The Weight of Loneliness: Family Resilience and Social Support Among Parents of Children with and Without Special Needs
Abstract
1. Introduction
The Current Study
- What are the associations between perceived social support, loneliness, and family resilience among parents of children with and without special needs?
- Does loneliness mediate the relationship between perceived social support and family resilience?
- Does the child’s developmental status moderate the strength of the relationships among these variables?
2. Materials and Methods
2.1. Procedure
2.2. Participants
2.3. Research Instruments
2.4. Data Analysis
3. Results
4. Discussion
4.1. Limitations
4.2. Practical Implications
5. Conclusions
Author Contributions
Funding
Conflicts of Interest
References
- Al-Jadiri, Aseel, David J. Tybor, Christina Mulé, and Christina Sakai. 2021. Factors associated with resilience in families of children with autism spectrum disorder. Journal of Developmental and Behavioral Pediatrics 42: 16–22. [Google Scholar] [CrossRef] [PubMed]
- Ammari, Tawfiq, Sarita Schoenebeck, and Meredith R. Morris. 2014. Accessing social support and overcoming judgment on social media among parents of children with special needs. Proceedings of the International AAAI Conference on Web and Social Media 8: 22–31. [Google Scholar] [CrossRef]
- Antonovsky, Aaron, and Talma Sourani. 1988. Family sense of coherence and family adaptation. Journal of Marriage and the Family 50: 79–92. [Google Scholar] [CrossRef]
- Awwad-Tabry, Sawsan, and Inbar Levkovich. 2025. Supporting caregivers: Enhancing parental well-being through resources for autism care in school-based family counselling. Journal of Psychologists and Counsellors in Schools 35: 66–77. [Google Scholar] [CrossRef]
- Black, Keri, and Marie Lobo. 2008. A conceptual review of family resilience factors. Journal of Family Nursing 14: 33–55. [Google Scholar] [CrossRef]
- Brennan, Eileen M., Julie Rosenzweig, Pauline Jivanjee, and Lisa M. Stewart. 2016. Challenges and supports for employed parents of children and youth with special needs. In Oxford Handbook of Work and Family. Edited by Tammy D. Allen and Lillian T. Eby. Oxford: Oxford University Press, pp. 165–18. [Google Scholar] [CrossRef]
- Brinker, Jenna, and Vinay K. Cheruvu. 2017. Social and emotional support as a protective factor against current depression among individuals with adverse childhood experiences. Preventive Medicine Reports 5: 127–33. [Google Scholar] [CrossRef]
- Buecker, Susanne, Jaap J. A. Denissen, and Maike Luhmann. 2021. A propensity-score matched study of changes in loneliness surrounding major life events. Journal of Personality and Social Psychology 121: 669. [Google Scholar] [CrossRef]
- Burton, Rosalinda Strano, Jennifer Zwahr-Castro, Cara L. Magrane, Hugo Hernandez, Laura G. Farley, and Nancy Amodei. 2018. The nurturing program: An intervention for parents of children with special needs. Journal of Child and Family Studies 27: 1137–49. [Google Scholar] [CrossRef]
- Cihan, Hudayar, and Esra Calik Var. 2023. Developing a model on the factors affecting family resilience in the COVID-19 pandemic: Risk and protective factors. Current Psychology 42: 20259–74. [Google Scholar] [CrossRef]
- Currie, Genevieve, and Joanna Szabo. 2020. Social isolation and exclusion: The parents’ experience of caring for children with rare neurodevelopmental disorders. International Journal of Qualitative Studies on Health and Well-Being 15: 1725362. [Google Scholar] [CrossRef]
- Enache, Rodica Gabriela, and Iuliana Mitu. 2022. Coping mechanisms of families of children’s with special education needs. Technium Social Sciences Journal 34: 84. [Google Scholar] [CrossRef]
- Fergus, Stevenson, and Marc A. Zimmerman. 2005. Adolescent resilience: A framework for understanding healthy development in the face of risk. Annual Review of Public Health 26: 399–419. [Google Scholar] [CrossRef] [PubMed]
- Fernández-Ávalos, María Inmaculada, María Nieves Pérez-Marfil, Rosario Ferrer-Cascales, Francisco Cruz-Quintana, and Manuel Fernández-Alcántara. 2020. Feeling of grief and loss in parental caregivers of adults diagnosed with intellectual disability. Journal of Applied Research in Intellectual Disabilities 34: 712–23. [Google Scholar] [CrossRef] [PubMed]
- Fredrickson, Barbara L. 2001. The role of positive emotions in positive psychology: The broaden-and-build theory of positive emotions. American Psychologist 56: 218. [Google Scholar] [CrossRef] [PubMed]
- George-Levi, Sivan, Roni Laslo-Roth, and Lital Ben Yaakov. 2023. Vulnerability to loneliness among fathers of children with autism spectrum disorder: The role of interpersonal and familial resources. Family Process 63: 364–78. [Google Scholar] [CrossRef]
- Greeff, Abraham P., and Claudia Nolting. 2013. Resilience in families of children with developmental disabilities. Families, Systems, and Health 31: 396–405. [Google Scholar] [CrossRef]
- Gugliandolo, Maria Cristina, Francesca Liga, Rosalba Larcan, and Francesca Cuzzocrea. 2023. Parents of children with developmental disorders: Family hardiness and resilience. Journal of Intellectual and Developmental Disability 48: 334–39. [Google Scholar] [CrossRef]
- Hassan, Amel Ahmed, Amal Mohammed Hamid, and Nagla Hassan Eltayeb. 2021. Burden on parenting of children with special needs: Review article. EAS Journal of Nursing and Midwifery 3: 64–75. [Google Scholar] [CrossRef]
- Hazan-Liran, Batel. 2024. The contribution of psychological capital and parental age to job satisfaction: A comparison of parents of children with autism spectrum disorder and parents of typically developing children. Frontiers in Education 9: 1354732. [Google Scholar] [CrossRef]
- Hobfoll, Stevan E. 1989. Conservation of resources: A new attempt at conceptualizing stress. American Psychologist 44: 513. [Google Scholar] [CrossRef]
- Johnson, Benjamin E., and Wendel A. Ray. 2016. Family systems theory. In The Wily Blackwell Encyclopedia of Family Studies. Edited by Constance L. Shehan. Hoboken: Wiley-Blackwell. [Google Scholar] [CrossRef]
- Kalalo, Royke Tony. 2024. The role and function of single parents in special needs children to combat loneliness. Surabaya Psychiatry Journal/Jurnal Psikiatri Surabaya 13: 119–24. [Google Scholar] [CrossRef]
- Kemperman, Astrid, Pauline van Den Berg, Minou Weijs-Perrée, and Kevin Uijtdewillegen. 2019. Loneliness of older adults: Social network and the living environment. International Journal of Environmental Research and Public Health 16: 406. [Google Scholar] [CrossRef]
- Laursen, Brett, and Amy C. Hartl. 2013. Understanding loneliness during adolescence: Developmental changes that increase the risk of perceived social isolation. Journal of Adolescence 36: 1261–68. [Google Scholar] [CrossRef]
- Levi, Ronli, Ronit Ridberg, Melissa Akers, and Hilary Seligman. 2022. Survey fraud and the integrity of web-based survey research. American Journal of Health Promotion 36: 18–20. [Google Scholar] [CrossRef] [PubMed]
- Luhmann, Maike, Susanne Buecker, and Marilena Rüsberg. 2023. Loneliness across time and space. Nature Reviews Psychology 2: 9–23. [Google Scholar] [CrossRef] [PubMed]
- Mahmood, Areej, and Afsheen Gul. 2023. Parental stress, familial burden and quality of life in parents of children with Down syndrome. Journal of Professional and Applied Psychology 4: 61–70. [Google Scholar] [CrossRef]
- Nowland, Rebecca, Gill Thomson, Lara McNally, Timothy Smith, and K. Whittaker. 2021. Experiencing loneliness in parenthood: A scoping review. Perspectives in Public Health 141: 214–25. [Google Scholar] [CrossRef]
- Pellicano, Elizabeth, Dawn Adams, Laura Crane, Calliope Hollingue, Connie Allen, Katherine Almendinger, Monique Botha, Tori Haar, Steven K. Kapp, and Elizabeth Wheeley. 2024. A possible threat to data integrity for online qualitative autism research. Autism 28: 786–92. [Google Scholar] [CrossRef]
- Pepperell, Te Ana, Jessica Paynter, and Linda Gilmore. 2018. Social support and coping strategies of parents raising a child with autism spectrum disorder. Early Child Development and Care 188: 1392–404. [Google Scholar] [CrossRef]
- Pietnoczko, Magdalena, and Stanisława Steuden. 2020. The need for social support and the health condition of parents of children with cancer. Palliative Medicine in Practice 14: 157–65. [Google Scholar] [CrossRef]
- Pineda, Chelsea Nicole, Moira Pauline Naz, Annedel Ortiz, Ella Louisse Ouano, Nathaniel Pierce Padua, Jaime Paronable, Jr., Janella Mae Pelayo, Minette Coleen Regalado, and Gian Carlo S. Torres. 2022. Resilience, social support, loneliness and quality of life during COVID-19 pandemic: A structural equation model. Nurse Education in Practice 64: 103419. [Google Scholar] [CrossRef]
- Russa, Mary Bower, Amy L. Matthews, and Jamie S. Owen-DeSchryver. 2015. Expanding supports to improve the lives of families of children with autism spectrum disorder. Journal of Positive Behavior Interventions 17: 95–104. [Google Scholar] [CrossRef]
- Russell, Dan, Letitia A. Peplau, and Carolyn E. Cutrona. 1980. The revised UCLA Loneliness Scale: Concurrent and discriminant validity evidence. Journal of Personality and Social Psychology 39: 472. [Google Scholar] [CrossRef]
- Shenaar-Golan, Vered. 2017. Hope and subjective well-being among parents of children with special needs. Child and Family Social Work 22: 306–16. [Google Scholar] [CrossRef]
- Straughan, Paulin Tay, and Chengwei Xu. 2023. How does parents’ social support impact children’s health practice? Examining a mediating role of health knowledge. Global Health Research and Policy 8: 8. [Google Scholar] [CrossRef] [PubMed]
- Tedeschi, Richard G., and Lawrence G. Calhoun. 2004. Posttraumatic growth: Conceptual foundations and empirical evidence. Psychological Inquiry 15: 1–18. [Google Scholar] [CrossRef]
- Uchino, Bert N., Kimberly S. Bowen, and Robert G. Kent de Grey. 2016. Social support and mental health. In Encyclopedia of Mental Health, 2nd ed. Edited by Howard S. Friedman. Cambridge: Academic Press, pp. 189–95. [Google Scholar] [CrossRef]
- Walsh, Froma. 2016. Applying a family resilience framework in training, practice, and research: Mastering the art of the possible. Family Process 55: 616–32. [Google Scholar] [CrossRef] [PubMed]
- Zimet, Gregory D., Nancy W. Dahlem, Sara G. Zimet, and Gordon K. Farley. 1988. The multidimensional scale of perceived social support. Journal of Personality Assessment 52: 30–41. [Google Scholar] [CrossRef]
Variables | Subscale | Special Needs Child (n = 60) | Typical Child (n = 60) |
---|---|---|---|
Gender | Males | 19 (32%) | 22 (37%) |
Females | 41 (68%) | 38 (63%) | |
Age | Range | 25–63 (M = 42) | 26–62 (M = 44) |
Working Status | Not Working | 4 (7%) | 15 (25%) |
Working Full-Time | 33 (55%) | 29 (48%) | |
Working Part-Time | 23 (38%) | 16 (27%) | |
Family Status | Single | 2 (3%) | 4 (7%) |
Married | 49 (82%) | 50 (83%) | |
Divorced | 8 (13%) | 5 (8%) | |
Widower | 1 (2%) | 1 (2%) | |
Number of Children | Range | 1–6 (M = 3) | 1–5 (M = 3) |
An Additional SE Child | Yes | 13 (22%) | - |
No | 47 (78%) | - | |
Number of SE Chlidren | Range | 1–4 (M = 2) | - |
Variables | M (SD) | 1 | 2 |
---|---|---|---|
Total (n= 120) | |||
1. Family Resilience | 5.02 (0.98) | ||
2. Social Support | 5.39 (1.29) | 0.496 *** | |
3. Loneliness | 1.99 (0.58) | −0.476 *** | −0.824 *** |
Parents of Special Needs Child (n = 60) | |||
1. Family Resilience | 4.89 (1.05) | ||
2. Social Support | 4.98 (1.38) | 0.269 * | |
3. Loneliness | 2.19 (0.57) | −0.370 ** | −0.838 *** |
Parents of Typical Child (n = 60) | |||
1. Family Resilience | 5.15 (0.89) | ||
2. Social Support | 5.80 (1.04) | 0.742 *** | |
3. Loneliness | 1.78 (0.52) | −0.581 *** | −0.759 *** |
Variables | Parents of Special Needs Child (n = 60) | Parents of Typical Child (n = 60) | ||
---|---|---|---|---|
M (SD) | t (118), p | Cohen’s d | ||
Family Resilience | 4.89 (1.05) | 5.15 (0.89) | −1.471, p = 0.144 | 0.267 |
Social Support | 4.98 (1.38) | 5.80 (1.04) | −3.659, p < 0.001 | 0.671 |
Loneliness | 2.19 (0.57) | 1.78 (0.52) | 4.063, p < 0.001 | 0.751 |
Disclaimer/Publisher’s Note: The statements, opinions and data contained in all publications are solely those of the individual author(s) and contributor(s) and not of MDPI and/or the editor(s). MDPI and/or the editor(s) disclaim responsibility for any injury to people or property resulting from any ideas, methods, instructions or products referred to in the content. |
© 2025 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (https://creativecommons.org/licenses/by/4.0/).
Share and Cite
Hazan-Liran, B.; Levkovich, I. The Weight of Loneliness: Family Resilience and Social Support Among Parents of Children with and Without Special Needs. Soc. Sci. 2025, 14, 531. https://doi.org/10.3390/socsci14090531
Hazan-Liran B, Levkovich I. The Weight of Loneliness: Family Resilience and Social Support Among Parents of Children with and Without Special Needs. Social Sciences. 2025; 14(9):531. https://doi.org/10.3390/socsci14090531
Chicago/Turabian StyleHazan-Liran, Batel, and Inbar Levkovich. 2025. "The Weight of Loneliness: Family Resilience and Social Support Among Parents of Children with and Without Special Needs" Social Sciences 14, no. 9: 531. https://doi.org/10.3390/socsci14090531
APA StyleHazan-Liran, B., & Levkovich, I. (2025). The Weight of Loneliness: Family Resilience and Social Support Among Parents of Children with and Without Special Needs. Social Sciences, 14(9), 531. https://doi.org/10.3390/socsci14090531