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“Not Thinking that This Means the End When You Are Seriously Ill but Doing Something Positive about It”—A Qualitative Study of Living with A Life-Changing Disease

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Sahlgrenska Academy, Institute of Medicine, Geriatric Medicine and Clinical Osteoporosis Research School, University of Gothenburg, 4405 30 Gothenburg, Sweden
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Palliative Care Unit, Sahlgrenska University Hospital, 400 43 Gothenburg, Sweden
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Regional Cancer Centre West, Sahlgrenska University Hospital, 413 45 Gothenburg, Sweden
*
Author to whom correspondence should be addressed.
Diseases 2019, 7(3), 53; https://doi.org/10.3390/diseases7030053
Received: 28 May 2019 / Revised: 6 September 2019 / Accepted: 9 September 2019 / Published: 11 September 2019
Background: Chronic diseases have an impact on and can change the lives of the persons affected by them. This study examines how a disease can influence patients’ daily lives, the strategies they adopt to cope, and their experiences of support. The study focuses on four chronic diseases: asthma-allergy, cancer, diabetes mellitus, and inflammatory rheumatic arthritis. Methods: The study has a qualitative design and includes 41 transcribed in-depth interviews and a content analysis. Results: The participants’ new life situation was changed for a very long time or forever, and this was not a voluntary choice. The new life situation comprised the following themes: life-changing—the disease could be a turning point in a negative or positive way, strategies—designed to create ways of coping with daily tasks to find a good quality of life, and support—that could be obtained from the participants’ private network or the healthcare professionals. Conclusions: The patients had to make changes in their daily life, and these could bring about different feelings and restrict activity. Healthcare professionals need more knowledge of the process of coping with such life-changing matters and what could strengthen patients and give a sense of empowerment in their lives. View Full-Text
Keywords: chronic disease; turning point; strategies; support; life-changing chronic disease; turning point; strategies; support; life-changing
MDPI and ACS Style

Benkel, I.; Ljungqvist, E.; Arnby, M.; Molander, U. “Not Thinking that This Means the End When You Are Seriously Ill but Doing Something Positive about It”—A Qualitative Study of Living with A Life-Changing Disease. Diseases 2019, 7, 53.

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