachers call the educational expert to discuss whether these pupils do have SEN (E2, L 939–942). In most cases, the educational expert can calm the teachers and tell them that the respective pupils do not have SEN, but in some cases, after two years in German language support classes, the SEN diagnosis process is initiated. Nevertheless, apart from the disadvantages of the German language support classes, the educational expert makes it clear that teachers who teach in these classes do their best and, although it is not the optimal solution, there is currently no alternative. Ideally, the educational expert would like to see a model in Austria where a maximum of 30% of pupils in class have language difficulties or first languages other than German, in order to enable them to learn from each other and benefit from the remedial effect mentioned above (E2, L 960–962).
Another connection between SEN and language is that in most of the educational experts’ cases, the pupils in question actually do have a first language other than German (E2, L 499–501). Although both the Vienna School Board and educational experts stressed (several times) that the mere fact of having a first language other than German does not lead to SEN status, educational experts stated that the combination of SEN and other first languages is very common. Reasons for this could be that a lot of pupils with SEN and a first language other than German have often been absent from kindergarten, don not visit an all-day school, or grow up in a family environment with illiteracy (E2, L 741–744).
To follow the lessons in school, the educational experts believe that a degree of linguistic competence is necessary, and therefore tries to strengthen the awareness of pupils and parents of how important language is for school (E2, L 511–513). Therefore, parents are encouraged to ”speak to their children in their first language’ (E2, L 519) in order to enable them to learn German as a second language after the first language has been consolidated. By this attempt to raise awareness, the educational experts claim that there is a connection between language and culture, since they believe that learning a language means opening up to a certain culture and that it is problematic if there are milieus that refuse to do so (E2, L 746–749). However, educational experts considers parents to be responsible, and also the Austrian education system, as they find it irresponsible that language and origin can exert such great influence on the educational careers of pupils and “that so many pupils in such a rich country [like Austria, amendment AG] have the cards stacked against them moving forward” (E2, L 732–733). Because of the function of schools as signposts for further educational careers, it is increasingly the case that parents who have the opportunity to do so are more likely to choose schools where the best possible support is guaranteed, which unfortunately often means that especially in Vienna, selecting schools with a small proportion of pupils with first languages other than German, “because school has long been marketable, of course, and parents choose and uh nobody puts their child into a setting uh where it is clear that uh the element that is conducive to learning is not guaranteed for their own child” (E2, L 966–968).
Parents of pupils who do not have the possibility to choose between different schools are often parents of pupils from socioeconomically weak milieus or pupils with a forced migration background (E2, L 101–106). The educational experts had to consider the connection between forced migration background and disability/SEN very carefully. The educational experts stated that there certainly are pupils who come to Austria traumatized as a result of their past, but there are also those who have not been traumatized (E2, L 827–830). In connection with forced migration background and severe trauma, the educational experts argued that learning can often be very healing for these pupils (E2, L 836) and that in some of these cases so-called protective SEN status is granted, which is often later revoked, after it is no longer necessary. The intention of this protective SEN status is to give pupils time to participate in school without constant rejections and feelings of failure (E2, L 843–845) and also to give pupils the opportunity to obtain a positive compulsory school leaving certificate (E2, L 870–871).